tissue college an is the basis of the human skeleton to move all. skinny a. even some adults don't become aware of the fact that they are affected until they give birth to a child that suffers from a more severe form of the disease in its worst form it changes the shape of the child's chest to build to make their arms and legs shorter and in this state even something as light and insignificant as a blanket can cause fracture as. there's a swelling beneath the eye here did you hit something you always have brother can hit her mate with fooling around well well here we have a person that we can already send to the anesthesiologist.

now we're going to have an orthopedic surgery most likely it's going to be done on the left but strictly speaking both should be operated on but then will begin with the left one simply because it's so to form that it prevents her from resting on both feet. lisa is determined to walk she can already stand on her feet she's trying her best but she can't walk because of these deformities we hope that she's going to learn little by little to begin she's going to have to start using a walker we think that everything will work out in the end we'll be keeping our fingers crossed for her. a good morning i just know of how you doing. with a good patient he elizabeth elisa oestrogen this is simple fact she wouldn't wear planning surgery for today that they missed to fix the deformities with flexible titanium pens to remedy the angle that if i'm asian and restore the limbs to

a normal links in the conditions. ok just how old are you then say well what a big goal. you know what my i didn't think i was an outsider when you reach the elder twin brother totally healthy. my uncle brother is ok too. in the election

my father suffered from brittle bone disease but he could walk using crutches. my mother left us because she felt the problem was too much for. that my father had to take on her role in the house to. which you could use i made some progress after being taught to walk by one time the wheelchair turned over to a mishap as a result of both my thighs fractured at the same time that morning when the doctor arrived he said just don't touch him don't touch him and that's how my childhood came to an abrupt end to a myth that. the will of god is omnipotent. which i found my soul mate on which the woman who'd shares my interests and principles was legally god willing we will go through life together and it should. if we have to

enjoy our trials and tribulations well but also be at it at ease but then you don't import that given. us our first child was born on the first death february two thousand and three. when i was fifteen weeks pregnant my child was diagnosed with the disorder you know that the fortunately there was no internet at the time so i was not aware of how serious the condition actually is. that just says to. in the challenge of our sammy said to me you had been warned about everything it was still in decision to i think you ought to terminate the pregnancy. my second pregnancy was out of the blue none of us could figure out when it could have happened. just staring at each

other and shrugging our shoulders that's how teenagers behave in similar situations . because our second child is ok we have been under a great deal of pressure not to have a second child especially considering that my wife. would be running the risk of dying during childbirth. the argument was simple it was this. should she leave this world there be no telling what might happen to the first child but thank goodness that never came to us. was the disease to me by any chance to carry on with a kitten is like playing with kittens i didn't become the disease. you didn't. know you were a didn't either but i did and i passed it on to maria and i said that's how it is. in the overwhelming majority of cases the failure of just one gene is enough for

all stewed genesis imperfecta to be inherited. the risk of those impacted passing the disorder on to their children. had french as when she was still in the womb the first months was the most difficult period she spent it all in an intensive care. and fractures. both arms. have fractured twice. happened when they were messing around at the time i wasn't being attentive enough i didn't stop them in there playing around. when i began chasing the cat she lost her balance fell over and broke. that incident to lay treatment they even said that further treatment might be pointless but if none was provided

immediately then she'd be back to square one. if this kept happening over and over again then we would all of found it very difficult to deal with. one is a very painful. one does it hurt. here. that's where it's supposed. to hard yesterday to remember. it's best to forget about it. came with me to the lift. and that was it then they took me away. and after that i didn't feel anything.

but i slammed i woke up and then that was it i didn't feel anything it was like magic i was worried about some technical aspects rather than the operation itself you think would have happened so the operation was successful but of course it's hard to look at to try to be honest but it's a little. i didn't want to a few moments on the forms registering her as disabled until she was three years old. i felt unworthy of society because my child was disabled i didn't want to me that she was an invalid but whenever i rolled the promo with or lying flat on her belly everybody knew there had to be another stricture. oh are you ok ok here i've got a present for you it's

a russian doll this time too but it is over a different kind it's made of crystal. thank you thank you for it's quite heavy yeah i have your than my cast. i wish. as a rule i come here to meet the parents of other children suffering from austin genesis imperfecta first and last. god when our daughter was born we had no idea what would become of her doctors predicted a very poor outlook or that they said the child was unlikely to be able to walk and faced a very bleak future with dr natalia below has spent years treating children afflicted with the disease and that she was the one who came up with the idea of setting up an association of parents with such children are not going as a by the time i had treatment this is on clinical psychology realized that some

simple methods could make life much easier for those parents. i need to meet if i knew that sharing my knowledge with others wouldn't be much of a burden to me but i just wasn't by them yet so i volunteered to have their so see . every two months of the operation we're going to remove the costs today. i want to i can see only part of this bone this is on they've removed it. all together. it was almost center right angle. had to be fixed somehow you. understand from my contact with children and their families but most parents need support and encouragement. because i noticed children are

unlikely to be teased if they sense that the parents are also on a comfortable but i didn't i mean psychological or physical. skill. our bush bush bush. world more or. less a push against. her but you don't overdo it you know your enemy would be gentle. your. kill you through with the salk. can you reach out to. more of our right to do the same with the other hand do you need to rest against it closer to those now it's like a yoga exercise. when the child was born i couldn't understand what was wrong with her she was like jalen her burns was soft and flexible. we didn't tamper with her

limbs they just fixed and each time they got thread chert she was in plaster for six weeks at a time she was simply fall down and break its. muscles don't support her spine throw. half hour walk is not to make her spine show through the process of compression. my do exercises with her. so i think she feels more comfortable when by her side. they are the most most difficult is making her realized that she must help herself by getting stronger through exercise yes wish you guys. the borders now might be more menace to the children playing in the courtyard oh boy it's good they keep it to arm's length then i can't take part in simpler games

because there aren't enough goes around she doesn't need contact with other people i see that she wants to to communicate. the world that's going to work. she knows she has admirers and that's a source of inspiration for. the rest of though. listen i want to invite you to attend the event you've been looking forward to the place is called the museum of intertainment science all of us will be there inside and. by the way coming to. grades haven't seen each other for a long time you miss him english very much.

choose your language. make it with zero influential some of.

the concerns to. choose the opinions that invigorating. choose the stories that impact the. child's access to. download the official cation to yourself choose your language stream quality and enjoy your favorite. if you're away from. your

mobile device you can watch on t.v. anytime anywhere. both my parents were atheists it's a say they were among those people who with bills to save your union realty and in most days it wasn't all that easy to express your faith here in the twentieth century. but when i started to live on my own then i was baptized and that's when i was twenty six years old. it was abundantly clear to me that if i had a guardian angel who was looking over me and protecting i. would be hurting his feelings would really not be a nice thing to do and wish to leave i felt that i would offend him if i didn't

join the orthodox church with. his new. look at the cross here in this holy place that the. family. was murdered in nineteen eighteen and their holy remains with. those of alexy the heir apparent. and his sister has. that's why this is a holy place anymore they pray for us to understand.

i don't have the worst husband and the wild mind children on two problematic either . things on say dreadfuls i had to have to complain and we pause a time. i want is a tough place to live and i'd like the children to be more self-reliant without being dependent on other people. to set the front on the thing is that because see life as something beyond your rachel is something you can't cope with but but if you're a human being in the proper sense of the word like heal i'm almost anything is within your powers but i just feel i may have become somewhat braver but i chose to

rely on god's will in the media i had a dream that i wanted to visit st petersburg a lot of the kind of stuff like by nurtured it for twenty five years i yearned to go at it because they'll say finally my dream came true that if you abandon yourself to god's will in the belief that what ever happened swill happen it's easier for you to achieve your goals. but gives you the courage to face unknown challenges. murmur mama told me you either we're going to go to school or study at home i said i'm going to go to school clay all children. i don't know we're just staying at home and studying on my own would be boring i don't have any bad grades only good

and great going into will be school i don't like reading or writing writing takes too much time and it could take i am not particularly fond of reading mathematics is more interesting for you we do exercises and drug patterns in our math lessons new orleans. you get a yeah i'm going to be an artist the worst thing is because drawing that's what i like most of all. this. the children understand that d.s. is not like that they know they'd better not pass to her and leave her alone to avoid unnecessary problems. but she does try to join in. sometimes she even chases other children as she drives her wheelchair around the room or else she chimes in when the boys or girls are discussing something and the chairs

friends and the certain fifth forms as well as her room. to school to go to space he will without me sometimes she asks me to stir pick up books because she finds it difficult and those are two goals i fear for his safety because she might fall from the chair she leans over the screen if i knew that somebody was taking good care of her school. i'd get a job bad my injury. has turned my life around before she was born i wasn't aware of what the world is like for disabled people it really was beyond my perception that i sensed that their problems provided me with a host of opportunities for reassessing my values and now i communicate with an entirely different kind of people interesting people my life has taken quite a different turn and i like it very much. my first wish was to bring them

together so that parents could see one another and children could realize they weren't the only ones suffering from that disorder is what they need to know that other children have been diagnosed with the same disease but the elite in normal life all the same but here they can do what they like it's very important for parents to know how they choose when feel they should allow them to move as much as they can. you run a risk by doing so but it's a risk worth taking because you know why you are taking it for. a new broom bauer's they are friendly to one another more than that girls know communicate with boys for example i know that has a bit of a crush on the kids a searing heat.

that was all it's so beautiful. thanks air will come. when the kids and i first met i had planted to talk about always glad to own that there was somebody else like me. explain on line games. if i find a new. he placed it with me i was on the proceeds of. the congress sends me messages as soon as i am on the internet. love your children since with children in wheelchairs i would love to meet more people so that i could visit them for birthdays and other parties.

i'll tell you gave birth to twins this kid would come from the kitchen carrying the baby brought to a ledge if she would use it to feed them with my own. good day for the good but she was only three years old and already as she was trying to help me. i knew that. known as. ill i wish you happiness and health. i hope you'll be condoms and well behaved. i love you i love you. go out. my husband says that when where god the other children will take care of her no doubt about that school for the love of it's great to have such a family it is such

a blessing in syria. some kids don't move much but there's no stopping her she one sits in five minutes. and says all we're doing. well is concerned both the state of our health them to the state of our family i think we can convention eight house house and wish told her that she can have a good life. and she knows that does a good deal of interesting news for the name to taining things in this wotan's jill has never faced a situation when nobody needs her. honestly if i had a child diagnosed with austere genesis perfect i wouldn't have a problem with that i'd be glad if it happened in my life it's because i know these

children so well and they're full of optimism and i know that they're going to go very far in life that i did what any parent has to be proud of such a childhood i just wish that there were no tears and there was no pay. wealthy british style. is no time to explicitly. markets why not. come to find out what's really happening to the global economy

with mike's cause or for a no holds barred look at the global financial headlines tune into kinds or report on r t. we speak your language they will not advance. news programs and documentaries and spanish what matters to you breaking news a little tonnage of angles keep the stories. you hear. all teach spanish find out more visit eye to eye all tito is calm.

and. i. sigrid laboratory to mccurdy was able to build a new its most sophisticated robot which all unfortunately doesn't give a darn about anything tim's mission to teach creation why it should care about

humans and worry this is why you should care only on the dot com. here the reindeer is everything for the herders. and when it suffers people do their best to help. but the distances are. and the roads are. unpredictable.