social critique this weekend i want you guys to get out there hate to do something go go to the museum get in nature get off your cell phone and really just live life and start breeding have a good night. least be told language. the programs and documentaries in arabic it's all here on all t.v. reporting from the we'll talk sports to vo ip interviews intriguing story for you. in trying. to find out more visit our big teeth dog called. you know how sometimes you see a story and it seems so. you think you understand it and then you glimpse something else you hear or see some other part of it and realize everything you thought you

knew you don't know i'm tom hardy welcome to the big picture. download the official publication to your cell phone choose your language stream quality and enjoy your favorite. if you're away from your television just doesn't go about with your mobile device so you can watch on t.v. anytime anywhere. still needs it was born don't just told us she had multiple fractures they also said lisa would be a difficult child to handle she was bedridden the first. she had to eat inside. on

a cushion because she would cry when we touched. yet i probably fell from the chair and i from the sofa and that didn't hurt at all but then i fell off the arm chair and i broke my leg. i cried for a while. and then at those sleep. but why why why why did it have to be us. to cheat. the system for factor is one of the most common congenital bone disorders

affecting children if we're talking about those that are present from birth to believe i suppose the sufferers have brittle bones and are at risk of multiple fractures but they are mineral metabolism is in good order the ailment is due to faulty college information. as the main protein in connective tissue college and is the basis of the human skeleton more. court more wiley's even some adults don't become aware of the fact that they are affected until they give birth to a child that suffers from a more severe form of the disease in its worst form it changes the shape of the child's chest to build fractures to make their arms and legs shorter and in this state even something as light and insignificant as a blanket can cause fractures. there's

a swelling beneath the i hear that you hit something and you always have brother you can hear her say it with feeling around well well here we have a person that we can already send to the anesthesiologist. now we're going to have an orthopedic surgery most likely it's going to be done on the left but strictly speaking both should be operated on but then will begin with the left one simply because it's so deformed that it prevents her from resting on both feet. lisa is determined to walk she can already stand on her feet she's trying her best but she can't walk because of these deformities we hope that she's going to learn little by little to begin she's going to have to start using a walker we think that everything will work out in the end we'll be keeping our

fingers crossed for her. but good morning i just tell you doing. with the patients he elizabeth elisa oestrogen this is simple fact she wouldn't wear planning surgery for today that they missed to fix the deformities with flexible titanium pins to remedy angular to familiar and restore the limbs to a normal links equations. oh ok and how old are you seven wow what a big girl. i

didn't think i was an outsider when you reached the elder twin brother is totally healthy yet. my younger brother is ok too. in the election my father suffered from brittle bone disease but he could walk using crutches. my mother left us because she felt the problem was too much for. that my father had to take on her role in the house to. which you could use i made some progress after being taught to walk by one time the wheelchair turned over due to a mishap as a result of both my thighs fractured at the same time that morning when the doctor

arrived he said just don't touch him don't touch him and would announce how much childhood came to an abrupt end to a myth that. the will of god is omnipotent. in the initial thoughts i found my soul mates and the woman who'd shares my interests and principles was legally god willing we will go through life together new kids and he stands with the thought if we have to enjoy our trials and tribulations well but also be. but then you've given. us our first child was born on the prairie two thousand and three. when i was fifteen weeks pregnant my child was diagnosed with a just released. them but unfortunately there was no internet at the time so i was not aware of how serious the condition actually is. geneticist who was in charge of

our sin he said to me you had been warned about everything it was your decision to i think you ought to terminate the pregnancy. my second pregnancy was out of the blue none of us could figure out when it could have happened we went through just staring at each other and shrugging her shoulders that is how teenagers behave in similar situations. is our second child. we had been under a great deal of pressure not to have a second child especially considering that my wife. would be running the risk of dying during childbirth. the argument was simple it was this. should she leave this world there'd be no telling what might happen to the first child but thank goodness that never came to us. was the disease to me by any

chance to carry on with a care for you like playing with a kitten i didn't pick up the disease. you didn't. know you were a didn't either but i did and i passed it on to maria and i said that's how it is. in the overwhelming majority of cases the failure of just one gene is enough for all stewed genesis imperfecta to be inherited. the risk of those in fact passing the disorder on to their children. had french as when she was still in the womb the first months was the most difficult period for me she spent it all in intensive care. and fractures. both arms. have fractured

twice. happened when they were messing around at the time i wasn't being attentive enough i didn't stop them and they're playing around. like that when they began tracing the camp she lost her balance fell over and broke. that incident delayed treatment they even said that further treatment might be pointless but if none was provided immediately then she'd be back to square one. if this kept happening over and over again then we would all of found it very difficult to deal with. this is what is a very painful. so what does it do to. you. now you hear. that's where it's supposed. to heard yesterday to remember now ok it's best to

forget about it. came with me to the lift. and that was that then they took me away. and after that i didn't feel anything. but i said lance i woke up and then that was it i didn't feel anything it was like magic i was worried about some technical aspects rather than the operation itself you think would have happened so successful but of course it's hard to look at a child tough to be honest but it's a little. i didn't want to fill out all the forms registering her as disabled until she was three years old. i felt unworthy of society because my child was disabled i didn't

want to me that she was an invalid but whenever i rolled the promo with or lying flat on her belly everybody knew i had to be and not the fracture. oh are you. ok here i've got a present for you it's a russian doll this time too but it is of a different kind it's made of crystal. thank you thank you. it's quite heavy yeah i have a year then my cast. i wish. as a rule i come here to meet the parents of other children suffering from auster genesis imperfecta first and last. god when our daughter was born we had no idea what would become of her doctors predicted a very poor outlook but they said the child was unlikely to be able to walk and

faced a very bleak future with dr natale below has spent years treating children afflicted with the disease she was the one who came up with the idea of sitting up in the. parents with such children. by the time this is in clinical psychology realized that some simple methods could make life much easier for those parents. to meet if i knew that sharing my knowledge with others wouldn't be much of a burden to me. so i volunteered to have their so see. every two months of the operation we're going to remove the costs today. i want to i can see only part of this bone this is all they've removed it. all together.

it was almost center right angle. had to be fixed somehow you. understand from my contact with children and their families but most parents need support and encouragement. because i noticed children are unlikely to be. if they sense that the parents are also in a comfortable but i do i mean psychological a. scam. our bush bush bush. world more or. less a push against. her but don't overdo it. it would be gentle. you . kill you too with the salt. and all the rice you do the same with the other hand do you need to rest against it

closer to those now it's like a yogi exists. when the child was born i couldn't understand it was wrong with her she was like job and her burns was soft and flexible. we didn't tamper with hellenes they just fixed and each time he got threat shirt she was in plaster for six weeks at a time she would simply fall down and break. muscles don't support his spine throw. a half hour walk is not to make a spine show through the process of compression. but i do exercises with. one that i think she feels more comfortable when by her

side. what's most difficult is making her realized that she must help herself by getting stronger through exercise. you grace. the board with the might be more menace to the children tain in the courtyard bowl it's good they keep playing their arms length then i can't take part in simpler games because there aren't enough goes around she doesn't need contact with other people i see that she wants to to communicate. the world that we need to work. she has she has admirers and that's a source of inspiration for. the wrath of hello world. listen i want to invite you to attend the event you've been looking forward to the place is called the museum of intertainment

science all of us will be there in saturday. by the way coming to. grey it's barren seen each other for a long time you miss him. very much.

see. i live.

both my parents were atheists it's the same they were among those people who built

a savior to union realty and in those days it wasn't all that easy to express your faith here in the twentieth century. but when i started to live on my own then i was baptized that's when i was twenty six years old. it was abundantly clear to me that if i had a guardian angel who was looking over me and protecting my. hurting his feelings would really not be a nice thing to do and most of i felt that i would offend him if i didn't join the orthodox church of. fish and if the happiest i. look at that across here in this holy place is that the what the law says see the entire family of royal must as was murdered in nineteen eighteen it is there and their holy remains with. those of alexey the heir apparent and his sister as. that's why this is

a holy place any more they pray for us to understand. i don't have the worst husband and the wild mind children on two problematic either. things on say drug phones that i have to complain and weep on the time. they want is a tough place to live and i'd like the children to be more self-reliant without being

dependent on other people. to set the from stone the thing is that because see life as something beyond your rachel is something you can't cope with but but if you're a human being in the proper sense of the word like human almost anything is within your powers but i just feel i may have become somewhat braver when i chose to rely on god's will again i had a dream that i want. to visit some petersburg blow at the corners of the public by nurtured it for twenty five years i yearn to go that would give the dolphins finally my dream came true that if you abandon yourself to god's will in the belief that what ever happens will happen it's easier for you to achieve your goals. that gives you the courage to face unknown challenges.

mama told me either we're going to go to school or study at home i said i'm going to go to school ok like all children. i don't know what just staying at home and studying on my own would be boring i don't have any bad grades only good and great going into will i don't like reading or writing writing takes too much time and since i am not particularly fond of reading mathematics is more interesting for you we do exercises and draw up patterns in our math lessons new orleans. you get a yeah i'm going to be an artist the worst thing is because drying that's what i

like most of all. the children understand that d.s. is not like that they know they'd better not pass to her and leave her alone to avoid unnecessary problems. but she does try to join in. sometimes she even chases other children as she drives her wheelchair around the room she chimes then when the boys or girls are discussing something she has friends and the surge and fifth forms as well as her own also. discovered she copes pretty well without me sometimes she asks me to stir pick up books because she finds a disappointment just desserts and will i fear for his safety because she might fall from the chair she leans over the skin if i knew that somebody was taking good care of her school i'd get a job bad mine dream. only

has turned my life around before she was born i wasn't aware of what the world is like for disabled people it really was beyond my perception i sensed that their problems provided me with a host of opportunities for reassessing my values. now i communicate with an entirely different kind of people interesting people my life has taken quite a different turn and i like it very much. my first wish was to bring them together so that parents could see one another and children could realize they weren't the only ones suffering from that disorder is that they need to know that other children have been diagnosed with the same disease but the elite in normal life all the same but here they can do. what they like it's very important for parents to know how they children feel they should allow them to move as much as

they can. you run the risk by doing so but it's a risk worth taking because you know why you are taking it for. a new group hours they are friendly to one another more than that girls know communicate with voice for example i know that has a bit of a crush on the kids a searing heat. while it's so beautiful. thanks you're welcome. when the kids and i first met had planted to talk about always glad to rebel and that there was somebody else like me over the hill i explained on line games. if i find a new game he placed with me was on the proceeds. going to sends me messages

as soon as i am on the internet. love to show doing things with children in wheelchairs i would like to meet more people so that i could visit them for birthdays and other parties. of that easy this gave birth to twins this kid would come from the kitchen carrying the baby bottle legislate she would use it to feed them with my own. that it would be for the good but she was only three years old and already she was trying to help me. yeah i knew. known as.

el al i wish you happiness and health. i hope you'll be condoms and well behaved. i love you i love you. thanks. my husband where the other children will take care of her no doubt about. the love it's a great to have such as. it is said to blessing. some kids don't move much but there's no stopping her she once it's been five minutes. and says all we're doing this concerns both the state of health

this is day to valve family i think we can convention a house to house and told her that she can have a good life. and she knows that does a good deal of interesting useful and entertaining things in this world to the chill of never faced a situation where nobody needs her. honestly if i had a child diagnosed with all stewed genesis perfect i wouldn't have a problem with that i be glad if it happened in my life it's because i know these children so well and they're full of optimism and i know they're going to go very far in life that i did with any parent has to be proud of such a child i just wish that there were no tears and there was no pay.

there are twelve cities in the united states in which half of the people with hiv aids lives within a year of. over sixty two percent and. most with this is a problem that frankly is substantially preventable it was like the big elephant in the room and nobody wanted to talk about there were really good public health campaigns if people really focused on this problem you certainly should be able to a lot less a lot less human suffering.