from the sofa and that didn't hurt at all but then i fell off the arm chair and i broke my leg. i cried for a while. and then at those sleep. why. why did it have to be us. to cheat. the system for factor is one of the most common congenital bone disorders affecting children if we're talking about those that are present from birth it's a bit of a surprise was the sufferers have brittle bones and are at risk of multiple fractures but there mineral metabolism is in good order the ailment is due to faulty college

information. as the main protein in connective tissue college in is the basis of the human skeleton more. to court mumbai least even some adults don't become aware of the fact that they are affected until they give birth to a child that suffers from a more severe form of the disease in its worst form it changes the shape of the child's chest to boom. make their arms and legs shorter and in this state even something as light and insignificant as a blanket can cause fractures. there's a swelling beneath the eye here did you hit something new isn't perhaps there you can hear her mate with fooling around well well here we have a person that we can already send to the anesthesiologist.

now we're going to have an orthopedic surgery most likely it's going to be done on the left but strictly speaking both should be operated on but then will begin with the left one simply because it's so deformed that it prevents her from resting on both feet. lisa is determined to walk she can already stand on her feet she's trying her best but she can't walk because of these deformities we hope that she's going to learn little by little to begin she's going to have to start using a walker we think that everything will work out in the end we'll be keeping our fingers crossed for her. but on a good morning i go just go up how you doing. but still be patient he elizabeth elisa oestrogen this is simple fact she wouldn't wear planning surgery for today

that they missed to fix the deformities with flexible titanium pens to remedy the anger that if i'm a sion and restore the limbs to a normal links in the conditions. ok just how old are you then say wow what a big girl. i didn't think i was an outsider when you reached the elder twin brother totally

healthy yet. my younger brother is ok too. in the election my father suffered from brittle bone disease but he could walk using crutches. my mother left us because she felt the problem was too much for. that my father had to take on her role in the house to. which you could use i made some progress after being taught to walk by one time the wheelchair turned over to a mishap as a result of both my thighs fractured at the same time that when the doctor arrived he said just don't touch him don't touch him and that's how much childhood came to an abrupt end to a myth that. the will of god is omnipotent. in the initial search i've found my soul mates. the woman who'd shares my interests and principles it was

legally god willing we will go through life together and if it. if we have to enjoy our trials and tribulations well sobieski that he is but then you don't import that given. us our first child was born on the first of february two thousand and three. which is when i was fifteen weeks pregnant my child was diagnosed with the disorder you know that unfortunately there was no internet at the time so i was not aware of how serious the condition actually is. that just says to. in the challenge of our sin he said to me you had been warned about everything it was just say shouldn't you i think you ought to terminate the pregnancy. my second pregnancy was

out of the blue none of us could figure out when it could have happened. just staring at each other and shrugging her shoulders that's how teenagers behave in similar situations. because our second child. we had been under a great deal of pressure not to have a second child especially considering that my wife. would be running the risk of dying during childbirth. the argument was simple it was this. should she leave this world there'd be no telling what might happen to the first child but thank goodness that never came to us. was the disease to me by any chance look here i am with a careful like playing with kittens i didn't pick up the disease did i. didn't. know you were a didn't either but i did it and i passed it on to maria and i said that's how it

is. in the overwhelming majority of cases the failure of just one gene is enough for all stewed genesis imperfecta to be inherited. the risk of those in fact in passing the disorder on to their children. had fractures when she was still in the womb the first months was the most difficult period she spent it all in an intensive care. and fractures. both arms. have fractured twice. oh happened when they were messing around at the time i wasn't being attentive enough i didn't stop them in there playing around. was that when i began tracing the cat she lost her balance fell over and broke. the incident to lay the

treatment they even said that further treatment might be pointless but if none was provided immediately then she'd be back to square one. if this kept happening over and over again then we would all of found it very difficult to deal with. one is a very painful. one does it hurt. you. here. that's where it's. hard yesterday to remember. it's best to forget about it. came with me to the lift. and that was it then they took me away.

and after that i didn't feel anything. but i slept i woke up and then that was it i didn't feel anything it was like magic i was worried about some technical aspects rather than the operation itself anything could have happened so the operation was successful but of course it's hard to look at a child after being honest but it's a little. i didn't want a few moments on the forms registering her as disabled until she was three years old. i felt unworthy of society because my child was disabled i didn't want to me that she was an invalid. but whenever i rolled to the promo with all of the lines flat on her belly everybody knew there had been another fracture.

oh are you. ok here i've got a present for you it's a russian doll this time too but it is of a different kind it's made of crystal. thank you thank you for the description it's quite heavy yeah i have your than my cast. i wish. as a rule i come here to meet the parents of other children suffering from austin genesis imperfecta and list. god when our daughter was born we had no idea what would become of her doctors predicted a very poor outlook but they said the child was unlikely to be able to walk and faced a very bleak future with dr natale below has spent years treating children afflicted with the disease and that she was the one who came up with the idea of sitting up in the societe of parents with such children are not going as by the time this is

on clinical psychology realized that some simple methods could make life much easier for those parents. i did to meet if i knew that sharing my knowledge with others wouldn't be much of a burden to me because this wasn't so i volunteered to have their so see. every two months of the operation we're going to remove the costs today. i want to i can see only part of this bone this is all they've removed it. all together. yeah. it was almost ten to right angle. and had to be fixed somehow you. understand from my contact with children and their families but most parents need support and encouragement.

because i noticed children are unlikely to be teased if they sense that the parents are also in a comfortable that i didn't i mean psychologically. our bush bush bush. world more or. less a push against. her but don't overdo it. would be gentle. can you through with the salk. can you reach out to me. more about the right to do the same with the other hand do you need to rest against it closer to those now it's like a yoga exercise. when the child was born i couldn't understand what was wrong with her she was like jalen

her burns were soft and flexible. we didn't tamper with helen's they just fixed and each time they got thread chert she was in plaster for six weeks at a time she was simply fall down and break. muscles don't support her spine throw. half hour walk is not to make her spine show through the process of compression. i do exercises with her. so i think she feels more comfortable when i am by her side. what's most difficult is making her realized that she must help herself by getting stronger through exercise yes the bush league race. on the board has now michael

moore most of the children playing in the courtyard oh boy it's good they keep it to arm's length then i can't take part in simpler games because there aren't enough goes around she doesn't need contact with other people i see that she wants to to communicate. the world that we need to work. she has she has admirers and that's a source of inspiration for. the rest of. the world. listen i want to invite you to attend the event you've been looking forward to the place is called the museum of intrigue taining science all of us will be there inside and. by the way coming to. grades balancing this all the long time you miss him. very

much. government no longer represents the people. the people are going to take such are.

we. not be traditional. the way our economic system really is. not. cut cut cut cut cut. cut. cut cut. i. i. i.

live. i. am. one who. calls you both my parents were atheists

it's the same they were among those people who with bills to save you have the union to live and in those days it wasn't all that easy to express your faith the adult here in the twentieth century what the good. of that when i started to live on my own then i was baptized that's what i was twenty six years old. it was abundantly clear to me that if i had a guardian angel who was looking over me and protecting i had a free will because i'm hurting his feelings would really not be a nice thing to do and most of it would leave i felt that i would offend him if i didn't join the orthodox church with the. fusion if a. look at that across here in this holy place of the what the law says see the entire family of royal musses was murdered in nineteen eighteen it is there and their holy remains will. be those of alexy the heir apparent and his

sister as. that's why this is a holy place any more they pray for us to understand. i don't have the worst husband and the wild mind children on two problematic either. things on said dreadfuls that i have to complain and weep on the time. they want is

a tough place to live and i'd like the children to be more self-reliant without being dependent on other people. yes the front of the thing is that because see life as something beyond your reach or something you can't cope with the worst but if you're a human being in the proper sense of the word almost anything is within your powers but if i may have become somewhat brave it would chose to rely on god's will to gain me here i had a dream that i wanted to visit some petersburg because the public they nurtured it for twenty five years i yearned to go that would give those and finally my dream came true that if you abandon yourself to god's will in the belief that what ever happens will happen it's easier for you to achieve your goals. but

gives you the courage to face unknown challenges. murmur mama told me either we're going to go to school or study at home i said i'm going to go to school ok like all children. and then i was staying at home and studying on my own would be boring i don't have any bad grades only good and great going into will i don't like reading or writing writing takes too much time and since i am not particularly fond of reading them or mathematics is more interesting for you we do exercises and drug patterns in our math lessons new orleans. get a yeah i'm going to be an artist the

worst thing is because drawing that's what i like most of all. this. the children understand that these is not like that they know they better not pass to her and leave her alone. voyde unnecessary problems. but she does try to join in . sometimes she even chases other children as she drives her wheelchair around the room or as she chimes then when the boys or girls are discussing something with the girl she has friends and the surge and fifth forms as well as her own. i discovered she copes pretty well without me sometimes she asks me to stack pick up books because she finds it difficult and doesn't deserve to go so i fear for his safety because she might fall from the chair she leans over. if i knew that somebody was taking good care of her school i'd get

a job bad my injury. has turned my life around before she was born i wasn't aware of what the world is like for disabled people it really was beyond my perception that i sensed that their problems provided me with a host of opportunities for reassessing my values and now i communicate with an entirely different kind of people interesting people my life has taken quite a different turn and i like it very much. my first wish was to bring them together so that parents could see one another and children could realize they weren't the only ones suffering from that disorder is not what they need to know that other children have been diagnosed with the same disease but the elite and normal life all the same but here they can do what they like it's very important

for parents to know how they'd children feel they should allow them to move as much as they can. you run the risk by doing so but it's a risk worth taking because you know why you are taking it for. a newsgroup hours they are friendly to one another more than that girls know communicate with voice for example i know that has a bit of a crush on nikita searing heat. woll it's so beautiful. thanks here will come. when the kids and i first met had plenty to talk about always glad to read on that there was somebody else like me who the belie explained on line games. if i find a new game he placed with me was on the proceeds to. circle the sends me

messages as soon as i am on the internet. love to show doing things with children in wheelchairs i would like to meet more people so that i could visit them for birthdays and other parties. i'll tell you gave birth to twins this kid would come from the kitchen carrying the baby bottle legit and she would use it to feed them with my own. but a good bit of the good but she was only three years old and already she was trying to help me this year i knew that first known as the.

hill i wish you happiness and health. i hope you'll be caught and well behaved. i love you i love you. thank you. because my husband where the other children will take care of her no doubt about. the love it's a play to have such. it is such a blessing in syria. some kids don't move much but there's no stopping her she once it's been five minutes. but also says all we're doing really this concerns both the state of our

health and this day develop. i think we can convention a to house house and told her that she can have a good life. and she knows that does a good deal of interesting years for the name to taining things in this world she was never faced a situation when nobody needs her. honestly if i had a child diagnosed with austere genesis perfect i wouldn't have a problem with this i'd be glad if it happened in my life it's because i know these children so well and they're full of optimism and i know that they're going to go very far in life that i did with any parent has to be proud of such a child i just wish that there were no tears and there was no pay.

the mission. couldn't take three. three. three. three. three. three. there are twelve cities in the united states in which half of the people were lives. they were really good. people really focused on the.

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