brittle bones and are at risk of multiple fracture but there mineral metabolism is in good order the ailment is due to faulty college information. as the main protein in connective tissue college and is the basis of the human skeleton to move all. these to portman by least even some adults don't become aware of the fact that they are affected until they give birth to a child that suffers from a more severe form of the disease in its worst form it changes the shape of the child's chest to build fractures make their arms and legs shorter and in this state even something as light and insignificant as a blanket can cause fractures. there's a swelling beneath the eye here did you hit something new as emperor out there you

can hear her mate with fooling around well well here we have a person that we can already send to the anesthesiologist. now we're going to have an orthopedic surgery most likely it's going to be done on the left but strictly speaking both should be operated on but then will begin with the left one simply because it's so deformed that it prevents her from resting on both feet. lisa is determined to walk she can already stand on her feet she's trying her best but she can't walk because of these deformities we hope that she's going to learn little by little to begin she's going to have to start using a walker we think that everything will work out in the end we'll be keeping our fingers crossed for her. a good morning i just tell you

doing. but still be patient he elizabeth elisa oestrogen this is simple fact she wouldn't wear planning surgery for today that they missed to fix the deformities with flexible titanium pens to remedy the angular to from a shoe and restore the limbs to a normal links in the conditions. ok just hold you self while what a big goal. i

didn't think i was an outsider when you reached the elder twin brother is totally healthy yet. my younger brother is ok too. in the election my father suffered from brittle bone disease but he could walk using crutches. my mother left us because she felt the problem was too much for. that my father had to take on her role in the house to. which you could use i made some progress after being taught to walk by one time the wheelchair turned over to a mishap as a result of both my thighs fractured at the same time that when the doctor arrived he said just don't touch him don't touch him and that's how much childhood came to an abrupt end to a myth that. the will of god is omnipotent. in the initial thoughts i

found my soul mate. the woman who shares my interests and principles it was legally god willing we will go through life together richard he stands with the thought if we have to enjoy our trials and tribulations well sobieski that he is but then you don't import that given. us our first child was born on the first of february two thousand and three. when i was fifteen weeks pregnant my child was diagnosed with the disorder you know that unfortunately there was no internet at the time so i was not aware of how serious the condition actually is. that just says to. in the challenge of our sin he said to me you had been warned about everything it was a decision to i think you ought to terminate the pregnancy. my second

pregnancy was out of the blue none of us could figure out when it could have happened. just staring at each other and shrugging our shoulders that's how teenagers behave in similar situations. is our second child. we had been under a great deal of pressure not to have a second child especially considering that my wife. would be running the risk of dying during childbirth. the argument was simple it was this. should she leave this world there'd be no telling what might happen to the first child but thank goodness that never came to pass. was the disease postpone to me by any chance look here i am with a careful like playing with kittens i didn't pick up the disease did i. didn't.

know you were a didn't know it but i did and i passed it on to maria and i said that's how it is . in the overwhelming majority of cases the failure of just one gene is enough for all stewed genesis imperfecta to be inherited. the risk of those impacted passing the disorder on to their children. that's. where it had french as when she was still in the womb the first months was the most difficult period for me she spent it all in an intensive care. and fractured. both arms. have fractured twice. oh happened when they were messing around at the time i wasn't being attentive enough i didn't stop them in there playing around. when i began tracing

the cat she lost her balance fell over and broke. that incident to lay treatment they even said that further treatment might be pointless but if none was provided immediately then she'd be back to square one. if this kept happening over and over again then we would all of found it very difficult to deal with. one is a very painful. one does it hurt. you. here. that's where it's. hard yesterday to remember. it's best to forget about it. i came with me to the lift. and that was it then they took me away.

and after that i didn't feel anything. but i slept i woke up and then that was it i didn't feel anything it was like magic i was worried about some technical aspects rather than the operation itself anything could have happened so the operation was successful but of course it's hard to look at to try to be honest but it's a little. i didn't want to feel mode on the forms registering her as disabled until she was three years old. i felt unworthy of society because my child was disabled i didn't want to me that she was an invalid but whenever i rolled the promo with or lying flat on her belly everybody knew i had to be and not the fracture.

oh are you. ok here i've got a present for you it's a russian doll this time too but it is of a different kind it's made of crystal. thank you water it's quite heavy yeah i have a year then my cast i wish. as a rule i come here to meet the parents of other children suffering from austin genesis imperfecta first and last in the garden when our daughter was born we had no idea what would become of her doctors predicted a very poor outlook but they said the child was unlikely to be able to walk and faced a very bleak future with dr natale below has spent years treating children afflicted

with the disease is what she was the one who came up with the idea of sitting up in the societe of parents with such children are not going as a by the time i had treatment this is in clinical psychology realized that some simple methods could make life much easier for those parents. i did to meet if i knew that sharing my knowledge with others wouldn't be much of a burden to me by the bush this wasn't so i volunteered to have their so see. through months of the operation we're going to remove the costs today. i want to i can see only part of this bone this is odd they've removed it. all together. it was almost center right angle. and had to be fixed somehow you.

understand from my contact with children and their families but most. parents need support and encouragement. because i noticed children are unlikely to be teased if they sense that the parents are also one comfortable with that idea i mean psychologically or physically. our bush bush bush. world more or. less a push against. her but don't overdo it go your way would be gentle. yeah . true at the salk. can you reach out to me. more about the right to do the same with the other hand do you need to rest against it closer to those now it's like a yoga exercise. when

the child was born i couldn't understand what was wrong with her she was like a job and her burns were soft and flexible. we didn't tamper with her limbs they just fixed and each time they got fractured she was in plaster for six weeks at a time she would simply fall down and break. muscles don't support a spine throw. by half hour walk is not to make her spine show through the process of compression. my do exercises with her. so i think she feels more comfortable when i am by her side. what's most difficult is making her realized that she must help herself by getting

stronger through exercise yes the bush league race. on the border with the law might be more menace to the children taint in the courtyard oh boy it's good they keep them at arm's length then i can't take part in simpler games because there aren't enough girls around she doesn't need contact with other people i see that she wants to to communicate. the world that's going to work. she has she has admirers and that's a source of inspiration for her. there at the. world. listen i want to invite you to attend the event you've been looking forward to the place is called the museum of interest taining science all of us will be there in saturday. by the way coming to.

graduates haven't seen each other for a long time you miss him. very much. download the official application to yourself choose your language stream quality

and enjoy your favorite. if you're away from your television or it just doesn't matter now with your mobile device you can watch ati anytime anywhere. the government no longer represents the belief. that people are going to take stuff there. we. will look into. the way our economic system. is not.

a. it was cruel. and. they seem to be the cause both my parents were atheists it's a say they were among those people who built the soviet union realty and in those days it wasn't all that easy to express your faith the care in the twentieth century or the idea of it when i started to live on my own then i was baptized if that's what i was twenty six years old. it was a fundamentally clear to me that if i had

a guardian angel who was looking over me and protecting i. and hurting his feelings would really not be a nice thing to do and most of the way i felt that i would offend him if i didn't join the orthodox church with the. whole nation. look at that across here in this holy place. says he the entire family of royal masses was murdered in nineteen eighteen it is there and their holy remains were. those of alexey the heir apparent and his sisters. that's why this is a holy place and the more they pray for us to understand.

i don't have the worst husband and the wild mind children on two problematic either . things own say drug phones are to have to complain and we pause the time. the world is a tough place to live and. i'd like the children to be more self-reliant zone being dependent on other people. to feel. safe but the dumped on the thing is that because it see life as something beyond

your reach or something you can't cope with the worst but if you're a human being in the proper sense of the word almost anything is within your powers but. i may have become somewhat braver but i chose to rely on god's will who gave me here i had a dream that i wanted to visit some petersburg love that there's the public by nurtured it for twenty five years i yearn to go that the bills and finally my dream came true that if you abandon yourself to god's will in the belief that what ever happens will happen it's easier for you to achieve your goals. that gives you the courage to face unknown challenges. mama told me either we're going to go to school or study at home i said i'm going

to go to school ok like all children. i don't know we're just staying at home and studying on my own would be boring i don't have any bad grades only good and great going into will i don't like reading or writing writing takes too much time and sit i am not particularly. and if reading mathematics is more interesting for you we do exercises and drug patterns in our math lessons or. you get a yeah i'm going to be an artist the worst thing is because drawing that's what i like most of all. the children understand that d.s. is not like that they know they better not pass to her and leave her alone to avoid unnecessary problems. but she does try to join in. sometimes she even

chases other children as she drives wheelchair around the room she chimes then when the boys or girls are discussing something with the girl she has friends and the certain fifth forms as well as her own also. discovered she copes pretty well without me sometimes she asks me to stir pick up books because she finds it difficult just desserts and i fear for his safety because she might fall from the chair she leans over the skin if i knew that somebody was taking good care of her school i'd get a job bad mine dream. only has turned my life around before she was born i wasn't aware of what the world is like for disabled people it really was beyond my perception that i sensed that their problems provided me with

a host of opportunities for reassessing my values and now i communicate with an entirely different kind of people interesting people my life has taken quite a different turn and i like it very much. my first wish was to bring them together so that parents could see one another and children could realize they weren't the only one. and suffering from that disorder is not what they need to know that other children have been diagnosed with the same disease but the elite in normal life all the same. but here they can do what they like it's very important for parents to know how they'd children feel they should allow them to move as much as they can. you run the risk by doing so but it's a risk worth taking because you know why you are taking it for. a new group hours they are friendly to one another more than that girls know

communicate with boys for example i know that has a bit of a crush on the kids a searing heat. that was all it's so beautiful. thanks here will come. when the kids and i first met had planted to talk about always glad to own that there was somebody else like me. explain on line games. if i find a new game he placed it with me was on the proceeds of the. circle in the sense of me messages as soon as i am on the internet. lover shouldn't since with children in wheelchairs i would like to meet more people so that i could visit them for birthdays and other parties.

i'll tell you gave birth to twins this kid would come from the kitchen carrying the baby bottle legit she would use it to. feed them with. their good good will she was only three years old and already she was trying to help me. i knew. known as. el al i wish you happiness and health care. i hope you'll be cause i'm sick and well behaved. and i love you i love you. thank you. my husband says when where the other

children will take care of her no doubt about that. it's a pray to have such. it is such a blessing in syria. some kids don't move much but there's no stopping her she once it's been five minutes. and so far we're doing this concerns both the state of health and the state develop . i think we can convention eight ourselves and told her that she can have a good life. and she knows that there's a good deal of interesting news for the need to taining things in this world she was never faced a situation when nobody needs her. honestly

if i had a child diagnosed with our studio system perfect i wouldn't have a problem with that i'd be glad if it happened in my life it's because i know these children so well and they're full of optimism and i know that they're going to go very far in life that i did with any parent has to be proud of such a child i just wish that there were no two. and there was no pay. mission. critical free. free.

free. free. free. free blog video. free media. there are twelve cities in the united states in which half of the people with hiv aids lives. with this is a problem that. they were really good. people were really focused on this problem you certainly should be able to. get.

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