very much and we're in a knife in our communities we still have many communities are we're talking about and this is a conspiracy the government wanted to kill us so maybe we still have people who still have that mindset people don't like to say. that a government would make an effort to destroy people but black people have had a history. of tusky syphilis experience there was carried on by the federal government for thirty years one thousand nine hundred to one thousand nine hundred seventy two and people said at that time this is a way to get rid of the black population so that's horrible to have to think about . and that kind of planning but we have an entire museum in washington d.c. called the holocaust memorial museum which ag maintain is the most important museum in the united states that everybody should go to that museum because it's not just

about the death. six million people. it's about a government of intelligent people deciding to get rid of a population. they thought was a kind tamina. to see adolf hitler use the term tear mench in german animal people said. as he spoke about the soo much interviewer through which. sold people who think conspiracy theories conspiracy of the out set up a conspiracy is when one segment makes a play and against the interests of another segment and the other segment doesn't know anything about it. and when it comes to matters of mental health and therapy i have to say not guy. was

my. half. of the time it's. just getting back on my daughter to. try to. just. haven't done it. and i think until you know even in the medical school curriculum you know that. until we talk about hiv you know important it is going to go into the next generation. is not just ignorance and stigma associated with a disease ridden lack of compassionate care.

by nineteen ninety five h.i.b. infections among black americans had surpassed white america. blacks accounted for forty percent of all newly infected age hiv cases. the most startling discovery was to learn that african-american women accounted for a greater proportion of new aids cases among african-americans overall in two thousand and three. it rose to become the number one cause of death for black women ages twenty five to thirty four and persis this day. after ten years from now. my husband and three year old daughter and maybe age of twenty nine discovered to have. my third child was born very sick.

we didn't know what was wrong with her no one was able to tell us what was wrong she was in and out of dodge and by the time she was about two my husband began to get sick my husband wasn't feeling well he had a cough we kept going to different doctors they kept misdiagnosing him first they said he had allergies they gave him allergy shots then they said he had tb they tested him he's fine it doesn't have to be after about a full year of trying to figure out what was wrong and they then said ok your blood count is really no he went into the emergency room and they said well you probably have a bleeding ulcer so let's admit you to the hospital and let's check you for you know where that is and we can take care of it they kept misdiagnosing him because he was a family man he was married we owned a home we had children in private school so we didn't fit that

stereotype of what people with aids or a trophy look like people have histories people have done things in their lives. but he had been clean for over ten areas so they didn't see any marks they didn't see anything that they thought was suspicious i guess that's the assumption and sold and never asked him so what happened is that people's perception of who got a scot in that way. so by the time they figured it all out he did not have a bleeding ulcer and they then said ok we need to ask you some of the questions you know have you ever done drugs and those type of questions and then he said yes several years ago when i was in the service. and they tested him and he came back with full blown aids. fellow even while my husband

was sick and dying and a half but all you know i made up i did like many of us that you know i made up stories of what he had i been one telling the truth. because of discrimination because of fear because of and i don't want to people to be afraid of me he die on january first new year's day of course it all made sense then what was wrong with the baby and then she died. in june of that year. i tested myself and my two other children thank god they were healthy and they've given that the virus but i did when i was diagnosed i was very sick i was eighty

pounds i had no t. cells and i was extremely ill so i was diagnosed with aids diagnosis not an a.t.v. diagnosis i was given less than two years to live in the course of six brief months lost her husband of ten years first three year old baby girl and was herself diagnosed with aids. when she reached out to her family i'm blessed that i have the family that i do we don't talk about it but i've never felt like they were afraid to be around me for many of those newly infected with hiv and aids silent except in spite family and friends is often not enough after everything happened i went to one support group. then it was all guys they were nice men. and i was the only woman the problem with that was many of those guys were talking about things like

how do i tell my parents or my family that i am homosexual and now they were those were dear conversations and their fears and their discussions of course when i brought up i am in a panic i just lost my husband my baby i have eight in a four year old i'm going to die soon what do i do it my kids i have to stop working i'm now on disability i went from two incomes to a fixed income a disability check i'm trying to figure it all out so of course i think i'm going to die because that's what i was told and for women for mothers are our focus now becomes not even about herself. it's about our children what's going to happen to our children my children are going to be orphans i can't even stand to be in the house with them and watch them playing because i was so heartbroken that i'm going to be leaving and i could identify with the guys in the group so i figure

i need to talk to some women and see a my only one with this or or or what recognizing that her doctor was seeing other female patients. came up with an idea i asked my doctor if i could put a flyer in our in our office. some of the women so the whole a flyer in her office i put a secret phone line in my home because lots of family and friends didn't know i was dealing with this issue and started ringing and i started we started talking to each other just on the phone none of us wanted to show our faces and as we became more comfortable i would meet them in a coffee shop we started giving each other support that way and then started to support in my home where women will come together bring their children and. talk rye prepare for death and all of those things they were doing pretty much

a. women's group revealed. concerns. from a support group who quickly realize that services for women were non-existent if moms need to get to the doctor she was given a token to get on the bus to the doctor. she was given enough tokens to take the children to the doctor with her so basically she had no childcare she had no transportation so she couldn't go to the doctors she ended up not seeing a doctor so we became a network of women and we shared our our very limited resources we shared our trans. try to point men's. care system. driving children.

including. the care system. full of shy women. group brave soul. able to accommodate the growing number of. women in her home. and started the women's collective in washington d.c. . women are here we are taking care of children. parents. say we have. our own health and. to take care of everybody. and i think. that is. helpful. and support women around the support

system. to help them to be able to take care of themselves. the folks. to better understand why h.i.v.'s still so persistent in the black community we

checked in with you. straight after all it is they who will determine the face of the disease in the years to come. to get well good. science technology innovation all the list i'm elements from around russia we. covered. let me let me i want to wouldn't let me ask you a question. here on this network because we're having a debate we have our knives out. to bring you

the scientists back staying there again here in a situation where being i don't agree to talk about the surveillance. coming up.

i think education is definitely one of the more important pieces to it because people are getting wrong information and they're spraying is wrong information out there we learned about the technical aspects of how you catch it what it is what it stands for are not like percentages things like that and who are mainly affected by . just like general education knowing that stuff like when i had success that in school you never really learned about each of you we just learned. about puberty and about how to put a condom on but they don't really teach you stuff like hiv prevention and who falls into that category of who has it we're minimum incensing we're going to show you

are great men having sex they don't shoot at all here you know it's very important to know about going to times about a man and woman having sex and the risk of what happens but never a femur femur are male male be to broaden it a little bit larger so we know you know we need we need we need to be straight you need to be gay but we need to know information is encouraged and i think it's also important that parents talk more with their children about it we don't talk a lot about that with us kids even today it's still kind of hard to broach that subject with the young people but it is so important. my mother was famous for this and you do it in a bat you'll be a good tool she's a good all the time to do mom i'm a virgin turns through the rough you know you know that you doing the right you're going to get a model i'm pretty sure that's not cancer that's how you catch it ok it's so she found out how to really get it she was like a lot that was a game as disease i thought they were given to us and i thought that's how you get

it just from doing that i didn't have bad days and he was like you know this and i get it i find it funny how when parents automatically assume that your child is going to be shared i mean and they kind of force me to it that is why a lot of conversations about hiv and aids don't really it doesn't really happen in the household because you're taught. you're kind of taught by your parents to be sure and you know to talk about anything that involves your sex life because you're not street is conneally you know taboo to bring into your house it's like i'm not going to talk about you know things that i can get you know by having sex because my mum doesn't want to hear about me having sex with another guy and for me is it's not even about just have to say it's with the same sex or opposite sex. not having sex at all so it doesn't get beyond issues don't have sex and i'm not even windsor you get married type stuff just on sex. you know procreation what if i'm thinking

about you know i'm interested i can talk with my parents about it i don't feel like i can talk to them about that because they already say what they expected as soon as six so i'm like ok if i do have sex what will happen i can get pregnant a lot about this and my kids. i don't know what they are i'm young i don't know an week slowmo h.i.v. we don't even get to that because it's a don't have set i think many more open dialogue about it people are still very very nervous about talking about their sexual health and their sexual behavior talking about sex and it's pretty normal with my group of friends but when they come so like a child b.m.i. educations that s.t.'s on it. that's not their homeland it's really awkward but we do talk about it it's not like it's not existed but usually when i hear other people so my mouth is usually like all some i guess unattractive or ugly was based on the person not their sauce or. all this other stuff so it's usually in

a negative not inspiring or educational light but with my personal friends my close friends issues are like look we be educating people or we're just talking about trying to figure out well what we know or what's true is mind simply to say i'm a child be on my place and all the blame on the press all of the blame will myself and both of those are really unhealthy and can like. people man just. with the abundance of information now available about h i v. their noses up the statistics they believe that as with vitamins all they have to do is pop a pill if they should become hiv positive. community like we do desensitize ourselves so much from aids i mean people as i always a mental disease if you can manage it you've got to have deep pockets that manage it i mean if you don't have insurance because i don't think the average person can

pay fifteen thousand nine hundred dollars in rent and still pay two hundred dollars a month for medication and for those for whom money is not a concern there is a physical cost to taking drugs to fight hiv for pills i take one pill i take a bactrim pill because the key perfections and stuff away and then i take. the opportunity which is helps with the pain in the morning. and so i take that as this clock in the morning i wake up started to take medications because. i did recover from second the medication and i go to have my pill container and i'm out of water in the mornings when i wake up i just open the pill bottle take the pills drink the water down let the side effects go through this. pain tiredness everything that i go through just let it all go through enough it's. good . data

is that. even well treated even with the best drugs someone with a just going to live a shorter life than someone doesn't have aids and i you know i have a lot of friends on these drugs at this point both in africa and here and you know if they could go back and change that and live a life free of a trivium i know for certain that they would. with thirteen percent of the population yet we have the highest rate of infection and again it goes into not a single answer. if i look at how blood pressure what we be i looked at colon cancer where will we be if i look at breast cancer where will we be if i look at. it to one it is clear that the tremendous growth of hiv and aids in america's black community is driven by many factors yet no matter whom we spoke to physicians clergy political leaders and those afflicted with the virus it was clear that the

real culprits behind the epidemic are ignorance miscommunication and most importantly a collective silence about how it is transmitted what it means to live with hiv and its phenomenal spread across black america. if we sincerely want to help the spread of this virus this is a problem that frankly is substantially preventable if there were really good public health campaigns if people were really focused on this problem you certainly should be able to hold a lot less a treasury a lot less human suffering and you would and that would mean a lot less energy and resources both in better societal level but also personally trying to deal with it down the why when someone started sick and i was in london in the mid 1980's and you couldn't turn on the television without seeing the commercial about each having a child be a child be you know can protect yourself get tested etc you know day after day

after day after day after day after day after day and that's a public health education came out of the unit we have not hand at the level of intensity public out there do cation. still don't have a bill we are still talking about and it crease in the number of cases and we need to talk more to people who other people trust in the communities like for example the hair salon the barber shops we go there all the time we have conversations in there about everything you know so you know getting the right information is in places like that places of worship getting the correct information that's a beer can can really help kind of hope this disease is a do you think that. more conversations better you don't necessarily need leadership from the church because you really need is leadership from somebody right so well that happen to have been the case and he continued that was there was

a paraphrase quite right larry kramer was a real leader in this conversation and in zimbabwe and in uganda in congo there were singers who are leaders in this conversations and other places or political leaders who didn't maybe could be almost anybody can write maybe somebody has to stand up and take this on it doesn't matter who it is as long as i personally care as an as her system. kelly and i think what's going to eventually happen as far as in our community is that we need to start letting young people and even young people just people in general understand the power of their voice because eventually was going to happen is that. the new media is going to be this cell phone ok because as they see it they had this put the video because now cell phones you could upload photos directly to youtube all these different things is that now they have the power to tell the story. as more people living with hiv step forward to tell their stories we will no longer be able to ignore them and pretend

we are safe the conversation must be taken to the schools inside the homes and throughout the community to eradicate the myths and fears that feed this preventable disease. today african-americans account for fifty percent of all new h. i.v. infections every year unless we start talking to each other we will become dependent on drugs to live. with succeeding generation. start the conversation. in the elevated to the school don't seem. to have

cities. but the. dad. gets to see. this like the thirteen colonies. still exist. inside still useless blasts thirteen percent of the united states station crisis fifty percent of patients. were you made me. by people she. did each i.v. how did you do to be noticed since before the mist bressant you know pianists underground labs hiding beneath the rain as would you fall from. one of the african. conflicts with my knowledge sees another dose of mythology

districts knowledge and if so with no fisa how to travel across borders probably you know how to look for waters if you want. to sit there you never see no plane to can identify what the light has been the best disease feels in the event of being given the right to kill this disease and significantly prevent you from being ignorant can feel the ambivalent bulis may be different but we suffer the same she. sees you are is the name of the gays most don't see.

you know how sometimes you see a story and it seems so you think you understand it and then you glimpse something else and you hear or see some other part of it and realized everything you thought you knew you don't know i'm tom harpur welcome to the big picture. the cave. you. just eat. six.

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