need information so they can make an informed choice whether that means they have a catastrophic illness and there's there's options for them to enter trial or not i mean i think it's all about information when then candidate trump talked about terminally ill or otherwise desperate people having to travel to other countries he referred to what's been called medical tourism as a doctor are you concerned about the quality control elsewhere and newly comfortable that folks can seek a cutting edge treatment here. well it's always good to have options no matter if you're in this country or not but from a cost perspective stephanie going to be better and easier for patients to access health care here instead of traveling across the world to get care you know the medical tourism industry is actually quite advanced and there's a lot of american trained physicians who actually go back to their country so

there's actually a pretty standardized system out there it's not as wild west as you might think dr elana george thank you not only for joining us from atlanta tonight but thank you for your work. now let's bring in alexandra hall managing director of the isaac foundation whose mission statement speaks of funding innovative research to find a cure for m p s mukul polly sakura dosis a rare debilitating and devastating disease alexandra welcome and did i pronounce that right yes you did while van hollen thank you for having me on briefly what is m.p.'s. so m.p.s. is a very rare disorder it's a metabolic disorder so it really affects a patient's laces soames or their ability to kind of break down you know things in their bodies so they lack of enzymes to properly break the confounds they get

stored in in a patient's you know their joints and their their corneas and it's just everywhere basically and so. are the executive director started the foundation over a decade ago when his son isaac was it was diagnosed with m.p.s. type six and we've just been focused on fund fund raising so that we can support research projects that look to find curative solutions and support patients who are needed and have access to treatment and that's just kind of grown from maris we now work with patients with all those different sorts of rare disorders primarily it's what do you do well your mission statement posted on your website uses the word innovative yet your organization opposes this right to try why. yeah i know it sounds antithetical that a patient advocacy organization like ours would oppose right to try. and i think is us want to make it very clear that we don't oppose that all patients receiving

access to investigation all therapy. outside of clinical trials that is very much at the core at the heart of what we do in what we spend our days trying to do for patients. that said what we want is a tina bill access and an appropriate avenue to get patients on to these these drugs or these treatments that they're often in dire need of. both current and future patients because we also have to look down the line. and you know whatever that avenue is we want to lead towards treatment or efficacious that actually work and that are safe and that's not right to try is you know i think at its best it's providing patients with potholes hope and out it's worth it's going to it can. harm patients well candidate trump vowed to for every new regulation the government would toss out to and president trump sure is keeping that promise and then some in

every area critics of this right to try to say it's let the good times roll for corporate interests in your view is this more of that. i mean i think you've kind of hit the nail on the head in terms of this kind of anterior regulatory everything mood that we're kind of experiencing right now and the thing with right to try is if it purports to be in the best interest of patients. it's an interesting bill that removes a lot of safeguards that should be in place to protect our patients especially the bill that passed a bill to allow for it the right to try which passed in the house on tuesday evening has even further removed the safeguards that had been in place and even earlier iterations of that bill you know so things like there's less for a very best informed consent now you know informed consent the really important part of clinical trials and of patients just knowing what what they're going to be

participating in and what they're taking and the potential complications so that's a lot weaker reporting requirements are much weaker and there's also a much broader eligibility now of who is who can access or who in theory can try to get a drug through right to try to be kind of the sickest sickest patients in the last few months of their life and now it's passed as patients with a life threatening illness which is you know it's a very broad term that's open to interpretation a lot of interpretation if not through f.d.a. and right to try how patients in these circumstances explore other options. well patients have already had the option to apply for a drug. that's currently that you know not through a clinical trial but is pre-approval access to a drug through the f.d.a. expanded access program which has been in place since the early one nine hundred

eighty s. . and it's very much similar idea is right to try patients don't have to be in the clinical trial and if they are in need in this kind of exhausted there are other options they can apply. to the f.d.a. through the miss expanded access program and the f.d.a. overwhelmingly approved applications they receive they approved they were approved over ninety nine percent of applications they receive in the problem area that the crux of the issue really is in order to even see an application the drug manufacturer has to have agreed to provide a patient that truck. and there are a lot of reasons why they might not be able to provide the drug whether it's shortage of drugs or there are still unknown risks. and that is that's still going to be an issue that we're going to have with right to try we have to if if the pharma company is unable or document fracture is unable to provide that drug then there's nothing that can be done about that and that's really kind of the crux of the issue and we're in the same boat that we were in before right to try. i'll

xandra hall from the isaac foundation thanks so much for your time tonight and for the work you do. oh thank you for having me this year television turns ninety years old and the birthday present is for you free t.v. we'll tell you how to cut the cord when we come back this is the big picture on our two america. so we've got. to do is identify the threats that we have it's crazy confrontation let it be an arms race and if he's on offense clearly a dramatic development the only mostly i'm going to resist i don't see how that strategy will be successful very critical time time to sit down and talk.

twenty five years ago companies or go public as a way to expand their would be a viable corporation you have to meet certain criteria to for being a bible corporation and then you're allowed to go public now there are no such criteria so if you're essentially burning through cash and going bankrupt you're using the public marketplace to bail out a losing position. once on television everything and you can watch anywhere any time on any device increasingly we're watching t.v. on the internet cisco forecasts that video streaming will account for seventy eight percent of all mobile traffic by twenty twenty one and research by the consumer

technology association demonstrates a clear pattern while the percent of us paying for cable or satellite is creeping down year to year the number of us watching streaming video is growing which are you corded that means you subscribe to cable or satellite cord freighters have no premium channels cord cutters you've cancelled cable or satellite and never corders are well internet has always been your t.v. your digital natives so which are you and if you're still corded meaning you subscribe to cable or satellite your numbers are shrinking twenty two million in the us a cancelled. and twenty seventeen may be a record for a or you're still connected but to cancel premium channels like h.b.o. if your record cutter you have canceled cable or satellite completely nobody seems to love their cable company except for internet access and if you're never quarter

of the internet has always been your t.v. you're a digital native and clearly the natives are restless if you're rolling your eyes when that cable bill comes each month here's just the guy luke boom is cord cutters news dot com is a buyer's guide for spending less on television look welcome. thank you for having us the first thing i spotted on your website was the channel finder app you enter your zip code and which story of the building your antenna is on and up pops a channel guide signal strength for each channel or even a map of where the towers are very cool so we know we don't need a paved provider to see local news and so-called skinny bundles like sling t.v. started twenty bucks a month for twenty five channel packages including three s p n's c.n.n. t.b.s. t.n.t. amc and others now h.b.o. will directly sell you just h.b.o.

so look our cable giants like comcast following suit or are they living in denial that we want to pay for a bunch of channels we never watch. it's all a bit of both they're definitely denials last week the wall street journal reported that in twenty fourteen e.s.p.n. did a big study and they said cord cutting not going to happen it's not going to grow it's not going continue develop the law if critically proven them wrong on that but increasingly they are starting to try to find ways to address the growing trend of americans watch their t.v. when they want how they want and they don't want to pay for only what they want and that's launched a lot of live t.v. streaming services netflix has really benefited amazon hulu and over two hundred other streaming services across the united states are currently available other than internet access why do we need the cable company what can we only get from cable or satellite like direct t.v. and dish. increasingly nothing for the bass majority of americans

everything you want to watch is available through a streaming service or like you said earlier an antenna the president tablo davy ours which is a great over there d.v.r. said that on average forty channels is what their average d.v.r. picks up with an antenna nowadays a lot has changed and even for air net now very rarely do you need comcast or sprint or some type of cable t.v. provider they all offer increasingly d.s.l. fiber and five g. launching their this year to make home air net much more competitive back when the sopranos was in first run people weren't just subscribing to h.b.o. to see it they were getting connected to cable just to get h.b.o. now a generation later shows like the crown are driving memberships at netflix which you mentioned shares of which as of this week are now worth more than comcast or disney and it costs netflix more than ten million per episode to produce the crown and

they will spend seven to eight billion this year on some eighty originals and don't they have to be because movies are not exclude. been available everywhere right look it's kind of fun to be the person that everybody is chasing after you and now with netflix and hulu and amazon they're all competing for your dollar back when it was just cable a maybe a satellite provider you kind of had to accept wherever they were giving you and now all these cable providers and netflix hulu all the streaming services direct t.v. now think t.v. are all desperate for your money and they're pouring real money into not only making original content but making a better overall experience competition has brought for the first time real options to the world of pay t.v. and it's kind of a nice feeling to be wanted in the world of t.v. right now something we won't see anymore on netflix is disney stuff which disney pulled when they partnered up with the n.b.c. universal and news corp and time warner at hulu which is another one of these

so-called over the top t.v. services i don't have hulu but i do have netflix and because i'm an amazon prime member i get to watch all their video including original programming so how common is it for cord cutters to subscribe to multiple services and do some of them end up spending as much as the cable or satellite subscription they did for the vast vast majority of core cutters you will save a ton of money with hulu netflix both combined costing less than twenty bucks a month and like you said you have amazon many people get it for the free shipping and hey there's a ton of movies and t.v. shows included with that a recent survey showed that most cable subscribers also subscribe to a netflix hulu amazon service so when they cancel the court there are a subscribing to one or more streaming service that helps them keep their costs low and with the average cable bill now being over a hundred bucks those five or ten dollar streaming services are far cheaper option

for most americans is there always somebody out there who may want cable sure there's always the hardcore t.v. fans that may prefer prefer to have cable but for the vast majority of americans you will save. a lot of money i personally save over one hundred ten dollars a month when we cut the cord and our readers tell us about eighty two hundred bucks a month is the average savings they get well the user has clearly taken control and if you've had it up to here with that monthly cable bill visit cord cutters news dot com we just showed their beginner's guide and live t.v. guide charts on screen they are really cool and really useful and you get some product reviews there for antennas and other stuff thank you luke bull mccord cutters news dot com. thank you for having me. ilya posen is the chief growth officer and co-founder of pluto t.v. .