i. spent a lot of time hospital the doctor. and. i was getting. richard has a form of hemophilia a rare and severe inherited disorder that impairs the blood's ability to clot the slightest injury agrees an internal bleed or even just a bruise could cause irreparable damage. and. every day richard inject himself with the blood clotting agent factor 8 these days it's sterile and safe but in the mid seventy's and early eighty's a treatment like this infected about 5000 people in the u.k.

with either hiv or hepatitis c. or even both. richard was a and he had to undergo a series of treatments. are very difficult cos. side effects mood swings and sweating in. part. to take. drugs. in the 1970 s. a new drug called factor 8 was released to using human blood it promised a much easier life for him a philly x. they no longer needed to go to hospital and could self administered the treatment by injection at any time or convenient place. but it had one fatal flaw rebelde

which patients knew nothing until too late. one. of your treatment might contain the donation of 405-0000 people. a lot of products in the u.k. came from america and one of the things we now know that the people giving those. people who maybe were in prison. and i encouraged to give that. to provide. this is a result showing that you were 3. years and you were. not where you told that you were being not.

quite region. because. the drugs don't move and these brutes and ankle supports have saved me a few times because sometimes you walk and you roll your own call and if i didn't have these on i would have very bad bleed. from one girl's. like other hemophiliacs martin has problems with joints mainly his knees and elbows caused by internal bleeding. and was diagnosed within a full year about the age of 6 months old. growing go up with him earlier back then for a parent it was a nightmare children there always running falling over buying in themselves and i would have all kinds of internal bleeds and damage to my joints.

burden was under constant medical care 1st at birmingham children's hospital and of your age of 17 he was sent to an adult facility. i remember being in the white american and my name is called out now the doctor doesn't even introduce himself his 1st words were hello i see you're a child he paused i didn't understand the significance of what he was saying because i was a healthy teenager a my words to him were all well that's loss. event goes on to say that your life for the next 2 years and then i said what do you mean by that. and he goes you got 2 years to live. that's when it hit me. so we rode back to birmingham and got a letter that says on it that i was tested in 1900. without my knowledge i was found to be h. on the positive but it also says that i found an old sample of my blood from

atlanta $93.00 and i was positive then. but i could have been working on why i could have been sleeping with somebody and it would have more to for me if i have infected a girl what gives them doctors the wrong place to play god god that i'm risk all the peoples laws why didn't they tell me. in 1981 i knew had previously unheard of disease was discovered in the united states acquired immune deficiency syndrome aids. in january 982 with the 1st hemophiliacs contracted aids in the us no in more cases have been recorded by the end of the year 8 of which were terminal. despite this great britain continue to import american factories.

are you proud of your all the new jump. up on what if you call him a for. ever jerry jerry j.j. sure. my dad lived with hemophilia. really did all want them. to get his way the time it was kind of an odd thing the song people. say here with area warnings in the air carpenter using. saws and swinging. wood around the shop the things. you know that sick let me go i was. crazy. i'm very thankful he took those videos because it's the evidence why memory doesn't have. kids he was

a father to me and he raised me and was doing everything a father should. say he was there i was. in towards the late seventy's he sees fit to concentrates because that was for the doctors on him and everyone i'll see use. may 1983 so the 1st reported case of the british hemophiliac contracting the disease. appeared in the press claiming that factor 8 was a safe. in november of 84 he raised concerns about the products with his stopped and they told him this is just sensationalism it's fine you know don't worry they convinced him to carry on using facts concentrate and then it was only shortly after that the his 1st choice v tests came back as opposed to.

things just very difficult strain on their relationship with my mom you know they'd only got married and nothing their life went from being one of planning for the future to planning for the end. to in your statements about one of the worst things being the feeling of sticking that. with relation to. her chair in the early turks who christer people don't get very sick for you or. doubts that he was positive felt such fear never felt little it's not the fear of what he might suffer it's it's social it's everything it's children it's housing it's your careers everything is gone it was something to be ashamed of even though we did nothing wrong he did nothing wrong i had been

a prominent lawyer locally and then one knots i walked into a pub to play mama and the landlord just pointed out me and said you get out the pool team i've been playing with they all stood there not one of them tried to defend me ourselves sick. and i thought dead. this was a classic case of. infomed. it doesn't take away the fact that it made me feel a lot rubbish. my dad lost his job among got sidetracked her job they received hate mail phone calls

making fun of. the stigma is incredible it's this whole thing though if you had a zoom you a gay or you were a drug user or some kind of what they sold to be an desirable person. by 9190 nights a he'd become verio. he had progressed to a it's only opportunistic infections using off way slowly going through a horrible death. and. by the end of my 3. news news that. jason evans founded the independent campaign group factor 8 its members of the immediate relatives of him affiliates who died because of contaminated blood products his organization provides them with legal help. i really only had one goal

when i got involved in campaigning on this subject i wanted it to tell on the official record what happened could and should have been avoided i think after that point maybe there's room for that as support for people counseling and compensation and all these other things but i think from apes. so they want on the record that there is liability and that.

seems wrong. to me. to shape out these days. and in the game because the trail. find themselves worlds apart we choose to look for common ground.

we can see richards perhaps most clearly committed to stem 10th of september 1976 so very soon after you would have been still seeing it with him and we can see the words hepatitis really sticks with the existence of the risk of have it's like something you or your parents were aware of. we cash cow and that is dari alfonzo mongery has died. he's died. he's died on the last one of the page service charge and paid change dard. at 11 years of age richard went to trial lawyers college a special boarding school for children with disabilities. there's an n.h.s. health center on the campus students could receive the medical care they needed and

attend classes all in the same place. it's also the site of the greatest concentration of contaminated blood cases that the u.k. has ever seen. 'd 'd what it. is that you receive significant quantities of fats are a prophylactic they. are crazy about. aren't 2 real target joints and that was my left mate in the right. for our current system why they would give me consecutive doses day after day. great britain will be self-sufficient in blood products and will guarantee their purity. it was the government's promise in the 1970s. when she government came in that pledge and the aim went away and they found a way around the. importing this particular product. all these

issues were very often at meetings of 1015 people but they were all held in secret no one was allowed to publish the the minutes of the meetings. the main beneficiaries of that secrecy were pharmaceutical companies. these companies had a huge financial motivation to sow these problems today. the fact concentrate market is a 1000000000 dollar industry in order for me to say our product is safe for the next companies they needed a trial date that showed we've used this product and it's not infectious and in this country at least the doctor is. often as consultants to the pharmaceutical home as there are numerous documents showing that doctors in oxford doctors in cardiff work keen to test facts or

a concentrates infectivity on their patients to all hemophilia since directors. initial production bunches may have been tested for infectivity by injecting them into chimpanzees it is unlikely that the manufacturers will be able to guarantee this form of quality control for all future batches it is therefore very important find out by studies in human beings to what extent the infectivity of the various concentrates has been reduced. the reason they used humans instead of chimpanzees was one because chimpanzees were expensive and essentially patients were free when they don't know that experiment we tried to speak to the pharmaceutical companies that produced factor 8 at the time over the last 50 years they have changed names and ownership several times and none wanted to talk about the contaminated blood issue now. what we know now is that the trolls are also conducting tests regularly and keeping records of liver function tests which

made you think ok so what are they actually looking for figuring in a safe product to be one to monitoring how you live. or if you change their rules are you cd for kanwar with looking at these things. out of the 18. affiliates who went to train those college 72 died. and people still dying. or from liver related problems were extracted george say. i actually feel guilty i'm still here i asked myself the question why am i still alive when you know 70 percent of the him feel that boy use. college. i've had enough and i'm always question yourself why me i why my

son i live by being allowed to live when so many have and. the official claim was that the new medicines were safe the most emphatic statement to that effect was from kenneth clark health secretary under margaret thatcher's government. i think someone that really has a lot to answer for as a minister is. the well known kenneth clarke actually stood open parliament and said there is no conclusive proof. is transmitted through blood products he really needs to answer for putting out that type of misinformation and this was the reply we received from kenneth clocks office and krista clark has chosen to decline this request and from the u.k.

department of health the infected blood inquiry is a cabinet of its leaders and therefore they will be the ones best placed to answer your questions beyond that initial acknowledgement the cabinet office has not responded to our request. and all we could find on the official u.k. national health service website was a report mentioning that victims are entitled to apply for compensation. 2019 and for the 1st time the u.k. government agreed to hear what the victims had to say a public inquiry was opened in london and jason evans group factory is taking part in it is finally happening it's been a long road and this is a this train journey is one that i say him countless times over the last 34 years. even before jason was born his father was aware of the deadly disease.

in spite of the risk of passing on the contamination his baby was born. in think about how would i have dealt with what my dad went. next year i'll be the same age my dad was when he died. i think about if i was to die it next year that age that would have been really a very short life. that weighs heavily on my mind. oh in 1918 only tina and. yes. shall we say. a word i knew pretty soon after and she went to see.

where we were advised really in no uncertain terms not care to look at. it was all in those few months so mixed together and at the time we were still reeling from the shock and the implications of dealing with a time of no sister i could have been positive in which case what we you know we. being an approach child at that time to be in often if you'd come into the world we didn't know how long we have all the child could have been positive as well as me in which case was it morally right to give birth to a child that i suffered terribly i couldn't walk away from a man who are supposed to love. just when he needed me most and once we found out that i was ok. afterwards. he. realized that if i was going to be

a mother it wouldn't be with richard and i just say with richard he said you're a perfect stream really loving and supportive wife yes sorry she's shifting jenny. as it. assists a great sadness to you base this being that you have to have children. a problem if it. really. mean anything to you and when. you. have to say at the time it seemed easy i didn't feel as if we had any choice. only lazy thing. but hey.

martin bed was also thinking of starting a family his girlfriend was a nurse at the hospital where he received his treatment. i've got the dalai lama of hemophilia boston out on the don lemon or of a child of a not just infecting her but possibly possibly on to children as well so i took the decision after about a year to split tilt so that i would flee she could go off and have a family of our own and thankfully she did and we're still friends on facebook you know and she seems happy which is good. missionary very apt rebate and not such a. very loyal dogs rottweilers are very protective as wild.

animals. one of the greatest comfort she can ever offer. because she can have the lousiest day in the world when you walk in that house and the dogs are pleased to see you. dogs know when you're in i mean i know when you're in trouble and. it's soothing. to attempts were made over 40 years to investigate the causes of this medical disaster in the u.k. but so far no one has been held accountable. the current inquiry is goal is to gather evidence the final decision about how to proceed after that will wrist with

the government. i have no doubt that what happened was criminal i think the real question is to what degree was it criminal i mean nothing a bad minimum we're talking about some form of criminal negligence and perhaps corporate manslaughter. perhaps as high as my and i think the inquiry can help direct in some way where those lines made. their criminal prosecutions have been brought in other countries and they have been successful particularly in france whether they will be brought in this country i suspect not the reason they won't bring them though the crown prosecution service won't be directed to bring those prosecutions it's because it's widely accepted that they would be successful and the only way they can avoid a successful prosecution is to avoid bringing it up. the

public inquiry is expected to continue for at least 2 to 3 years too late for the victims who have already died and to long for those still fighting for their lives every doing morning. first witnesses. it was so frightening. i was told i had about a year to live it was a hard time is so frightfully experience it wasn't a life. really treasure exams anymore because we would be dead in a few years so we will actually. i do feel conduit. come out. check him out the else 20. tome swamps it down the house hard enough is no way should have to do it we just wanted to be with him.

and i believe now is the time to do is to say. for his recognition of. the largest. story from those. is you'll be via reflection of reality.

in a world transformed. what will make you feel safe from. the isolation of whole community. are you going the right way or are you being led so. direct. what is true what is faith. in the world corrupted you need to descend. to join us in the depths. or a maybe in the shallows. we are segregated only by social class laws fail fast people also in poverty by 1st.

if you're born into a poor family ocular born into a minority family if you're born into a family that only has a single parent that really constrains your life chances people die on average 15 years old a good warning to generational poverty. it's a tough tough fight every day to meet your needs and the needs of your family. join me every thursday on the alex salmond show and i'll be speaking to get a feel of the world of politics sports business i'm show business i'll see you then . no one else seemed wrong. just don't. let me. get to shape out these days to come as

a kid and in games from an equals betrayal. when so many find themselves worlds apart when she's to look for common ground. in today's headlines russian opposition leader discharge from the charity hospital and german medics hoping for a full recovery. alexander lukashenko is unexpectedly inaugurated as belorussian president a month earlier amid nationwide protests against him. is ready to provide for you with and with top notch assistance. free of charge club members and offers united nation staff to try a brand new russian coben vaccine job for free adding that the country has already received requests from u.n. colleagues. as amid a 3rd stage of back.