he stayed richard. i. spent a lot of time hospital the doctors. and. i was getting. all of my. richard has a form of him ophelia a rare and severe inherited disorder that impairs the blood's ability to clot the slightest injury agrees an internal bleed or even just a bruise could cause irreparable damage. every day richard inject himself with the blood clotting agent factor 8 these days it's sterile and safe but in the mid seventy's and early eighty's

a treatment like this infected about 5000 people in the u.k. with either hiv or hepatitis c. or even both. richard was among and here to undergo a series of treatments. cross. side effects mood swings and sweating in. part. to take. drugs. in the 1970 s. a new drug called factor 8 was released to using human blood it promised a much easier life for him affiliates they no longer needed to go to hospital and could self administered the treatment by injection at any time or convenient. but

it had one fatal flaw rebelled which patients knew nothing until too late. one of your treatment might contain the donation of 405-0000 people. a lot of products in the u.k. came from america and one of the things we now know is that the people giving the. people who maybe were in prison. and they encouraged to give that. to provide the. documents this is a result showing that you were 8 feet 3. years and you were. not were you told that you were being not.

because. the drugs don't move and the brutes and ankle supports have saved me a few times because sometimes you walk and you roll your own call and if i didn't have these on i would have very bad bleed through one girl's. like other human filly x. martin has problems with joints mainly his knees and elbows caused by internal bleeding. and was diagnosed within a full year about the age of 6 months old. growing gawp with hemophilia back then for a parent it was a nightmare children there always run in falling over buying in themselves and i would have all kinds of internal bleeds and damage to my joints.

martin was under constant medical care 1st at birmingham children's hospital and of your age of 17 he was sent to an adult facility. i remember being in the white america and my name is called out now the doctor doesn't even introduce himself his 1st words were hello us we are a child people i didn't understand the significance of what he was saying because i was a healthy teenager a my words to him were all well that's life. even goes on to say that your life for the next 2 years and then i said what do you mean by that. and he goes you got 2 years to live. that's when it hit me. so we rode back to birmingham and got a letter that says on it that i was tested in 1900. without my

knowledge i was found to be positive but it also says that i found an old sample of my blood from atlanta $93.00 and i was positive then. but i could have been working on why i could have been sleeping with somebody and it would have more to for me if i have infected a girl what gives them doctors the wrong to play god. i'm risk all the people's laws why didn't they tell me. in 1981 i knew had previously unheard of disease was discovered in the united states acquired immune deficiency syndrome aids. in january 982 with the 1st hemophiliacs contracted aids in the us no in more cases have been recorded by the end of the year 8 of which were terminal. despite this great britain continue to import american factories.

are you proud of your all the new. research i'm lots of you call him. ever jerry jerry j.j. sure. my dad lived with him a failure. really did all want. to get his way the time it was kind of an odd thing the song people. say here with area cartons easy. saws and swinging. wood around the shop things. you know that sick like to go i was . crazy. i'm very thankful he told those videos because it's the evidence why memory doesn't

have. it's he was a father to me that he raised me and was doing everything a father should do. towards the late seventy's he sees fit to concentrates because. that's where the doctors are saw him and everyone i'll see use. may 1983 so the 1st reported case of a british hemophiliac contracting the disease. appeared in the press claiming that factor 8 was a safe. in november of 84 he raised concerns about the products with he stopped and they told him this is just sensationalism it's fine you know don't worry they convinced him to carry on using fats concentrate and then it was only shortly after that the his 1st choice the tests came back as opposed to.

things just very difficult strain on their relationship with you know they don't got married and nothing their life went from being one of planning for the future to planning for the end. to see in your statements about one of the worst things being the feeling of sticking that. with relation to. it's in the early days christian people don't get i was right you were lower. i mean when we found out that he was positive felt such fear never felt little it's not the fear of what he might so for it's it's social it's everything it's children it's housing it's your career is everything is gone it was

something to be ashamed of even though we did nothing wrong he did nothing wrong i bring a prominent locally and then one night i walked into a pole to play mama and the landlord just pointed out me and said you get out the pool tame i've been playing with but i also don't they're not one of them thought to be for me i hope sick. and i thought dead. this was a classic case of. lymphoma it. doesn't take away the fact that it made me feel a lot rubbish. my dad lost his job among got sidetracked her job they received hate mail phone calls

making fun of. the stigma is incredible it's this whole thing though if you had a few you were gay or you druggies or or some kind of what they sold to be an desirable person. by 9190 nights a he'd become area. you had progressed to a only opportunistic infections using off way slowly going through a horrible death. and. by the end of my 3. news news that. jason evans founded the independent campaign group factor 8 its members of the immediate relatives of him affiliates who died because of contaminated blood

products his organization provides them with legal help. i really only had one goal when i got involved in campaigning on this subject i wanted it on the official record that what happened could and should have been avoided i think after that point maybe there's room for that as support for people counseling and compensation and all these other things but i think for me. so they want it's on the record that there is liability and then i'll be satisfied. her.

seemed wrong we'll all just don't. get to shape out these days. and it. equals betrayal. once and find themselves worlds apart we look for common ground.

we can see richard's perhaps most clearly documented date stamped 10th of september 1976 so very soon after you would have been starting it should all of them and we can see the words hepatitis really sticks with the existence of the risk of have it's like something you or your parents were aware of. the show. we have cash cow and that is dari alfonzo mongery has died. he's died and. he's died on mars one of the page turners cherish and paid changed guard. at 11 years of age richard went to trial lawyers college a special boarding school for children with disabilities. there's an n.h.s. health center on the campus students could receive the medical care they needed and

attend classes all in the same place. it's also the signs of the greatest concentration of contaminated blood cases that the u.k. has ever seen. 'd what it. is that you receive significant quantities of fats the rates of prophylactic base. there are crazy about. aren't 2 real target joints and that was my left made the right. for our current system why they would give me consecutive doses day after day. great britain will be self-sufficient in blood products and will guarantee their purity. it was the government's promise in the 1970s. when government came in that pledge in the name went away and they found a way around the. importing this particular product. all these

issues were very often at meetings of 1015 people but they were all held in secret no one was allowed to publish the minutes of the meeting. the main beneficiaries of that secrecy were pharmaceutical companies. these companies had a huge financial motivation to sow these problems today. the fact concentrate market is a 1000000000 dollar industry in order for the need to say our product is safe for the next companies they needed a trial date that showed we've used this product and it's not infectious and in this country at least the dot is. often as consultants to the pharmaceutical home as there are numerous documents showing that doctors in oxford doctors in cardiff were keen to test facts or

a concentrates infectivity on their patients to all hemophilia sense directors. initial production batches may have been tested for infectivity by injecting them into chimpanzees it is unlikely that the manufacturers will be able to guarantee this form of quality control for all future batches it is therefore very important find out why studies in human beings to what extent the infectivity of the various concentrates has been reduced. the reason they used humans instead of chimpanzees was one because chimpanzees were expensive and essentially patients were free when they don't know that experiment we tried to speak to the pharmaceutical companies that produced factory took the time over the last 50 years they have changed names and ownership several times and none wanted to talk about the contaminated blood issue now. what we know now is that the trolls are also conducting tests regularly and keeping records of liver function tests which

made you think ok so what are they actually looking for figuring in a safe product to be one to monitoring how you live. if you take a sales are you cd for care i would be looking at these things. out of the 8. 9 hemophiliacs who went to train those college 72 died. and people are still dying. or from liver related problems to have a charge say. i actually feel guilty i'm still here i asked myself the question why am i still alive when you know 70 percent of the him for that boy use rafts college. i've had and i don't care and i'm always question yourself why me

i why my son i live by being allowed to live when so many have and. the official claim was that the new medicines were safe the most emphatic statement to that effect was from kenneth clark health secretary under margaret thatcher's government. i think someone that really has a lot to answer for as a minister is. the well known kenneth clark actually stood up for an argument and said there is no conclusive proof. is transmitted through blood products he really needs to answer for putting out that type of misinformation and this was the reply we received from kenneth clocks office krista clock has chosen to decline

this request and from the u.k. department of health the infected blood inquiry is a cabinet of its leaders and therefore they will be the ones best placed to answer your questions beyond that initial acknowledgement the cabinet office has not responded to our request. and all we could find on the official u.k. national health service website was a report mentioning that victims are entitled to apply for compensation. 2019 and for the 1st time the u.k. government agreed to hear what the victims had to say a public inquiry was opened in london and jason evans group factory is taking part in it is finally happening it's been. a long road and this is a this train journey is one that i say him countless times over the last 34 years. even before jason was born his father was aware of the deadly disease. in spite of

the risk of passing on the contamination his baby was born. after i think about how would i have dealt with what my dad went. next year i'll be the same age my dad was when he died. i think about if i was to die i didn't a share that age that would have been really a very short life. that weighs heavily on my mind. oh in 1903 tina and. yes. accident shall we say. a word i knew pretty soon after and she went to see her

doctor. where we were advised really in no uncertain terms not care to look at. it was all in those few months so mixed together and at the time we were still reeling from the shock and the implications of dealing with a time of no sister i could have been positive in which case what we you know. being an approach child at that time to be in often if you'd come into the world we didn't know how long we have all the child could have been positive as well as me in which case was it morally right to give birth to a child that i be you know suffered terribly i couldn't walk away from a man who i s'posed to love. just when he needed me most and once we found out that i was ok afterwards. he.

realized that if i was going to be a mother it wouldn't be with richard and i just say with richard he said you're a perfect stream really loving and supportive wife yes she's a ship in general. as it. assists a great sadness to you base this being that you have to have children. a problem if there. really. anything you would. have to say at the time it seemed easy i didn't feel as if we had any choice. only lazy thing. but hey.

martin bed was also thinking of starting a family his girlfriend was a nurse at the hospital where he received his treatment. i've got the dial m. earth hemophilia os and not all of the don lemon or of a child of a not just infecting her but possibly possibly on to children as well so took the decision after about a year to split tilt so that i would feel a she could go off and have a family of our on and thankfully she did and we're still friends on facebook you know and she seems happy which is good. this is a very very apt rebate and not such a. very loyal dogs rottweilers are. very protective as wild.

animals. one of the greatest comfort she can ever offer. because she can have the lousiest day in the world when you walk in that house and the dog's place to see your. dogs know when you're in i mean i know when you're in trouble and. it's soothing. to attempts were made over 40 years to investigate the causes of this medical disaster in the u.k. but so far no one has been held accountable. the current inquiry is goal is to gather evidence the final decision about how to proceed after that will wrist with

the government. i have no doubt that what happened was criminal i think the real question is to walk degree was a criminal i mean nothing a bad minimum we're talking about some form of criminal negligence and the haps corporate manslaughter. perhaps as high as mud and i think the inquiry can help direct in some way where those lines made. their criminal prosecutions have been brought in other countries and they have been successful particularly in france whether they will be brought in this country i suspect not the reason they won't bring them the crown prosecution service won't be directed to bring those prosecutions it's because it's widely accepted that they would be successful and the only way they can avoid a successful prosecution is to avoid bringing it. the

public inquiry is expected to continue for at least 2 to 3 years too late for the victims who have already died and to long for those still fighting for their lives every day morning. first witnesses. he was so fried. i was told about a year to live it was a hard time it's so frightfully experience it wasn't a life. really treasure exams anymore because you will be dead in a few years so we will actually. i do feel calmer it. came out we'll switch to a knee. tone swamps it down the house hard enough is no way should have to do it we just wanted to be with them.

and i believe now is the time to do is to say. we are spoilers recognition of our. meaningful compares to the large group who are stored from those. israel media a reflection of reality. in

a world transformed. what will make you feel safe from. tyson nation's capital community. are you going the right way or are you being led. directly to what is truly what is faith. in the world corrupted you need to descend. to join us in the depths. or a maybe in the shallows. the world is driven by shaped by one person.

who dares thinks. we dare to ask. why social class. people also in poverty by 1st. if you're born into a poor family i ask your born child minority family if you're born into a family that only has a single parent that really constrains your life chances people die on average 15 years younger. generational poverty. fight every day to meet your needs and the needs of your family.

join me every thursday on the alex simon shore and i'll be speaking to the world of politics. i'm sure. i'll see you then. opposition rallies break out in baton rouge soft of president lukashenko sworn in 1st 6 dozens of people have been arrested. the russian foreign ministry accuses western powers of launching a distant from asian campaign over the alleged poisoning of alexina valmy the opposition activist has now been discharged from hospital also this hour. russia is ready to provide the u.n. with top notch assistance to be a potent invites united nations stuff to try a new russian covert vaccine free of charge already being with quest from u.n. colleagues. correspondent becomes one of the 1st to get. the job as part of the

phase 3 trial.