tv Documentary RT September 27, 2020 3:30am-4:01am EDT
3:30 am
3:31 am
is just happens all the time and we always sigh we must stop meeting like this most . of them. take the position you raise taxes should be shopped to me i swear by almighty fault i swear by almighty god the evidence i should get but there were times i should give so be the truth shall be the truth the whole tree the whole truth and nothing about the nothing but the truth the stadium full john war. that's right.
3:32 am
and. i was getting. richard has a form of him a failure and severe inherited disorder that. the slightest injury of an internal bleed or even just a bruise could cause irreparable damage. every day richard inject himself with the blood clotting agent factor 8 these days it's sterile and safe but in the mid seventy's and early eighty's a treatment like about 5 people in the u.k. with either. or even both. richard was a monk and he had to undergo a series of treatments. are very difficult cos.
3:33 am
side effects mood swings and sweating in. part. to take. drugs. in the 1970 use a new drug called factor 8 was released to using human blood it promised a much easier life for him affiliate they no longer needed to go to hospital and could self administered the treatment by injection at any time or convenient place . but it had one fatal flaw or about which patients knew nothing until too late. one. of your treatment might contain the donation of 405-0000 people. a lot of products in the u.k. came from america and one of the things we now know that the people giving the.
3:34 am
people who maybe were in prison. and i encouraged to give that. to provide. this is a result showing that you were 8 feet 3. years and you weren't. were you told that you were being. the drugs don't move and the brutes and ankle supports have saved me a few times because sometimes you walk and you roll your own call and if i didn't
3:35 am
have these on i would have very bad bleed from one girl's. like other he was fairly x. martin has problems with joints mainly his knees and elbows caused by internal bleeding. and was diagnosed within a full year about the age of 6 months old. growing goal with hemophilia back then for a parent it was a nightmare children there always were in falling over buying in themselves and i would have all kinds of internal bleeds and damage to my joints. burden was under constant medical care 1st at birmingham children's hospital and at the age of 17 he was sent to an adult facility. i remember being in the white american and my name is called out now the doctor doesn't even introduce himself
3:36 am
his 1st words were hello or c. or a child people i didn't understand the significance of what he was saying because i was a healthy teenager a my words to him were all well that's a loss. even goes on to say that your life for the next 2 years and then i said what do you mean by that. and he goes you got 2 years to live. that's when it hit me. so we rode back to birmingham and got a letter that says on it that i was tested in 1900. without my knowledge i was found to be positive but it also says that i found an old sample of my blood from monterey to cerate and i was positive then. but i could have been working on why i could have been sleeping with somebody and it would have more to for me if i have infected
3:37 am
a girl what gives them doctors the wrong to play god brought up a risk or the people's laws why didn't they tell me. in 1981 i knew had previously unheard of disease was discovered in the united states acquired immune deficiency syndrome aids. in january 982 with the 1st hemophiliac contracted aids in the us no in more cases have been recorded by the end of the year 8 of which were terminal. despite this great britain continue to import american factories. are you proud of your all the new jump. up and what if you call him a for. ever jerry jerry j.j. sure.
3:38 am
my dad lived with him ophelia. really did all one thing aim affiliates again is way the time it was kind of an odd thing of the song people. say he was there and wanting to be or carpenter using. saws and swinging. wood around the shop the things. that stick let me go i was. crazy for. ameri thank those videos because it's the evidence why memory doesn't have. it's it was a father to me and he raised me and was doing everything a father should. have their eye. towards the late seventies he began to use facts a concentrates because that as with adults is just on him and everyone else see use
3:39 am
. main $1803.00 so the 1st reported case of the british hemophiliac contracting the disease. appeared in the press claiming that factor 8 was a safe. in november of 84 he raised concerns about the products with his stopped and they told him this is just sensationalism it's fine you know don't worry they convinced him to carry on using facts concentrate and then it was only shortly after that the his 1st choice v. tests came back as posts. things just became very difficult a strain on their relationship with my mom you know they'd only got married and nothing their life went from being one of planning for the future to planning for the end. he took to new
3:40 am
statements about one of the worst things being the feeling of sticking that. with relation to. it's in the early days christian people don't get i was right you were lower. i mean when we found out that he was positive felt such fear never felt little it's not the fear of what he might suffer it's it's social it's everything it's children it's housing it's your career is everything is gone it was something to be ashamed of even though we did nothing wrong he did nothing wrong i bring a prominent locally and then one night i walked into a pole to play mama and the landlord just pointed out me and said you get out
3:41 am
the pool tame i've been playing with but i also don't they're not one of them thought to be for me i'll help sick. and i felt dead. this was a classic case of. well informed it. doesn't take away the fact that it made me feel a lot rubbish. my dad lost his job among got sidetracked her job they received hate mail phone calls making fun of. the stigma is incredible it's this whole thing though if you had a zoom you a gay or you were a drug user or some kind of what they sold to be an in desirable person. by
3:42 am
9190 nights a he'd become wario. he had progressed to a it's only opportunistic infections using off way slowly going through a horrible death. and. by the end of my 3. news news that. jason evans founded the independent campaign group factor 8 its members of the immediate relatives of him affiliates who died because of contaminated blood products his organization provides them with legal help. i really only had one goal when i got involved in campaigning on this subject i wanted it on the official record that what happened could and should have been avoided i think after that
3:43 am
point maybe there's room for that as support for people counseling and compensation and all these other things but i think from apes. somebody wants on the record that there is liability and that all. the world is driven by dreamers shaped by one person or those words. have. no day or thinks. we dare to ask.
3:44 am
what. we can see richards perhaps most clearly in the books until coming to date stamped 10th of september 1976 so very soon after you would have been still saying it should all of them and we can see the words have to talk to script sticks with the existence of the risk of habits like to something you or your parents were told last. we have cash cow and that is dari alfonzo mongery has died. he's died. he's died on lost one of the page service generation paid change dard or.
3:45 am
at 11 years of age richard went to true laws college a special boarding school for children with disabilities. as an n.h.s. health center on the campus students could receive the medical care they needed and attend classes all in the same place. it's also the signs of the greatest concentration of contaminated blood cases that the u.k. has ever seen. 'd what you say is that you receive significant quantities of patsey rates on a prophylactic base. they were crazy about. aren't 2 real target joints and that was left in late may and right. for our current system why they would give me consecutive doses day after day. great britain will be self-sufficient in blood products and will guarantee their purity. it was the government's promise in the 1970s.
3:46 am
when government came in that pledge and the aim went away and they found a way around the. importing this particular product. all these issues were very often in meetings of 1015 people but they were all held in secret no one was allowed to publish the minutes of the meeting. the main beneficiaries of that secrecy were pharmaceutical companies. these companies have a huge financial motivation to sow these problems today. the fact concentrate market is a 1000000000 dollar industry in order for the need to say our product is safe for the next companies they needed a trial date that showed we've used this product and it's not infectious and in this country at least the dot is. often as consultants to the pharmaceutical home
3:47 am
as there are numerous documents showing that doctors in oxford doctors in cardiff were keen to test facts or a concentrates infectivity on their patients to all hemophilia since directors. initial production batches may have been tested for infectivity by injecting them into chimpanzees it is unlikely that the manufacturers will be able to guarantee this form of quality control for all future batches it is therefore very important find out why studies in human beings to what extent the infectivity of the various concentrates has been reduced. the reason they used humans instead of chimpanzees was one because chimpanzees were expensive and essentially patients were free when they don't know that experiment we tried to speak to the pharmaceutical companies that produced factory took the time over the last 50 years they have changed names
3:48 am
and ownership several times and none wanted to talk about the contaminated blood issue now. what we know now is that the trolls are also conducting tests regularly and keeping records of liver function tests which made you think ok so what are they actually looking for figuring in a safe product are they want monitoring how you live. or if you trace their rules are you cd for kanwar with looking at these things. out of the 8. 9 hemophiliacs who went to train those college 72 died. and people are still dying. from liver related problems rushed to have a charge say. i actually feel guilty i'm still here i asked myself the
3:49 am
question why am i still alive when you know 70 percent of the him for that boy use . college. i've had and i don't care and i'm always question yourself why me i why my son i live by being allowed to live when so many have and. the official claim was that the new medicines were safe the most emphatic statement to that effect was from kenneth clark health secretary under margaret thatcher's government. i think someone that really has a lot to answer for as a minister is. the well known kenneth clarke actually stood up for an argument and said there is no conclusive proof. is transmitted through blood products he
3:50 am
really needs to answer for. type of misinformation and this was the reply we received from kenneth clocks office krista clarke has chosen to decline with request and from the u.k. department of health the infected blood inquiry is a cabinet of its leaders and therefore they will be the ones best placed on see or questions beyond that initial acknowledgement the cabinet office has not responded to our request. and all we could find on the official u.k. national health service website was a report mentioning that victims are entitled to apply for compensation. 2019 and for the 1st time the u.k. government agreed to hear what the victims had to say a public inquiry was opened in london and jason evans group factory's is taking part in it is finally happening it's been. a long road and this is
3:51 am
a this train journey is one that i say him countless times over the last 34 years. even before jason was born his father was aware of the deadly disease. in spite of the risk of passing on the contamination his baby was born. after i think about how would i have dealt with what my dad went next year i'll be the same age my dad was when he died. i think about if i was to die of it next year at that age that would have been really a very short life. that weighs heavily on my mind. oh in 1918 only tina and. yes.
3:52 am
shall we say. the word knew pretty soon after and she went to see her doctor. we were advised really in no uncertain terms. to not go ahead. it was all in those few months so mixed together and at the time we were still reeling from the shock and the implications of dealing with a time of no sister i could have been positive in which case what we you know. being an approach child at that time to be in often if you'd come into the world we didn't know how long we have all the child could have been positive as well as me in which case was it morally right to give birth to a child that i suffered terribly i couldn't walk away from a man who i spose to love just when he needed me most and once we found out that i
3:53 am
was ok afterwards. he. realized that if i was going to be a mother it wouldn't be with richard and i just say with richard he said you're a perfect stream really loving and supportive wife yes she's shifting journey. it's. a source of great sadness to you base this being that you have had children. a problem if there. really. anything you would. have to say at the time it seemed easy i didn't feel as if we had any choice. only
3:54 am
lazy thing. but hey. martin baird was also thinking of starting a family his girlfriend was a nurse at the hospital where he received his treatment. i've got the dalai lama of hemophilia os and not all of the don lemon or of h.l.v. not just infecting her but possibly possibly on to children as well so i took the decision after about a year to split tilt so that i would feel a she could go off and have a family of our on and thankfully she did and we're still friends on facebook so you know she seems happy which is good. missionary very
3:55 am
apt rebate and not such a. very loyal dogs rottweilers are. very protective as wild. animals. one of the greatest comfort she can ever offer. because she can have the lousiest day in the world when you walk in that house and the dogs pleased to see you. dogs know when you're in i mean i know when you're in trouble and. it's soothing. the. 2 attempts were made over 40 years to investigate the causes of
3:56 am
this medical disaster in the u.k. but so far no one has been held accountable. the current inquiry is goal is to gather evidence the final decision about how to proceed after that will wrist with the government. i have no doubt that what happened was criminal i think the real question is to walk degree was a criminal i mean nothing a bad minimum we're talking about some form of criminal negligence and perhaps corporate manslaughter. perhaps. and i think the inquiry can help direct in some way where where those lines made. their criminal prosecutions have been brought in other countries and they have been successful particularly in france whether they will be brought in this country i suspect not the reason they won't bring them though the crown prosecution service won't be directed to bring those prosecutions it's because it's widely accepted that they would be successful and the only way
3:57 am
they can a boyd a successful prosecution is to avoid bringing it up. the public inquiry is expected to continue for at least 2 to 3 years too late for the victims who have already died and to long for those still fighting for their lives every doing morning. first witnesses. it was so frightening. i was told i had about a year to live it was a hard time is so frightfully experience it wasn't a life. really treasure exams anymore because you would be dead in a few years. i don't feel calmer it. came out me else 20. swan to sit down in the house hard enough is no way should have to do that we just wanted to be with them.
3:58 am
3:59 am
we're segregated. by social class laws people also want to be 1st. if you're born into a poor family you're born into a minority family if you're born into a family that only has a single parent that really constrains your life chances people die on average 15 years old if you're born into generational poverty. it's a. fight every day to meet your needs and the needs of your family. join me every 1st week on the alex simon shore and i'll be speaking to the world of politics or i'm sure i'll see you then.
4:00 am
free of charge the duma putin offers united nations stuff to try a brand new russian covert vaccine for free with the country's already received requests from u.n. colleagues. amid a 3rd stage of vaccine trials here in russia correspondent became one of the 1st in the country to get the show. this morning and i got a call from the creamy sane i am an ideal candidate here who this is your vaccine there's not much in there looks like a couple of jobs ok i'm ready. for london this thousands gathered to vent their anger at new covert restrictions.
15 Views
Uploaded by TV Archive on
