i still do have some postcode and sometimes the big one is the t. i do take a medication that helps with out otherwise i would be asleep right now. without it and then when i heard from one of my best friends that their sister was also still having problems and then a friend in alabama said hey i've got a good friend here who is also having problems as well so it was actually her idea she was like hey you should start one of your facebook. i said yeah that's a great idea i should do that and then i fell asleep for a month and then i did it. eulogy was at a standstill anyway amanda told herself and so she became a blogger and still is a defeatist group of people like the group is called coven 19 long hollers discussion group and there are 10200 people in the group great now. that it was started back in june i thought maybe i would find 50 people like me. and i found a few more. 1000. now the days start and end. of it

long haul is. yeah. yeah. yeah i get that i get that feeling i totally get that feeling then just go should reveal a common topic so you don't tell them what's wrong and all you hear is you'll find you'll just overanxious. an entirely different ballgame when you're navigating being a long haul or without a church you can't just go out and get every tax you play a lot of thing like i guess this is ok i guess i don't feel bad in this way so i guess things are on and that's really scary. it's really scary. scientists don't yet know which a post covered symptoms and which on says professor don of a of the institute for buying health innovation at george mason university it. was

issued you see a girl late. thirty's the coastal chill an old old cold damp it looked to get a large it was known. at last bristol used also but it acts at last a lot again used to say it when you're up to date you know silly what would you most when you could you not you just picked up the paramedics it doubles tallest. of them actually my favorite driver in the city i love that back road that goes up by all the time. with 10000 people in the group by trade i still try to get to know as many of them and i can. and i do worry about them and i we did we did lose someone last month from her. it

wasn't someone i interacted with often. but i just dread the day that. someone posts to me. i dread to think anyone. this minivan has already become popular in kansas city amanda remove the back seat and loads up with food to deliver it to homeless people and cope with long haul as today she's brought a tony for a family under lockdown it's lego with a father mother and 6 children she can't go in so she leaves her gift at the front door. hi hannah ask why you. later. some of the medical issue is postpone but are so. so severe. that it's a distinct possibility that someone could have a heart attack or have a stroke. i'm not sure if they saw how the small stroke

a few months ago. she really worries she's a very good friend of mine. so. just like amanda just 100 called kofi twice and even though she jokes some hell there's nothing funny about it next trying to die was pretty cool. very very great consumer. and they. started you know being known we know that it was in china at that point and 1117 was the keystone i'm aware of the earliest for the chinese and i was actually hospitalized 11142019 with the exact same symptoms and it wasn't until i visited the mayor a doctor that's on the sick you know there. he looked at my scans and he was just like my god you had cut. so and that's kind of how i got where i am now. i've

actually never gotten rid of the headache i've had since november of last year it just feels like an ice pick it's just going straight to the back of my head. since becoming you know she's had memory issues so now uses 3 systems reminders on a phone a day planner and lots of stickers everywhere grocery lists reminders of when the children get home medical appointments shopping times and blue 100 lists. lists all my daily stuff or like things that are important to remember aside i survived. so yeah this is actually about my experience. writing it down and as i remember it. was life has changed completely so the cheese always ready for the worst she cooks lots of meals for her 5 children in advance. learn to build your life around

. that makes sense i can just pop some and we're good for a day cause i don't know how. it may be 2 days maybe 5 days but basically everything that's in preparation for the next flare and then it passes and then prepare for the next one well. i have a lot. of actually looked at me so badly that my dear fellow and the medications. actually here i can show you this is something that was pretty dramatic. show you my hair. was you look curious the day 1113 there. and down. this is throughout the day my hair just go out and this isn't counting all of the hair that fought around the house i vacuumed up and this is compacted it was

actually a bigger ball until i. met here isn't limited to here. all right well here is what i will write. pair. very thick very healthy looking. actually didn't look my age it was only a year ago that desert wanted to become a pilot she dreamed of flying a plane but would force her to give up on that dream as there is a moderator now she an alliance is day to run a. website for. him teaches a mentor to cook pastor. randy under the honor to govern the park and you can sure go are you fat free what are you dressed up for. i've never really fully. know or taste i lost it initially and then. i would know

if something was burning there was 'd a time where i work my children up the middle but i think in the house was on fire you know and it was. bob straight here contains my all of my daily meds. and i keep everything all on me. but as you can see it's for. someone asked me they said you know how is surviving you know after having quit in anosike i think surviving is the easy part honestly i think living with the after effects is probably 10 times worse than. anything from the hospital because honestly i don't really remember a whole lot of. the website collects data from post. conditions when i'm reading about all of these things in that group of people blood clots and you know they're having strokes or stock of things we have over 200 items on our

something. and it's kind of scary to think gosh i hope none of this is going on i may but i don't know. jamie. like absolutely crushed pills. and it's. 'd used to make me gag and sometimes. 'd 'd the 1st thing jamie knew that tells us he's what we should do if he posses out during our into. you had you know put the gloves on you wipe off the area with. the alcohol then you would take the syringe out you would basically out of here you push this down shake it up and you would 'd put the syringe in there and you draw up the medication from out of there into the syringe and once you have the syringe filled you push the air out

and then you would have to literally inject it pretty much into my thigh. and then call 911. to me as a student nurse but this time she's one of the patients in april she learned that she'd contracted cove at 19 we get the results from the nurse practitioner called me herself usually they have the front desk people call and said i need to apologize to you you have covered and i said really now you're joking right. days in hospital and for months on oxygen with chronic co-morbidities patients like jamie are known as high risk being there knowing that you're dying basically when you're fighting not to and knowing that you don't know. where your family. my son was graduating 8th grade while i was. i was so sick i didn't have the heart to tom i wasn't able to watch his graduation even

though it was on the line i was going to watch it with him i was too sick but i couldn't. let my daughter who helped take care of me both of them when i was sick i sure wasn't for basically i probably wouldn't be here i was here's me basically scared i'm going to die here and my kids are going to see me die like this. oh look forward to talking to you all that technology should work for people. i robot must obey the orders given by human beings except where such orders to conflict with the 1st law show your identification for should be very careful about official intelligence and the point is to trace every. conflicting theories chozen with artificial intelligence will summon the demon.

the robot must protect its own existence as a mixer. with . nuclear become a battleground in the us. and people. from yankee is right now my focus because it's a very dangerous. power plant the owner is attempting to run the reactor beyond its operational limits this case just sort of puts a magnifying glass on where's the power in this country where's it going is it moving more towards corporate interests or is it more in the idea of a traditional participatory democracy as are powerline with the people this case demonstrates that struggle in the very real ways our struggle.

kind of financial for a long shot that it was all about money laundering 1st to visit this cache of the 3 different. oh good the good stuff we have our 3 banks all set up something in your something in america something overseas or the cayman islands or do we do all these banks are complicit in the. phone and say hey i'm ready to do some serious money laundering ok let's see how we did well we've got home. you know what money. watch has a record. as

a covert long jamie was determined to hold tight and keep going to the bitter end she does it with the help of about 17 different meds that she takes each day. so this is. a seizure medication. this one here the little yellow one that's pantoprazole it's for the pretty much blocks the acid in that in your stomach when i take prednisone that's the steroid basically this one will help protect for that and then that's a low dose think and i'm just a supplement. and then this one is their tech. energy settlement these days long haul is show that x. rays electrocardiograms and lab test results as if they were pictures in a family album so this is pretty covert of this is covered and then me now. 'd ringback covert gave a shortness of breath between hair loss and a rash it also took away her fiance. and has ruined all plans. february

29th i got engaged and i see my fiance maybe every other month or so. 'd for a day or 2 and other matt basically you know that's interrupted our relationship his kids i have not seen them in i ringback honestly don't remember the last time i've seen his kids we've been together for a long time so many years. it's pretty devastating to lose those relationships and not have that closeness or that support. when you need it but that also puts back all the other plans that i had are on hold with my wedding and with basically i was going to be you know buying a house. those changes made her reflect on the value of human life that's been lost in all the statistics about total deaths every day in the us alone. feel insignificant. like basically if you die it's ok because you had chronic health

issues big deal what difference were you making in the world what difference do you mean to me. british researchers studying people who'd recovered from severe kovac found that the disease caused a reduction of around 10 years in life expectancy with slight differences from men and women. focused on the. elec yet. or well it was quite. a lot some deranged that wished they could. yeah shitlist. if you. want to push. ringback mindy. that's.

you hear me popping everywhere. not so long ago mindy dougherty enjoyed painting in her basement dance studio it was how she expressed herself and relieve stress i used to teach classes with i learned to do acrylic pouring a couple years ago and decided to teach it to people because it was a very. different type of art that you get to do it is done it's like a fluid art if you will so with this type of art you use paint acrylic paint and you have a specific media that you use with it and you mix colors and you get to do it on a canvas and you get to create some of the stuff is just. all on canvas. and just really fun colors and i felt this was a really good way to express myself i had so many people that were tell me i don't

know how to do art i can't paint i can't do this and i sure did them that you would be able to do acrylic pouring because really pouring is a very very simple. basement office study to work in and her shelter but it's been getting increasingly hard to take refuge there but i can see it with coke now i can even get my brain to wrap around doing some of that stuff for the marketing that you do to be able to get people to come your classes and then having to be prepared to present to people this was my place this was my place and and then now it's just. i can't use it anymore. her hands get back. husband said it was nonsense when she imagined she was a great ball walked on clouds but it is what she felt that was before he knew about the burning sensation in her nose as though breathing chemical fumes. homes.

mindy fell ill on july the 2nd coughing pain an ambulance ride for days of delirium his heart. i'm just quiet aren't there anymore i'm glad i made it through because there are so many people that didn't. you know that's me with the navy. there's the in mario. you know stare at me get me going. she documented her journey online but of exactly how it went to the i to you specialist has no memory i don't remember taking selfies of myself and posting them to instagram or to facebook i don't remember taking these pictures and this was at the hospital and. i don't look like me. at all. i talked to multiple doctors at my doctor and they said we have

a feeling that you're going to have a hard time in recovery you're going to be one of those people that they consider a long haul or. a new reality the muscle pain fatigue racing pulse ringing in the constant anxiety welcome to long. i know the difference between regular anxiety and then this other thing that covert gave to me that i could not control it was having just crazy like panic attacks and i couldn't i couldn't do anything and i couldn't get it to stop before she helped people have a good time wherever she went she run a small events business planning weddings festivals and so on in order to make a memory for them and that was really special to me to do like a kid's birthday party and they would walk in the room and they would be like this is for me right and it was like you know that was the gratification that i felt and the happiness that i felt more than how much i was going to get paid which by the way it was a very rich but it was it was very special it was a special feeling and it was my passion and i'm really proud of the group that

we've collected people who are along hollers people who are 1st line physicians or nurse practitioners treating postcode patients we have research scientist people who are also moderators in our group who are making sure that we have good content that's getting out. there are run of i believe that such social media patient groups will help medical research in the late 1900 similar groups helped introduce the term chronic fatigue syndrome for fibromyalgia which wasn't recognized before but can be treated effectively these days history may now repeat itself with coded lola's. since getting such a study that. only it looked like it was a concept just exactly one use just to me a more. risk which is just. what's cool like if somebody was just an addict and you lose it in the cookie was that what you must do you could argue that that are what

you and they're the most common sometimes that people are dealing with we have a clear of extreme fatigue like it's just it's bad written type fatigue brain fog is a bad one where or you're trying to think of a word maybe you're trying to think of the word leg and instead of wegg something crazy comes out like whatever. it's like there's this disconnect in your brain. michel. one of the 1st things i noticed i was struggling after supposedly recovering. so i started getting a lot. of doubt and. i walked 2 blocks away from her and i would get confused as to how to get. michael reagan was a vascular surgeon but now only attempts his own doctor's appointments most importantly he writes a note before leaving way he's going and why. this is the

store or the caesar and i had wolf. and luckily so no grab him. and when he came to there was a group of people standing around looking for one of them to call 911. from that point on i was scored in my apartment unless i was accompanied by. or unless i was going to a doctor or. sometimes now the left side of his face twitches his left eye sees black spots and his arms act on their own independent of his body. had another solution and i remember looking at my hand and i couldn't control it and i had one like right in front of my dog and i think they're scared my dog. because he's looking at me like this and peed on the bed and he started barking at me and

me disorientation plastic smell the taste of blue cheese and feeling as though he's been poisoned the new sensations michael experienced. but he is supported by his friends and family. if i was on my own i would have died because i probably would have never once of ospital and i would have died at home you know like several of my friends. michael used to lead a healthy life with lots of sport cycling climbing and scuba diving but now everything has changed so this is my bike. this is mine. and as a result a covert it's no longer safe for me at the moment to ride my bike and also i don't how good motor skills for the brakes. i feel like i'm in the body of an 80 year old person now with all of these multiple health issues and all this damage from the buyer s. and all the side effects of the medications i hope to take you know my experiences it nearly killed me and some days i wish it had killed because i feel like.

a fan of late. i feel like my quality of life right now is some days it's not worth living. what i found the helps me on the days that i feel like absolute 0 and i can't sleep and i'm so sick i have to support groups that i know that and i find someone else on there was having a worse state than myself. and they told them say something like keep your chin up. you know you're loved and supported here you're not alone. this is my cello because of the tremors in my hand i haven't had the same motor skills as pre-code.

i have basically no feeling from here to here as i've kept it on the wall here. to remind me. of why i'm going to do start. curse appointments. and the schism something to keep motivated on the do this when i feel like i'll i don't want to get all the blood i remember i have to keep pushing because wonder i want to practice for children. so it's going to take months but i have hope i have little victories each day of the things that i can get done and if you know anything about me i am very determined person like i said don't ever tell me i can't do something because i'm going to prove you wrong because that's just that's how i am so i am i am determined to get better. i never thought i would ever say this but i'm kind of grateful i got to say it because i am very grateful for life like i said before and i took it for granted we don't see what's right in front of

us sometimes just for being negative and it takes something big like that to redirect your focus and your perspectives. so it's time for me i'm very grateful. my collection of community here my bedside with one of the 1st things i see when i wake up. one this one and the 1st one by god from one of the mobs in our group and i was still there at the time this was back in october. she said dear amanda thank you for everything seen and unseen that you do want from theresa i love you teresa. i really like this when it rains look for rainbows when it starts to look for stars.

defenders of big thick often explained if you don't like their platforms think build your own well on this edition of crossfire we talked with some interested individuals you meet just against all the odds when they succeed. some rumors the sinners are. going to be. the new more.

of those he just comes up with a ticket did you hear that oh. i'm talking about is a very international community. media used to try to play. with just. as the. need to do. for the push them of the with mr newkirk of brazil so their new cool spirit. is everything because he was the loser with the forms of t.v. with the above the. flood they have i would have acted all day but out of decided not to take his place. with my good few that. take 2 good. look these well this is my grandfather watch just go particularly good good what you make one little bit higher you wait

a little bit. and then come back and look at dame then knocks they don't indicate the same time because he's moved up here the time down there. bastogne in moscow coronavirus district east in the russian capital of the banks a nation campaign gains momentum we hear from some of those who have the job. i want to get us into the gas to grow on a virus which i'm afraid of getting sick and dying it's dangerous for me as a single because the disease affects warble ability so we can't just sit at home and be afraid waiting for everything to watch. trace amounts in countries that opted for the pfizer job or supply problems in europe or north america in the us having to travel to neighboring states just to be inoculated.