and then a friend in alabama said hey i've got a good friend here who is also having problems as well so and it was actually her idea she was like hey you should start one of your facebook. i said yeah that's a great idea i should do that and then i fell asleep for a month and then i did it. was a standstill anyway amanda told herself and so she became a blogger and still to deface both groups of people like the group is called coven 1000 mung hollers discussion group and there are 10200 people in the group great now. that it was started back in june i thought maybe i would find 50 people like me. and i found a few more. 1000. now the days start and end was talking to other covert long hole as. yeah. yeah. yeah i get that i get that feeling i totally get that feeling

then just go sions reveal a common topic so you don't tell them what's wrong and all you hear is you'll find you'll just overanxious. an entirely different ballgame when you're navigating being a long haul or without a church you can't just go out and get every time. you play a lot of thing like i guess the physio care i guess i don't feel bad in this way so i guess things are on and that's really scary. it's really scary. scientists don't yet know which a post covered symptoms and which aren't says professor but on of a of the institute for by a health innovation at george mason university it must give you. must issue you see a girl late. thirty's the coastal chill out all use cold damp paper to look to get a large increase in the last known. last birthday is also push it out so it lasts

a lot again used to say in the new update you know what would you most when you could you not. remember it doubles tallest. of them actually my favorite drive in the city i love this back road that goes up to my all the time. with 10000 people in the group by trade i still try to get to know as many of them and i can. and i do worry about them and i we did we did lose someone last month from her. it wasn't someone i interacted with often. but i just dread the day that. someone posts to me. i dread to think anyone. this minivan has already become popular in kansas city amanda removes the back seat and loads up with food

to deliver it to homeless people and cope with long haul as today she's brought a toy for a family under lockdown it's lego with a father mother and 6 children she can't go in so she leaves her gift at the front door. hi hannah ask why you. later. some of the medical issue is postpone but are so. so severe. that it's a distinct possibility that someone could have a heart attack or have a stroke. i'm not sure if they saw the small stroke a few months ago. she really worries she's a very good friend of mine. so.

just like amanda just 100 called kota twice and even though she jokes some hell there's nothing funny about it the next right to die was pretty cool. very very very insecure. and they. started you know being known we know that it was in china at that point and 1117 was the case of i'm aware of the earliest for the chinese and i was actually hospitalized 11142019 with the exact same symptoms and it wasn't until i visited the mayo doctor that's on the sick you know there. he looked at my scans and he was just like my god you had. so and that's how i got where i am now. i actually never gotten rid of the headache i've had since november of last year it just feels like an ice pick it's just going straight to the back of my head. since becoming you know she's had memory issues so now uses 3 systems reminders on

a phone a day planner and lots of still because they're everywhere grocery lists reminders of when the children get home medical appointments shopping times and blue 100 lists. lists all my daily stuff or like things that are important to remember aside i survived. so yeah this is actually about my experience. writing it down and as i remember it. was life has changed completely so the cheese always ready for the worst she cooks lots of meals for her 5 children in advance. learn to build your life around. that makes sense. i can just pop some and we're good for a day cause i don't know how. to do it maybe 5. but basically everything is in preparation for the next flare and then it passes and then prepare

for the next one well. i have a lot. actually look at me so badly that my dear fellow and the medications. actually here i can show you this is something that was pretty dramatic. show you my hair. you look your of the day 1113 there. and down. this is throughout the day my hair just go out and this isn't counting all of the hair there fought around the house i vacuumed up and this is compacted it was actually a bigger ball until i. met here isn't limited to here. right what here is what i normally write. pair.

very thick very healthy looking. actually didn't look my age it was only a year ago that desert wanted to become a pilot she dreamed of flying a plane but would force her to give up on that dream there is a moderator no alliances day to run. website for. and teaches a mentor to cook pastor. randy under the honor to govern the park and you can sure go are very proud of where you get arrested for. i've never really fully. know or 'd taste i lost it initially. or 'd i would know that something was burning there was 'd a time where i work my children up the middle of the night in the house was on fire you know and it was. bob straight here contains my all of my daily meds. and i keep everything all along. but as you can

see it's for. someone asked me they said you know how is it surviving you know after having kuwait and it's like i think surviving is the easy part honestly i think living with the after effects is probably 10 times worse than. anything from the hospital because honestly i don't really remember a whole lot of. the web site collects data from post. conditions when i'm reading about all of these things in that group of people blood clots and you know they're having strokes or stock items of things we have over 200 items on our something. and it's kind of scary to think gosh i hope none of this is going on i may but i don't know. jamie.

it's awful like absolutely a crush pill. and it's. 'd used to make me gag and sometimes. 'd 'd the 1st thing jamie novick tells us is what we should do if he posses out during our in. you had you know put the gloves on you wipe off the area with. the alcohol then you would take the syringe out you would drop basically out of here you push this down shake it up and you would 'd put the syringe in there and you drop the medication from out of there into the syringe and once you have the syringe filled you push the air out and then you would have to literally inject it pretty much into my thigh. and then call 911. to me as a student nurse but this time she's one of the patients 'd in april she learned that she'd contracted a cove at 19. we get the results from the nurse practitioner called me herself

usually they have the front desk people call and said i need to apologize to you you have covered and i said really now you're joking right. days in hospital and for months on oxygen with chronic disease patients like jamie are known as high risk being there knowing bad. basically when you're fighting not to and knowing that. it's good. for your family. i was so sick i didn't have the heart to tom i wasn't able to watch. i was going to watch it with him. daughter who helped take care of me both of them when i was sick wasn't for basically i probably wouldn't be here. i was here's me basically. i'm going to die here and my kids are going to seem.

too good. this is my grandfather was just both particularly good good let's make one a little bit higher do a little bit. and then. it will look at the same deadlocks they don't indicate the same time because there's more time here. there. nuclear become a battleground in the us. people of demanding the shut down of a local plant from yankee right now my focus because it's a very dangerous prayer power plant the owner is attempting to run the reactor beyond its operational limits this case just sort of puts a magnifying glass on where's the power in this country where's it going is it moving more towards corporate interests or is it more in the idea of

a traditional participatory democracy is or powerline with the people this case demonstrates that struggle in a very real way. our struggle. of financial for law and just about money laundering 1st to visit this business into 3 different. oh good this is a good start well we have our 3 banks all set up here maybe something in your

something in america something overseas in the cayman islands or do we do all these banks are complicit in their tough talk or suit a softer didn't call and say hey i'm ready to do some serious money laundering ok let's see how we did well we've got a nice luxury. and for stacey oh beautiful jewelry and how about. again from that you know what money laundering is highly illegal. watch because of course. as a covert along jamie was determined to hold tight and keep going to the bitter end she does it with the help of about 17 different meds that she takes each day. so this is cover a. seizure medication. this one here the little yellow one that's pantoprazole it's

for the pretty much blocks the acid in that in your stomach when i take his own that's the steroid basically this one will help protect for that and then that's a low dose think and i'm just a supplement. and then this one is their tech. energy settlement these days long haul is show that x. rays electrocardiograms and lab test results as if they were pictures in a family album so this is pretty covert of this is covered and then me now. 'd ringback covert gave a shortness of breath between hair loss and a rash it also took away her fiance. and has ruined all plans. 'd february 29th i got engaged and i see my fiance maybe every other month or so. 'd for a day or 2 and other men that basically you know that's interrupted our relationship

his kids i have not seen them in i ringback honestly don't remember the last time i've seen his kids we've been together for a long time so many years. it's pretty devastating to lose those relationships and not have that closeness or that support. when you need it but that also puts back all the other plans that i had are on hold my wedding and with basically i was going to be you know buying a house. those changes made her reflect on the value of human life that's been lost in all the statistics about total deaths every day in the us alone. feel insignificant. like basically if you die it's ok because you have chronic health issues big deal what difference where you making in the world what difference do you mean to me. british researchers studying people who'd recovered from severe cove it found that the disease caused a reduction of around 10 years in life expectancy with slight differences from men

and women. focused on the balcony of. course elick yet. or well it was quite. a less time to change the wished to. yeah i will shoot 1st. if you. do what you wish with. mindy. for that's. you hear me popping everywhere. not so long ago mindy dougherty enjoyed painting in her basement dance studio it was how she expressed herself and relieve stress i used to teach classes with i learned to do

acrylic pouring a couple years ago and decided to teach it to people because it was a very. different type of art that you get to do it is done it's like a fluid art if you will so with this type of art you use paint acrylic paint and you have a specific media that you use with it and you mix colors and you get to draw it on a canvas and you can see create some of the stuff is just. all on canvas. and just really fun colors and i felt this was a really good way to express myself i had so many people that were tell me i don't know how to do art i can't paint i can't do this and i sure did them that you would be able to do acrylic pouring because really pouring is very very simple. basement office study to work in and her shelter but it's been getting increasingly

hard to take refuge there but i can see it with coke now i can't even get my brain to wrap around doing some of that stuff for the marketing that you do to be able to get people to come your classes and then having to be prepared to present to people this was my place this was my place and and then now it's just. i can't use it anymore. her hand to get back to. her husband said it was nonsense when she imagined she was a great walked on clouds but it is what she felt that was before he knew about the burning sensation in her nose as though breathing chemical fumes. homes. mindy fell ill on july the 2nd coughing pain an ambulance ride for days of delirium has heart. i'm just quiet aren't there anymore i'm

glad i made it through because there are so many people that didn't. you know that's me with the navy. there's me and mario. you know me. she documented her journey online but of exactly how it went the i.t. specialist has no memory i don't remember taking selfies of myself and posting them to instagram or to facebook i don't remember taking these pictures and this was at the hospital and. i don't look like me. at all. i talked to multiple doctors at my doctor and they said we have a feeling that you're going to have a hard time with recovery you're going to be one of those people that they consider a long haul or. a new reality. for. racing pulse ringing in the constant anxiety welcome to long. i know the difference between

regular anxiety and then this other thing that covert gave to me that i could not control it was having just crazy like panic attacks and i couldn't i couldn't do anything and i couldn't get it to stop before she helped people have a good time wherever she went she run a small events business planning weddings festivals and so on in order to make a memory for them and that was really special to me to do like a kid's birthday party and they would walk in the room and they would be like this is for me right and it was like you know that was the gratification that i felt and the happiness that i felt more than how much i was going to get paid which by the way it was a very rich but it was it was very special it was a special feeling and it was my passion and i'm really proud of the group that we've collected people who are along hollers people who are 1st line physicians or nurse practitioners treating postcode patients we have research scientist people who are also moderators in our group who are making sure that we have good content

that's getting. there are run of i believe that such social media patient groups will help medical research in the late 1900 similar groups helped introduce the term chronic fatigue syndrome for fibromyalgia which wasn't recognized before but can be treated effectively these days history may now repeat itself with coded lola's by at the white you since you're going to study them. only it looks like it was a concept just exactly when you just just to me and what. just what you just published was what's cool like if somebody was just an addict and you lose it in the cookie was that what you must do you could argue that all should they're the most common sometimes that people are dealing with we have a clear of extreme fatigue like it's just it's bad written type fatigue brain fog is a big one where you're trying to think of a word maybe you're trying to think of the word leg and instead of wegg something

crazy comes out like what us. and it's like there's this disconnect in your brain. michael. one of the 1st things i noticed i was struggling after supposedly recovering. so i started getting lost art out and. i walk 2 blocks away from the apartment and i would get confused as to how to get. michael reagan was a vascular surgeon but now only attends his own doctor's appointments most importantly he writes a note before leaving way he's going and why. this is the store the caesar and i had wolf. and luckily so no grabbed him. and when he came to there was

a group of people standing around. i wanted them to call my mom one. from that point on i was scored in my apartment unless i was accompanied by. or unless i was going to a doctor or. sometimes now the left side of his face twitches his left eye sees black spots and his arms act on their own independent of his body. in numbers and i remember looking at my hand and i couldn't control it and i had one like right in front of my dog and i think they're scared my dog. because he was looking at me like this peed on the bed and he started barking at me and me disorientation plastic smell the taste of blue cheese and feeling as though he's been poisoned the new sensations michael experienced. but he is supported by his friends and family. if i was on my own i would have died because i probably would have never once of ospital and i would have died at home you know like several of

my friends. michael used to lead a healthy life with lots of sports cycling climbing and scuba diving but now everything has changed so this is my bike. this is mine. and as a result a covert it's no longer safe for me at the moment to ride my bike and also i don't how good motor skills for the brakes. i feel like i'm in the body of an 80 year old person now with all of these multiple health issues and all this damage from the buyer this and all the side effects of the medications i have to cheat you know. my experience is it nearly killed me and some days i wish it had killed because i feel like. a form of late. i feel like my quality of life right now is some days it's not worth living.

what i phoned the hopes on the days that i feel like absolute 0 and i can't sleep and i'm so sick i have to support groups that i'm with and i find someone else on there was having a worse state than myself. and they told them say something like keep your chin up. you know you're loved and supported here you're not alone. this is my cello because of the tremors in my hand i haven't had the same motor skills as pre-code. i have basically no feeling from here to here as i've kept it on the wall here. to remind me. of why i'm going to start. support units. and risk has been something to keep motivated on the do this when i feel like i'll i

don't want to get all the blood i remember i have to keep pushing between his wonder i want to practice which a little bit. so it's going to take months but i have hope i have little victories each day of the things that i can get done and if you know anything about me i am very determined person like i said don't ever tell me i can't do something because i'm going to prove you wrong because that's just that's how i am so i am i am determined to get better. i never thought i would ever say this but i'm kind of grateful i got to say it because i am very grateful for life like i said before and i took it for granted we don't see what's right in front of us sometimes that for being negative and it takes something big like that to redirect your focus and your perspectives. so it's time for me i'm very grateful. my collection of community here my bedside with one of the 1st things i see when i

wake up. one that's one of the 1st one but i got the from one of the mobs in our group and i was still there at the time this was back in october. she said dear amanda thank you for everything seen an unseen that you do want from theresa i love you teresa. i really like this when it rains look for rainbows when it starts to look for stars.

so rumors are sinners are. going to be named chris mccomb you may. remember he just came stuff for our ability 'd to get in your career that oh. i'm talking about is a very international community. media used to try to. do this to keep it as this study says they need to eat. those who pushed them but the one who pushed through the commercials for their new cool script. to go is everything produced polluted with the forms of t.v. with 3 of the above the. 5 they have i would have acted all day but i decided not to take his place. with my grandpa to do that.

l. look forward to talking to you all that technology should work for people. i robot must obey the orders given by human beings except where such orders that conflict with the 1st law show your identification for should be very careful about official intelligence and the point of view see is to create a trust ever the shia. currently take on various jobs and with artificial intelligence will summon the demon. for obama's protect its own existence as. the. defenders of big stick. and explain if you don't like their platforms think bill jones well on this edition of crossfire we talked with some

interested individuals just against all the hans will they succeed. in. this hour's headlines stories follies or slashes deliveries alvin's covert vaccine in europe north america after production delays prompting threats of legal action from its only poland. serbia enters talks with russia to start its own production of this public beach we hear from barbara nunn serbian film director of white trust and i think. i'm very happy to be. exposed to. the russian rock scene because it's me.