she just there have been many complaints of peril vision loss joint pain and fatigue in the us these patients are referred to as post coded low on the list i talk to multiple doctors and my doctor and they said we have a feeling that you're going to have a hard time in recovery you're going to be one of those people that they consider a long haul or. amanda. may be able to go somewhere. never mind i mean. just amanda finlay has lost her driving confidence i have not driven my car much in the last 3 months. i've just been sacked. it looks like someone took some glancing around and then put it in your lawn. and i had it on both sides of the. house that he is contracting corona virus twice

in spring and autumn is what lift it with onto she was like thank you rush is a vision impairment in her left eye i still do have some postcode and sometimes the big one is fatigue i do take a medication that helps with out otherwise i would be asleep right now. we've held it and then when i heard from one of my best friends that their sister was also still having problems and then a friend in alabama said hey i've got a good friend here who is also having problems as well so and it was actually her idea she was like hey you should start one of your facebook. so that's a great idea i should do that and then i fell asleep for a month and then i did it. it. was a standstill anyway amanda told herself and so she became a blogger and started a facebook group for people like the group the college coven 19 long hollers discussion group and there are 10200 people in the group great now. it was started

back in june i thought maybe i would find 50 people like me. and i found a few more attend and 1000. now the days start and end was talking to other code long holos. yeah. yeah. yeah i get that i get that feeling i totally get that feeling then discussions reveal a common topic see i don't tell them what's wrong and all you hear is you'll find you'll just overanxious not an entirely different ballgame when you're navigating being a long haul or without a chair you can't just go out and get every time. you play a lot of thing like i guess this is ok i guess i don't feel bad in this way so i guess things are on and that's really scary. it's really scary.

scientists don't yet know which a post covered symptoms and which aren't says professor but on of a of the institute for by a health innovation at george mason university. last issue you see a girl late. thirty's the coastal little english church an old old cold damp it didn't look to get a large it was known. at last bristol used also but it acts at last a lot again used to say in the new update you know what would you most when you could you not. remember it doubles tallest. of them actually my favorite drive in the city i love this back road that goes up by all the permits. but 10000

people in the group i try to i start running into those many of them like yeah. and i do worry about them and i we did we did lose someone last month from her. there wasn't someone i interacted with often. but i just dread the day that. someone posts to me. i dread to think anyone. this minivan has already become popular in kansas city amanda removes the back seat and loads up with food to deliver it to homeless people and cope with long haul as today she's brought a toy for a family under lockdown it's lego with a father mother and 6 children she can't go in so she leaves her gift at the front door. hi hannah ask why you. later. some of the medical issues post but are

so. so severe. that at the distinct possibility that someone could have a heart attack or have a stroke. i'm not sure if they saw how the small stroke a few months ago. she really worries she's a very good friend of mine. so. just like amanda just 100 called kota twice and even though she jokes some hell there's nothing funny about it the next try to die was pretty cool. very very short it's humor. and. started you know being known we know that it was in china at that point and 1117 was the case of i'm aware of the earliest for the chinese and i was actually hospitalized

11142019 with the exact same symptoms and it wasn't until i visited the mayo doctor that's on the sticky note there. he looked at my scans and he was just like my god. so and that's kind of how i got where i am now. i've actually never gotten rid of the headache i've had since november of last year it just feels like an ice pick it's just going straight to the back of my head. since becoming you know she's had memory issues so now uses 3 systems reminders on a phone a day planner and lots of stay because they're everywhere grocery lists reminders of when the children get home medical appointments shopping times and blue 100 lists. lists all my daily stuff or like things that are important to remember aside i survived. so yeah this is actually about my experience. writing it down and as i remember it. was life has changed completely

so the cheese always ready for the worst she cooks lots of meals for her 5 children in advance. learn to build her life around to make sounds i can just pop some and we're good for a day cause i don't know how. to do. but basically everything that's in preparation for the next flare and then it passes and then prepare for the next one well. ringback i have a lot. actually look at me so badly that my dear fellow and the medications. actually here i can show you this is something that was pretty dramatic. show you my hair. was you look curious the day the 1113 there. and

found. this is throughout the day my hair just go out and this isn't counting all of the hair there fought around the house i vacuumed up and this is compacted it was actually a bigger ball until i. met here isn't limited to here. right what here is what i normally write. pair. very thick very healthy looking. actually didn't look my age it was only a year ago the desert wanted to become a pilot she dreamed of flying a plane but would force her to give up on that dream there is a moderator no alliances day to run. website for. him teaches a mentor to cook passed a. mandate to the owner to govern the park and you can sure go are you traffic

where you get arrested or. i never really fully. know or 'd taste i lost it initially. or i would know that something was burning there was 'd a time where i work my children up the middle of the night in the house was on fire you know and it was. bob straight here contains my all of my daily meds. and i keep everything all on me. but as you can see it's for. someone asked me to a said you know how is surviving you know after having quit in anosike i think surviving is the easy part honestly i think living with the after effects is probably 10 times worse than. anything from the hospital because honestly i don't really remember a whole lot of. the web site collects data from post. conditions

when i am reading about all of these things in that group of people blood clots and then you know they're having strokes or stock items of things we have over 200 items on our something. and it's kind of scary to think gosh i hope none of this is going on i may but i don't know. jamie. like absolutely crushed pills. and it's. 'd used to make me gag and sometimes. 'd the 1st thing jamie nuva tells us is what we should do if he posses out during our into. you had you know put the gloves on you wipe off the area with. the alcohol then you would take

the syringe out you would drop basically out of here you push this down shake it up and you would 'd put the syringe in there and you drop the medication from out of there into the syringe and once you have the syringe filled you push the air out and then you would have to literally inject it pretty much into my thigh. and then call 911. to me as a student nurse but this time she's one of the patients 'd in april she learned that she'd contracted a cove at 19. we get the results from the nurse practitioner called me herself usually they have the front desk people call and said i need to apologize to you you have covered and i said really now you're joking me right 11 days in hospital and for months on oxygen with chronic co-morbidities patients like jamie are known as high risk being there knowing that you're dying basically when you're fighting not to and knowing that you. know it's good.

for your family. and my son was graduating 8th grade while i was. i was so sick i didn't have the heart to tom i wasn't able to watch his graduation even though it was on the line i was going to watch it with him i was too sick but i couldn't let my daughter who helped take care of me both of them when i was sick wasn't for them basically i probably wouldn't be here. i was here's me basically scared i'm going to die here and my kids are going to see me die like this. defenders of big often explained if you don't like the platforms think well on this edition of crossfire we talk with some interested individuals doing just that again it's called.

some rumors assume. you mean. those you just came up with if you care that oh. i'm talking about is a very international community. meeting you straight. president bush at the. local strip. is everything. to do with. god he decided not to take his place.

housing. oh you mean there's a downside to artificial mortgage through. this report.

jamie was determined to hold and keep going to the big she does it with the help of about 17 different. so this is. seizure medication. this one here the little yellow one. it's for the pretty much blocks the acid in that in your stomach when i take. the steroid basically this one will help protect for that and then that's a low dose think and i'm just a supplement. and then this one is their tech. energy settlement these days long haul is show that x. rays electrocardiograms and lab test results as if they were pictures in a family album so this is precocious of this is covered and then me now. 'd ringback covered gave a shortness of breath between hair loss and a rash it also took away her fiance. it has ruined all plans. 'd february

29th i got engaged and i see my fiance maybe every other month or so. 'd for a day or 2 and other than that basically you know that's interrupted our relationship his kids i have not seen them in i ringback honestly don't remember the last time i've seen his kids we've been together for a long time so many years. it's pretty devastating to lose those relationships and not have that closeness or that support. when you need it but that also puts back all the other plans that i had are on hold my wedding and with basically i was going to be you know buying a house. those changes made her reflect on the value of human life that's been lost in all the statistics about total deaths every day in the us alone. feel insignificant. like basically if you die it's ok because you have chronic health

issues big deal what difference were you making in the world what difference do you mean to me. british researchers studying people who'd recovered from severe kovac found that the disease caused a reduction of around 10 years in life expectancy with slight differences from men and women. focused on the balcony of. course elick yet. or well it was quite. less than 10 years of the bush took place. yeah i will shoot 1st. if you. do what you wish. mindy. for that's.

been here me popping everywhere. not so long ago mindy dougherty enjoyed painting in her basement dance studio it was how she expressed herself and relieve stress i used to teach classes where i learned to do acrylic pouring a couple years ago and decided to teach it to people because it was a very. different type of art that you get to do it is done it's like a fluid art if you will so with this type of art you use paint acrylic paint and you have a specific media that you use with it and you mix colors and you get to draw it on a canvas and you can see create some of the stuff is just. all on canvas. and just really fun colors and i felt this was a really good way to express myself i had so many people that were tell me i don't know how to do art i can't paint i can't do this and i sure did them that you would

be able to do acrylic pouring because really pouring is very very simple. basement office study to work in and her shelter but it's been getting increasingly hard to take refuge there but i can't do it with coke now i can't even get my brain to wrap around doing some of that stuff for the marketing that you do to be able to get people to come your classes and then having to be prepared to present to people this was my place this was my place and and then now it's just. i can't use it anymore. her hands get back to. her husband said it was nonsense when she imagined she was a great walked on clouds but it is what she felt that was before he knew about the burning sensation in her nose as though breathing chemical fumes. homes.

mindy fell ill on july the 2nd coughing pain an ambulance ride for days of delirium his heart. i'm just quiet aren't there anymore i'm glad i made it through because there are so many people that didn't. you know that's me with the navy. there's me and mario. you know me get me going. she documented her journey online but of exactly how it went to the i to you specialist has no memory i don't remember taking selfies of myself and posting them to instagram or to facebook i don't remember taking these pictures and this was at the hospital and. i don't look like me. at all. i talked to multiple doctors at my doctor and they said we have a feeling that you're going to have a hard time in recovery you're going to be one of those people that they consider

a long haul or. a new reality muscle pain for. racing pulse ringing in the constant anxiety welcome to the. i know the difference between regular anxiety and then this other thing that covert gave to me that i could not control it was having just crazy like panic attacks and i couldn't i couldn't do anything i couldn't get to stop before help people have a good time wherever she went she ran a small events business planning weddings festivals and so on in order to make a memory for them and that was really special to me to do like a kid's birthday party and they would walk in the room and they would be like this is for me right and it was like you know that was the gratification that i felt and the happiness that i felt more than how much i was going to get paid which by the way it was a very rich but it was it was very special it was a special feeling and it was my passion and i'm really proud of the group that

we've collected people who are along hollers people who are 1st line physicians or nurse practitioners treating postcode patients we have research scientist people who are also moderators in our group who are making sure that we have good content that's getting. out there around of a believes that such social media patient groups will help medical research in the late 1900 similar groups helped introduce the term chronic fatigue syndrome for fibromyalgia which wasn't recognized before but can be treated effectively these days history may now repeat itself with coded loam whole as buy it since you're going to study them. only it will provide you with concepts just exactly when you're just just it to me and what. just what you just published at least it was what's cool like you're somebody was just on your can you lose it in the cookie was that what you must use what should you don't you don't know what you'll do the most common from times that people are dealing with we have

a we have extreme fatigue like it's just it's bedridden type fatigue brain fog is a big one where you're trying to think of a word maybe you're trying to think of the word wag and instead of wegg something crazy comes out like what up. and it's like there's this disconnect in your brain. michel. one of the 1st things i noticed though was struggling after supposedly recovering from the cold so i started getting lost and found out and. i'd walk 2 blocks away from the apartment and i would get confused as to how to get home michael reagan was a vascular surgeon but now only attends his own doctor's appointments most importantly he writes a note before leaving way he's going and why. this is the

store the seizure. and i had wolf. and luckily. him. when he came to there was a group of people standing around looking for one of them to call 911. from that point on i was scared to the my apartment unless i was accompanied by someone or unless i was going to a doctor. sometimes now the left side of his face twitches is left i see stars and black spots and his arms act on their own independent of his body. i had another solution and i remember looking at my hand and i couldn't control it and i had won it like right in front of my dog and i think they're scared my dog to death. because. he's looking at me like this and he peed on the bed and he started barking at me and pawing at me disorientation

a bunch of plastic smell the taste of blue cheese and feeling as though he's been poisoned the new sensations michael experienced often because of it but he is supported by his friends and family if i was on my own i would have died because i probably would have never once of ospital and i would have died at home you know like several of my friends. michael used to lead a healthy life with lots of sport cycling climbing and scuba diving but now everything has changed so this is my bike. this is mine. and as a result a covert it's no longer safe for me at the moment to ride my bike and also i don't how good motor skills for the brakes. i feel like i'm in the body of an 80 year old person now with all of these multiple health issues and all this damage from the buyers and all the side effects of the medications i hope to take you know my experiences it nearly killed me and some days i wish it had killed because i

feel like. a fan of late. i feel like my quality of life right now is some days it's not worth living. what i found the helps me on the days that i feel like absolute 0 and i can't swim and i'm so sick i have been a support group so that. and i find someone else on there is having a worse state than myself. and they tell them they say something like keep your chin up. you know you're loved and supported here you're not alone. this is my cello because. trimmers in my hair and i haven't had the same motor skills as pre-code. i have basically no feeling from here to here as i've kept it all her.

to remind me. of why i'm going to abuse doctors' appointments. and discuss me something to keep motivated on the days when i feel like. i don't want to get out of bud i remember i have to keep pushing between those wondering if i want to practice which i will do. so it's going to take months but i have hope i have little victories each day of the things that i can get done and if you know anything about me i am very determined person like i said don't ever tell me i can't do something because i'm going to prove you wrong because that's just that's how i am so i am i am determined to get better. i never thought i would ever say this but i'm kind of grateful i got sick because i am very grateful for life like i said before and i took it for granted we don't see what's right in front of us

sometimes it for being negative and it takes something big like that to redirect your focus and your perspectives. so it's time for me i'm very grateful. my collection of community here my bedside with one of the 1st things i see when i wake up. one of them and the 1st one by god from one of the mobs in our group and i was still there at the time this was back in october. she said dear me and thank you for everything seen and unseen that you do not from teresa i love you teresa. i really like this when it rains look for rainbows when it starts to look for stars .

i think this is a 3rd administration for 12 years anyway you know a big theme in 20202016 was dollars station d. globalization and now it's all coming to. become a battleground in the us. people. from yankee is right now my focus because it's a very dangerous. power plant the owner is attempting to run the reactor beyond its operational limits this case just sort of puts a magnifying glass on where's the power in this country where's it going is it moving more towards corporate interests or is it more in the idea of a traditional participatory democracy is your power line with the people this

demonstrates that struggle in very real ways. in. our top stories this hour of. shoes delivery vaccine in europe north america production delays. legal action from. serbia enters talks with russia to start its own production. we hear from the serbian film director about his thoughts on the show. i'm very happy to be. exposed to good. russian rock scene because it's me.