so she became a blogger and started a facebook group for people like the group this called coven 19 long hollers discussion group there are 10200 people i thought maybe i would find 50 people like me and i found a few more attend and 1000. now days start and end was talking to other coded long holos. yeah. ringback yeah i get that i get that feeling i totally get that feeling then discussions reveal a common topic so you don't tell them what's wrong and all you hear is you'll find you'll just overanxious not an entirely different ballgame when you're navigating being a long haul or without a church you can't just go out and get every time. you play a lot of thing like i guess this is ok i guess i don't feel bad in this

way so i guess things are on and that's really scary. it's really scary. scientists don't yet know which a post covered symptoms and which aren't says professor but out of a of the institute for by a health innovation at george mason university. last year to see a girl like. the coastal chill out all use cold damp to get a look at the edge of. the last known. last birthday is also but if it lasts a lot again used to say in the new update you know what would you most when you could you not. remember it doubles tallest. of them actually my favorite drive in the city i love this back road that goes up by all the time. with 10000

people in the group by trade i just don't try to get to know as many of them and i can. and i do worry about them and i we did we did lose someone last month from her. there wasn't someone i interacted with often. but i just dread the day that. someone posts to me. i dread to think anyone. this minivan has already become popular in kansas city amanda removes the back seat and loads up with food to deliver it to homeless people and cope with long haul as today she's brought a toy for a family under lockdown it's lego with a father mother and 6 children she can't go in so she leaves her gift at the front door. hi hannah ask why you. later. some of the medical issues post but are

so. so severe. that it's a distinct possibility that someone could have a heart attack or have a stroke. i'm not sure if they saw how the small stroke a few months ago. she really worries she's a very good friend of mine. so. just like him and just 100 called kota twice and even though she jokes some hell there's nothing funny about it the next try to die was pretty cool. very very good consumer. and they. started you know being known we know that it was in china at that point and 1117 was the keystone i'm aware of the earliest for the chinese and i was actually hospitalized

11142019 with the exact same symptoms and it wasn't until i visited the mayo doctor that's on the sick you know there. he looked at my scans and he was just like my god you had. so and that's kind of how i got where i am now. i can actually never gotten rid of the headache i've had since november of last year it just feels like an ice pick it's just going straight to the back of my head. since becoming you know she's had memory issues so now uses 3 systems reminders on a phone a day planner and lots of stay because they're everywhere grocery lists reminders of when the children get home medical appointments shopping times and blue 100 lists. lists all my daily stuff or like things that are important to remember aside i survived. ah. so yeah this is actually about my experience.

writing it down and as i remember it. was life has changed completely so the cheese always ready for the worst she cooks lots of meals for her 5 children in advance. learn to build your life around. that makes sense i can just pop some and we're good for a day cause i don't know how. to do it maybe 5. but basically everything is in preparation for the next flare and then it passes and then prepare for the next one well. i have a lot. of actually looked at me so badly that my dear fellow and the medications. actually here i can show you this is something that was pretty dramatic. show you my hair. was you look your it's

a day 1113 there. and down. this is throughout the day my hair just go out and this isn't counting all of the hair that fought around the house i vacuumed up and this is compacted it was actually a bigger ball until i. met here isn't limited to here. right what here is what i normally. pair. very thick very healthy looking. actually didn't look my age it was only a year ago the desert wanted to become a pilot she dreamed of flying a plane but would force her to give up on that dream there is a moderator no alliances day to run a website for. and teaches a man to cook passed a. mandate to the owner to govern the park and you can surely go out if you felt

really proud of where you have rested for. i've never really fully. know or taste i lost it initially. or 'd i would know that something was burning there was 'd a time where i work my children up the middle of the night in the house was on fire you know and it was. bob straight here contains my all of my daily meds. and i keep everything all on me. but as you can see 'd it's for. someone asked me they said you know how is it surviving you know after having quit in and i think their baby was the easy part honestly i think living with the after effects is probably 10 times worse than. anything from the hospital because honestly i don't really remember a whole lot of. the website collects data from post holmes about the conditions

when i'm reading about all of these things in that group of people blood clots and you know they're having strokes or stock of things we have over 200 items on our something. and it's kind of scary to think gosh i hope none of this is going on i may but i don't know. jaimie. stuff. like absolutely crushed pills. and it's. 'd used to make me gag and sometimes. 'd the 1st thing jamie novick tells us is what we should do if he posses out during our interview. you had you know put the gloves on you wipe off the area with. the

alcohol then you would take the syringe out you would draw basically out of here you push this down shake it up and you would 'd put the syringe in there and you drop the medication from out of there into the syringe and once you have the syringe filled you push the air out and then you would have to literally inject it pretty much into my thigh. and then call 911. to me as a student nurse but this time she's one of the patients in april she learned that she'd contracted a cove at 19. we get the results from the nurse practitioner called me herself usually they have the front desk people call and said i need to apologize to you you have covered and i said really now you're joking me right. days in hospital and for months on oxygen with chronic co-morbidities patients like jamie are known as high risk being there knowing in bed you're dying basically when you're fighting not to and knowing that you. don't know.

where your family. my son was graduating 8th grade while i was. i was so sick i didn't have the heart to tom i wasn't able to watch his graduation even though it was on the line i was going to wash it with him i was too sick but i couldn't. my daughter who hoped to cure me both of them when i was sick i'm sure wasn't for them basically i probably wouldn't be here. i was here is me basically scared bad i'm going to die here and my kids are going to see me. defenders of big thick often exclaim if you don't like their platforms think journal well on this edition of crossfire we talked with some interested individuals doing just that against all odds they succeed. become a battleground in the us in vermont people of demanding the shutdown of

a local plant. is right now my focus because it's a very dangerous. power plant the owner is attempting to run the reactor beyond its operational limits this case just sort of puts a magnifying glass on where's the power in this country where's it going is it moving more towards corporate interests or is it more in the idea of. traditional participatory democracy is power lie with the people this demonstrates that struggle is very real. struggle. for.

those who just came up with a. very international community. present position of the world. is everything. to do with. mexico i decided not to take this life. with i gave you this.

as a covert along jamie was determined to hold tight and keep going to the bitter end she does it with the help of about 17 different meds that she takes each day. so this is. your medication. this one here the little yellow one. it's for the pretty much blocks the acid in that in your stomach when i take. steroids basically this one will help protect for that and then that's a low dose think and i'm just a supplement. and then this one is their tax l l r g settlement these days long haul is show that x. rays electrocardiograms and lab test results as if they were pictures in a family album so this is pre-code of this is covered and then me now. 'd ringback covert gave a shortness of breath between hair loss and a rash it also took away her fiance. it has ruined all plans. 'd february

29th i got engaged and i see my fiance maybe every other month or so. 'd for a day or 2 and other than that basically you know that's interrupted our relationship his kids i have not seen them in i ringback honestly don't remember the last time i've seen his kids we've been together for a long time so many years. it's pretty devastating to lose those relationships and not have that closeness or that support. when you need it but that also puts back all the other plans that i had are on hold my wedding and with basically i was going to be you know buying a house. those changes made her reflect on the value of human life that's been lost in all the statistics about total deaths every day in the us alone. feel insignificant. like basically if you die it's ok because you have chronic hope

issues big deal what difference 3 you're making in the world what difference do you mean to me. british researchers studying people who'd recovered from severe cove it found that the disease caused a reduction of around 10 years in life expectancy with slight differences from men and women. focused on the. right course elick yes. or all or most vital. or. well some do you see the bush slate. yeah i will shoot 1st. if you. don't want to push. it. mindy. so that's. do you hear me popping

everywhere. not so long ago that mindy dougherty enjoyed painting in her basement dance studio it was how she expressed herself and relieved stress i used to teach classes with i learned to do acrylic pouring a couple years ago and decided to teach it to people because it was a very. different type of art that you get to do it is done it's like a fluid art if you will so with this type of art you use paint acrylic paint and you have a specific media that you use with it and so you mix colors and you get to draw it on a canvas and you can see create some of the stuff is just. all on canvas . and just really fun colors and i felt this was a really good way to express myself i had so many people that were tell me i don't

know how to do art i can't paint i can't do this and i assured them that you would be able to do acrylic pouring because really pouring is a very very simple. basement office study to work in and her shelter but it's been getting increasingly hard to take refuge there but i can see it with coke now i can even get my brain to wrap around doing some of that stuff for the marketing that you do to be able to get people to come your classes and then having to be prepared to present to people this was my place this was my place and and now it's just. i can't use it anymore. her hands get back. her husband said it was nonsense when she imagined she was a great ball walked on clouds but it is what she felt that was before he knew about the burning sensation in her nose as though breathing chemical fumes. homes.

mindy fell ill on july the 2nd coughing pain an ambulance ride for days of delirium his heart. i'm just quiet aren't there anymore i'm glad i made it through because there are so many people that didn't. that's me with an a b. . there's me and mario. you know me get me going. she documented her journey online but of exactly how it went to the i to you specialist has no memory i don't remember taking selfies of myself and posting them to instagram or to facebook i don't remember taking these pictures and this was at the hospital and. i don't look like me. at all. i talked to multiple doctors at my doctor and they said we have

a feeling that you're going to have a hard time in recovery you're going to be one of those people that they consider a long haul or. a new reality the city of mosul for. racing pulse ringing in the constant anxiety welcome to the. i know the difference between regular anxiety and then this other thing that covert gave to me that i could not control it was having just crazy like panic attacks and i couldn't move i couldn't do anything and i couldn't get it to stop before she helped people have a good time wherever she went she run a small events business planning weddings festivals and so on in order to make a memory for them and that was really special to me to do like a kid's birthday party and they would walk in the room and they would be like this is for me right and it was like you know that was the gratification that i felt and the happiness that i felt more than how much i was going to get paid which by the way it was a very rich but it was it was very special it was

a special feeling and it was my passion and i'm really proud of the group that we've collected people who are along hollers people who are 1st line physicians or nurse practitioners treating postcode patients we have research scientist people who are also moderators in our group who are making sure that we have good content that's getting. there are run of a believes that such social media patient groups will help medical research in the late 1900 similar groups helped introduce the term chronic fatigue syndrome for fibromyalgia which wasn't recognized before but can be treated effectively these days history may now repeat itself with coded long haul as by it since you're going to study them. only it will provide you with concepts just exactly when you're just just it to me and what. just what you just published at least it was what's cool like if somebody was just on you're going you lose it in the good was that what you must use what should you don't you don't know what you'll do the most common from

times that people are dealing with we have a we have extreme fatigue like it's just it's bedridden type fatigue brain fog is a big one where you're trying to think of a word maybe you're trying to think of the word leg and instead of wegg something crazy comes out like what up. it's like there's this disconnect in your brain. michel. one of the 1st things i noticed there was troubling after supposedly recovering from the cold so i started getting lost. without it. i'd walk 2 blocks away from the apartment and i would get confused as to how to get home michael reagan was a vascular surgeon but now only attends his own doctor's appointments most importantly he writes a note before leaving way he's going and why. this is the

store the caesar and i had wolf. and luckily. him. and when they came to. there was a group of people standing around. for one of them to call 911. from that point on i was scared and in my apartment unless i was accompanied by someone or unless i was going to a doctor. sometimes now the left side of his face twitches his left i see stars and black spots and his arms act on their own independent of his body. i had another solution and i remember looking at my hand and i couldn't control it and i had won it like right in front of my dog and i think they're scared my dog to death. because he was looking at me like this and teen peed on the bed and he started barking at me and pawing at me disorientation

a bunch of plastic smell the taste of blue cheese and feeling as though he's been poisoned the new sensations michael experienced. but he is supported by his friends and family if i was on my own i would have died because i probably would have never been all and i would have died at home you know like several of my friends have. michael used to lead a healthy life with lots of sports cycling climbing and scuba diving but now everything has changed so this is my bike. this is mine. and as a result a covert it's no longer safe for me at the moment to ride my bike and also i don't how good motor skills for the brakes. i feel like i'm in the body of an 80 year old person now with all of these multiple health issues and all this damage from the buyer this and all the side effects of the medications i have to take you know my experience is it nearly killed me and some days i wish it had killed

because i feel like. a fan of late. i feel like my quality of life right now is some days it's not worth living. what i phoned the hopes and on the days that i feel like absolute i can't sleep and i'm so sick i have to support groups that i know. and i find someone else on there was having a worse state than myself. and they told them say something like keep your chin up. you know you're loved and supported here you're not alone. this is my shallow because of the tremors in my hand i haven't had the same motor skills as pre covais had.

i have basically no feeling from here to here as i've kept it on the wall here. to remind me. of why i'm going to be as doctors appointments. and this gives me something to keep motivated on the days when i feel like i. i don't want to get all the blood i remember i have to keep pushing between his wonder i want to just reach a little bit. so it's going to take months but i have hope i have little victories each day of the things that i can get done and if you know anything about me i am very determined person like i said don't ever tell me i can't do something because i'm going to prove you wrong because that's just that's how i am so i am i am determined to get better. i never thought i would ever say this but i'm kind of grateful i got to say it because i am very grateful for life like i said before and i took it for granted we don't see what's right in front of us sometimes the fear

of being negative and it takes something big like that to redirect your focus and your perspectives. and. this was a time for me i'm very grateful. my collection of community here my bedside with one of the 1st things i see when i wake up. one the 1st from the from one of the mobs in our group and i was still there at the time this was back in october. she said dear amanda thank you for everything seen an unseen that you do want from theresa i love you teresa. i really like this when it rains look for rainbows when it starts to look for stars.

i think this is our 3rd administration we've been doing this show for going on 12 years anyway you know a big theme in $22026.00 team was d. dollars they should dig lobel ization and now it's all coming to. some rumors as soon as you proceed through memphis mccomb you may.

remember if you just confirm for a book if you get in your show that oh. antarctica is a very international community. media used to try to flee. you just go to cuba is the slow slow slow you need to ease. the position of the world who used to look at the brazil through their new country. is everything which refuses to believe that we live in front of t.v. with the above the. color of their head level defective all day but i did decide it not to take the place. with my guy didn't tell you that. right now there are. people who are overweight obese it's

profitable to self. and sugary and salty and addict it's not at the individual level it's not individual willpower and if you. go on believing that never change this obesity epidemic that industry has been influencing very deeply the medical and scientific establishment. so what's driving the obesity epidemic it's called for by.

pfizer because thirty's of its covert vaccine in europe and north america are off of production that acer prompting threats of legal action from italy and poland. serbia enters talks with russia to start its own production of the sport make the vaccine we hear from my we're now in the serbian film director about his thoughts on the job versus a job will be in the future since it's going to do a should look for production of the russian side but it's going to be much more spread. if you believe before it starts. and president.