as a result of the offensive actions of the allied forces , the sandy settlement of the donetsk people's republic was completely liberated, the attack on solidarity and artyomovsk was liberated, reports of a special operation from our ministry of defense.

nationalist sabotage missile strikes on the heights of the kakhovskaya hydroelectric power station details of the provocation, what are the risks and consequences of history forbidding russians from entering the country? we are talking about those who received a schengen visa in this country, when the new rules of tallinn come into force. circle of good is a fund that helps in the fight against rare diseases, how he works under the sanctions special report further drive. the village of peski, where one of the most powerful fortified areas of the armed forces of ukraine was located and from where ukrainian militants constantly fired at donetsk, was completely liberated that this pension point was taken under the control of the allied forces, the ministry of defense reported and also told how the offensive was progressing in the solidar and artyomovsk area new data about the course of the special operation near denis alekseev, the village of sands, where

one of the most powerful fortified areas of the army was located ukrainian artillery was taken under the control of the russian military and allied forces for eight years from here, almost non-stop bill to the residential quarters of donetsk. as a rule, russian pilots cover the ground units from the air, it was the same in the sands, and the ka-52 alligator helicopter continues on other fronts reliable support during the offensive. just the day before , army aviation destroyed four command posts of the armed forces, and also armored vehicles. and operational-tactical aviation, as always , uses high-precision weapons in the kharkov regions and in the donetsk people's republic, the bases of two brigades were broken. this is more than 200 nationalists destroyed. and another dozen pieces of equipment near kramatorsk were liquidated american highmars, and in the nikolaev region, two mi-24 helicopters of the armed forces of the russian federation, continuing a special operation in ukraine during the offensive operations of the allied forces

in the area of ​​​​the settlement, artyomovsk, the donetsk people's republic, two companies of seventy second mechanized brigade the armed forces of ukraine as a result of concentrated fire strikes on the command posts of the units of the sixty-sixth mechanized brigade and the armed formation of the right sector in the area of ​​\u200b\u200bthe settlement of the old term of the donetsk people's republic , more than 100 nationalists and 10 units of military equipment ukrainian marines paratroopers were destroyed. the guardsmen who were taken prisoner are increasingly expressing their desire not to participate in the exchange for their homeland , they do not want to return, the reason is one inhuman attitude of the military leadership and leadership countries to the military personnel of the azov were shot, and the fighters of the national party of ukraine because they wanted to serve as weapons to azov became tactics they used conventional units. well, they put the ukrainian ones in front of them, while they themselves stood behind. long story short, i didn't come back. i do not want to exchange to ukraine, i do not want

to return. i don’t see the future of this country in such a way with such corruption with such authorities, but it cannot exist for a long time in the territories liberated from our formations. the russian military continues humanitarian work. another batch of food aid has been delivered to lisichansk. addressed by apartments, especially needy pensioners. disabled people are given food, personal hygiene items, medicines, the same in the kharkiv region. here is a column with twenty tons. vital cargo in cars flour cereals oil medicines military escort is necessary such convoys do not give rest to nationalists, shelling of a humanitarian convoy may occur. maybe their views can stand side by side along the column, we are guided by the situation. if i met somewhere far away, then, accordingly, we are trying to quickly slip through this area, if, accordingly, there is a direct threat. we are looking for shelter, we are guarding the humanitarian convoy and the personal composition of the mood of the apu. in general, it is understandable and not surprising. to take out

the anger on the civilian population for failures on the fronts is already a habitual loss in technology, confirmation of this is growing every day, and ukrainian units and their equipment are being deprived and the special operations received from partners from partners are already 267 aircraft and 148 helicopters shot down 365 anti-aircraft systems destroyed thousands of armored vehicles were eliminated in most of its tank denis alekseev ekaterina solovyova lead. the authorities of nova kakhovka reported a strong explosion near the sokol plant, this is the most densely populated area of ​​​​the city, emergency services were sent to the place earlier today. it is known that after a missile attack, the apu is disabled. one of the turbines of the kakhovskaya hydroelectric power station , forced by shell fragments, damaged the oil storage and there was a threat of fire. in addition, the station lost, backup power supply for own needs. all this warns the management of the facility that it can lead to

serious consequences, including a disaster at the zaporozhye nuclear power plant, which is located on the banks of the kakhovka reservoir. today, the zaporizhzhya nuclear power plant and the city of energodar are again shelled by ukrainian militants. representatives of the regional administration vladimir rogov gave all the details. well, if we are talking about the energy gift, then the arrivals have so far been noted in the area of ​​the embankment near the banks of the dnieper and in the area of ​​the nuclear power plant per hour. uh, people provide the safety of the nuclear power plant employees to ensure that, god forbid, nothing happens, er, irreparable, but apart from that. just now a few minutes ago. uh, a few a few shelling a few rockets. uh, they tried to hit the melitol, but thank god the air defense worked in the normal mode and everything was shot down. we see that they enlisted the support of the consolidated. they are trying to terrorize the west even more and strike at purely peaceful targets. well, about what

is happening now at the kakhovka hydroelectric power station, which, due to constant shelling of ukrainian militants working in a dangerous emergency mode will tell our correspondent mikhail andronik, he visited the hydroelectric power station and talked with employees. the machine room of the kakhovka hydroelectric power station is a single-strike product of the armed forces of the kiev regime, three of them are in a non-working condition. now the hydroelectric power plant is operating practically in emergency mode, only half of the design capacity of further shelling and damage to the kakhovskaya locks . hydroelectric power plants can be a disaster for residents of the entire territory of ukraine are working in a very dangerous mode. here. uh, of course, fighting near the station, they are unacceptable this strategic objects that threaten. e not only does not call not

about well, at the top of it, since these are the fences of the energodar station are directly powered from kakhovka. this, of course, attacks on the kakhovka hydroelectric power station are delivered using american salvo rocket systems. of fire, this is confirmed by the characteristic diamond-shaped submunitions and parts of the missiles found at the site of the shelling strikes with foreign-made missiles. take place with the help of guidance of foreign satellites bypassing the armed forces of ukraine, since they do not have such capabilities. and systems that could so accurately direct these missiles. in addition , the automobile crossing over the dam of the kakhovskaya hydroelectric power station is now the only bridge in the kherson region that connects the two banks of the dnieper, along which a large number of civilian vehicles are moving during the day, fired at the hydroelectric power station at the moment when it was there uh, cluster of cars, uh, in

this moment. uh, just miraculously managed to avoid the victim, because he was at the entrance. e bus by civilians. each time, the roadbed damaged by missiles is restored by the district administration within a few hours, but it will take much more time to repair the units of the kakhovka hydroelectric power station. and experts will be able to start repairing only after ukraine stops hitting, therefore mikhail androynik alexander malyshev to lead the kherson region. the dpr reports new victims after regular shelling by the ukrainian security forces. three local residents were killed in gorlovka. there is information about the wounded due to apu strikes, one who died in donetsk, another one in makiivka in the republican capital, also two people were injured by anti-personnel mines-petals, and in the village of zaitsevo, ukrainian shells exploded in the area of ​​​​a kindergarten, in addition, an old svyatopokrovskaya temple. the minister

of defense of slovakia announced the transfer to ukraine of four self-propelled artillery installations zana-2 in in the future, as reported, bratislava plans to send four more such howitzers, caliber 155 mm, to kiev, moreover, the transfer of old mig-29 fighters to ukrainians due to slovak hangars is next in line. well, in the western press, meanwhile, they are discussing the statements of henry kissinger, the former secretary of state, who is often called by the united states one of the most authoritative voices in world diplomacy and international relations. so kissinger believes that nato, by its actions, sends false signals to ukraine and this may end tragically for the whole world more ekaterina shamaeva not to escalate tension such advice to the american establishment was given by the veteran of international politics, former us secretary of state henry kissinger we are on the verge of war with russia and china because of the problems that we have partly

created without any idea how it will end or where it should lead. here is the former congresswoman. also a veteran of the iraq war tolsi. gabert is confident the conflict in ukraine is fanning the biden administration to try strengthen nato and satisfy the appetites of military-industrial corporations, but, according to experts, it is the americans themselves who suffer from washington's policy. we do not understand. can we achieve anything with sanctions if president biden asked us to sacrifice something that could turn the tide is one thing, but there is no chance that ukraine will win. in addition, sanctions do more harm to us than russian journalists of the publication. da hill even found a term to explain. why do the american authorities mistakes in the international arena? historical amnesia according to the author of the article from generation to generation, the owners of the white house inherit the same course of action. shoot then prepare and only then find the target the erosion of the so-called rules-based system reflects the fact

that not always and not all countries, not to mention china russia, agree or want to play by the rules. the west remembers the sad history of western colonialism and imperialism in many parts of the world at a time when the prestige of america continues to fall along with its influence, the world needs some newer system of international relations, in addition to the rule-based, overtaking the west and economic problems, counting for electricity, an increase in tax time. inflation, british newspaper daily telligrapher could not find a single area in the life of the united kingdom, which you were not in a state of ruin. welcome to modern britain where nothing works. everything is expensive and so are we. and no disputes about causes of our woes that are not able to come up with any solutions to the frustrations of western life faced and refugees to the city councilor in the british city of individuals. i had to blush in front of a ukrainian woman for the low availability

of dental services, her toothache did not subside, she applied for emergency dental care on the other side of yorkshire. i was faced with the fact that i have to wait 5 years. after that, she seriously began to think about taking the risk of returning home instead of solving her own problems. in europe by all means. the finnish authorities are trying to find a way to ban or at least limit russians to the eu territory. it looks like the mechanism has already been decided in practice. this may mean that you, for example, apply for a tourist visa on mondays, and from tuesday to friday for a visa for family reasons, study, work or other good reason, but for some countries there are few restrictions at the national level, the minister of foreign affairs of lithuania insists that more effective measure was would be a pan-european ban on the issuance of schengen visas to russians that such a scenario could become a reality does not exclude the authorities of denmark however, experts remind that from the point of view of european laws. it's impossible. sneaky,

punitive logic, an unsuitable basis for a complete overhaul of the schengen visa regime, created to reduce. they reinforce violations of fundamental rights. according to saryg, current eu legislation prohibits the introduction of a complete ban on the issuance of visas based on citizenship. however, in some countries. it is possible to systematically refuse entry to russians, and it is possible that some states may abuse this right ekaterina shamaeva evgeniya zemtsova. the government of estonia approved a ban on the entry of russians into the republic, we are talking about those who received a schengen visa in this country. they will not be able to enter the territory of the baltic state, starting from august 18 thursday. this decision was reported at the estonian ministry of foreign affairs, where they noted visas will remain valid, but their owners have entry sanctions. today, izvestiya employees returned from estonia to russia, journalist ksenia soldatova and cameraman dmitry timofeev and timofeev

expelled them from the country, canceled their visas and banned them from entering the european union for 3 years. at the same time , they did not have any official charges. read more about what is happening now at the border of russia with estonia about many hours of queues for refusals. at the entrance without explanation, our correspondent dmitry pishukhin will tell. he is just the same i talked to those who still managed to pass through the checkpoint . usually, the pedestrian crossing of the border took no more than half an hour. now the waiting time has increased many times by car, it turns out even longer, despite the fact that formally the queue is controlled, you need to sign up in advance on the website for the right time, then there is such a coupon that we have to cross the border from one to two. but they said that this time is approximate, there may be an error of up to 5 hours from here , it is good, it is clear that the russian part of the border crossing. empty queues piled up at the exit from estonia by advance booking , the delay is 11 hours, that is,

booked time. now they will cross the border only in the morning, but in reality, the waiting time already exceeds a day on the website of the border checkpoint in narva, more than 900 cars have already accumulated in the waiting area, the queue time is more than forty hours , the drivers of heavy trucks have already got used to this queue. they wait for several days. i waited almost 4 days to pass it live. turn, well, because it crosses the trucks, in addition to the live queue on the armor, so the queue is stretching and moving away, the reasons for such frank sluggishness of the border guards are explained by those who still managed to escape from estonian captivity instead of ten people in the zone. there's only one screener in line, big ones, and i think they 'll get bigger and bigger, they're always taking breaks, i don't know, there 's coffee, there's five cars skipping breaks. it took them 20 minutes for the ivanov family to travel to

russia separately, and they say that the border guards do not spare families with children, and even his compatriots, who are used to traveling to neighboring russia to shops, traveled alone via helsinki by ferry. through vyborg, it turned out faster than here the people on the eve of the estonian authorities announced their decision to close the borders for russians with schengen visas issued by the republic, but even now at border crossings they can refuse entry with any visa. and without explanation dmitry pishukhin alexey sosyrin alexander burushkov galina orlova and alexander berezkina to conduct the russian-estonian border in continuation the russophobic trend of the baltics, which is less and less in contact with reality, official tallinn wants to make the baltic inside the nato sea, that is, to close the exit of the baltic sea to russian ships. that for this it will be necessary to unite finland about estonia after it joins the north atlantic alliance and no one has made such a proposal, and the head of the estonian ministry of defense to which he immediately received a harsh reaction, the minister

was reminded that estonia does not have a border with finland that, in order to something somewhere to integrate, and themselves the finns advised to first create an estonian army before dragging others into the conflict. our state duma called such a plan unrealistic, yes. and when similar ideas were previously voiced from poland that the baltic should become nato's inland sea, the russian foreign ministry gave geography lessons. the baltic sea is surrounded, including the territory of russia, and by definition it cannot become internal to the alliance, no matter how politicians dream about it. the announcement of persona non grata by an employee of the russian embassy in podgorica is another episode unleashed with western hybrid company against russia, moscow reserves the right to retaliate, as stated in the comments of the official representative of the russian ministry of foreign affairs on the website of the department , according to zakharova, such a decision is the unwillingness and inability of the authorities. montenegro to move away from the general destructive line to the detriment of international

security cooperation and the actual national interest. shotgun attacker of british writer salman jailed without bail new jersey residents charged with attempted murder second degree nbc states that this person, judging by his social networks, sympathized with the radical movement. let me remind you of the near and middle east that roman salman’s gun of satanic verses, which came out in the eighty-eighth year, was perceived as aslan, an anti-islamic writer for the last 30 years, lived under protection, according to doctors, after the attack of the gun, he is on artificial lung ventilation. uh, he's got liver damage. he can't speak and will most likely lose one of his eyes. at least one person died and about 40 others were injured after a hurricane hit the site of the spanish music festival three victims assess

how a heavy event took place outdoors on a campsite suddenly, but was at the center of a hot cyclone that provoked a sandstorm. the impact of the elements led to the collapse of the structure. scene organizers. they decided to immediately stop the concert and carried out the evacuation of the camp, the victims were taken to several nearby hospitals. over the past day, strong winds in this region of spain has caused 13 emergencies since two paragliders fell in the mountains of valencia. one of them died. now the frame, we are from yekaterinburg, a street racer lost control during an illegal night race on the city's ring road, as a result, several spectators were seriously injured. alfa -bank credit card for any purchases guaranteed

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where no one ever swears? after all, each of them has long had a watch.ru application, which you can watch anywhere and on anything. at gelendzhik passed unique tests of russian laser technologies in the sea at a depth of a hundred meters . engineers of the troitsk institute for innovation and thermonuclear research, which are part of rosatom, first tested equipment for

underwater gas-laser cutting metal. previously, it was tested only at a depth of ten meters and in a simulation chamber. this time, the high seas sent a whole team to the ships, bari, despite the serious pressure of the underwater laser. worked without failures by his actions from the board. vessel such underwater metal cutting could be used, for example, for dismantling structures in the pools of nuclear power plants on offshore platforms for gas and oil production, as well as on sunken ships. deputy prime minister denis manturov, head of the ministry of industry and trade, visited the rostov optical and mechanical plant. this is one of the country's leading industrial strategic enterprises, the products that are produced there are used, including the navy, the border and armored troops of the mantra got acquainted with the latest developments. this for example, universal sights for tanks and armored personnel carriers also discussed with the management of the plant, the vice-premier, issues of diversification of production. krasnogorsk today was the final day of the traditional

children's and youth hockey tournament for the alexander ovechkin cup. the match of legends became the highlight of the tournament, in which olympic champions , stanley cup holders, played world champions together with children. , just whether it's when alexander ovechkin himself, together with washington, won the stanley cup thank you thank sasha ovechkin despite different situations. the most difficult busy seasons. we call up and, uh, the ovechkin cup is sacred for him, of course, he is inspired by his mother, who always accompanies this, prepares sons, and today it turned out. it seems to me a wonderful holiday, because there are a huge number of teenagers and kids. uh, the tournaments of hockey fans are waiting for our legends on the final day, not a hockey surprise was waiting for a

figure skater, beijing olympic champion in the team, with an indicative number. kamila valieva with young hockey players. this day was a unique opportunity to play with your idols. the so-called match of legends, in addition to ovechkin, dmitry orlov, the head coach of the russian national team, zhamnov, took to the ice. ilya koval vyacheslav fetisov and many other hockey stars of the past and present communication with idols is always a good impulse for young athletes. the most important thing is that children have fun experience. uh, colossal speaking on the ice. uh, with real legends, well who won a name for themselves at home, then yes and a skate to be on the ice. e with them. this is great luck. i hope that what will help him in the future was such a tournament, a cup. spartacus was held. we were in it, uh, with uh, well, as it were, they provided there, they served bottles of towels there, something else, stars from the nhl came from fetisov himself gave me a stick. i have it there rene fasel.

uh, there, i remember the sting of the hand. the first time they do together will understand why such moments. they remain in memory for life. and you, of course, remember this even after such meetings. you have an additional impulse, you want to run and train. 12 teams that represent the leading hockey schools and academies of the country, this team of boys born in 2010 became champions throughout the week for the alexander ovechkin cup , the young hockey players of cska became champions in the final for the second time in a row, they beat spartak holiday today in krasnogorsk hmm i think these boys will remember everything that happened today on he will tell his children for the rest of his life. that is, in a portion, does not combine. and this is an opportunity for people to be together. uh, see several generations of the greatest hockey players. here, of course, thanks to sasha for what he is given on vacation. so much time talking with

children, leaving for all sorts of events, also during the ovechkin cup, the fans had the opportunity to see a small exhibition with personal belongings of captain washington, accreditation leggings and helmets alexander abramov alexey karpukhin andrey sorokin and martha has a high news. this weekend , the international fireworks festival rostec is taking place in the brateevsky cascade park in moscow. this year, the event is dedicated to the traditional arts of the peoples of russia, the program is extensive, master classes and musical performances await visitors. and, of course, a grandiose pyrotechnic show in the competition program involves a team from eight countries. snakes have become more active in the rostov region, they are

increasingly appearing in crowded places with reptiles on the don now the breeding season, meanwhile locals are sounding the alarm on social media. how to behave, if you saw a snake, veronica of god will tell god. what a nightmare look how they intertwined, there all amateur videos dedicated to the invasion of snakes in the rostov region scatter through social networks, frightened people throw crawling reptiles, the stones did not hit, however, as biologists say, the number of snakes in the region hasn't changed. it's just that people began to meet with them more often, it seems, quite recently. this is where the reeds were. now on the left side. don sprang up a huge stadium, city park recreation area reconstructed, beach, residential complex under construction. if the snakes could speak, they would also say, she is on a procession, but not her own, and the city of man has come instead of the dwelling place of the serpents and this means that the meetings of people with snakes have become more frequent. well, how do people feel about

snakes, we know they are panicky afraid of those snakes that live on the don, the viper, the only poisonous one in the city, you can’t meet it already and crawls harmless to humans, but they most often fall into the lenses of cameras near water bodies . where are you ? in search of coolness exhausted by the heat, tourists and locals, oh, how he got up, look, almost like gyurza pythons and cobras. the most aggressive of all the don reptiles are not found here, stripes feed on mice, a person can attack in defense. here imagine you are walking across the steppe, you do not touch anyone and the floor sleeps does not touch anyone. and this intersection of two causes of hereditary series leads to a meeting. uh-huh, and a frightened snake , instead of running away, opens its mouth, rushes into your face, what happens. then the person runs in one direction, the snake in the other, and then completely reliable stories about how a snake, curled up in a ring, pursued a person for several kilometers, with difficulty managed to get away from it; the

best way to avoid such a situation is to let the reptiles go away, going to the steppe to put on rubber shoes and be careful remember that these creatures, an integral part of nature, its variety of logic and beauty have the right to your territory of habit. personal space veronica god, my dart and linda demishmakov ekaterina seryak daria bulycheva news, rostov-on-don and right after we watch a special report by daria ganieva about how the circle of good foundation helps in the fight against rare diseases in the face of sanctions.

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we came here first. it was his element. he was asan in it. maxim was a real warrior, a professional ready to sacrifice himself for his comrade. presentation of the maroon beret of the wife of the hero of the russian federation to the lieutenant to say that he died in vain, he died defending our comrades life and death for the happiness of the motherland.

the first article on which i came across that these are doomed children are children who live to 10. in general, it was so gloomy somehow a little uncomfortable for me. it was a total shock. i just could n’t take it, just this word that will be associated with my child 88 billion rubles for the most expensive medicines in the world for more than 3,600 saved children. only for the first year and a half of work, as a state fund krug goodness has changed helping children with rare diseases the circle of goodness. for us, the circle has literally become a saving circle. he saves from the fear of being left without treatment. he inspires confidence in the future.

what problems in health care have been overcome, and what are yet to come, and we have a problem when the regions delay the filing of applications, in fact, we, for example, had a situation in one of the regions when a child was diagnosed at 1 month old application went to him at 5 months. and what has changed with the imposition of sanctions against there was no russophobia in russia, but there were several companies that refused to supply medicines for fear of sanctions or direct direct sanctions. but the fund found other ways to supply through parallel imports, so, so to speak, uh, in although in this case the children are not suffer. antosha nefedov is four and a half years old and he is finally walking. he has

more upper crepe. so he did not know how to take a small step for a person, but a giant one for all mankind 10 years ago. children with this diagnosis, spinal muscular trophies were doomed to complete paralysis and painful death before adulthood, but now from darkness, there are as many as three effective medicines by that time before the injection. he even ceased to feel the support in his legs, that is, many dispersed. he completely stopped crawling on all fours, too. ah, on the pope, it turns out to crawl, yes, and then only the loading doses passed, four at once the first is put immediately the result became noticeable in the child immediately the strength in the legs appeared although the pathology is rare with mom

is only in one out of 10,000 newborns, and a child with such a disease can be born in any family every thirty-sixth person on earth is a healthy carrier of an insidious mutation, like muscovites olga arkhipova and pavel nefyodov they , of course, did not even suspect this, their older nine-year-old son is absolutely healthy . yes, and anton up to a year developed like ordinary children. i was in such a mortar. hmm. i just analyzed our family, ours into a tree. yes, families. here back there, grandmothers, great-grandfathers, uncles, aunts, and we didn’t have any at all such cases are fixed and the spouse has the same thing, and i didn’t understand at all where it came from? how and why the birth at one time occurred, yes, that is, on its own, nothing at all.

and nothing moved. and everyone told us that there was some kind of delay or something else, i began to understand that there would still be no cure. we have already begun to think about the fees, then there was a loading dose of some injections. yes, it cost 45 million rubles.

of course, a simple sales manager did not have that kind of money. anton went to court and only a year later received. the first life-saving injections from penza is a typical story for most families who have encountered similar diseases. courts, pickets of parents. the deaths of children. this lack of treatment put an end to the circle of good foundation, created by vladimir putin’s decree in early 2021. today we have almost all newborns who appear with final muscular atrophy and symptomatically, in fact, automatically for these, because we have started pilot projects for ononatal scanning more than six patients have already been identified symptomatically and, accordingly, they have already received, in the near future the head of the seven yasma foundation and the mother of a child with such a diagnosis, olga germanenko, a member of the expert council of the circle of kindness, will receive their medicine. which also includes the heads of specialized ngos and children's hospitals, the head of the state fund, the priest alexander tkachenko , the creator of the first children's hospice, the most important

result of the fund's work is more than 3,000-600 children. children. already received assistance from the fund, a and on the purchase of medicines for them, and more than 88 billion rubles were sent to the financial source of the state fund. increasing the excess income tax for wealthy citizens from 13% to 15%. this should give at least 60 billion rubles. every year, which is critically important for patients, the timely delivery of genetic products from foreign pharmaceutical companies to russia was almost not affected by the sanctions, but many distributors experienced difficulties with the supply of drugs, and the logistics were lengthened. they had to renegotiate the corridors , and with other cargo transshipment hubs, there are other transport routes, but, uh, the extra one has increased a lot, and the delivery time. basically, we keep within, and in delivery within

two months there, and for many drugs it is much less. well, the cost of medicines has not increased, and we have kept the valuable at the level, but lower, well, or the same as in europe now, there are 55 diseases in the lists of the fund, approved by an expert and according to physical advice, as soon as some kind of a new cure for some complex rare orphic diseases. it can also be accessible to the inhabitants of the country. and if the expert makes such a decision, these are centuries. vika appeared in our family 6 years ago. and this is my son vladislav he is 17. at that moment, i was in charge of one-year-old vika denisova, my first adopted daughter. nika ivleva did not yet

know how much the life of her family would change. that if your goal is to help, then you need to take someone who really needs help meeting the baby for the first time in the hospital. nika says she was horrified. how can a baby cough like an experienced smoker. vika turned out to have mucosal doses, a severe genetic disease associated with impaired respiratory function, she also came to our house with infected lungs. she had a replacement wand. i'm not very good wand for such a patient. she was in the hospital because the child is all that. he was in hospitals and institutions. this bad flora has settled out and at home. we administered it, and this means for such a patient that he has from 5 to 7 inhalations a day, endless inhalations, rehabilitation and lifelong intake of maintenance drugs, the thymia has almost come to terms with the palliative status of the child, until she found out that a new one was invented in the usa a cure for

cystic fibrosis from recaftu, which allows you to almost forget about the disease. if we are talking about targeted therapy, then the number of drugs that patients take. it's just huge. it's elementary when eating un at vicki's. that's six capsules a day. approximately he takes food intake plus a huge dosage of large amounts of antibiotics, because it is easy for patients to get sick flora and it is very difficult to excrete, the targeted drug is three tablets that are taken a day, 2 are taken in the morning and one tablet is taken in the evening. the cost of the drug per month is more than one and a half million rubles to receive this drug. we turned to the circle of kindness foundation. and now our eldest daughter accepts this medicine for a month after 3 weeks. after the first reception three cards. vika has gained weight per kilogram and height by 2 cm. she almost does not cough, looking forward to completely canceling inhalations. energetic vika

devotes all the time to preparing for the first grade and drawing. she successfully passed her art school exams. she is the same cockerel in the exam, and this is the story you know that you are lucky. maybe they trained at home before the exam, drew fairy tales and just drew a fairy tale cockerel and then he and exam comes out so happy and says. mom , you can’t imagine it, we had to get through the exam drawing and the cockerel. in family. there are also two adopted daughters. the average veronica was also able to dose three cards for her dose. she will be able to receive it only after a year. it is allowed to be taken only by patients older than 7 years. there are more than 6,000 rare diseases in the world, but only about 300 are treatable. it is expensive to invent and test a drug using genetic technology. and just like there are potentially few patients. pharma companies

seek to compensate for the costs with prices that are unbearable for more than one family, for example, the annual course of the drug vimmizym for polysaccharidosis flour costs 60 million rubles. and this weekly dropper throughout life is worth missing one irreparable happen. as happened with the gifted klimenko, she has a weakness. uh, muscle weakness caused by the fact that, without treatment, she regressed and became very deformed. uh, the spine and spine squeezed the back of the brain, and in i brought her to moscow. well, twelve-year-old darina is practically paralyzed without the help of her mother yulia, she cannot even roll over on her side. but she had every chance to get on the feet of the family. in rostov-on-don, when the first symptoms of a genetic disease began to appear in little darina, defects in bone cartilage and connective tissue, then, after a consultation of doctors, the ministry of health of the region purchased the necessary drugs for her during 2015 and the beginning of 2016, the

child received therapy in full. she showed a very good result, and then she was five was less weight, but unfortunately, referring to the high cost of e, the drug and its low effectiveness, the ministry of health of the rostov region refused e, refused to purchase therapy for many regions for the next year. it is difficult to find such an amount to provide one child in many regions of our country with 60 million rubles. is the sum of the entire e budget planned for health care. yes, for the entire population, the family began to seek protection in all instances, but to no avail in the end. they decided on they sold a spacious two-room apartment in rostov to medical migration in order to buy a tiny studio in new moscow on a mortgage, where darina in a wheelchair cannot even turn around and receive a drug from the ministry of health of the capital, but on the scales. oh

yes, among everyday disorder. may my daughter's life lie, and therefore, and behind the drug. yes, to save her life. hmm. i think any mother, uh, is ready to travel a thousand kilometers and go through more than one difficult path so that the child simply lives since federal funds began to be spent on medicine through the circle of goodness, not alone. the region cannot refuse a drug to a sick child, and you know that vials of yomi loans have already been purchased. darina can make plans for the future. i studied english, he is at school and uh my pets. i have always had a predisposition when ekam, i am a humanist. i'm good at crunches, uh, surgically, so because i'm good at it, i'm so interested. uh, next year when i go to seventh grade, i'll be learning tanki spanish like

additional circle at school. i was going to sleep on yuki and psychologically. i am interested in understanding how society works and how the people of earth act with each other. but like more stable boots. so i wanted myself to be a translator, however, as the management of the krug dob foundation says, another problem has appeared. regions are in no hurry to submit lists of children in need of treatment on time. since registered drugs are purchased by federal agencies within the framework of 44 federal law. this process may take, well up to 4 months to ensure that the patients of the circle of good foundation do not experience a shortage of medicines. so that there is no interruption in treatment, the fund notified the regions of the need to send applications as soon as possible. unfortunately, all the regions manage to do this, and there are regions that are exemplary. and i am happy

to praise the kostroma region, which has applied for all its patients, but there are regions that apply very poorly. and in particular. here. e, the republic of dagestan and for 160 applications sent by parents from more than one did not form the application and the mechanism of influence, respectively, are also not certain, because what can the fund call the ministry of health to ask to do this. and? well, then the ministry of health decides the regional ministry of health. here , too, in an amicable way. in fact, some kind of instrument of influence is really lacking, another difficult task that the circle of good is currently solving. how to provide. with vital drugs for children of russian citizens living in the lugansk and donetsk people's republics, all citizens of russia, regardless of their place of residence, can receive this assistance from citizens russians living on the territory of donetsk, the luhansk republics, but should have some kind of attachment to the place where this topic will be treated and

very actively engaged in the powers of the rights of the child under the president of the russian federation, maria alekseevna vova belova, here, and together with her. we identified these patients and these patients are citizens of russia, but they also received no medicines. well, constantly. mom, i can't go anywhere for a walk. well, that is, i was always with my mother attack. well, basically, mom is at home. i am i can go out there for a walk that her ksyusha is developing in no way other children and mother irina kirdan and the sverdlovsk lugansk people's republic noticed in a year and a half it was 2014 irina tells evil daughter for examination under shelling, but ksyusha could only be correctly diagnosed at 3 years old, when the girl brought to moscow by a doctor. liza, shortly before her death , turned out to be sma. however, they could not help the baby then, after 5 years a drug appeared . and we have hope that we can live, finally this is our lifeline, but given the circumstances that we are in the

lugansk republic. for us. it's simple, as they say sky-high and for its inhabitants. no, well, it is not allowed, there are simple medicine and simple medicines, there are ribs and complex. and this is simply unrealistic. it's just that the budget of the republic itself is much smaller. what is the drug we were told, if you want to save a child, take russian citizenship and act, because you don’t have time. so we did, we got russian citizenship, we found people who agreed to register us. just registration is also needed and applied. out krug krug on june 1, on children's day, nine-year-old ksyusha drank plum's carving syrup for the first time, and although doctors promise an effect. only after a year of admission. ksyusha has already noticed changes for the better. well, we take it at 12:00, exactly one, well, always at the same time, yes, the hand began to rise,

well, in the nearest position. well, nothing to stir a little more, but since the family lives, still abroad. they need to pass 1.200 every month km from home for a new bottle of the annual drug, the course of which costs 20 million rubles. and the fair help of the doctor sheltered us. lisa, they sheltered us , helped us brought us here. as they say, and further temporary shelter. we live here with them, because of our own housing. we don't have it physically. we simply cannot afford to buy nothing, and we need to receive medicines on an ongoing basis, and hmm well, we need to be here and now, because where we lived and where we come from, they will not provide us until this mechanism reaches us. as they say, we have time to wait. no, the most ideal option would be if, of course, a referendum was held, and us too. they joined us so that we would not wander around the dormitories to houses where someone would

shelter us, but would live at home and receive medicines . wait at the playground. anton nefyodov differs little from other children. although parents understand that their son is unlikely to ever run a cure for a genetic disease. even if the most expensive is not a magic pill. throughout life, it is necessary to consolidate the effect, as at least, breathing exercises and physiotherapy exercises, but the quality of life of the family life has changed for the better. antosha will be able to go to kindergarten, and mother olga will be able to go to work, only one thing worries them. the circle of good, outlined only around children under 18 years old. in russia, children are being treated, but now the problem is precisely adult adolescents, and it goes further. yes, after 18 years. they can't get the drug. well, what will happen to our child 4 1/2 years old, that is, after 13.5 years there, what will happen, in general, we hmm cannot imagine, taking care of

children of the circle of kindness, is it hoped that the members of its advisory and trustee councils will remove most of it? financial burdens from the regions it will be easier for them to find funds for adult patients. and in order to give the subjects of the federation time to prepare, the fund will provide its wards for 19 years more than enough to find funding.

every man is born with five souls and every soul is a bird

you are mine out he is strong here to him. my god, how long will we live? and lord, form and limp with us the occasion is stronger, hold on. barbie heart

the village of sands, where one of the most powerful areas of the ssr was located and from where the ukrainian troops were constantly shelling donetsk, was completely liberated that this settlement was taken under the control of the allied forces, the ministry of defense was informed . data on the progress of special