charitable foundation circle of kindness continues to help children with serious and rare diseases , the foundation provides them with expensive medicines, on which their lives depend thanks to such help, september 1. they will go to school with the rest of the children, forgetting about their illness , zinaida kurbatova will continue the topic. these days, the sisters nastya and sasha pyshkina, before going to bed, discuss the future event, which is incredible for them, for a long time. probably if it's cold, yes, i'll go in my pants. they will go to school, in the second and third grade they will sit at a desk with ordinary guys will run around during breaks and find

friends. a large family of pyshkins, lives in the village of davydova near moscow, the older children do not get sick with anything. the younger sisters have flour, dose scales, systemic hereditary autosomal recessive disease. the whole life of the family is subordinated to this ailment of the sisters - a strict schedule of high-calorie food , medicine six times a day, inhalation. such children do not grow well and gain weight poorly, a barking cough is constantly tormented, and in june, thanks to midnight, the circle of kindness, the pyshkin sisters, received an expensive medicine, three kaftas during the time that we they filmed nastya for an hour, they have been drinking it since june , and since june we have had an amazing result. that is, we do not cough, we recover remarkably, we grow in growth. i mean, well, i don't even

know what to call it. well, nothing here pills, of course. that's probably not the way to say it, but it's still a huge breakthrough. it's a systemic disease. it means suffering immediately. how many organs in the case of the pyshkins, not only the lungs, but also the intestines were born. nastya was immediately diagnosed with a terrible diagnosis, two weeks old, a baby, fell ill with pneumonia at 5 months. for a long time he ended up in intensive care, alevtina was warned that the next child could be born with a pathology was born. sasha also has cystic fibrosis. we just thought that my preacher knew everything, but we were wrong. sasha was born with intestinal obstruction. all operations up to a year. now sasha and i have a hope to live in the future, how to finish school and choose a profession to our liking. nastya wants to become a veterinarian. she dreamed of a dog. and now she was given a shustika soon, it will be terrible trained, the lord is training. come on, show me how he is? let's sleep. instead, i did everything at the

state fund circle of kindness, created in january 2021 by decree of the president, now there are about 4,000 children in care with serious illnesses that threaten the life of the fund. not only helps drugs. he is busy teaching doctors, because sometimes, when it comes to rare diseases, doctors can not immediately make the correct diagnosis, of course, the heart is touched when you see that what the foundation does qualitatively changes the lives of children. and when the children can go to school, when children return to health returns from childhood returns the ability to play just to be children. now the foundation has almost 4,000 children. each of them receives a medicine that would not have been a fund, would not have been the president's decision. they would never have received fedyushkina from barnaul soon seven, her height is only 92

cm. this is considered normal for children. and chondroplasia is a genetic disease, such children grow up to a maximum of 130. sm they have a disproportionate addition because long bones do not grow. previously, such babies were given several years old ilizarov apparatus. and this is constant pain and life in bed a year ago, the drug vasarititis appeared and is bought by the circle of goodness. for guys like vika they say that it's very expensive, when we were told the numbers. it was in order. there are twenty million rubles per child per year. there are even more than 20, but it helps by blocking the gene that prevents growth. well, actually due to this, growth should be added. vika feels good, she is getting ready to go to the first class and she is nervous about meeting other children. and if necessary, then they will laugh.