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tv   RIK Rossiya 24  RUSSIA24  December 16, 2023 9:30am-10:01am MSK

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the united kingdom has allegedly already given the go-ahead for the first deliveries, with the important caveat that their quality is in serious doubt. these are basic standaun minesweepers, the displacement of which does not exceed 600 tons. consequently, they are capable of operating only in closed waters near bases; on board, you can take a crew of thirty-four people, but they will not have serious weapons at their disposal. the oerlikon automatic cannon is more suitable for detonating mines than firing at enemy targets, and in addition to it, a minesweeper.
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institute for the study of war, and supposedly in the output is a bright example of a unian publication from a link to the invaders right up to the third line of russian defense, however, for some reason the boys are posing in the photo with spinball guns, and judging by the weather , they are not at all on the front line, but those who now there is really a third line of armor there, they honestly recognize any successes and there is no smell.
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they see what is happening there, and the guys tell some monstrous things, just things that are even scary to retell, how they end up in these burial grounds of the abandoned people, the evacuation group does not come for them, no one takes them, they die from their wounds, and this means that no one needs them, they have been forgotten, in general, the mobilized ukrainians still have only one way to survive, call the volga on frequency 149. surrender, you will live,
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and then maybe you will even go to the kiev concert of a shaman, a grandiose show of a russian singer in the sports palace of the ukrainian capital was announced by the website of the local ticket office, but by the way, the musician’s producer anton korobkov zemlyansky urged not to rush things, according to him, yaroslav dronov’s schedule of events is very tight, and a performance specifically in kiev is not yet planned, although here of course the question arises, where did the advertising come from in this case? of course, this information operation made the people of kiev understand that literally -in a few months , citizens of ukraine will sing the songs of the shaman, and we all understand perfectly well the songs of the shaman, they are largely dedicated to russia. of course, the goal of any information operation is to use resources enemy, that is, to involve him in this operation, in this case we see how ukrainian journalists called... the venues
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where the shaman’s concert was actually planned to be held, they interviewed, they questioned, that is, by their actions made it clear that something was about to happen. be that as it may, it cannot be ruled out that sooner or later the songs of shamans will still be heard at the kiev stadium, at least the likelihood of this is incomparably higher than the implementation of ukronazi peremozhny nonsense, certainly much more more reliable than the ridiculous fakes that we will definitely continue to expose in the stop fake program on the russia 24 tv channel. more than 90 orphan diseases are today included in the list within which children are provided assistance by the circle of good foundation. more than 23,000 little children are already receiving permanent treatment. the foundation also has the ability to immediately provide medications to sick children who are identified after neonatal screening. its director spoke about the work of the fund in an interview with our channel... watch right after
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hello.
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a unique mechanism that allows russian children to receive these medicines, but it is difficult to describe these diseases, those diseases that have never been treated before, this is chondroplasia, this is cystic fibrosis, this is spinal muscular trophy, this is excised dominant phosphotomic rickets, this is their short bowel syndrome there are many, now in the fund’s lists, almost 90 diseases. and more than a hundred medications that are included in the fund’s lists that qualitatively change the lives of children, they give them back life, give them back their childhood, allow them to be children and live the life of their peers, play, study, communicate, well,
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this list is expanding all the time, it’s true how it changes from year to year the list of these diseases for which you provide help and support, as soon as a new medicine appears, it is made for... a decision expert council, such a unique collegial body, which includes heads of leading clinics, scientific institutes, the foundation prepares scientific publications, collects scientific publications that exist on this drug in the world, requests a position on the treatment of a particular disease from several federal centers, receives a position rosdravnadzor and other competent authorities. in assessing the effectiveness and safety of the drug proposed for consideration, the foundation’s expert council, meeting every thursday, every week, considers submitted documents and makes a decision to accept this medicine, determining
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the categories of children for whom this medicine can help, that is, it is clear that the technological process is ongoing in healthcare, medicines are being developed, maybe some new ones appear...
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who earn these same more than 5 million rubles, positively, how do they respond to this initiative, and what does it give, what new opportunities does it open up for the fund? it is important to note that conversations and discussions about the introduction of a progressive tax scale have been going on for a long time, and there were pros and cons, but the president’s proposal to determine such a source of financing for the fund received support, i have never heard an objection, no matter who it was, that people are against the fact that all the money was collected from an increased rate taxes will be allocated for treatment especially for... to restore
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life and health to such children, society without a doubt, without any doubt supports this decision, it is very important to note that we always report to people, it is important, it is necessary, especially in these new year's eve days. once again we say thank you to all those people who entrusted their funds to the fund, and we are pleased to announce that more than 23 children, thanks to these funds, received assistance from the fund, receive it monthly and will continue to receive it in the future. 2300, what a really good number, many children receive help through your foundation. it is clear that every child's life, every...
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having received medicine from the foundation, was able to go to school, for many of them this was impossible due to the fact that they had, well, no medicine allowed them to live the lives of their peers , imagine how life changed, how the lives of these children were filled when they went to school on september 1, many went for the first time, many continued their education after receiving treatment, the story on father’s day was very touching. when - children talked about what an important role their father plays in
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their lives, in how they help them fight the disease, have the courage to continue this fight, and live, acquire new skills in creativity, in studies, here are examples from life in... hundreds of thousands families, they, of course, serve as inspiration to ensure that this project continues, so that even more children receive help, and, of course, serve as the best words of gratitude to those people who entrusted us with funds. if we talk about the medicines that you, well, so to speak, obtain, sometimes this is really the case for children who really need them, which is how medicines are now provided.
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cheeks of medicines purchased abroad, this slightly lengthened the delivery time, but this did not affect the terms providing children with medicines did not in any way affect the procedures of the fund, and the fund supplies medicines without hindrance, and we can even create certain reserves that allow...
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there are diseases, treatments for which you need to start immediately, after diagnosis, this allows you to save life, to preserve functionality, well, for example, spinal muscular atrophy, how quickly treatment begins depends on what functions the child will have preserved, thanks to the fund, the circle of goodness was able to be realized neonatal screening program. for 36 nasologies, here is one of them, spinal muscular atrophy is diagnosed literally in the first days after taking blood, but it takes some time to verify the diagnosis, well, it probably takes more time for parents to realize that the child has this disease to agree to such
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a complex form of therapy, and thanks to the fact that the foundation was able to parallel many of the processes of formulation, diagnosis and confirmation, and decision-making by the federal council, decisions of the expert council on the start of treatment, and by sending an application for the manufacture of a medicine, the medicine will be packaged according to the personal characteristics of the child, individually, delivered to russia on a separate flight, we were able to reduce the delivery time for this medicine, well, zalgenzma. uh, up to 3 weeks, we even had , in my opinion, the shortest period of time in which we were able to implement this, it was 17 days, but of course, this allows you to start therapy, use medications even before the onset of symptoms, so and therefore like this assessing the effectiveness of the fund, we can say that we are doing even the impossible, this is great, and this happens
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automatically, that is , screening happens and then... somehow i don’t know, you reach these parents, how is this what happens, what to do if parents suddenly find out about such a diagnosis, should they run somewhere themselves, keep in mind that there is such a fund, a circle of good, you can go there, what exactly are the logistics of this? well, all the information in the circle of good foundation is available in medical institutions and most importantly available in information resources, and we were able to connect the fund’s information system with the government services portal so that parents could have. it takes parents no more than 3-5 minutes to send an application to the fund, the application is simultaneously sent to the fund, to the health care management body of the subject, here is the regional ministry, which helps parents quickly collect all the necessary extracts, tests, send a package of documents
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to the fund, and to the resolution government allotted only one week for the subject to form this package of documents. and the decision, of course , all these processes are automated, but the decision for each child is made individually, made by an expert council, and there are emergency expert councils, when within one day, leading specialists in the treatment of orphan diseases make a decision on prescribing therapy, incredible work is done by people who are on the expert council, how would you characterize the situation with the early detection of such diseases? in our country, what else needs to be done in order to did this diagnostic system work better? well, there are medical genetic centers in all federal districts, they allow you to quickly organize the exchange of blood samples received in maternity hospitals, with
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perinatal centers, and literally... in the federal district, in general , close to the child’s place of residence, it is carried out the initial analysis and diagnosis are sent directly to the fund to the federal center to make a decision on prescribing therapy, the system works well now, despite the fact that it this is how it has already begun to be used throughout the country during this twenty-third year, it has already shown its effectiveness, it is very important that... the decision-making process is largely parallel to the decisions made by the fund’s expert council, that is, it allows us to inform parents about all stages of decision-making, application.
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they need one-time help, one- time medicine of some kind, and then life, so to speak, more or less stabilizes, and some children need constant support in the form of some kind of medication, also expensive, but children are growing up, what happens next when the child leaves your care due to age. and the president proposed expanding the powers of the fund and gave instructions on this. which was implemented this year, and for another year, this allows the subjects to prepare to ensure a seamless, smooth transition of the patient from
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the children's network to adults, after all , the krugdobra fund is a children's fund, and we are called upon first of all to help children, but we do not abandon our own, we directly notify 11 months of each of the governors that after 11 months, the obligation to treat this child passes to the subject, and we help the subjects determine the place of treatment, prepare specialists, make an appointment in advance to reserve funds in the regional budget in order to purchase the necessary medicine , we even signed an agreement with a number of entities that allows us to work out all the stages, all the elements of this interaction, so that this is...
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we will tell you everything about the elections in russia in detail, it’s not difficult to understand them , it’s important, it’s honestly convenient, how to vote on a smartphone, on sunday early in the morning during the absolute parade , children screamed, people are up, we’re all going to vote , and the sleepy mom said, we’ll choose remotely, dad supported, we’ll choose electronically, the woman said grandfather, my father and i will go with you to the paperwork. loves in our generation, but the young shift is electronically modern, i am progress, not an opponent, hold your granddaughter’s alarm clock, this is all quite reasonable, it can be done
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remotely. we’ll go with you, choose your mother the old fashioned way, using our usual method, at the site, as usual, to choose in the country is free, important, honestly convenient, promise me that you will sing from the bottom of your heart, i promise, vremya musicians, this is my group, this is the same boy who charmed everyone with his songs, tough.
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difficult times for ukraine, the us congress is stubborn and does not want to allocate money
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to the european union. decided to sweeten the bitter pill and decided to start negotiations on accession to the eu. hungary is opposed, however, these are unlikely to be short negotiations. about this and more right now in the international review. hello, international review is on air, in the studio fyodor lukyanov. today on the program is an international review. events of the week. chronicle, facts, comments. and stones on... gulf countries, broad development prospects, report from iran. by believing in ourselves, we will put an end to the communist dictatorship, and by showing determination, we will force the ruling party to hold free elections.
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the irony is that brussels is now accusing the sixty-year-old politician of infringing on both. oh, the dictator is coming. hello, dictator. hello dictator. this is how the then head of the european commission, juncker, greeted orban 8 years ago. there will be this week.

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