then zemfira will be able to leave the hospice alexander korneevich about how to help.s up to two years old, a rare genetic disease did not manifest itself. she was born on time, but she went with the support of the words , she had them later. after two, everything was already gradually, on the contrary, it began to worsen and stopped walking stopped sitting after a genetic blood test, it became clear that zemfira disease of galervordan spatz. it occurs due to gene mutation and is extremely rare according to statistics of 1-3, cases per million people birthday deterioration was breathing this year in september animation. this week, the girl was discharged from the hospital and now she is in the hospital at the house with the lighthouse of the children's hospice, which zemfira's parents learned about after her hospitalization, the doctors at the house with the lighthouse teach their parents how to use medical equipment. now vital for their daughter. after zemfira's condition deteriorated sharply, she requires constant help and care with parents. just so we can get her ho