betty rollin has our report.u&iet and Ñi jack, recently moved to r mundelein, itl99=%m1:á @qu)eatment for his life- threatening disease. it's called hunter syndrome.t( he lacks an enzyme needed to break down sugar molecules and, uffers damage t( throughout his body.r >> he has hydrocephalus in the brain, so he has large ventricles with a shunt. he has joint contractures, he k has stenosis in the spinevqñqúóc carpel tunnel2s[ndrome in his hands.qs >> jack is on an enzyme replacement drug called elaprase, which gave him some relief initially, but no longer. there is a phase ii-iii clinicaó trial going on now that the fowlers tried unsuccessfully to get jack enrolled in. >> so the trial that's going on1 right now is a reformulation of] that elaprase, and it's injectek directly into the spine, and th1 fluid in the spine takes that t( drug to the brain and then it Ñi helps the brain, and so it treats that tissue that normallk isn't treated. and so we've be;$6ess q to that because of jack's 3e8hyt he has on his head.

that's why we're your retirement companer >>> coming up --r betty rollin reports on parents of desperatelyll chi$l)en whoq don't qualify for a@1%9%1ñfá trial, anw> the other option is watching our son deteriorate and die and( we are not going to stand by and do that.ÑiÑiçó >> and bob faw talks with you a& thor+ amandaÑzlindhout who was áh @&h(lc& and spent 15 months in captivity.Ñi how did she overcome her ordeal and find the power of forgiveness? 4k,p>>> major funding for "reli and ethics newsweekly" is e1çóçó provided by the lilly endowment, an indianapolis based private family foundation dedicated to