her name is lindsey lou bingham. she is 9 years old. >> a group hug. >> group hug. >> this is from your mommy. >> we love you. >> you can do this! you can do this. >> it's okay. >> i know. >> reporter: she says good-bye to her mother and her father. without this operation to give her a new heart, lindsey will die. with it, well, who knows what will happen? >> love you, lindsey lou. there she goes. >> what is happening to the bingham family, jason and stacy and their five children, is like something out of ripley's believe it or not. it is also for all of them an intensely personal and terrifying odyssey. for reasons you'll discover, they've overcome their reluctance and will allow us to be here as witnesses. >> hi, guys! >> well, hello, there! >> they'll even record some of the journey themselves. their defenses, as you will see, are exceptional courage and unshakeable family bond and an abiding desire to go home. >> hi! >> hi, easter bunny! >> once it was all so very ordinary. here they were, a couple of kids off to