many children got a chance for healing and normal life the stories of the wards of the circle of kindness foundation, who, thanks to the help, will sit down at their desks together with other schoolchildren tomorrow. wow, mikhail gorbachev passed away, the last general secretary of the central committee of the cpsu, the first and only president of the soviet union, he led the country for 6 years, the turbulent years that brought perestroika and the end of the cold war. he withdrew troops from afghanistan, helped the unification of germany, under him the warsaw bloc collapsed, everything ended with the collapse of the soviet union, mikhail sergeevich died after a long illness. he was 91 years old. vladimir putin expressed deep condolences, the presidential press secretary said, support for relatives and friends is now coming from other countries, as the gorbachev foundation was told, they will bury him much more girlish. cemetery next to his beloved wife. i am a democratic person in form, but radicalism tormented me. i had to restrain myself, especially when i assumed such a post. can you imagine wha

come on, show me how to sleep. did everything instead the circle of kindness state foundation was establishednuary 2021 by decree of the president, there are now about 4,000 children in care with serious illnesses that threaten the life of the foundation. not only helps drugs. he is busy teaching doctors, because sometimes, when it comes to rare diseases, doctors can not immediately make the correct diagnosis, of course, the heart is touched when you see that what the foundation does qualitatively changes the lives of children. and when the children can go to school when the children return health returns from childhood returns the ability to play just to be children. now the foundation has almost 4,000 children. each of them receives a medicine that would not have been a fund, there would not have been a decision of the president. they would never have received fedyushkina from barnaul soon seven, her height is only 92 cm. this is considered normal for children. chondroplasia is a genetic disease; such children grow up to a maximum of 130 cm; they have a disproportionate build because long b

circle of kindness, which are treated with the most advanced methods. any effective medicine, regardless of its registration in the country, can be purchased for small patients. what has changed in the work of the foundation with the imposition of sanctions and how the circle of kindness helps children with sarfan diseases in donbass what are these doomed children who do not live to be 10? in general, she was so gloomy that she somehow felt a little uneasy. the word disability for me was generally a shock. i couldn't it is to perceive just this word that will be associated with my child 88 billion rubles. for the most expensive medicines in the world, more than 3,600 saved children. only in the first year and a half of its work, just like the state foundation, the circle of kindness has changed assistance to children with rare diseases. the circle of kindness has become, uh, literally a circle of salvation for us. he saves from, uh, the fear of being left without treatment, he inspires confidence, and in the future. what problems in health care have been overcome, and what are yet to come, a we have a problem when the regions delay the filing of applications, in fact we have and for example, there was a s

this process can take, well, up to 4 months in order for the patients of the circle of kindness foundationo experience a shortage of medicines, so that there is no interruption in treatment, the foundation notified the regions of the need to send applications as soon as possible, unfortunately, and not all regions have time to do this, but there are regions that are exemplary. and i'm happy to commend the kostroma region, which has applied for all of its patients, but there are regions that are very bad at applying. and in particular. here. e, republic of dagestan a and for 160 applications sent by parents from more than one has not formed an application and a mechanism of influence, respectively, there is also no definite one, because what can the fund can call the ministry of health and ask to do this. and? well, then the ministry of health decides the regional ministry of health. here, too, in an amicable way. in fact, some kind of instrument of influence is really lacking, another difficult task that the circle of good is currently solving. how to provide. vital drugs for children of r

more than 3.5 thousand seriously ill children, received medicinal drugs, thanks to the circle of kindness foundation year. the money for treatment comes from taxes on excess income that rich russians receive. the list of diagnoses is constantly expanding ; this gives hope to children with rare genetic diseases that were considered incurable only yesterday. alina repina was convinced that the six-year-old lera zmeykova is behind the smile 150 million rubles. and 70 intraventricular infusions every 2 weeks, this is when the medicine is poured directly into the brain. it was very scary, and we certainly believe that this is a miracle in lera encel two, a rare kinetic disease in which lipofucin accumulates in the nerve cells of the pigment of old age in the elderly , it causes age spots, being deposited in the skin of children sensail two, a toxic substance destroys the brain. it all starts with convulsions 2 years 9 months in january 2019, lera had a terrible epileptic seizure, then the child loses coordination, walks unsteadily, can fall during walks, then he stops talking to walk, sit loses his sight

this is always the name of the kitten since last year, the circle of kindness foundation provides expensive 2. it was created in 2021 and is funded by an increased income tax. for those whose annual earnings exceed five million rubles. and this means that in children, the essence of l2 will be more likely. uninterrupted infusions are needed every 2 weeks, and in this matter the deadly swing alina repina anastasia altukhova and artyom suleimanov ntv moscow yekaterinburg endured the sentence to the former security guard who spoiled the painting at the exhibition in the yeltsin center turned into a criminal case for alexander vasilyev, an employee of the chop, on the first and last working day. here, actually the moment of vandalism. the security guard, with a ballpoint pen, draws the eyes of blind figures on the paintings in the picture of anna or the kursk student of malevich his actions. he explained that he thought it was a child's drawing and wanted to improve it. however, the judge did not appreciate the impulse and appointed 180 hours of compulsory work for art and observation at psychi

point back to school sportmaster discounts up to 50% for all children goods charitable foundation circle of kindness help children with serious and rare diseases the foundation provides them with expensive medicines, on which their lives depend thanks to such help september 1st. they will be able to go to school together with all the students, zinaida kurbatova will continue the topic. these days, the sisters nastya and sasha pyshkin, and before going to bed, discuss the future event, which is incredible for them, for a long time. probably if it's cold, yes, i 'll go in my pants. they will go to school, in the second and third grades they will sit at a desk with ordinary children will run around during breaks and find friends. pencil case plasticine large pyshkin family lives in the village of davydova near moscow, the older children do not get sick. the younger sisters without cidos with dark hereditary autosomal recessive disease. the whole life of the family is subordinated to this ailment of the sisters - a strict schedule of high-calorie food, medicine six times a day, inhalation. such children

pain for a long time, but provides a teenager with a life without fear, the president's circle of kindness foundation. the amount of the drug, unbearable for the family. mary needs to inject it every month, four five six seven, six seven boxes. well, there, for about half a year, maria surprisingly makes an injection herself trained doctors girl with character. yes, i had to give up gymnastics because of the disease for how it knits, despite all the gaps at school. sometimes she was not in the class for half the academic year of the red certificate. at the end of the ninth grade, plans for the future, until they build because of illness, i used to live only in the present and do not always understand my emotions until now, so now i can’t say why these tears? i didn't know what would happen tomorrow. suddenly tomorrow my stomach hurts, i won't be able to do it, that's why i make today now i live more fulfilling then this physical impact or some kind of stress. it would have caused me either an attack or some kind of leak. now i can even worry a little, and today there are 56 diseases on the list of th

pain for a long time, but provides a teenager with a life without fear, the president's circle of kindness foundationlso helped. the amount of the drug, unbearable for the family. maria needs to inject it every month, four five six seven, six seven boxes. well, there, for about half a year, surprisingly, the injections of the seas are made by the doctors themselves, a girl with character. yes, i had to give up gymnastics because of the disease for how it knits, despite all the gaps at school. sometimes she was not in the class for half the academic year of the red certificate. at the end of the ninth grade plans for the future, until they build because of the disease, i used to live only in the present and do not always understand my emotions until now, so now i can not say why these are tears? i didn't know what will be tomorrow. suddenly tomorrow my stomach hurts, i won't be able to do it, so i 'll do it today now i live more fully then this physical impact or some kind of stress. it would have given me either an attack or some kind of edema. now i can even worry a little, and today there are 56 di

since last year, the expensive medicine for the children of sensell two is provided by the circle of kindness foundatione whose annual earnings exceed 5 million rubles. and this means that in children the essence of l2 will be more likely to receive the infusion drug without interruption every 2 weeks and in this matter a deadly swing alina repina anastasia altukhova. and artyom suleimanov ntv moscow weather with us eugene nero. zhenya, summer is coming to an end and it doesn’t seem like autumn is rushing to the european territory of russia, but in the end, the anticyclone still managed to update the chronicle of weather records, especially in the northern regions in cherepovets the day before the air warmed up to 29.7 °. a whole scattering of records set in the north-west in pskov in the pushkin mountains of velikie luki, but now the north and north-west meet cold air from the side of the barents, the sea in arkhangelsk is only plus 13, and in murmansk nine in the center the temperature is also not will stand at the same level, but tomorrow everyone will have another warm summer day with temperatures n

we turned to the circle of kindness foundation. for a month after 3 weeks. after the first reception three cards. vika has gained weight per kilogram and height by 2 cm. she almost does not cough, looking forward to completely canceling inhalations. energetic vika devotes all the time to preparing for the first grade and drawing. she successfully passed her art school exams. she is the same cockerel in the exam, and this is the story you know that you are lucky. maybe they trained at home before the exam, drew fairy tales and just drew a fairy tale cockerel and then he and exam comes out so happy and says. mom , you can’t imagine it, we had to get through the exam drawing and the cockerel. in family. there are also two adopted daughters. the average veronica was also able to dose three cards for her dose. she will be able to receive it only after a year. it is allowed to be taken only by patients older than 7 years. there are more than 6,000 rare diseases in the world, but only about 300 are treatable. it is expensive to invent and

since last year, sensel 2 has been providing expensive medicine for children with the circle of kindness foundation income tax. for those whose annual earnings exceed 5 million rubles. and this means that children with sens l2 will be more likely to receive uninterrupted an infusion drug is needed every 2 weeks and in this matter a deadly swing alina repina anastasia altukhova and artyom suleimanov ntv moscow mishustin noted that many of the priority measures taken have shown their effectiveness and can be extended. according to the prime minister, industrial production must be provided with affordable financial resources through subsidizing interest rates and providing benefits, and the construction of new logistics routes will reduce transportation costs. mishustin also spoke about the need to develop science and protection technologies at this very moment to replace the critical infrastructure of industrial products. we need to do science and we need to offer those solutions that will become the basis of our own production. and in our country, which will critically replace imports. about what sa

pain for a long time, but provides a teenager with a life without fear, the president's circle of kindness foundation the family. maria needs to inject it every month, four five six seven boxes. well, there, for about half a year, surprisingly, maria makes injections herself ; a girl with character was trained by doctors. yes, i had to give up gymnastics because of the disease for how it knits, despite all the gaps at school. sometimes she was not in the class for half the academic year of the red certificate. at the end of the ninth grade plans for the future, until they build because of the disease used to live only in the present and do not always understand my emotions until now, so now i can not say why? i didn't know what would happen tomorrow. suddenly my stomach hurts tomorrow, i won't be able to do it, so i'll do it today. and now i live more fully than this physical impact or some kind of stress. it would have given me either an attack or some kind of edema. now i can even worry a little, and today there are 56 diseases on the fund’s list, for which 3,821 wards are being helped, where are t

and art share their experience. the most important moments of life, the wards of the charitable foundation circle of kindnessre preparing for the new academic year of the history of children who have already been helped all over the world today they remember mikhail gorbachev, they remember, they give grades and argue about what they did and did not do, what they dreamed about and what they came to how history has changed, and not only in our country. now history. himself a romantic from big politics unlike those who were before him, an open and active author and a witness of great changes, the last general section, as epss the first and only president of the soviet union the era of gorbachev a time full of hope and shock. he knew for sure that he couldn't live like this anymore. and as it should be, then, perhaps, no one knew perestroika and glasnost, the withdrawal of troops from afghanistan at the end of the cold war and the collapse of the soviet union, which became a big blow for mikhail sergeyevich. he knew how to admit mistakes and responsibility himself never filmed. and in spite of everything, he be

of great complexity, a large perimeter, its weather conditions, unfavorable extreme heat and strong wind every day, the fighters work for them, as it should be, equipment helps and foreign air. charitable foundation circle of kindnessrious and rare diseases , the foundation provides them with expensive medicines, on which their lives depend thanks to such help, september 1. they will go to school with the rest of the children, forgetting about their illness, how will we continue? zinaida kurbatova these days, sisters nastya and sasha pyshkins before going to bed for a long time discussing the future, an incredible event for them. probably if it's cold, yes, i'll go in my pants. they will go to school, in the second and third grade they will sit at a desk with the usual ones.

the circle of kindness foundation helps him a year and was created just to buy drugs for children withd by those whose annual income is above 5 million rubles. thousands of children receive help heine fell into the circle of good, last year, unexpectedly even for themselves, the doctors of a hospital near moscow filed an application. but you can do it yourself through the portal of the state service in just a few clicks. they are required to provide simple information about themselves, and all the necessary e -documents. uh, they are pulled up automatically by the portal, and public services, this statement falls immediately to the fund and health authorities the entity that forms the fund application. on the basis of the statement of the parents, of course, before such a statement, the drug should be prescribed by the attending physician yulia averyanova, such serious injections are prescribed only when the child has already completed all the operations and is in a stable condition, and the protocol of the medical commission, in which it is written in what dose. and how much this pati

the state fund circle of kindness, created in january 2021 by decree of the president, there are now about 4,000 ward children with serious diseases that threaten the life of the foundation. not only helps drugs. he is busy teaching doctors, because sometimes, when it comes to rare diseases, doctors can not immediately make the correct diagnosis, of course, the heart is touched when you see that what the foundation does qualitatively changes the lives of children. and when children can go to school, when children return to health, childhood returns, the ability to play just to be children returns. now the foundation has almost 4,000 children. each of them a medicine is obtained that would not have been funded, there would have been no decision of the president. they would never have received fedyushkina from barnaul soon seven, her height is only 92 cm. this is considered normal for children. and chondroplasia is a genetic disease, such children grow up to a maximum of 130. sm they have a disproportionate addition because long bones do not grow. previously, such babies were given an ilizarov apparatus for several years. this is a constant pain and life in bed a year ago,