of members expert council. the foundation shared today more svetlanych is small. for the sake of the most vulnerable and unique foundations, the circle of kindness results of the work over the past year, the main indicator of the number of children that the foundation took under its wing. today there are 6,000 of them. all these are children with word of mouth, in other words, rare diseases, as a rule, this is a little -studied condition, specific methods, treatments, which are still not fully known. often patients with these diagnoses feel left out and lost in the healthcare world. to remedy this situation 2 years ago, on behalf of the president , the circle of kindness foundation was created, the brother has a short period of work, but tremendous results have been achieved. russia today is one of the leaders in the field of helping children with sarafan diseases. the expert council is one of the leading specialists in the treatment of diseases in our country . literally became a scientific resource with the potential of the fund, both registered and unregistered drugs are purchased as soon as a unique drug appears in the world. it becomes affo

to remedy this situation, the circle of kindness foundation was created on behalf of the president 2 years ago. the period of work is short, but it was possible to achieve colossal results. russia today is one of the leaders in the field of helping children with sarafan diseases , the expert council is one of the leading specialists in the treatment of diseases in our country, it was the expert who allowed russian doctors working in the vast expanses of our country to have all the information about the treatment of rare diseases and available unique medicines . it has literally become a scientific resource with such a potential, the fund purchases both registered and unregistered medicines as soon as a unique drug appears in the world. it becomes affordable for russian children , sometimes the prices for medicines are astronomical, but it's worth it when it comes to big changes in the lives of little people. an example was given by the chairman of the expert council. honored doctor of russia alexander rumyantsev among the wards of the fund is a girl with oncology. yes, taking the dru

the circle of kindness foundation approved the applications of 15 patients from the new regions of thery requests for qualified medical care for rare diseases come from the cis countries today , archpriest alexander tkachenko, chairman of the board of the foundation, presented the organization's annual report . according to him, russia has become one of the world leaders in the treatment of children with rare diseases with universal drugs. in addition, the organization is constantly expanding the list of diseases that require expensive drugs to treat. therapy was covered by the supply of a longer-range missile to ukraine, according to cnn, according to the tv channel. london has already handed over a batch of cruise missiles to ukrainian militants storm shadow, the range of all flights exceeds 250 km, and czech president petr pavel announced that prague will send two soviet-made air defense systems to kiev, and the bloomberg missile agency reports that western countries have transferred more than 200 tanks and 300 infantry fighting vehicles to ukraine, and a couple of hours ago, the he

their parents will be able to apply to the circle of kindness foundation, created at the initiative ofhrough the public services portal, bypassing the regional ministry of health a on a special information resource of this fund. now they will publish all the data on the purchase of medicines and rehabilitation means, their balances and the timing of receipt. days changed the rules for the delivery of pension social benefits and cash. now only the postman can bring money, or they can be received at the box office of the russian post. changes have been made to avoid delays in payments that various commercial services allowed. deliveries, especially in hard-to-reach areas, for those who receive pensions on a card or bank account, nothing will change, dna testing has become mandatory for everyone, accused suspects and convicts, as well as for those who are arrested under administrative articles genomic database it is possible to exclude oneself from this system in the investigation of crimes, but only in the case of rehabilitation. in the donetsk republic, the development of one of the lar

the circle of kindness foundation has already supported more than 6,000 children thanks to his work. es, this was announced today at a press conference following the results of the year by the chairman of the board of the organization, archpriest archpriest alexander tkachenko. thousands of wards of the circle of kindness are diagnosed with spinal muscular atrophy , many of them are in need of expensive drugs. zoldensman. first , the work of the fund, it was purchased in the amount of 16 billion rubles. now there are four pine children in the fund 1.150. and for the treatment of this disease, there are three drugs. each of them prescribed by physicians most of all patients identified as a result of the expanded neonatal screening program. doctors prescribe single-dose medications from the agency. and at the beginning of this year, 30 children with spinal muscular trophies were identified at the national level, 17 of them have already received an application for 13 13, of which four other patients were approved and delivered, due to the nature of the disease, other drugs were prescribe

foundation that we have late today. so it was for me as i sat in the beginning of my speech circle, regular context on your all these kinds of these levels i think is going to give a good start to these efforts. thank you very much. welcome back to a seizure that was of course, a blessing president of inputs in the you raising economic forum. and that was between a russian by the root cause of sancho this don and our media. now you talked about a lot of things about the, the economy's size. he mentioned how they were getting stronger. he was adult about energy and building supply chains. so was using national courtesies as well as the normal, the norm these days out. and to build the a more robust workforce and then of course, bringing more details of his speech. but we also had on the sidelines of the region eco perform odds. he spoke with a plan for the scenary li, administer of the chinese embassy to rush. it moves through yes and who says that the erosion you calling for them has great potential to boost cooperation. i just visited in new jersey. some countries use their currency as weapons and world trade . we stand