so that's to put it simply what does. >> it mean to have someone like colin farrell talking about this, it's amazing just like you saw in the clip, i think a lot of our families have experienced are yearning to experience that moment of those, those first steps. >> i know that when jackson took his first steps, it was the same emotion. you see that determination you see that that drive in that resilience in their eyes and the things that some of us it's so easy for us to take steps for them. they work really, really hard and some of our families are still really working hard to have i have that exposure is unbelievable, especially for what the foundations really going to be focusing on. it's an issue not only for those affected by angelman syndrome, but so many more. there are 7,000 rare diseases in the world. many people struggling with the services and the to have collin and then the foundation to come out as a voice and come along with other organizations working on this is remarkable yeah, we were showing that footage a few moments ago. >> colin pharaoh's son trying to take those s