but with cyclodextrin, that data already existed. hempills just needed to get their hands on >> it once we realized that johnson & johnson had the safety data that we needed, then we contacted them. >> the problem was, johnson & johnson wouldn't hand it over. it was a trade secret. sharing data? that should have been the easy part. you can imagine the anger these parents now felt. chris let it out on her blog. >> all we need from them is to provide our doctors and the fda with more information from their files that could help save the lives of addy and cassie and possibly 500 children around the world afflicted with niemann pick type c disease. i guess the world will soon find out how much johnson & johnson cares about kids who are dying. >> johnson & johnson heard the message loud and clear. the very next morning, they came through. just a few weeks after that, the fda gave the go-ahead. >> i still to this day vividly remember that first infusion and how scary it was. even though we knew fundamentally it was a safe thing. >> cassie