254
254
May 8, 2013
05/13
by
FOXNEWSW
tv
eye 254
favorite 0
quote 1
maybe the dudes who get lots of phone numbers become nare is you cystic. it is not being gnar uh cystic that gets you lots of numbers. >> i am not the a or the b. i am the c. >> that shows you are not nar narsacistic at all. >> here are four ben frank lynn, toots. >> they would never see the light of day. >> it is actually four lincolns. >> lori, do you find this to be true most of the time? >> no. actually, yes, it is an evolutionary thing. the male is strong and a provider and self-confident, but whatever. that's your answer, whatever? >> why do we have to just drill down and analyze why people are attracted to each other? whatever. >> i like the way you think. i have never been called that in my life. >> it is not exactly word play, but it is cutting. >> i don't know what it is. it is great. >> you were insulting me again and i thought [bloap]. >> so, andrew, what do you make of this? it is amazing that the yes, german dudes got grant money to conduct the study? we don't know how americans are. my girlfriend loves me. don draper is a nare saw cyst. >> y
maybe the dudes who get lots of phone numbers become nare is you cystic. it is not being gnar uh cystic that gets you lots of numbers. >> i am not the a or the b. i am the c. >> that shows you are not nar narsacistic at all. >> here are four ben frank lynn, toots. >> they would never see the light of day. >> it is actually four lincolns. >> lori, do you find this to be true most of the time? >> no. actually, yes, it is an evolutionary thing. the male is...
189
189
May 26, 2013
05/13
by
CNNW
tv
eye 189
favorite 0
quote 0
sarah was born with cystic fibrosis. it clogs her lungs and her digestive system.he needs a new lung. needs a lung transplant immediately, but as her parents only recently learned sarah's age makes that incredibly difficult. now the family is trying to change the rules that govern lung donation for young children, if not in time to help their daughter, then in time to help others like her. here's their story. ♪ twinkle, twinkle >> reporter: 10-year-old sarah wants to be a singer. ♪ how i wonder what you are >> reporter: her mother said if she gets a new pair of lungs in the next few weeks, her dreams could one day be a reality. >> i'm not going to telling her she's 9 because she's 10. >> reporter: sarah was born with cystic fibrosis, an illness that's damaged her lungs beyond repair. >> i used to go to school a lot. got to go to school and at least try and act like all the normal children. >> we knew at some point she would need new lungs. we'd hoped it was much, much further down the road, but over the years her disease has progressed. >> if sarah was 12 years old
sarah was born with cystic fibrosis. it clogs her lungs and her digestive system.he needs a new lung. needs a lung transplant immediately, but as her parents only recently learned sarah's age makes that incredibly difficult. now the family is trying to change the rules that govern lung donation for young children, if not in time to help their daughter, then in time to help others like her. here's their story. ♪ twinkle, twinkle >> reporter: 10-year-old sarah wants to be a singer. ♪...
260
260
May 26, 2013
05/13
by
CNNW
tv
eye 260
favorite 0
quote 0
she was born with cystic fibrosis. needs a lung transplant immediately, but as her parents only recently learned, sarah's age makes that incredibly difficult. and now they are trying to change the rules that govern lung donation for young children. if not in time to help their daughter, then to help others like her. our zain asher has their story. >> 10-year-old sarah wants to be a singer. ♪ how i wonder what you are >> her mother says if she gets a new pair of lungs next few weeks, her dreams could one be a reality. >> i'm not going to tell her she's dying because she's 10. >> sarah was born with cystic fibrosis, an illness that's damaged her lungs beyond repair. >> i used to go to school before i got oxygen. got to go to school and at least act like i was other children. >> we knew at some point she would need new lungs. we had hoped it would be much, much further down the road. but over the years her disease has progressed. >> if sarah was 12 years old, she'd have a higher chance of receiving adult lungs, but since
she was born with cystic fibrosis. needs a lung transplant immediately, but as her parents only recently learned, sarah's age makes that incredibly difficult. and now they are trying to change the rules that govern lung donation for young children. if not in time to help their daughter, then to help others like her. our zain asher has their story. >> 10-year-old sarah wants to be a singer. ♪ how i wonder what you are >> her mother says if she gets a new pair of lungs next few...
150
150
May 26, 2013
05/13
by
CNNW
tv
eye 150
favorite 0
quote 0
sarah was born with cystic fibrosis. it clogs her lungs and digestive syst system.ansplant immediately but as her parents only recently learned, sarah's age makes that incredibly difficult. now the family is trying to change the roles that govern loan donations for young children. if not in time to help their daughter but perhaps for others like her. here's cnn's zain asher. ♪ twinkle twinkle little star >> reporter: 10 yearly sarah wants to be a sing er. her mother says if she gets a new pair of lungs in the next few weeks, her dream could one day be a reality. >> i'm not going to tell her she's 9 because she's 10. >> reporter: sarah was born with cystic fibrosis, an illness that's damaged her lungs beyond repair. >> i used to go to school before i got oxygen. >> we knew at some point she would need new lungs. we had hoped it would be much, much further down the road, but over the years her disease has progressed. >> reporter: if sarah was 12 years old, she'd have a higher chance of receiving adult's lungs. but since she's only 10, she primarily has access to child
sarah was born with cystic fibrosis. it clogs her lungs and digestive syst system.ansplant immediately but as her parents only recently learned, sarah's age makes that incredibly difficult. now the family is trying to change the roles that govern loan donations for young children. if not in time to help their daughter but perhaps for others like her. here's cnn's zain asher. ♪ twinkle twinkle little star >> reporter: 10 yearly sarah wants to be a sing er. her mother says if she gets a...
215
215
May 30, 2013
05/13
by
FOXNEWSW
tv
eye 215
favorite 0
quote 1
intubation is the end, with cystic fibrosis, intubation is the end.e close t very close to the end. with angie's list, i save time, money, and i avoid frustration. you'll find reviews on home repair to healthcare written by people just like you. you want to be sure the money you're about to spend is money well spent. angie's list -- reviews you can trust. bill: a new report shows the new jersey prison system is very good to its inmates. inmates there collecting millions of dollars in benefits. that report shows the state paid out $23 million over a nearly two-year period including $11 million in jobless benefits. tough to hold down a job when you're behind bars. when finally brought to light the garden state says they started cracking down and have saved around $235 million. martha: back to this story now, two lawmakers are fighting to help bypass a federal regulation that prevents this dying ten-year-old girl from getting a lung transplant that she desperately needs. sarah is her name, and she is suffering from cystic fibrosis, and the doctors have s
intubation is the end, with cystic fibrosis, intubation is the end.e close t very close to the end. with angie's list, i save time, money, and i avoid frustration. you'll find reviews on home repair to healthcare written by people just like you. you want to be sure the money you're about to spend is money well spent. angie's list -- reviews you can trust. bill: a new report shows the new jersey prison system is very good to its inmates. inmates there collecting millions of dollars in benefits....
96
96
May 31, 2013
05/13
by
LINKTV
tv
eye 96
favorite 0
quote 0
we were both born with cystic fibrosis.genes we share give us the same face, the same body, the same cough, the same hospital room. >> ♪ we're in, we're in
we were both born with cystic fibrosis.genes we share give us the same face, the same body, the same cough, the same hospital room. >> ♪ we're in, we're in
61
61
May 16, 2013
05/13
by
CSPAN
tv
eye 61
favorite 0
quote 0
only 45%ls have had -- of cystic fibrosis patients are in that category. 5% of cystic fibrosis patients are in that category. researchds upon nih that has been done. a wonderful collaboration with the cystic fibrosis foundation and the heart and lung institute. it is a great success story and one we hope to replicate for other diseases. >> thank you. mr. chairman, i'm these to join you in welcoming our distinguished panel of witnesses today. dr. collins, we appreciate you being here again and coming out into the countryside where we live and work. >> i enjoy it very much. >> we appreciate it. it might interest you to know that recently, there was an announcement in a hospital for children in jackson, mississippi. -- a doctor told me of the baby born that was hiv-positive. it is attracting attention again to the distinction that mississippi has people like a doctor who wrote many of your textbooks and others who have pioneered and research in different areas. we look to supporting the work that you do. we hope you will be able to provide some seed money or incentive grant funding to ensu
only 45%ls have had -- of cystic fibrosis patients are in that category. 5% of cystic fibrosis patients are in that category. researchds upon nih that has been done. a wonderful collaboration with the cystic fibrosis foundation and the heart and lung institute. it is a great success story and one we hope to replicate for other diseases. >> thank you. mr. chairman, i'm these to join you in welcoming our distinguished panel of witnesses today. dr. collins, we appreciate you being here again...
336
336
May 29, 2013
05/13
by
FOXNEWSW
tv
eye 336
favorite 0
quote 0
a 10-year-old girl is dying from cystic fibrosis.will die but she is two years too young to receive an adult lung. her aunt joined us earlier on "fox and friends". >> our plea, our second request for consideration for sarah was rejected. there will be no movement. the children will stay at the back of the line. the reality is there is only 20 pediatric lungs and many, many adult. >> sign a petition to help her get the transplant she needs. >> meanwhile she admitted voting twice for president obama last november and could go to prison for up to six years because she voted at least twice. a judge convicting the woman of first-degree fraud. the 58-year-old pole worker said she voted illegally in 2008, 2011, and the 2012 elections by voting for a relative who was in a coma. >> and the jumbotron. they are both clearly embarrassed and not about to lock lips. the guy even runs away. turns out the girl was his sister. >> that is weird. you can't -- >> that would be a little strange. >> a lot of people, i never thought that could be a scenari
a 10-year-old girl is dying from cystic fibrosis.will die but she is two years too young to receive an adult lung. her aunt joined us earlier on "fox and friends". >> our plea, our second request for consideration for sarah was rejected. there will be no movement. the children will stay at the back of the line. the reality is there is only 20 pediatric lungs and many, many adult. >> sign a petition to help her get the transplant she needs. >> meanwhile she admitted...
172
172
May 29, 2013
05/13
by
FOXNEWSW
tv
eye 172
favorite 0
quote 0
she is dying of cystic fibrosis. she only has weeks to live unless she gets a new set of lungs.ore an adult. she at the bottom of list. here is her mom. >> the only thing between standing my daughter living or dying, she is ten and not 12. that is unreal for me. >> bob: it's absolutely ridiculous. the duays even if they far less problems than she does gets those organs first. they set up, change.org to get them to change them exception in her case. this girl has every right to live. if she can't get it and somebody than a lot older that doesn't need it as badly it seems to me immoral. >> eric: they need to make the exception for her immediately so she can get that set of lungs and then change the rule. don't wait for the rules to change. let's do it to make sure she survives. beautiful little girl. >>> it's the ability for human judgment. rules are rules. we have rules and there are exceptions that could be made but i admire for working hard to figure ou way to get her story in front of them. she could be an example for other people in the future. so maybe someone you know. i th
she is dying of cystic fibrosis. she only has weeks to live unless she gets a new set of lungs.ore an adult. she at the bottom of list. here is her mom. >> the only thing between standing my daughter living or dying, she is ten and not 12. that is unreal for me. >> bob: it's absolutely ridiculous. the duays even if they far less problems than she does gets those organs first. they set up, change.org to get them to change them exception in her case. this girl has every right to live....
244
244
May 28, 2013
05/13
by
FOXNEWSW
tv
eye 244
favorite 0
quote 0
sarah is fighting cystic fibrosis.ly thing standing between my daughter living and my daughter dieing is the fact that she is ten and not 12. that is unreal to me. >> family and friends now passing around a petition her parents plan to appeal to regional medical centers to make an exception for their child. she is refusing to go. julie herman the new athletic director at rutgers university is staying put after it was claimed she abused players 16 years ago. and the president of rutgers standing by her saying she was completely vetted before being brought on board. they were criticized when mike rice was not disciplined after being found to have verbally abused players. >>> the fox nfl sunday commentator will star in a show next month at the mirage casino, it's called "a life in four quarters." it will mix comedy, sing issing a -- singing and story telling. >> the last time that terry bradshaw did something it was failure to launch. >> gretchen: you think he will do it on stage? >> brian: if it happens once, you have to
sarah is fighting cystic fibrosis.ly thing standing between my daughter living and my daughter dieing is the fact that she is ten and not 12. that is unreal to me. >> family and friends now passing around a petition her parents plan to appeal to regional medical centers to make an exception for their child. she is refusing to go. julie herman the new athletic director at rutgers university is staying put after it was claimed she abused players 16 years ago. and the president of rutgers...
219
219
May 8, 2013
05/13
by
FOXNEWSW
tv
eye 219
favorite 0
quote 0
the shocking story everybody else saw coming and why do women think nare saw cystic men are sexy? i don't follow. >> that thing when you made that voice there. not everybody
the shocking story everybody else saw coming and why do women think nare saw cystic men are sexy? i don't follow. >> that thing when you made that voice there. not everybody
246
246
May 29, 2013
05/13
by
FOXNEWSW
tv
eye 246
favorite 0
quote 0
we have a heartbreaking update for you about a little girl trying to beat end stage cystic fibrosis.y are refusing to change their bopolicy and allow the 10-year-old to get on the adult transplant list instead she is on the child transplant list because she is not 12 years old. a lung transplant from a child donor is much more rare. without new lungs she will die within weeks. the board claims the policy is in place because they can't measure for the lung allocation in order to make sure the sickest patients get the lungs first. we talked exclusively with sara's mother about the decision. >> my kid is dying. her doctor told me she is dying. they told me i have weeks. how can you tell me her las score isn't accurate. in other countries children under 12 you know how they handle the same situation? they automatically give them the highest score they give them a score of 100 and the children are treated first. they are first in line. >> the parents are now considering legal action and pennsylvania congressman path nehan is going directly asking kathleen seb beal why yous to intervene. t
we have a heartbreaking update for you about a little girl trying to beat end stage cystic fibrosis.y are refusing to change their bopolicy and allow the 10-year-old to get on the adult transplant list instead she is on the child transplant list because she is not 12 years old. a lung transplant from a child donor is much more rare. without new lungs she will die within weeks. the board claims the policy is in place because they can't measure for the lung allocation in order to make sure the...
30
30
tv
eye 30
favorite 0
quote 0
alive can create more stuff so the whole idea of authenticity is trading down in this clone based or cystic art world but also you can. compare it to the financial system is here you could have print unlimited numbers of dollars gold you can only increase the supply by two percent a year going full production. and yet this is how the federal reserve bank has a monopoly these endlessly printed dollars remember when artists died the value of their work would jump higher now in a new post-capitalist world is the reverse when an artist does devalue their work crashes because they are not around to create all the copies of their work in a scam pyramid scheme any longer so the value crashes once again when a post capitals post a study a post modern era where the more junk you forced into the system the more valuable becomes the more bonds you create the more valuable they become the higher the demand for something like gold or i'm a teacher or a picasso the more the price goes down and then finally speaking of narcissism of course here in the u.k. we have david cameron and his government who all
alive can create more stuff so the whole idea of authenticity is trading down in this clone based or cystic art world but also you can. compare it to the financial system is here you could have print unlimited numbers of dollars gold you can only increase the supply by two percent a year going full production. and yet this is how the federal reserve bank has a monopoly these endlessly printed dollars remember when artists died the value of their work would jump higher now in a new...
191
191
May 28, 2013
05/13
by
FOXNEWSW
tv
eye 191
favorite 0
quote 0
. >> she is fighting cystic fibrosis and her lungs are failing. >> this is awful. >> she needs the transplant have a trance at survival and a chance at her dream. sara and her family thought that chance came when she made a list of adults waiting for transplant because pediatric lungs are rare. they found a national organ rule in her way. her parents say they learned she needs to be 12 to compete with the adults on the list even if her cases aren't as serious. they insist hers is. >> the only thing standing between my daughter living and my daughter dying is the fact that she is 10 and not 12. that is unreal to me. >> we have gotten to understand the roles of all of this in the last week or two. it has really driven us to sepek out. >> family and friends are fighting for her circulating this petition on friends.org. it is growing in social media, too. every bit can help. >> it's an impossible place to be you have so much hope and it feels like everything was short of shattered last week when she got so much worse. >> the family says they are hoping to appeal to regional medical centers that c
. >> she is fighting cystic fibrosis and her lungs are failing. >> this is awful. >> she needs the transplant have a trance at survival and a chance at her dream. sara and her family thought that chance came when she made a list of adults waiting for transplant because pediatric lungs are rare. they found a national organ rule in her way. her parents say they learned she needs to be 12 to compete with the adults on the list even if her cases aren't as serious. they insist hers...
195
195
May 27, 2013
05/13
by
FOXNEWSW
tv
eye 195
favorite 0
quote 0
her mother says her daughter was diagnosed as a baby with cystic fibrosis and needs a investigate latersplant list as adults because child dough know ares rare. but she says since her child is less than 12, all the adults on the list get a chance at organ dohrns first, even if they're not as sick as her daughter. >> the only thing standing between my daughter living and my daughter dying is the fact she is 10 and not 12. >> it's driven to us speak out. >> the parents say doctors are working with medical centers in the area that might be able to make an exception. we reached out to the hospital where the girl has been since february. so far we have not received any type of statement. we have a approximating physician and anesthesiologist. triage is the sickest first, and if she is the sickest, who cares how old she is? >> unfortunately we have a system that has failed to keep up with technology and common sense. an example is up until recentlying are organs were transplanted to people on a first come perfect served basis instead of the sickest patient. the little girl remains on a wait l
her mother says her daughter was diagnosed as a baby with cystic fibrosis and needs a investigate latersplant list as adults because child dough know ares rare. but she says since her child is less than 12, all the adults on the list get a chance at organ dohrns first, even if they're not as sick as her daughter. >> the only thing standing between my daughter living and my daughter dying is the fact she is 10 and not 12. >> it's driven to us speak out. >> the parents say...
241
241
May 24, 2013
05/13
by
FOXNEWSW
tv
eye 241
favorite 0
quote 0
almost to a t the nare saw cystic guinea pigs chose the enhanced images. gavin, as a 3 you probably -- >> it is a 6, greg. >> see what i mean? >> i know i am a 6. >> wait, wait, wait. what is he? >> context keep in mind, i am rich. >> i think gavin is cute. he is like a 7 actually. >> oh, wow. >> i think he is being mean tonight so he is a minus 2. >> buck, i won't ask you. >> i am a catholic boy. i will turn red faced and it will be bad. >> i are more handsome than me. you are more handsome than me. you are a 7.6 and i am a 6.9. you are handsome and famous, but you are also short. you are like a 7? >> i think the height thing has always been an issue. it shades a point off. >> if you were tall you would be a 7.9. >> no an 8.3. >> no. no, no, no. >> true, i know. people at home, tweet my rating. as if i was 6 feet tall, not 5 foot 5, but 6 feet tall. i don't know where i am going with this anymore. imogen, do you buy this research? >> women are hair ofer on themselves. a harsher on themselves. i think jedediah and i both would be under rating ourselves. it
almost to a t the nare saw cystic guinea pigs chose the enhanced images. gavin, as a 3 you probably -- >> it is a 6, greg. >> see what i mean? >> i know i am a 6. >> wait, wait, wait. what is he? >> context keep in mind, i am rich. >> i think gavin is cute. he is like a 7 actually. >> oh, wow. >> i think he is being mean tonight so he is a minus 2. >> buck, i won't ask you. >> i am a catholic boy. i will turn red faced and it will be...
100
100
May 18, 2013
05/13
by
CSPAN
tv
eye 100
favorite 0
quote 0
individuals have had -- only 4% or 5% of cystic fibrosis patients are in that category. researchds upon nih that has been done. withderful collaboration the cystic fibrosis foundation and the heart and lung institute. it is a great success story and one we hope to replicate for other diseases. >> thank you. >> mr. chairman, i'm these to join you in welcoming our distinguished panel of witnesses today. dr. collins, we appreciate you being here again and coming out into the countryside where we live and work. >> i enjoy it very much. >> we appreciate it. it might interest you to know that recently, there was an announcement in a hospital for children in jackson, mississippi. a doctor told me of the baby born that was hiv-positive. it is attracting attention that to the distinction mississippi has people like a doctor who wrote many of your textbooks and others who have pioneered and research in different areas. we look to supporting the work that you do. we hope you will be able to provide some seed money or toentive grant funding ensure that we continue to embark upon dar
individuals have had -- only 4% or 5% of cystic fibrosis patients are in that category. researchds upon nih that has been done. withderful collaboration the cystic fibrosis foundation and the heart and lung institute. it is a great success story and one we hope to replicate for other diseases. >> thank you. >> mr. chairman, i'm these to join you in welcoming our distinguished panel of witnesses today. dr. collins, we appreciate you being here again and coming out into the...
229
229
May 29, 2013
05/13
by
CNNW
tv
eye 229
favorite 0
quote 0
she has cystic fibrosis that has absolutely ravaged her lungs to the point where she lives in a pediatrics to breathe, sarah's parents are fighting as well to get their daughter a lung transplant that they say is unfairly out of reach because of their daughter's age. and time is running out. cnn's zain asher tells their story. ♪ twinkle, twinkle little star ♪ >> reporter: 10-year-old sarah wants to be a singer. ♪ what you are >> reporter: her mother says if she gets a new pair of lungs in the next few weeks, her dream could one day be a reality. >> i'm not going to tell her she's dying because she's 10. >> reporter: sarah was born with cystic fibrosis, an illness that has damaged her lungs beyond repair. >> i used to go to school before i got oxygen. i got to go to school and at least play and act like all the normal children. >> we knew at some point she would need new lungs. we had hoped it would be much, much further down the road. but over the years her disease has progressed. >> reporter: if sarah was 12 years old, she would have a higher chance of receiving adult lungs. but since sh
she has cystic fibrosis that has absolutely ravaged her lungs to the point where she lives in a pediatrics to breathe, sarah's parents are fighting as well to get their daughter a lung transplant that they say is unfairly out of reach because of their daughter's age. and time is running out. cnn's zain asher tells their story. ♪ twinkle, twinkle little star ♪ >> reporter: 10-year-old sarah wants to be a singer. ♪ what you are >> reporter: her mother says if she gets a new pair...
155
155
May 26, 2013
05/13
by
CNNW
tv
eye 155
favorite 0
quote 0
. >> reporter: sarah was born with cystic fibrosis, an illness that's damaged her lungs beyond repairool before i got on oxygen. got to go to school and at least try and act like all the normal children. >> we knew at some point she would need new lungs. we had hoped it would be much, much further down the road, but over the years her disease has progressed. >> reporter: if sarah was 12 years old, she'd have a higher chance of receiving adult lungs, but since she's 10, she primarily has access to children's lungs, which are in shorter supply. >> that's insane. it shouldn't be about their age. if she's the sickest person, she should qualify. >> reporter: under the rules, the only way sarah could receive an adult lung is if the other patients in her region who are aged 12 and older turned it down first. >> it tugs at my heart. it's not a perfect system. there is no perfect system. it's the best we can do right now. >> reporter: dr. stuart sweet is a board member at the united network for organize sharing. he helped write the pediatric transplant rules. >> if i change the system to give
. >> reporter: sarah was born with cystic fibrosis, an illness that's damaged her lungs beyond repairool before i got on oxygen. got to go to school and at least try and act like all the normal children. >> we knew at some point she would need new lungs. we had hoped it would be much, much further down the road, but over the years her disease has progressed. >> reporter: if sarah was 12 years old, she'd have a higher chance of receiving adult lungs, but since she's 10, she...
121
121
May 26, 2013
05/13
by
CNNW
tv
eye 121
favorite 0
quote 0
♪ twinkle, twinkle little star >> and a little girl fighting for her life in the final stages of cystic a
♪ twinkle, twinkle little star >> and a little girl fighting for her life in the final stages of cystic a
76
76
May 28, 2013
05/13
by
LINKTV
tv
eye 76
favorite 0
quote 0
it's a powerful look into the lives of twin sisters born with cystic fibrosis and their struggle to fighthis often fatal genetic disease. their inspiring story is next, and later in the broadcast, they'll join us in the studio to talk about the film, their journey, and how you can help, and now "the power of two."
it's a powerful look into the lives of twin sisters born with cystic fibrosis and their struggle to fighthis often fatal genetic disease. their inspiring story is next, and later in the broadcast, they'll join us in the studio to talk about the film, their journey, and how you can help, and now "the power of two."
237
237
May 29, 2013
05/13
by
FOXNEWSW
tv
eye 237
favorite 0
quote 0
she may the doctors say only have weeks to live at this point from cystic fibrosis. can only receive a donor lung after all the adult candidates have first had a chance. janet is her mother and joins us now by skype. janet, could morning. explain this to us if you could and thank you for being here. her number is 66 i terms of her ratiexplain how this works. >> okay. so patients over 12 are ranked on the severity of their illness. they put a lot o factors into it, and they are given what is called a lung allocation score. and the orgs are given out based on who is the sickist, it's basic triage medicine, the sickist patient is treated first. martha: if you're under 12 you're in a different category. >> if you're under 12 you are priority one or priority two and you are time accrued, so how long you've been waiting. now and you only have access to pediatric lungs which are only about 20 a year versus 2,000 adult lungs a year. martha: when you look at this situation you've got 1700 people waiting for a lung, 30 of them are under 12, and obviously, you know, the organ d
she may the doctors say only have weeks to live at this point from cystic fibrosis. can only receive a donor lung after all the adult candidates have first had a chance. janet is her mother and joins us now by skype. janet, could morning. explain this to us if you could and thank you for being here. her number is 66 i terms of her ratiexplain how this works. >> okay. so patients over 12 are ranked on the severity of their illness. they put a lot o factors into it, and they are given what...
184
184
May 22, 2013
05/13
by
FOXNEWSW
tv
eye 184
favorite 0
quote 0
unless she is sonar cystic and believes in her mind she may actually get out.e day she may have a life and some day she can sell her story or sell herself or something about her that we really don't care about. she is living that fantasy. she has her 15 minutes of fame, i guess, that is only explanation. >> megyn: do you think the jury knows about the interviews? >> it would be interesting. they are probably told by the judge not to read anything. it's not something they should be doing but frank they would have to be living under a rock what this woman is doing. >> it makes her look more narcistic and law doesn't allow her to profit her crime. she can't write a book and collect millions of dollars because she made herself about a star? >> not for this crime. she is going to have an appeal that is going to win and some day she is not going to be a murderer sitting in prison. >> megyn: hold on. there she is. she is in the courtroom. this is live. maybe we're getting news. i'm not being told we have a verdict on the life sentence versus death. i'm being told she
unless she is sonar cystic and believes in her mind she may actually get out.e day she may have a life and some day she can sell her story or sell herself or something about her that we really don't care about. she is living that fantasy. she has her 15 minutes of fame, i guess, that is only explanation. >> megyn: do you think the jury knows about the interviews? >> it would be interesting. they are probably told by the judge not to read anything. it's not something they should be...
212
212
May 31, 2013
05/13
by
FOXNEWSW
tv
eye 212
favorite 0
quote 0
her name is sarah and she has cystic fibrosis.arents have been told she may now have only weeks to live but because of her age she can only receive a donor lung after all the adult candidates on the list have first had the opportunity to take advantage of that available lung. i spoke to her mom earlier this week. here's a piece of that. >> any parent on the listing thinks that this is, must be a fair and equitable list. so you don't really think that your child will be discriminated against. i felt like we got on. we got on well in advance, as soon as she qualified for organ transplant. we knew there would be a wait and we got on the list. martha: jeffrey goldstein is the president of the lung transplant foundation. he is also a double lung trant plant recipient -- transplant recipient. that is amazing. great to see you, jeff. their for being with us today. >> thank you, my pleasure. martha: what is your reaction when you hear sarah's mom say that? >> it is gut-wrenching. it is a very difficult experience. i've been through it mys
her name is sarah and she has cystic fibrosis.arents have been told she may now have only weeks to live but because of her age she can only receive a donor lung after all the adult candidates on the list have first had the opportunity to take advantage of that available lung. i spoke to her mom earlier this week. here's a piece of that. >> any parent on the listing thinks that this is, must be a fair and equitable list. so you don't really think that your child will be discriminated...
218
218
May 28, 2013
05/13
by
FOXNEWSW
tv
eye 218
favorite 0
quote 0
her name is sara and she has cystic fibrosis and is said to have weeks to live. ment pictures are heartbreakingcan only receive a donor lung after all of the adult candidates have first had their chance. >> the only thing standing between my daughter living and my daughter dying is the fact that she's 10 and not 12. that is unreal to me. martha: so that's the rule, arthur that if she's 1 she can receive one of these adult lungs, there are so few pediatric lungs available for a ten-year-old. >> here is the thing. there are two lists, the list of people under 10 years old and understand and people -- 12 years old and older, if you're 12 you're on the adult list. there are a lot more adult lungs up for transplant and donations and they can be fixed to fit into a little person's lungs. so, it's not like it doesn't work, it works. and because of this girl sarah's condition she would be number one on the adult list to get the next set of lungs because she is so sick. but because she is not 12 she is below 12, she is on the childrens list, and even though she is number one on the childrens list there
her name is sara and she has cystic fibrosis and is said to have weeks to live. ment pictures are heartbreakingcan only receive a donor lung after all of the adult candidates have first had their chance. >> the only thing standing between my daughter living and my daughter dying is the fact that she's 10 and not 12. that is unreal to me. martha: so that's the rule, arthur that if she's 1 she can receive one of these adult lungs, there are so few pediatric lungs available for a...
248
248
May 14, 2013
05/13
by
CNNW
tv
eye 248
favorite 0
quote 0
i have a history of fine on cystic breast tissue for a long time.ard time figuring out what is wrong with me. but i have been religious about getting my mammograms, at the end of the day, one of my diagnosis on the left side is a very early breast cancer. and i believe it's because of that. because i did not mess around. i went when i was supposed to go, and i followed it diligently. because at the end of the day, that makes you empowered also. and i can't let you leave, elizabeth without empowering other women and men. a couple of guys who have a history of breast cancer in their families. one guy, the entire family of women have had breast cancer and those who have not chosen a double mastectomy have died. powerful stories and i want folks to know we are a resource for them. so much information for folks to be empowered. so can you tell them about that? >> go to cnnhealth.com. the cnn health unit website, see all of the information, but links, all sorts of stories, and all sorts of stories about being an empowered patient when you get a diagnosis
i have a history of fine on cystic breast tissue for a long time.ard time figuring out what is wrong with me. but i have been religious about getting my mammograms, at the end of the day, one of my diagnosis on the left side is a very early breast cancer. and i believe it's because of that. because i did not mess around. i went when i was supposed to go, and i followed it diligently. because at the end of the day, that makes you empowered also. and i can't let you leave, elizabeth without...
152
152
May 12, 2013
05/13
by
KTVU
tv
eye 152
favorite 0
quote 0
. >>> a fight for the awareness of cystic fibrosis.the children the healing powers of the ocean. >> a study in the new england shows it's beneficial for the study. >>> it is a 750 mile seven-day race innes condid oh -- we are going to give you the route cycles. the final race ends in santa rosa. >> k tv u is going to have live coverage right here. >>> a special mother's day celebration is getting under way for homeless mothers. >>reporter: i'm having a hard time hearing you. we in the salon in san francisco. these are professional stylist who have volunteered to give their time today. it's all about pampering mom's today. the center has been doing mommy makeovers for about 19 years now. i'm with natalie. >> i have been a mom for a long time and never been pampered like this and this is amazing. >> and you tell me this is the first time you have had your make-up done professionally? >> yes. >> are you looking forward to going out? >> absolutely. i'm so excited. we are going to see a show. >> they are going to be transported via limo whe
. >>> a fight for the awareness of cystic fibrosis.the children the healing powers of the ocean. >> a study in the new england shows it's beneficial for the study. >>> it is a 750 mile seven-day race innes condid oh -- we are going to give you the route cycles. the final race ends in santa rosa. >> k tv u is going to have live coverage right here. >>> a special mother's day celebration is getting under way for homeless mothers. >>reporter: i'm having...
314
314
May 30, 2013
05/13
by
KGO
tv
eye 314
favorite 0
quote 0
her daughter's life this morning over the issue of federal organ donor rules. 10-year-old sarah has cysticbecause she's only 10 years old, she can't get lungs until she has another chance. she may only have weeks to live. >> last week she was on the verge of needing to be intube ated, which with cf when you're waiting for lungs, it's the next step. >> she's at the top of the pediatric list for organ donation, and the number of pediatric lungs is limited. two congressmen have taken up this task. they're working to get the feds to make an exception. isn't that horrible? >> this is just such a tough story. you never want to be in that position. her parents are doing everything that they can. they're talking about online petitions. we're talking about reaching out to every federal government official that they can think of to try and get this change done. i can understand both sides of this idea. you need to have children, pediatric patients, and then you have adult patients. and it's hard to put anybody in front of anybody else. how do you make this decision if you're the one in charge of tha
her daughter's life this morning over the issue of federal organ donor rules. 10-year-old sarah has cysticbecause she's only 10 years old, she can't get lungs until she has another chance. she may only have weeks to live. >> last week she was on the verge of needing to be intube ated, which with cf when you're waiting for lungs, it's the next step. >> she's at the top of the pediatric list for organ donation, and the number of pediatric lungs is limited. two congressmen have taken...
65
65
May 23, 2013
05/13
by
LINKTV
tv
eye 65
favorite 0
quote 0
it's a powerful look into the lives of twin sisters born with cystic fibrosis and their struggle to fight this often fatal genetic disease. their inspiring story is next, and later in the broadcast, they'll join us in the studio to talk about the film, their journey, and how you can help, and now "the power of two."
it's a powerful look into the lives of twin sisters born with cystic fibrosis and their struggle to fight this often fatal genetic disease. their inspiring story is next, and later in the broadcast, they'll join us in the studio to talk about the film, their journey, and how you can help, and now "the power of two."