there are things like cystic fibrosis that you might pass onto your children.ut then also other things like your eye color, which is interesting in that it teaches people about genetics and things like caffeine metabolism, which again is just really interesting -- and lactose intolerance as well. emily: i would love it if you could to take me back to that day where you got that now infamous letter from the fda. anne: it was november 22, 2013. we were actually at an off-site planning for our future. we were all in great moods because we had hired a great number of people. we had a number of people that had started that week. i think what we learned after that moment is how much there was a disconnect between what we thought we were trying to doing with the fda and what the fda actually really needed us to do. emily: did you think for a moment, oh, my goodness, i you could lose the company? anne: it took a while to understand. there was probably about six weeks time period there where we talked to a number of lawyers. we talked to the fda. we talked to groups. it

tammy griffin needed new lungs because of damage from cystic fibroses.rt was still good, so she offered to donate it. it was a match for linda car whose own heart was failing. the two met and tammy got to hear her heart beating in linda. >>> it's amazingic meet a person who has my heart, how many people can say that. >>> i'm for ever grateful. >>> stanford university said this type of domino transplant is rare, they have not done one in 22 years. both women said it is a second chance they would not sure they would get. >>> welcome back on a saturday morning, time, 5:56, 48 degrees out there. sky6 live hd giving you this kind of cloudy and gloomy look over the ben franklin bridge. if you have any weekend plans, chris sowers says you need to prepare for the rain. >>> dole company perhaps for the deadly listeria outbreak involving salads. the new york times report that they knew of the listeria problem more than a year before it was shut down this past january. a freedom of information act request revealed there were nine positive listeria tests at the plan

. >>> cystic fibroses foundation held their annual walk down the shore at 6th street and the boardwalk in ocean city. they work to cure the disease and help patients live full productive lives of they raised 43,000-dollar today to reach the goals. >>> okay ducis rogers in for jeff, like the old saying goes ducis we won't know how well the eagles did in the draft until a year or two. >> reporter: the eagles pick up a few more players and more today on the final day of the nfl draft, the highest that they picked today was a running back out of small wood west virginia university he was taken in the 5th round. he is a shiftier type back, but he comes with baggage, he was arrested on charge that he intimidated a witness in a murder case. the eagles said they did do their homework on small wood. >>> we do research on guys, we don't want to throw away guys because they had an incident, in this case five or six years ago and asked what wasn't he do well. the test numbers are good, he can run and catch and pass protect, i'm sitting up there saying this is a little shawn mccoy, but this is a go

tammy had cystic fibrosis, receiving lungs was critical. her heart was still functioning well, but was pushed out of the normal position. along-heart transplant was the only option. and tammy wanted to know if she could give her heart to someone else, literally. >> i said is my heart still go. they said, yeah. i said why don't i do not it. >> tammy's heart was a miracle match for linda who was diagnosed 20 years ago with a genetic disease. her health was declining. so two women were at the same hospital floor in stanford, receiving organs in a procedure. >> all together. there is probably 30 people involved in these two transplant operations. >> reporter: dr. joseph coordinated the surgical team. one removed the heart and lung from the deceased -- donor and then they implanted them in tammy. and then to linda. >> this is once in a lifetime. >> reporter: both women were not sure of the outcome until the surgery was complete. >> this is extremely rare. the last one at standard was done 22 years ago. >> and the ideas were confidential, tammy a

so medicaid doesn't bat an eye when we're paying $400,000 a year for treatment of kids with cystic fibrosis because it is a relatively small number of people. but when we look at hepatitis c, three and a half million americans, more than a million of those are on medicaid. >> right. >> and when you do the math of more than a million people on medicaid who need a 94 or $194,000 treatment, all in one year, that just sends the budget into cardiac arrest. it can't be done. >> so harvoni is 93, 94, $95,000 for one course. our patient who we profiled gene needed 2. let's cawg it $95,000. medicaid receives a discount which can be half of that but even then, you say it can be too competitive for every patient who needs it. in what point in mary snow's story, if it's not medicaid or the insurers's role in the middle that they don't? >> medicaid a payor and a tax funded institution has got to be a responsible steward of the taxpayer dollar. and we need and we want both the patient and the physician to be strong advocates for what they want and what they need. but the state does have a legitimate role

>> the point about the treasury forecast as it takes the office of national to cystic figures and the orp figures and it doesn't alter them but it is time to make them very clear and pure argument backed by the government of the bank of england yesterday that much of what would happen if britain leads the eu. there's a demand out there for independent and clear statistics and that's exactly the treasury provided. >> thank you very much, mr. speaker. it's believed the recent murder of glasgow shopkeeper was religiously motivated, and this week christian, jewish, chic and other leaders launched a campaign titled united against extremism. with the prime minister join me and colleagues of all parties in supporting the ends of his campaign to support and sponsor understanding and stand up to extremism? >> i will certainly join the right honorable gentleman. this was a shocking murder and i think what it demonstrates begin what is question hints at that we need to going to stand up against violence and actual upholding violence like this but we also need to stand up against the extremist mi

tammy had cystic fibrosis.rt was functioning well, but was pushed out of its original position. a heart and lung transplant was the only option. >> i asked them if my heart was still good. they said yeah, i said why don't i just donate it. >> reporter: her health was declining. she couldn't walk her dog anymore. two women who had never met wound up on the same hospital floor at stanford. >> altogether, there's probably about 30 people involved in these two transplant operations. >> reporter: dr. joseph woo coordinated the surgical teams. one surgical team removed the heart and lungs from the deceased donor. a second team implanted them in tammy. a third team implanted tammy's heart in linda. a touch and go surgery where both women aren't sure of the outcome until it was complete. >> this operation is extraordinarily rare. the last one done here at stanford was done 22 years ago. >> reporter: tammy and linda wanted to meet. two months after their life- saving transplants, they met and tammy got to hear her heart

philadelphia grade strides is a family run and healthy 5k walk that benefit also the cystic fibroses foundation at 8:00 a.m. >>> philadelphia international festival of arts hold its street fair on broad from chestnut to south street. there will be plenty of performances and ferris wheel and zip line and 25-foot waterfall. 6 blocks of broad street from 11:00 a.m. until 7:00 p.m. tonight. >>> friends of ran rancocas nae center will celebrate the arbor day festival that happens tomorrow. there will be plenty of children's activities a proclaimation from the mayor of west hampton. and fun with fungus event on rancocas road in west hampton new jersey. sports is next. narrator: listen to president obama endorse katie mcginty for senate. obama vo: katie will stand up to special interests to protect your right to health care, social security and equal pay for women. as the 9th of 10 kids and the mother of 3 daughters, katie is fighting to ensure every family has a fair shot at getting ahead. katie from debate: "i'm a champion, i'm a fighter and i'll have the back of hard working families in

it is hard to know what beats of cystic -- what the specific catalysts can be.ajor default, i'm large company -- a large company, a large company getting into debt. exchange rates, we have nothing like that will happen. we hope the markets will be resilient and take a long-term view. they do not always do that. >> let's talk oil, and the big eating in doha where producers are going to discuss a proposal from saudi arabia where they will freeze at historically high levels. oil prices have been fluctuating, bouncing back from earlier lows, wti above $40 a barrel. it took a dip after the u.s. energy department said u.s. crude inventory is increased by more than 6 million barrels last week. jonathan: are we going to get a freeze, or what kind of selloff are we going to get? >> it is the same question the whole market is asking right now. we have seen prices run up really fast and a last few sessions. participants going into these talks need to deliver something to avoid a big selloff. it is still, what do you do about iran? it still wants to ramp up further. saudi a

but he says unfortunately by the time most men seek help -- >> it can evolve until you get cystic liked area which we have to inject with steroids. >> reporter: now that hurts. >> it can be painful. >> derek white taking action to prevent possibly suffering years of slow, careful, and sometimes unpredictable surgery like this patient. >> this is a improve many, right. >> definitely. >> excellent compared to where it was heading about a decade ago. >> wow ! >> showed up in your 20s. >> yes, early 20s. >> reporter: last minute modeling shoot sent derek to a different barber who cut too close and nicked him. >> that changed the whole landscape of things. >> reporter: years of inadequate treatment. >> i think in this area you started to progress even across the back. >> it was a mental battle, emotional battle. it was an overall battle. >> reporter: a battle derek now winning. >> let me check and see how you're progressing. awed couple little flare-ups but that's about it? >> yes, sir. >> reporter: another steroid treatment is necessary. >> the april corrections right in here. >> reporter:

marion had been battling cystic fibrosis. >> i was thinking that she was here, the prom theme, you know, so i had an idea that i would bring her because she had her lungs in her. >> like wanting to ask if you wanting to to the prom. of course, would i love to. >> we're told and his family have surprises in store for her when she comes out to ohio, for the program just to make that day even more special. >>> well, we're told once again colin made it a special, special day. >>> now that spring has arrived, tropical season is picking up, but whether you aring ago way for a week even or week long vacation chances are you are taking too many things with you. into day i's three on your side consumer report, jim donovan talks to the experts about packing smarter. >> reporter: spend a few minutes in any airport and easy to see people tend to over pack, and much of what is stuffed in those suitcases, probably isn't necessary. >> i don't know why people do that. >> reporter: travel expert mark murphy says not only is over packing a nuisance but it can be costly. he says people often think they ca

today i rise to support great strides miami 2016 and the cystic fibrosis foundation. cystic fibrosis is a tragic genetic disease that can cause a buildup of thick mucus in the lungs and other organs leading to freak enfeckses and organ failure. this coming sunday, april 17, at 9:00 a.m., i urge my fellow south floridians to participate in the 5-k walk at historic virginia key beach located in my congressional district to raise awareness for the need for a cure to this terrible disease. little delaney jade, right here, what a beautiful child. delaney, seen here with her loving grandmother, is one of some 30,000 americans who desperately deserve more effective treatment and a cure. please consider taking a few hours of our yuck end to walk at great strides miami and help delaney and so many others add more tomorrows to their precious young lives. thank you, mr. speaker. the speaker pro tempore: the gentlelady's time has expired. for what purpose does the gentleman from pennsylvania seek recognition? address ous consent to the house for one minute. the speaker pro tempor

those who survive often have other health problems andrew also has cystic fibrosis. >> when i was pregnante the pregnancy he's not going to make it. >> reporter: andrew made it making it and thriving. just pass past the seven year anniversary of his kidney transplant. he even caught the eye of tom glavine had a recent event for kids who have organ transplant. >> they deal with it head on. and, you know, they don't let it get them down. >> reporter: there are challenges without stomach muscles he has trouble coughing which the body needs to do. he's always ban little on the small side. but hit a growth spurt recently. can't play contact sports like football. but andrew adapts and really insists it's no big deal. >> it's kind of easy for me now because i've been doing it for so long. >> his reality right now he's going all the way. who are we to stop him? i don't know what he's capable of. he's already proved everybody wrong right from the beginning. >> i think if anyone would doubt that kid i'm probably one of his biggest critics being a youth baseball coach when he comes out here and he sh

>> the point about the treasury forecast as it takes the office of national to cystic figures and the orp figures and it doesn't alter them but it is time to make them very clear and pure argument backed by the government of the bank of england yesterday that much of what would happen if britain leads the eu. there's a demand out there for independent and clear statistics and that's exactly the treasury provided. >> thank you very much, mr. speaker. it's believed the recent murder of glasgow shopkeeper was religiously motivated, and this week christian, jewish, chic and other leaders launched a campaign titled united against extremism. with the prime minister join me and colleagues of all parties in supporting the ends of his campaign to support and sponsor understanding and stand up to extremism? >> i will certainly join the right honorable gentleman. is was a shocking murder and i think what it demonstrates begin what is question hints at that we need to going to stand up against violence and actual upholding violence like this but we also need to stand up against the extremist mind

completely healthy despite carrying genetic mew takes otherwise known as mendelian disorders like cystic fibrosis in their family but because of their makeup they don't get it. scientists want to know why and could help them find new treatments for diseases like cancer. >> really great. >> 70s that amazing? >> that is amazing. >> superheroes do exist. >>> finally how did this cross the road? let's switch it up. go ahead. how did this one cross the road? she didn't. she took her sweet swan time leading her little personal parade. thankfully the traffic behind her incredibly patient. the swan is just fine. much more patient than this guy, a real horndog, if you will. >> oh. >> who apparently has a bone to pick with his owner over the rough situation in which he and his partner are trying to escape. we gave you the full -- >> pooh-pooh platter. >> that's what we love about it. >> a little science, celeb. >> all comes together. >>> coming up high healed detox. we're teaming up with "glamour" ditching the heels and revealing how you can make flats work at work. >> and gwyneth paltrow is here

more prevalent not just for hiv but for other disabilities as well or chronic health conditions like cystic fibrosis, like macular dystrophy. we used to think that once you have this diagnosis, you wouldn't live passed the age of 5 or whatever. i am also one of those generational by-products where you know, i feel you. you never plan for retirement because why does it matter anyway. and so, medical interventions have also been great supporters, but about a lot of side effects. your studies demonstrate that so beautifully. but, also at the same time it is so common for every other chronic or previously fatal or thought of as fatal disability. so thank you. >> thank you. and we feel the need for a reeducation and a redefining. >> yes. >> any other questions or comments? go ahead. >> i was very struck by your mentioning the specifically isolation and what an individual experiences. specifically an aging that is obviously a challenge but when you are dealing with things like ptsd and anxiety and depression. it was very moving. i want to compliment you on putting together such a wonderful presen

i think he is too volatile and to emotionally versus cystic to be president. host: if hillary clinton wins the primary, who do you think you might vote for? i would vote for clinton over trump. host: thank you for that call. earlier this month, rush donaldh who has given trump is blessing was speaking on fox news sunday about donald trump's candidacy. >> you don't win everything. you have to take what you get. i think there is a much bigger upside than downside. a lot of people disagree with me. the people who want somebody not of washington, it's serious this time. the disconnect between the establishment and the people of this country is broader and wider than i have ever seen it. these people have been telling us they are the one to fix everything. look at the college education. it's an impediment the of how much it costs. it's no longer a step up. the american people have worn out their patients. ce.patients you would rather invest in themselves than listen to a bunch of people in washington. host: that was conservative host rush limbaugh talking in favor