they were overwhelmed by cystic fibrosis, doctors made a radical decision and remove her lungsp herd machiixnes body recovered enough to get donor lungs. >> it feels different. i take it for granted and now breath ahw. >> pble stuff. she can't believe it happened and doctors think it's the first iabepsnded .esre and heart condis you see filed ical problems but lesbianism. a north carolina mother o her medical isted he sexy her beingen and aw could set someone back a themnk there is something h them. >> the doctor offered to remove the word as a medicalroem p son.d a dequote,ishing she canuss >> you slice app is u.s. produce sections. n b s safe and llmi.peak swhich, i will round up tips to extend the life of your fruits and vegetabled coming up in what's the deal. r tip mhelist. and guys your s -- s holder to k shp your the time like a guarder belt iks with side straps that keeps in in place eve move you can wo anywhere you clip the bands and pull the shirt down. this is the brain child of nick convenienty, and heame u with sick thirt al yourst complicates going to the >> it'sot ctrt

can call it the a medical miracle, but it the looks like death for canadian woman suffering from cysticsis became first of its kind experiment to keep her alive. melissa was near hours from death when both lungs failed and that is when there is decided, to to something drastic they removed both infected lungs so her body could stabilize i am planting her with a machine for six days. >> prognosis, i don't think anybody those i'm first in the world they have tried this on. i will be first in the world to see how long we live. >> wow. >> she received a double lung transplant once her body was strong enough and she will continue to suffer with cystic fibrosis as she recovers. >> modern medicine. >> incredible. >> coming up on "eyewitness news" we are starting the day with record numbers on wall street. >>> president trump comes to philadelphia today, trang. >> reporter: that is right, we are seeing road closures and parking restrictions here in center city, i'm trang do and i will tell what you commuters need to know. >>> president trump is coming to town. because of that we will see slow d

i think that somebody like jonathan miller, he was born with cystic fibrosis and he is insured today through the affordable care act.nderful i was able to live a wonderful life growing up with family and friends, but health has always been the most important thing in my life. even in a good year i spent probably one or two hospitalizations each year that require antibiotics. i am on a whole suite of medications and take about 15 to 20 medications. some of them are pills, healthcare is the number one priority in my life that is more important than income or to anything else being able to maintain my health. he's on the affordable care acte today but also receives the benefit of the protections because jonathan without the affordable care act even if he had insurance would lose it a couple months into the year because of a practice prior to the affordable care act for the money that he would be given in a year or a lifetime. he would have blown through that in a heartbeat so it isn't hyperbole when he says i would probably be dead within months. that is the reality for millions of peop

it had run up huge in anticipation of a new drug approval for cystic fibrosis that could be a $10 million business. the drug got off to a slower start than expected, although i'm not sure it could e wequal hype. at the jp morgan health care conference, we might get lowered expectations and could be a nice buying opportunity but i think you got to wait before you think about pulling the trigger. if i look at companies that round out the rest of the s&ps, the six largest, we'll get to that in a second, there is the 3 billion-dollar orphan drug but alexion branched out for $8.4 billion in 2015. and the drugs that have come with that acquisition, less than stellar. how bad? we don't know. but the recent departure of the ceo and the cfo at once, i'm calling that hardly reassuring hence the 36% decline. we got a similar story off 33%. here is another pharma play for $5 billion two years ago and attempt to diversify away. the sells have been good but short sellers loud suggesting the drug will have problems with payers, including the u.s. government because of the monstrously high cost. >> not a

and succumb to what he called a nar cystic mentality.d the pope to reflecting on the importance of youth in today's world. arguing that it is important to make sure that there are job opportunities for young people. that they have the chance to build a better future. he also talked about how much he has learned from mothers over the years. the mothers of refugees. the mothers of war victims. mothers whose children are in prison or are addicted to drugs. he said what they have taught him is that these mothers never give up. they never stop fighting for their children. and he said that's the spirit the world needs in 2017. to try to build a better future. for cnn, john allen, rome. >> thanks so much, john. >>> tonight on cnn, the history of the music group chicago. after the break, we'll have a sneak peek of the film documenting one of america's greatest bands. >>> all right, 2017 will mark the legendary rock group chicago's 50th year performing. never once missing a year of touring. extraordinary. well, tonight at 8:00 eastern time cnn tr

vertex pharmaceuticals expects full year revenue from cystic fibrosis drug.ed to come in between 1.1 and $1.3 billion. evercore says that appears to be below analyst forecasts. vertex made the announcement ahead of its presentation today at the jpmorgan health care conference. i can't tell whether that's trading or wasn't as unexpected. let me just see. yeah, i can't tell. just looks like it hasn't traded yet. >> first full trading week of the new year and a new chance for dow to cross 20,000 threshold. show you what's going on with futures at this hour. dow lowered 14 points, nasdaq open higher one point, s&p open higher by two points. our guest host barbara reinhart with voya investment management head of asset allocation and jeff hurst editor and chief farmers almanac. and chief market strategist. great to have you here. jeff, stock traders almanac. what should we think dow 20,000 in terms of historically what it's done when we get these big numbers in front of us. >> it's proven to be a bit of a resistant point right now. historically these numbers don't

john was born with cystic fibrosis and john tells a story about how health care is the it's more the world. it's more important than salary, more important than job, more important than friends. he struggles every day to that and the only way he lives his because he is able to take medication that allow him to continue to breed, his lungs t continue to function amidst this crippling disease in diagnosis.d john is on the affordable care at and john will tell you just e as plainly that without the affordable care act he woulde ys die. not two years from now. not three years from now. witho john would add within a matter of weeks because without his medications, he cannot live. it's not hyperbole to suggest that the absence of the affordable care act is a matter of life and death. without the affordable care to inhabit insurance and he cannot afford the medications to keep them alive. john disappears from this earthe these are real people than i care about it because i now had i not gotten the chance to beat john and isabel and josh.ol you've got these people in your state as well.n rep

there are approaches to diseases like cystic fibrosis, muscular dystrophy. knowledge of how a genome relates to a disease has helped enable what we can do at editas medicine. >> i have to ask you about the patent case going on in crispr now. it's one of the hottest stories in science. how much does the outcome of that case affect your business? >> we're building a business for the long term and we actually have a lot of confidence in our patents and our intellectual property position. we have 35 issue patents, over 400 patent applications that span across the field and we have a lot of confidence in that so that it can really enable us moving the science forward, making medicines and getting them to patients. >> just really quickly, is it a winner take all situation or can multiple players exist here? >> we're excited for the potential for the whole field. we think there are a lot of different medicines that can be made for this technology. we're excited to be leading that field and we hope there will be many medications that come out of the crispr technolog

he was born with cystic fibrosis. he is insured today through the affordable care act.here's what he says. he says for me, i was able to live a relatively normal life growing up. wonderful family and friends. but health has always been the most important thing in my life. i spend even in a good health year probably one or two hospitalizations each year that require antibiotics. i'm on a whole suite of medications. each day i take about 15, 20 medications. some of those are pills, some are breathing treatments, and then there are the shots. health care is the number-one priority in my life. it's more important than income, more important than anything else, being able to maintain my health. he's on the affordable care act today, but he also receives the benefit of the insurance protections because jonathan without the affordable care act, even if he had insurance, would lose it probably a couple months into the year because of a practice prior to the affordable care act of capping the amount of money that you would be covered for in a given year or in a lifetime. jonatha

john was born with cystic fibrosis, and john tells the story about how health care is the most important thing to him in the world. it's more important than salary. it's more important than his job. it's more important than friends. he struggles every day to live, and the only way he lives is because he's able to take medications that allow him to continue to breathe, that allow his lungs to continue to function amides this crippling disease and diagnosis. john's on the affordable care act, and john will tell you just as plainly as josh and isabellle that without the affordable care act, he would die not two years from now, not three years from now. john would die within a matter of weeks because without his medications, he cannot live. it's not hyperbole to suggest that the absence of the affordable care act is a matter of life and death. john will tell you without the affordable care act, he doesn't have insurance. without insurance, he cannot afford the medications to keep him alive. without the medications to keep him alive, john disappears from this earth. these are real people, and

george, you were diagnosed with cystic fibrosis as a baby and went on the organ transplant list for ag up, i have always been in and out of hospital with chest infections and never been able to breathe properly. it is incredible. it really is the gift of life. i have been given a second chance and i'm making the most of it and doing all that i can. how in need of the lung transplant were you? all that i can. how in need of the lung transplant were you ?|j all that i can. how in need of the lung transplant were you? i was days away from dying. i had my, it was my fourth call that everything went ahead. i was in hospital and unable to leave. i was on oxygen and i had an invase yave mask to help me breathe. i was bed—bound and i could barely eat for myself. things had got as worse for myself at that time. roger says, "i donated a kidney two years ago. i looked to see if i could help some other way and that's when i found about organ donations, different people at the hospitals kept asking me why? i didn't have an answer at first, it may have been for a variety of reasons. i think the sim

i'm a constituent and i tell you i have three kids and a 9-year-old doubt who has cystic fibrosis.e. what happens to me six months, nine months down the road with my daughter and her doctors and her needs, when you haven't replaced obamacare yet nine months down the road? tell me about that? >> she is going to have exactly the same plan. the plans for 2017 are locked in stone. so her doctor, her coverage, everything that she has for 2017, there are going to be absolutely no changes whatsoever in 2017. >> what are you repealing? >> we are sending the message to america that as we move in beyond, say, a two-year window, we are going to have a new plan. we don't have it finalized yet. it's going possible patient c t centric and no health insurance taxes on insurance companies and no medical device tax and those are the pieces we are going to be repealing. as far as the programs go, that is a discussion we will have over the next six to eight months to have a plan in place in time for the insurance companies who will be designing the program for 2019 and no panic and the sky is not fal