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Oct 20, 2015
10/15
by
KCCI
tv
eye 50
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tell us about cystic fibrosis. melody: it is a life-threatening genetic disease that causes a thick mucus to develop. additional problems. eventually respiratory failure can happen. it is a brutal disease that, in the 50's, children didn't make it to kindergarten. now we are doing underfoot drug children's lives to early 40's. mollie: tell us about your family and experience. teresa: he found out she has cystic fibrosis when she was two weeks old. i called up the cf foundation and found out that it is not government-funded. we rely solely on donations from the public and individuals. i immediately took her in. she was two weeks old and went into the office and had been volunteering ever since. mollie: how is she doing? teresa: she is seven and doing fantastic. it is a progressive disease so there are issues that compound but right now she is doing fantastic and we plan on keeping it that way. mollie: one way we can do it is by helping out. melody: it is november 6, the 13th annual wine opener. it is a wonderful eve
tell us about cystic fibrosis. melody: it is a life-threatening genetic disease that causes a thick mucus to develop. additional problems. eventually respiratory failure can happen. it is a brutal disease that, in the 50's, children didn't make it to kindergarten. now we are doing underfoot drug children's lives to early 40's. mollie: tell us about your family and experience. teresa: he found out she has cystic fibrosis when she was two weeks old. i called up the cf foundation and found out...
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Oct 25, 2015
10/15
by
WCBS
tv
eye 87
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thank you. >>> coming up, information on cystic fibrosis. to cf.org. are you getting the internet speed you need? [excited yelling] ah, yes! you cannot stop it! aww...your mom liked my post. you're friends with my mom? we all use it differently. so why should we get it all the same way? now you don't have to. with time warner cable, you get speeds from 3 megs, all the way up to ultra-fast 300 megs. with no data cap. no long term contract. even wifi you can use at home and on the go. call us today. prices start at $14.99 per month. if you're not happy, we'll switch you back. no risk. no contract. no catch . call now. whoa. another? definitely. switching to time warner cable is easy. call us and find out about free installation and our one-hour service window. see why so many people are switching. from $14.99 everyday low price internet, to 300 meg ultra-fast internet, we've got you covered. even with wifi at home and on the go. get it today with no long term contract. no risk. no catch. call us now. time warner cable. >>> all of the wonderful people hel
thank you. >>> coming up, information on cystic fibrosis. to cf.org. are you getting the internet speed you need? [excited yelling] ah, yes! you cannot stop it! aww...your mom liked my post. you're friends with my mom? we all use it differently. so why should we get it all the same way? now you don't have to. with time warner cable, you get speeds from 3 megs, all the way up to ultra-fast 300 megs. with no data cap. no long term contract. even wifi you can use at home and on the go....
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65
Oct 27, 2015
10/15
by
KGAN
tv
eye 65
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maryland saturday afternoon at kinnick.when sean was nine-days-old, his parents learned he had cystic fibrosis. he was taken to the u-i children's hospital days later for an unrelated issue.today sean has regular treatment for cystic fibrosis, but that doesn't keep him from enjoying video games and training to be an american ninja warrior.he also loves being his sister's best friend. justin checks in now with your cbs 2 'weather first' forecast. main weather- your planner shows what's ahead for the next hoursa&- doppler radar later today- now a live look outside courtesy of our weatherfirst skycama&- temperatures around the areaa& - taking a look at regional temperatures we see highs are warmer all around iowa- the regional satellite/radar is keeping conditions soggy today - let's move ahead in time by taking a look at the midwest surface mapa&- moving into a closer view with our 'predictor' forecast we see clouds & showers moving in - today's forecast features rainy & breezy conditions- more rain tonight- the next three days show showers moving through the area- our 7 day forecast has a few s
maryland saturday afternoon at kinnick.when sean was nine-days-old, his parents learned he had cystic fibrosis. he was taken to the u-i children's hospital days later for an unrelated issue.today sean has regular treatment for cystic fibrosis, but that doesn't keep him from enjoying video games and training to be an american ninja warrior.he also loves being his sister's best friend. justin checks in now with your cbs 2 'weather first' forecast. main weather- your planner shows what's ahead for...
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64
Oct 14, 2015
10/15
by
CSPAN
tv
eye 64
favorite 0
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today, if you are born with cystic fibrosis, there are medicines that have been discovered in the last 3-4 years, and more on the way, that will ultimately allow someone with cystic fibrosis to live as long as everybody else. our grandchildren, being born today, if we get this right, will live way beyond 100 years. it creates challenges, but it is also an opportunity to transform our society in a way that will allow more and more people to live lives of purpose and meaning. here is the problem -- the one thing i know is this, we cannot stick with the status quo. we cannot leave this up to the lobbyists and politicians in washington, d.c. the system we have today, obamacare, in its current form, was written by the special interests for the special interests. let's look at what had been promised and what we got instead. president obama promised that health care insurance premiums would fall by $2500 per families. it is estimated, by the president's own team, that they will increase by over the next $2900 10 years. right here, in new hampshire, based on the rate filings that have taken pl
today, if you are born with cystic fibrosis, there are medicines that have been discovered in the last 3-4 years, and more on the way, that will ultimately allow someone with cystic fibrosis to live as long as everybody else. our grandchildren, being born today, if we get this right, will live way beyond 100 years. it creates challenges, but it is also an opportunity to transform our society in a way that will allow more and more people to live lives of purpose and meaning. here is the problem...
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36
Oct 9, 2015
10/15
by
CSPAN3
tv
eye 36
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>> i have a personal and long-standing interest in cystic fibrosis. this is a very exciting time for that disorder because after all those years of figuring out how that small glitch was capable of causing this disease. we now know a great deal about the protein that is made and why it doesn't do what it is supposed to do in assisting s cystic fibrosis. very exciting times, indeed. autoimmune diseases, lupus, rheumatoid arthritis, one exciting public slach slach private partnership, several of us have been working to bring together ten drug companies within nih to work together and one of the targets is lupus and rheumatoid arthritis. what is going on with t-cells and lupus? are they overactive and going after normal tissues when they shouldn't? how do we understand how single cells are behaving in order to bring up tragedies? all of these areas are full of potential right now. >> thank you, sir. senator durbin? >> thanks, mr. chairman. thank you all for being here. let me say at the outset to address this side of the room for a moment, gathered in th
>> i have a personal and long-standing interest in cystic fibrosis. this is a very exciting time for that disorder because after all those years of figuring out how that small glitch was capable of causing this disease. we now know a great deal about the protein that is made and why it doesn't do what it is supposed to do in assisting s cystic fibrosis. very exciting times, indeed. autoimmune diseases, lupus, rheumatoid arthritis, one exciting public slach slach private partnership,...
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Oct 16, 2015
10/15
by
CSPAN3
tv
eye 32
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i have a personal interest in cystic fibrosis. fter figuring out all that small glitch was capable of causing this disease, we know about the protein that is normally made and why it doesn't do what it's supposed to insistic fibrosis, and we have seen the second drug strategy be approved for the treatment of more than half of cystic fibrosis, a drug that is based upon molecular disease. and lupus and roheumatoid arthritis. we have been able to bring together ten drug companies to work together, and trying to figure out, and i showed that picture about t-cells and what is going on with t-cells and lupus, and are they overactive and going after normal tissues when they should not, and what can we do with the new technologies to understand how single cells are behavior when we come up with strategies that work better than what we already have. all of these areas are full of potential right now. >> senator durbin. >> thank you all for being here, and let me say at the outset to address this side of the room for a moment, gathered in th
i have a personal interest in cystic fibrosis. fter figuring out all that small glitch was capable of causing this disease, we know about the protein that is normally made and why it doesn't do what it's supposed to insistic fibrosis, and we have seen the second drug strategy be approved for the treatment of more than half of cystic fibrosis, a drug that is based upon molecular disease. and lupus and roheumatoid arthritis. we have been able to bring together ten drug companies to work together,...
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. >> belly dancer with cystic fibrosis is giving us a lesson on never giving up.suffers from cystic fibrosis and last time he performed was since years ago. he had to dance with a long tube attached to an oxygen tank. after a double lung transplant in 2013 life is not easy. the doctors say he had 30 days left to live and three had new mondayia eight times and last time in april and he was in a coma and now five months later he is feeling healthy enough to get on stage and dance. he is set to perform tomorrow. seven things to know ahead. >> a new honor for a long-term >> a new honor for a long-term leader in the oakland schools. better things than for rheumatoid arthritis. before you and your rheumatologist move to a biologic, ask if xeljanz is right for you. xeljanz is a small pill for adults with moderate to severe ra for whom methotrexate did not work well. xeljanz can reduce joint pain and swelling in as little as two weeks, and help stop further joint damage. xeljanz can lower your ability to fight infections, including tuberculosis. serious, sometimes fatal i
. >> belly dancer with cystic fibrosis is giving us a lesson on never giving up.suffers from cystic fibrosis and last time he performed was since years ago. he had to dance with a long tube attached to an oxygen tank. after a double lung transplant in 2013 life is not easy. the doctors say he had 30 days left to live and three had new mondayia eight times and last time in april and he was in a coma and now five months later he is feeling healthy enough to get on stage and dance. he is set...
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89
Oct 20, 2015
10/15
by
KTVU
tv
eye 89
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ten-year-old has spent more time than he would like at children's hospital in oakland because of his cystic fibrosis>> sometimes it feels a little weird. when i look out the window, i wish myself outside. outside. >>reporter: what makes living here easier is a program called childlife. it helps make patiences and -- patients and families more comfortable. >> we provide therapeutic information to patients. so similar to what a social worker might provide. >>reporter: on this day, there was a prehalloween party. >> our staff had helped the kids put on costumes. >> childlife has the need for funding from everything from occasional party to everyday staffing. some young san francisco professionals are having a fund- raiser dance -- fund-raising dance party of their own. >> in is fund-raising goals for everyone who wants to go. >> seacrest is a leader of the dance party effort after spending much of her life at children's hospital oakland with her sister, amanda. >> she had heart disease. she was born with a defective heart, and she was three days old, and she was admitted into children's oakland. they d
ten-year-old has spent more time than he would like at children's hospital in oakland because of his cystic fibrosis>> sometimes it feels a little weird. when i look out the window, i wish myself outside. outside. >>reporter: what makes living here easier is a program called childlife. it helps make patiences and -- patients and families more comfortable. >> we provide therapeutic information to patients. so similar to what a social worker might provide. >>reporter: on...
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323
Oct 8, 2015
10/15
by
KNTV
tv
eye 323
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but her cystic fibrosis means week long hospital stays to clear the 27-year-old's lungs. a new drug called orkbami offers hope and a sticker shock. >> i think they put a price on any life. >> at a price tag of a quarter million dollars, she is begging her insurance company to pay for it but blames the drug maker. >> i think orkbami being priced so high isn't long-term justifiable. >> orkambi and another drug treat the disease but neither is a cure. kald kalydeco costs more than $300,000 a year. >> are these breakthrough drugs? >> yes. absolutely. >> reporter: this doctor has treated patients for almost three decades. patients who raise millions who help fund the drugs' development. >> i knew it would be an expensive drug. i thought it would be $100,000 a year, not $300,000 a year. >> for the rest of the patient's lives. both trugs are made by vortex a boston-based pharmaceutical firm. while developing a drug is a risky business and can cost more than a billion dollars, vertex did not respond to our request to explain the prices. >> is this price gouging? >> i have used th
but her cystic fibrosis means week long hospital stays to clear the 27-year-old's lungs. a new drug called orkbami offers hope and a sticker shock. >> i think they put a price on any life. >> at a price tag of a quarter million dollars, she is begging her insurance company to pay for it but blames the drug maker. >> i think orkbami being priced so high isn't long-term justifiable. >> orkambi and another drug treat the disease but neither is a cure. kald kalydeco costs...
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Oct 21, 2015
10/15
by
KTVU
tv
eye 53
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again offer 35 tests that tell users whether they carry genetic mutations for rare diseases like cystic fibrosis the fda had banned the test due to concerns about their accuracy and interpretation by customers. reasoning the genetic health tests earlier this year. >>> 4:47 is the time. let's check in with sal for a look at traffic. you're looking at the bay bridge last night. >> and -- last time. >> and construction. that construction on the bay bridge. that is wait was. it's gone. >> that's good. >> and bryan, you, too. >> construction is kind of annoying this time of the morning. >> it sure can be. >> thank you very much, guys. right now, traffic is actually moving along very nicely. let's go outside and take a look pat what we have. you can see the traffic here on the bay bridge approaches nice. there are no major problems getting on to the bridge. it also looks good once you are on that span. we can look at san francisco. northbound 101 looks good from the 280 split. up the 280 interchange up the 80 split. if you are driving on the 280 extension, it also looks good. northbound 280 getting to
again offer 35 tests that tell users whether they carry genetic mutations for rare diseases like cystic fibrosis the fda had banned the test due to concerns about their accuracy and interpretation by customers. reasoning the genetic health tests earlier this year. >>> 4:47 is the time. let's check in with sal for a look at traffic. you're looking at the bay bridge last night. >> and -- last time. >> and construction. that construction on the bay bridge. that is wait was....
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31
Oct 16, 2015
10/15
by
KCCI
tv
eye 31
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cystic fibrosis is another one. great story, jon. thanks so much for that. still ahead tonight, neither gender nor age prevented her from conquering one of the army's toughest challenges. and love and marriage in an elevator when the cbs evening news continues.urance company, go long. how you plan is up to you. take healthcare. make sure you're covered for more than what just medicare pays... consider an aarp medicare supplement insurance plan insured by unitedhealthcare insurance company... the only medicare supplement plans that carry the aarp name, trust year after year. always have a plan. plan well. enjoy life. go long. alright team, we've got an f150, needs a systems check and tires. doc, i need you on point for this one. already got the latest updates direct from ford engineering. 'cause ford dealers get that intel first. treads, what do you got? lookin' a little bald, sir. with all due respect. got the perfect fit- ready to roll. wheels up, flaps down, let's fly. ford parts. ford tools. ford techs. when your ford needs service, there's one elite team
cystic fibrosis is another one. great story, jon. thanks so much for that. still ahead tonight, neither gender nor age prevented her from conquering one of the army's toughest challenges. and love and marriage in an elevator when the cbs evening news continues.urance company, go long. how you plan is up to you. take healthcare. make sure you're covered for more than what just medicare pays... consider an aarp medicare supplement insurance plan insured by unitedhealthcare insurance company......
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40
Oct 16, 2015
10/15
by
KMEG
tv
eye 40
favorite 0
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cystic fibrosis is another one. great story, jon. thanks so much for that. still ahead tonight, neither gender nor age prevented her from conquering one of the army's toughest challenges. and love and marriage in an elevator when the cbs evening news alright team, we've got an f150, needs a systems check and tires. doc, i need you on point for this one. already got the latest updates direct from ford engineering. 'cause ford dealers get that intel first. treads, what do you got? lookin' a little bald, sir. with all due respect. got the perfect fit- ready to roll. wheels up, flaps down, let's fly. ford parts. ford tools. ford techs. when your ford needs service, there's one elite team. these are the specialists. at ford. hi, tom. how's the college visit? does it make the short list? yeah, i'm afraid so. it's okay. this is what we've been planning for. knowing our clients personally is why edward jones is the big company that doesn't act that way. the holidays bring many challenges to the feet. by day, they must stay warm. but by night, beautiful, smoother and
cystic fibrosis is another one. great story, jon. thanks so much for that. still ahead tonight, neither gender nor age prevented her from conquering one of the army's toughest challenges. and love and marriage in an elevator when the cbs evening news alright team, we've got an f150, needs a systems check and tires. doc, i need you on point for this one. already got the latest updates direct from ford engineering. 'cause ford dealers get that intel first. treads, what do you got? lookin' a...
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68
Oct 13, 2015
10/15
by
MSNBCW
tv
eye 68
favorite 0
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well, in fact today if you're born with cystic fibrosis, there are medicines that have been discoveredr years and more on the way that ultimately will allow someone with cystic fibrosis to live as long as everybody else. our grandchildren being born today, if we get this right, will live way beyond 100 years. it creates huge challenges but it is also an opportunity for us to transform our society in a way that will allow more and more people to live lives of purpose and meaning. but here's the problem. the one thing i know is this -- we can't stick with the status quo. we can't leave this up to the lobbyists and to the politicians in washington, d.c. because the system we have today, obamacare and its most current form, was written by the special interests for the special interests. let's look at what had been promised and what we got instead. president obama -- >> governor of florida, jeb bush, outlining his plan to repeal and replace obamacare as we know it. the former florida governor in manchester, new hampshire. chris janising was just telling us the basic tenets of his place. >>>
well, in fact today if you're born with cystic fibrosis, there are medicines that have been discoveredr years and more on the way that ultimately will allow someone with cystic fibrosis to live as long as everybody else. our grandchildren being born today, if we get this right, will live way beyond 100 years. it creates huge challenges but it is also an opportunity for us to transform our society in a way that will allow more and more people to live lives of purpose and meaning. but here's the...
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Oct 29, 2015
10/15
by
BLOOMBERG
tv
eye 47
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and vertex pharmaceuticals also beating estimates with its cystic fibrosis drug.ones is reporting that cvs filidor.inated says itys -- valeant does not own filidor. it is trading lower pay care has been such a busy area as of late, mostly to the downside. a lot of analysts were telling -- live into earnings weevision, limit -- that would see stocks recover and come out with numbers that big estimates. as you are saying, do so many hedge funds get bruised and battered. they own a lot of large positions in health-care in the got really hurt. let's stay on health care. i want to bring in david wilson. price-earnings ratios, are we to conclude that it is cheap? if you buy what the chief strategist at maryland says. she ran the numbers in terms of those industry groups. -- strategist at merrill lynch says. she ran the numbers in terms of those industry groups. care, you go back to the beginning of the year when it was 10% more expensive. it was just last month with the declines that we saw that it turned cheaper. as much as 5% cheaper than the s&p 500 index on that bas
and vertex pharmaceuticals also beating estimates with its cystic fibrosis drug.ones is reporting that cvs filidor.inated says itys -- valeant does not own filidor. it is trading lower pay care has been such a busy area as of late, mostly to the downside. a lot of analysts were telling -- live into earnings weevision, limit -- that would see stocks recover and come out with numbers that big estimates. as you are saying, do so many hedge funds get bruised and battered. they own a lot of large...
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57
Oct 13, 2015
10/15
by
CSPAN
tv
eye 57
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with, if you are born cystic fibrosis, there are medicines that have been discovered in the last 3-4rs, and more on the way, that will ultimately allow someone with cystic fibrosis to live as long as everybody else here are grandchildren, being born today, if we get this right, will live way beyond 100 years. it creates challenges, but it is also an opportunity to transform our society for people to purpose andf meaning. we cannot stick with the status quo. we cannot leave this up to the lobbyists and politicians in washington, d.c. the system we have today, obamacare, in its current form, was written by the special interests for the special interests. let's look at what was promised and what we got instead. president obama promised that premiums would fall for families. it is estimated, by the president's own team, that they will increase over the next 10 years. right here, in new hampshire, based on the rate filings that have taken place, next year premiums are expected to 20%-50%.anywhere from president obama promised universal coverage. afteron projections, even ofnding on trilli
with, if you are born cystic fibrosis, there are medicines that have been discovered in the last 3-4rs, and more on the way, that will ultimately allow someone with cystic fibrosis to live as long as everybody else here are grandchildren, being born today, if we get this right, will live way beyond 100 years. it creates challenges, but it is also an opportunity to transform our society for people to purpose andf meaning. we cannot stick with the status quo. we cannot leave this up to the...
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138
Oct 29, 2015
10/15
by
CNBC
tv
eye 138
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>> people that have cystic fibrosis, there is no amount of money you wouldn't pay. pfizer wants to cut tax trits bring back money to do what? you want to know why you can't afford drugs. let's say the market is irrational to some degree. >> we are waiting for john boehner to give his farewell speech on the hill. we are going to take a peek at that. in the meantime, we have this. do you want to listen to this, guy sns. >>. >> i just want to let you know it is happening. >>> in the meanwhile, a "b" from amgen. ver win williams beats even though they are cut. >> if anyone was on the ppg quarter, they talked about a difficult paint season. home depot said it is great paint season. ppg did a fabulous job. there was a difficult paint season and they still did well. sherwin-williams came down a lat off of that. this is a stock that has been a fantastic bull market and housing stock. remember, it is housing and it is autos. by the way, the auto paint for all the high-end is ppg. they have their own stores. sherwin, this is a very good number for the u.s. economy. housing. >
>> people that have cystic fibrosis, there is no amount of money you wouldn't pay. pfizer wants to cut tax trits bring back money to do what? you want to know why you can't afford drugs. let's say the market is irrational to some degree. >> we are waiting for john boehner to give his farewell speech on the hill. we are going to take a peek at that. in the meantime, we have this. do you want to listen to this, guy sns. >>. >> i just want to let you know it is happening....
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91
Oct 20, 2015
10/15
by
KTVU
tv
eye 91
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. >> reporter: the 10-year-old has spent more time here because of his cystic fibrosis. >> sometimest feels a little bit weird. because when i look out the window, i see myself outside and stuff. >> reporter: a part of living here for weeks is easier, called child life. the program that would help make patients and their families more comfortable. the appropriate play to patients. so similar to what they might provide. on this day there is a pre- halloween party. it is just a great day for everybody. >> they have a need for funding to their staffing. some young professionals are having a fundraising dance party of their own. >> and there is fundraising goals for everyone that wants to go. >> he is a leader of their dance party effort after spending much of their life in oakland with their sister amanda. >> reporter: and she had heart disease. she was born with defective heart. and she was two days old, admitted to oakland. and that they think that she wasn't going to survive. >> reporter: amanda seacrest now doing well with a perspective on this patient. she wants to work as a specia
. >> reporter: the 10-year-old has spent more time here because of his cystic fibrosis. >> sometimest feels a little bit weird. because when i look out the window, i see myself outside and stuff. >> reporter: a part of living here for weeks is easier, called child life. the program that would help make patients and their families more comfortable. the appropriate play to patients. so similar to what they might provide. on this day there is a pre- halloween party. it is just a...
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109
Oct 29, 2015
10/15
by
WABC
tv
eye 109
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when i first met katie, she suffers from cystic fibrosis and was waiting for a set of lungs, second double lung transplant. people all over the world rallied. these images held her hang on. a month later a match. we were there as katie walked out of the hospital with her husband joey, a new york city firefighter. >> at this point last year i thought i wouldn't be here any longer. i was kind of preparing death. now i am living life probably healthier and more actively than i have in years. >> reporter: traveling, hanging with friends and family, she even did this year's tunnel to towers 5k and is back on the job in the neonatal intensive care unit at flushing hospital. >> i am fully back to life, back to working out, back to being a wife, cleaning house, doing normal things. >> reporter: like rooting for the mets chloe is on board. >> hopefully they can get the love and support they want and being a fan i wanted to do whatever i could. >> reporter: kemberly richardson, channel 7 eyewitness news. >> just so great to see how great she is doing. so much support for her. >> that is what is more
when i first met katie, she suffers from cystic fibrosis and was waiting for a set of lungs, second double lung transplant. people all over the world rallied. these images held her hang on. a month later a match. we were there as katie walked out of the hospital with her husband joey, a new york city firefighter. >> at this point last year i thought i wouldn't be here any longer. i was kind of preparing death. now i am living life probably healthier and more actively than i have in years....
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90
Oct 21, 2015
10/15
by
KGO
tv
eye 90
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35saliva based test kits that show whether you carry gene mutations for rare diseases including cystic fibrosisan 250 other risk reports that were included in the original product. the f.d.a. forced the company off the market two years ago because of concerns of their accuracy and interpretation. >> happening tonight, a great community building where a pizza party thrown by the police department thanking the people would live on castle hill drive for helping a police officer in need. investigator say residents did not hesitated to help the officer involved with a violent struggle with an assault suspect. the actions likely saved the officer from grave injury with a pizza party tonight on was sill hill road. >> what will the weather be like? >> starting in the 70s and fall and the mid-60s. it will be cooler but everyone will be warm and fuzzy and it sounds great. from the east bay hills camera, the camera is shaking and we have been watching the wind and the hills but it is not near fire danger. the air is more dry. our temperatures from yesterday to today only los gatos and danville could see a
35saliva based test kits that show whether you carry gene mutations for rare diseases including cystic fibrosisan 250 other risk reports that were included in the original product. the f.d.a. forced the company off the market two years ago because of concerns of their accuracy and interpretation. >> happening tonight, a great community building where a pizza party thrown by the police department thanking the people would live on castle hill drive for helping a police officer in need....
70
70
Oct 14, 2015
10/15
by
CSPAN
tv
eye 70
favorite 0
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i have a personal deep and long-standing interest in cystic fibrosis as my own laboratory , found the cause of that back in 1989 when i was at the university of michigan. and this is a very exciting time for that disorder. because after all those years figuring out how that small glitch in the genome was capable of causing this disease, we now know a great deal about the protein that's normally made and why it doesn't do what it's supposed to in cystic fibrosis. just in the last few months we have now seen the second drug strategy approved by the f.d.a. for the treatment of more than half of those. based upon a small molecue, a drug that is based upon molecular understanding of the disease. very exciting times indeed. autoimmune diseases -- lupus, rheumatoid arthritis, i want to mention one very exciting public-private partnership, the accelerating medicine's partnership which several have been working to bring together. 10 drug companies within nih work together, and one of the targets is in fact lupus and rheumatoid arthritis trying to figure out -- again i showed that picture about
i have a personal deep and long-standing interest in cystic fibrosis as my own laboratory , found the cause of that back in 1989 when i was at the university of michigan. and this is a very exciting time for that disorder. because after all those years figuring out how that small glitch in the genome was capable of causing this disease, we now know a great deal about the protein that's normally made and why it doesn't do what it's supposed to in cystic fibrosis. just in the last few months we...
84
84
Oct 21, 2015
10/15
by
KTVU
tv
eye 84
favorite 0
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offer 35 tests that will tell users whether they carry genetic mutations for rare diseases like cystic fibrosisest due to concerns about their accuracy and interpretation by customers. however, fda officials approve returning the genetic health test earlier this year. that came after 23 and me submitted studies showing that users can understand the test results without the aide of a doctor. >>> well, new this morning, the vatican is denying the report in an italian newspaper that pope francis has a small curable brain tumor. the report in the national daily says the 78-year-old pope traveled to a clinic in italy in recent months to see a japanese brain cancer specialist. the newspaper said the doctor determined that the small dark spot on the pope's brain could be crewed without surgery. the vatican spoke person called the publication completely unfounded reports seriously irresponsible and not worthy of attention. the newspaper says it stands by its story. >>> 5:47. sal, how does the traffic look? >> i'm sorry. i was paying attention to some breaking news we got guys. just finding out about a
offer 35 tests that will tell users whether they carry genetic mutations for rare diseases like cystic fibrosisest due to concerns about their accuracy and interpretation by customers. however, fda officials approve returning the genetic health test earlier this year. that came after 23 and me submitted studies showing that users can understand the test results without the aide of a doctor. >>> well, new this morning, the vatican is denying the report in an italian newspaper that pope...
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offer 35 tests that will tell users whether they carry genetic mutations for rare diseases like cystic fibrosis had banned the test due to concerns about their accuracy and interpretation by customers. however, fda officials approved returning the genetic health tests earlier this year. that came after 23 and me submitted studies showing that users can understand the test results without the help of a doctor. >>> well, seattle sea hawks player crashed his corvette on his way home from practice. now, there were reports that fred jackson and teammate lynch were draglacing before the accident, but police in washington stay that -- say that is not true. investigators say jackson was driving too fast and lost control. this happened about 5:00 last night. just outside the team's training facility. by the way, the seahawks and the niners face off levi stadium tomorrow night. >>> and the seahawks just lifted the suspension of fullback. he was arrested on suspicion of vehicular assault and hit and run after a car crash last week. prosecutors say they are waiting for the results of an investigation befor
offer 35 tests that will tell users whether they carry genetic mutations for rare diseases like cystic fibrosis had banned the test due to concerns about their accuracy and interpretation by customers. however, fda officials approved returning the genetic health tests earlier this year. that came after 23 and me submitted studies showing that users can understand the test results without the help of a doctor. >>> well, seattle sea hawks player crashed his corvette on his way home from...
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diseases like cystic fibrosis, sickel cell anemia or others. if you have just one mutation you're a carrier without active disease. but if you marry and have children with another carrier, that child has a one in four chance of developing a potentially lethal disease. >> it's one of the most common reasons why people have genetic testing. >> reporter: aside from the scientific validation the company went through for those also redesign and tested their entire website to show the fda the genetic information could be explained to and understood by the average person. the additional genetic results "23andme" provides includes wellness, ancestry and even physical traits. >> could be fun things like unibrandy color and wellness reports for things like lactose intolerance and caffeine sensitivity. >> reporter: it's a simple procedure. the kit is a tube you fill with saliva, closing the top releases a preservative, screw on the cap, place in a bag and mail it back to the company. results take 4 to 6 weeks. the much bigger goal of the company is to cor
diseases like cystic fibrosis, sickel cell anemia or others. if you have just one mutation you're a carrier without active disease. but if you marry and have children with another carrier, that child has a one in four chance of developing a potentially lethal disease. >> it's one of the most common reasons why people have genetic testing. >> reporter: aside from the scientific validation the company went through for those also redesign and tested their entire website to show the fda...
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health care information so we are returning back all of the carrier information, things like cystic fibrosis reports and other things you can potentially pass down to children, as well as traits and wellness. >> you previously were restricted from these new teststs things like cancer o o heart disease. what are other things you can't test for now because of the fda restrictions? >> some of the genetic risk factors, breast cancer, different types of diseases you might get and drug response. but those are all things that we are working with the fda to see can we eventually bring that back to the consumer. >> their concern was what? people wouldn't know how to read the information? if you got back previously and you did this yoursrsf you have 60% likelihood of getting breast cancer they were worried people couldn't process that information themselves? >> they want u.s. to do the standard testing and comprehensive work. we have seen with our new designed reports we have over 90% user comprehension. any education level, whether they got this as a gift or bought it themselves, can get it and we ar
health care information so we are returning back all of the carrier information, things like cystic fibrosis reports and other things you can potentially pass down to children, as well as traits and wellness. >> you previously were restricted from these new teststs things like cancer o o heart disease. what are other things you can't test for now because of the fda restrictions? >> some of the genetic risk factors, breast cancer, different types of diseases you might get and drug...
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Oct 22, 2015
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complete genetic code telling them if they're at risk for certain genetic diseases, alzheimer's cystic fibrosis. this was taken off the market in 2013 by the fda because there were concerns whether people could handle this, whether it would cause anxiety and whether the science backed it up. now they've relaunching, they worked with the fda, they're launching 35 tests. this is a company founded by sergey brin of google's ex-wife. it's coming back now on the market and will be available. it's a little bit more expensive. it costs about $200 to do these 35 tests as opposed to $99 when it was first launched, but it's something already a million people have used this company. the question is when you get the results, what do you really do with that information? >> right. >> would you do this. >> i wouldn't. >> you would not. >> i would not. >> why not? >> because i think there's certain -- we don't know how accurate these genetic tests are in terms of what your risk is, and it sort of puts your fear in your mind. we should all be doing things to prevent halz heymer's, heart decide, die leitz -- har
complete genetic code telling them if they're at risk for certain genetic diseases, alzheimer's cystic fibrosis. this was taken off the market in 2013 by the fda because there were concerns whether people could handle this, whether it would cause anxiety and whether the science backed it up. now they've relaunching, they worked with the fda, they're launching 35 tests. this is a company founded by sergey brin of google's ex-wife. it's coming back now on the market and will be available. it's a...
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Oct 28, 2015
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sales for its new cystic fibrosis drug came in higher than expected.an see the stock is higher, by 5.7% in after hours. if we turn our attention to online delivery player yelp, which has been dealing with heightened competition, it reported an earnings loss for the quarter of 11 cents, missing street expectations. revenue slightly better, $144 million versus the estimate of 141 million. the stock up by 2.5% after hours. and if we take a look at paypal, it's first earnings report since spinning off. 31 cents adjusted versus the expectation of 29 cents. you can see that seems to be what investors are focused on. the stock tanking after hours, down 6%. bill? >> all right, seema. thanks very much. let's focus on paypal. bring in kevin o'leary from o'leary financial group for reaction. once upon a time, paypal was the only game in town pretty much in that category. but now there's plenty of competition, and that's what worries you about paypal. >> i have to disclose. i'm in partnership with paypal on many shark tank companies. honey fund, for example, proce
sales for its new cystic fibrosis drug came in higher than expected.an see the stock is higher, by 5.7% in after hours. if we turn our attention to online delivery player yelp, which has been dealing with heightened competition, it reported an earnings loss for the quarter of 11 cents, missing street expectations. revenue slightly better, $144 million versus the estimate of 141 million. the stock up by 2.5% after hours. and if we take a look at paypal, it's first earnings report since spinning...