what harp diseases are included in see the analysis program in the report by daria ganieva. a wonderful family and a wonderful girl was born on september 24 last year diana and unfortunately, she was diagnosed with a disease that is the spinal muscular trophy of the first. like, we ourselves still didn’t really understand the whole situation and we were offered treatment. no more court fees on the internet and a fatal loss of time . medicines for sma are the most expensive in the world and children with this terrible diagnosis will now receive from birth at the expense of the state, of course. why before the treatment report, so the less the consequences of the development of the disease, the less the disability will be on january 1, 2023, newborns in russia began to be examined in the maternity hospital under an expanded program for 36 rare genetic diseases, the heel was sent to a genetic consultation. that is, here we already see there are , uh, children who fall into the group. or, uh, it's okay, all these pathologies in apparently healthy babies can show up in a few days