so these are teaching us something for the rest of the population. >> sreenivasan: david frohnmayer,about when you are starting out and you find out this devastating news after you get over the grief, what sort of a support network exists? how did you decide to model your foundation and get into it and make sure that you weren't kind of replicating the work that others had done? >> well actually a good question. there wasn't anything else for fanconi anemia. and a researcher at rockefeller university suggested that lynn and i form a support group. so this is pre days. we wrote letters, recruited families and through the slow process, it ballooned into faster and faster networking that got together. we had enormous help from dr. nancy wexler and the huntington's disease people who formed hereditary disease organization maybe ten years before ours and were very generous with this, shared ideas, told us the importance of getting scientific expertise of the top quality, they talked about bringing peer review in, having cross disciplinary scientists because all these diseases are complica