when stephan was first told that he had the degenerative disease it was a dreadful shock. it helped with. that first i really couldn't get my head around it it was only at night that it really hit me i used to wake up weeping and then i slowly came to the realisation what it would mean for the future that i would have to give up many things. that ten years ago stephan was fitted with what's often called a brain pacemaker here in southern germany the procedure has helped him remain so active if it switched off his symptoms reappear. the brain pacemaker works by sending electrical impulses that block signals from particular parts of the brain deep brain stimulation is now being used to treat patients it earlier and earlier stages of the disease. it's been shown that the life quality of young patients with pacemakers in particular is significantly better than that of young patients who normally receive medication. ato clacked is also set to benefit from the technology in four weeks' time he'll be fitted with a brain pacemaker he hopes that it will make his life a lot easier.

i'm jenna degen her, this is bloomberg.g's survey traders and analysts see china stepping in to support the renminbi once it approaches 6.7 u.s. dollars. that's about 1% below current levels. we talk more about this survey. we are expecting more weakening before we see any kind of intervention. rise, andlar may there is concerns of trade war. we are expecting to see more weakness. they have a history of aroundning when it nears the level. if it breaks the level, traders will usually take it as a signal that it is allowing more weakness. while the central bank has a lot of tools. one is tightening liquidity. that makes it more expensive for people to bet bearish. heavy-handed one would be the direct currency marketing intervention. selling the dollar in chinese currency. yvonne: everyone has been talking about is it like 2015 again, given how steep the losses are? what is jeffrey c on the risk reversals -- seeing on the risk reversals? >> they engage the bearishness in the market. if risk reversals rise, they usually mean th

but set to first word news with jenna degen hard. -- jenna degen hard.be avoided before trade tariffs are announced. they've been gauging the chances for high-level talks the next two weeks. the bill is not looking likely with the administration still in favor of penalizing beijing. the bank of england held a policy at its latest meeting and not all members of the committee agreed. dissentedof nine voting for an immediate hike. another surprise, policymakers voted to change the guidance on when they will reduce on a date of 80's -- monetary dating -- monetary easing. orderent trump signed an to end family separation at the mexican border. according to mrs. trump, she wanted to go on her own. federal agencies are reuniting families, and house will vote on an immigration bill that seeks a permanent solution to separation. >> we have to house these miners and house them safely. themly, we have to house and we should be taking good care of them, and we should return them back to home. that is what we have to do. >> hong kong remains the most expensive in the

it is a brain degenerative disease.here's others like it, i could go through seven different variations. but, the longer people are living because we have eliminated tuberculosis, fewer people die from cancer early because we've had antismoking campaigns, when you get that genetic makeup up to the d dna machine up to 85 or 90 years of age, we have not advance the brain science as fast as some of the other sciences. we have big needs. the number of families that will be dealing with someone in their family who has a degenerative brain disease, but still living with a healthy body, we don't have housing for them, we don't have services for them, we don't have the workers for them. a big problem. >> speakers throughout the session put together a committee led by others who did invest more heavily at the state level at least a mental health. they're playing catch-up. but there is a little bit of good news. we need more. >> we also need to be very sober as republicans and democrats as to whether you can use low tax incentive

most people with the generative -- degenerative disease died within 2-5 years. the coverage continues. we are live at the stadium tonight. deborah. >> reporter: dwight clark is remembered on and off the field , inheellis community, he is a hero. raising awareness in the public way he faced the disease. >> it started in my husband's right-hand. he was a coach and teacher on this campus. you want to run and hide. >> reporter: charlie never had the longtime football coach lived and coached for decades en if he be obsessed as he became debilitated. dwight clark was one of them. he had his own diagnosis last year. >> it was hard for him to admit the loss because it is embarrassing, an embarrassing illness for an athlete who can't take care of himself. >> reporter: he was thanking his fans for his support while acknowledging what he was going through. >> hello my 49ers. >> reporter: he went the disease with the same courage and grace that made him loved by so . >> people are shocked by how fast it moved and how devastating it is. >> reporter: the als association says

nick boynton bothd suffe from long time degenerative brain damage due to repeated concussions ao blowsead. it alleges the league encouraged player to play throughinjury. they are failing on behalf of all former players sfering from brain injury and it's time for the nhl to acknowledge the serious consequences of head trauma. >> such a big problem throughout so many sports. >>> baby news be new zealand's leader introduced her bundle of joy. she shares this photo on instagram. the new mom is the second head of state iodn history to give birth in office. p hetner clark guyford and many mom in naive nam the daughter. neve pch it's winter in new zealand np and dad will take over when shek gets b to work. the u.s. hasn't opinion able to elect a female leader butther countries > problem. >> winners from the last night b.e.t. awards. ...giving you that head start in the morning. new at walmart and walmart.com could light up the room? aveeno® positively radiant sheer daily moisturizer. lightweight hydration for positively radiant skin that lasts. aveeno®. naturally beautiful results®. my dbut no

we talked with an expert about this neurological, degenerative disease that clark and elsie was battling in a public announcement 15 months ago. >> for my husband, it started in his right hand work he was teaching on this campus. you want to run and hide.>> reporter: charlie never hid from als. the longtime football coach lived and coached for decades, even as he became debilitated. with his wife by his side, and many 49er players were his friends. dwight clark was onof them. >> in the beginning it was hard for him to admit the loss. it is an embarrassing illness for these athletes, who all of a sudden, cannot feed themselves. >> reporter: there was clark on the jumbotron last fall, thinking his fans for their support. while acknowledging what he was going through. hello my 49er friends.>> reporter: he approached an incurable disease with the grace that made him so loved by so many.>> people are shocked and stunned by how fast it moves and how devastating it is.>> reporter: the als association spends millions of dollars raised by ice bucket challenges in recent years. it is being spent o

.>> reporter: she has a rare disease that is a degenerative condition that has kept her in a wheelchair since she was 12. >> if i am always depressed it is not going to help anyone. especially not myself. >> she has always loved art, but cannot always do it. >> it is exciting and cool to be able to do these things i do not get a chance to do at home. >> reporter: thanks to make a wish they are on a four-day art exploration road trip two different studios and galleries from berkeley to st. louis. >> as it she grew she would get a little bit weaker and it is hard on the heart. seeing them lose strength. she has such a great attitude. about everything. it has made it a little easier for us as parents. >> as a two were it was time for areata to get her hands dirty. she was turning clay into what will become able. >> looking good. >> this is the first time in the studio has been on a young person's make a wish list. >> it is a special event for us to be able to show what we do. someone who wants to learn about this for a while. >> reporter: most people this disease get progressively worse, b

into an old friend i haven't seen for years but catching up on news is sobering he suffers from a degenerative nerve disease that limits his mobility was to me if i actually show and really could help. people through these simply meaning i take a lot of medication but by the media i mean to hear.

what's announces pigmentosa is the time given to a group of degenerative eye diseases that affects up to one in three thousand people and with no cure currently available it can result in a slow and complete loss of vision i'm dr janet abdomen and amsterdam the netherlands to see how an incredible new implant is giving people who are completely blind the chance to see again. fred van run it's one of seventy people around the world who are being fitted with the august two retinal prosthesis system a device that is giving back some sight to people suffering from certain types of blindness in the past i have seen i played football on the field kind of thinking i can walk i can bicycle it was not in one time but very very slowly by the time you were thirty four you could not see yes i don't know. your wife tanya have you ever seen her face yes. when i was thirty four and she was twenty nine i'm not fifty eight years old in my mind she is still twenty nine years old i could be the i thought you played out how do you feel being only the third person in the country to have this. i'm not here

he suffers from a degenerative nerve disease that limits his mobility was to me if i should show a. liquid on. the people to prove to me simply meaning i take a lot of medication but by the media i mean to him ok to die of that machine because the disease. has seen no hope for a cure was that what he. was. seeing my old friend gets me to thinking trying to stop or slow the body's degeneration is a matter of urgency even essential for some people scientific research and technical aids offer a great deal of hope for those with severe physical disabilities. i resolved to carry on with my research and pursue the third craft to immortality that of the soul. is seen the to me what hannity stories that promise we can live on in the body both have real purpose while the soul bridges this gap the so says maybe you're not just this body that has to die maybe or something more to you something that is by its nature indestructible by its nature immortal. so it's still a very popular view and yet despite that we're finding new ways of telling us out of the story using the science and technology

they're all degenerative diseases and i think if we can unlock the mystery to one of these diseases,pefully we'll have a solution for all of them. >> christin ayers, kpix5. t... >> dennis o'donnell will have much more on dwight clark coming up later in sports. house. >>> tonight president trump pulled the philadelphia eagles' invitation to the white house. the team expected to be there tomorrow in honor of this year's super bowl victory, but the president called off the visit because of the national anthem dispute. tonight the president tweeted, "stay in the locker room for the playing of our national anthem is as disrespectful to our country as kneeling. sorry." this response from philadelphia's mayor. "our players represent the diversity of our nation, a nation where we are free to express our opinions. disinviting them only proves the president is not a true patriot." >>> more legal trouble tonight for a former trump campaign chairman, paul manafort is accused of trying to tamper with witnesses in his tax and money laundering case. prosecutors working for special counsel robert mu

their family that is inherited by their kids, so things like huntington's disease, which is a degenerative of a disease where we have known about the mutation that causes it for several decades but there's currently no way to treat these patients. and the possibility of actually removing it from the germ line of a family affected by this i think is actually profound. profound, and it has raised a lot of ethical concerns about playing god. yeah. you are changing something forever. yeah. you are relaxed about that? i would not say i am relaxed about it, and i think that the potential has to be weighed versus the sort of potential of... ..the way that this technology could be used to help people has to be weighed against risk, and there always has to be a sort of a risk benefit calculation that is made. so i do think that for certain kinds of diseases, at some point in the future — we are not there today for sure — but this could be useful for the kind of application that removes a genetic disease from the family. i think where it gets tricky is figuring out all the sort of associated factors

. >> we have a big lead number of families has a degenerative brain disease that still living d in ahealthy body we have housing, but very often this puts togetherce the committee that did invest more heavily at the state level for mental health that was catch-up but a little bit of good news. >> but we need more. >> and to be very sober of republicans and the mcgrath if you could use those low taxax incentives so the nature that we have to spend on. >> and so for the record for the ncaa one of the actual riders. [laughter] but the question goes to how you see the gentrification but had you double that? good but in san antonio we have not because we have grown so rapidly in the neighborhood where it would occur but if you look to the north of the downtown and what is growing people are pushed out into the area for example if you go easte the federal building the russian in the sailors and be careful of but beyond that the very attentive to the people who lived there literally for generations the one that hasn't benefited is the jail serving as a haven for hope so i live there and we

"newshour," the challenge of taking away guns from the elderlydeho suffer from ntia and other degenerativeeases. that's monday on the "pbs newshour." that's all for this edition ofwe "pbs newshour end." i'm hari sreenivasan. thanks for watching. have a good night. captioning sponsored by wnet captioned by media access group at wgbh acce.wgbh.org >> pbs newshour weekend is made possible by: bernard and irene schwartz. the cheryl and philip milstein family. sue and edgar wachenheim iii. dr. p. roy vagelos and diana t. vagelos. the j.p.ndation. the anderson family fund. rosalind p. walter. barbara hope zuckerberg. corporate funding is provided by mutual of america-- designing customized individual gr anp retirement products. that's why we're your retirement company. additional support has been provided by: and by the corporation for public broadcasting, and by contributions to your pbs li station from viewer you. thank you. be more. be more. pbs. ed: in japan, miso factories are like microbreweries in america. travel with me, ed kenney; and chef alan wong fi as we search for thst ingredients

temp two has neuromuscular myopathy, it is a degenerative condition that will not improve.ys when i didn't want to get out of bed, ididn‘t when i didn't want to get out of bed, i didn't really want to be around people. iappreciate bed, i didn't really want to be around people. i appreciate that classification is a really, really difficult thing and it is difficult to get right and i appreciate that there has to be a system in place so that everyone is on a level playing field, but there needs to be i guess policies in place, whether it is from the governing bodies that support the athletes. the ipc has said it is constantly striving to improve the experience for athletes through experiences like this. ollie knight faces reclassification again. these things make you stronger and i'm determined to come back, whether it is i'm determined to come back, whether itiss i'm determined to come back, whether it is s nine. i have realised that things can be taken away from you in a heartbeat so enjoy it while it is there, take opportunities while you can. i will give it everything for

i'm jenna degen heart. this is bloomberg. ♪ yvonne: here is sophie.ower with losses deepening in tokyo. the nikkei 225 is set for a second day of declines, lowered i energy and telco -- lowered by energy and telco players. is -- theyhe cost be kospi is cents for a third day of losses. the korean won has had a lousy quarter. the kiwi dollar is extending declines for a fourth session. the nzx 50 is edging for fresh all-time high. world turn toon bank of tunisia with their policy decision. as trump has reiterated plans to unveil a new health care plan in two weeks, let's check in on pharma stocks, highlighting estella's pharma, down for a second day. yvonne: it is starting to look like 2015 again. market watchers are sounding alarm on investor panic. i think everyone is quick to say this is like 2015 all over it again. but there are a lot of similarities and differences as well. let's talk about the parallels. >> what is obvious is the scale of declines. paying attention to the currency devaluation because it has weekend to a similar extent that it did i

doctors at great 0rmond street hospital said there was no cure or treatment for his rare degenerativeve felt that our voices were actually being listened to. they say they asked for mediation months before he died, but they didn‘t get any. the hospital claims it did offer it in the final few days of his life. the family want legal changes. charlie‘s law would include better access to independent medical mediators. it was so, so hard for us to go through what we went through. we don‘t want it to happen to anyone else again. we're trying to prevent these cases from ever going to court. it was completely and utterly daunting and terrifying for us, of course. we were totally out of our depth. these doctors and nurses work for the evelina children‘s hospital in london. they‘re being trained in how to avoid serious disagreements with patients and their families. if that doesn‘t work, mediators can defuse tension. mediation is always surprising in the way that it can sometimes break through what had seemed to be really intractable conflicts, because they are there to listen to all sides of a

ales is a neuro degenerative disease.mind or senses but it does affect the ability to speak, swallow and in the end, hard to breathe. lose which wedemeyer is the chairman of the lou gehrig society. her husband received several emotional support from 49ers before dwight clark before clark found out he had the same incurable disease. her husband and dwight shared are philosophy of making every day count. >> cherish the day. do not lose sight of all the blessings. and that's what dwight was all about. >> reporter: dwight clark made his last public appearance when the 49ers hosted dwight clark day. he made the speech from the suite, thanking his fans and the teammates who came back for that special event. he will always be remembered for the catch but also for being a gentleman. >> such a nice man. >>> let's go to sal castaneda now: it's taking about 80 minutes in drive -- a big bay bridge toll plaza backup because of an earlier stall vehicle. this is one of the last big weeks before things start tailing off before summer vac

jordan has duchesne muscular dystrophy, a genetic degenerative disease with an average life expectancy of around 25 years. >> to see this finally come to the finish line was just this huge, huge accomplishment. >> reporter: jordan and his mother, laura mcclin have been at the forefront of the movement to pass the right to try bill, which allows the terminally ill who have exhausted all other options to gain access to drugs not fully approved yet by the fda. we first met the mcclin family in 2015, when right to try was signed into law in their home state of indiana by then governor mike pence. >> he has been very, very supportive all along the way. >> reporter: under fda regulations new drugs must go through three phases of clinical trials before becoming commercially available, which often takes years. right to try now allows doctors to administer drugs that have cleared just the first phase of a trial. >> we're going to be saving tremendous numbers of lives. >> reporter: but opponents of right to try argue so-called compassionate use treatments already allow patients to try experiment

. >> like the progressive degenerative disease called chronic traumatic encephalopathy, or cte. it's caused by concussions or consistent blows to the head. >> hopefully we can intervene in the late stage of -- >> dean petkanis is the ceo of cannalife, the company that bought patent rights. like jeffrey guy and the scientists at hhs, he believes this plant has so much potential, potential to treat the untreatable, diseases that may all be related in the brain, alzheimer's, cte, and ptsd. >> let's study it and let's get the data. >> veteran shawn kiernan, stay-at-home mom amelia taylor. they are the new faces of ptsd. successful, smart, but suffering and unwilling to accept the fact that so little can be done to combat this invisible disease. >> where we see promising treatments we should pursue those. really what it should be about is compassionate use for the individual. >> compassion he hopes can get sisley and doblin's ptsd research back on track. little does he realize that support is about to come from an unlikely alliance. >> i dare any senator to meet these patients here -

who are you interacting with, how do friends behave, degenerative in a protest, did you default on a loan? there are different parts of the country at this point have different sets of criteria. >> so your citizenship rating. >> exactly, your social credit score. then you are either sort of penalized. for example, if you default on the loan and you have paid about then youan take an airplane ride or take a ride on high-speed rail. if you purchased it in the protest and then these other things, and you can't send your children to some of the expensive private schools. there are a whole range of things they are experimenting with but it's in many systems at this point. they can combine that with the surveillance system, voice and facial recognition that's becoming much more aggressive and intrusive right now. they of 176 millionas. the want of more than 600 million cameras by 2020. the want to listen in a peoples conversations and no who a person speaking with. it's pretty extorted. when you look at it that we can understand this is in many ways despite it. as a very strong government,

. >> reporter: ariana has a degenerative december that kept her in a wheelchair since she was -- diseaset kept her in a wheelchair since she was 12 years old. >> if i'm depressed it's not going to help anyone, especially not my help. >> reporter: she says she always loved art but can't always do it. >> it's exciting and cool to be able to look at all these things that i don't really get a chance to at home. >> reporter: so thanks to make- a-wish, she and her parents and sister are on a four-day art exploration road trip to different studios and galleries from berkeley to san luis >> as she grew, she would weake hard on the heart, right, to -- to see them lose strength. she has such a great attitude about everything that that's made it a little easier for us as parents. >> reporter: after a tour of the potter studio, it was time for ariana to get her hands dirty. she was turning clay into what will soon become a bowl. >> looking good. >> reporter: this is the first time the studio has been on a young person's make-a-wish list. >> it's a special event for us to be able to show what we do h

nejra: a degen -- a double-digit drop for nexans.company said it in 2018rop -- a drop due to weak sales in land-based high-voltage projects. this is a french cable maker. you can see quite a precipitous dross -- drop. on the upside, norwegian air shuttle. the company is in takeover discussions. that, up some 9%. cobham trading higher as well. it has been upgraded to overweight at morgan stanley. management has stabilized performance and improved risk/reward. trading at its highest since march. matt: the big media story we have been watching. 21st century fox will decide wednesday on how to receive the bid swords in attainment assets. they wl discuss whether the u.s. cable proposal is superior to disney's offer. there are also fighting for sky in the u.k.. the bigger story is the at&t story in terms of vertical integration. let's kick it all around and get a sense of what this means. advising on deals including comcast. good morning. >> good morning. guy: let's talk about where this all started. the catalyst for the story. that was a

their love letters are really in a victoriane way, and she got a fatal degenerative kidney disease andd. it is one of the most touching moments in his life. world war i was just beginning in august of 1914 and there is a scene where he is at her bedside, and with one hand holding her hand and in the other drafting a note to the belligerence and the war offering his services as a mediator. the wargerents in afering his services asa mediator. that is quite a lot to handle in one moment. his second wife, edith galt was a widow who was 16 years younger than he was. she lived in washington and they met in the spring of 1916, not quite a year after the first mrs. wilson died, and they got married at the end of 1915. brian: one of the things that interest me in your book was mary peck hobert. you say you found 200 letters. patricia: i did not found them, they had been collected by others over the years. brian: who was she? patricia: she was a divorcee. when he first met her, she was in the process of a separation from a guy who owned textile mills in new england. they met in bermuda, where sh

and degenerative diseases can access speech-generating devices whether at home or in a health facility. his leadership with the gleason institute and the foundation together with a.l.s. research has represented us improve the lives of countless individuals who've been impacted by this disease. we could not be more proud of him and that is why we're here today to make sure that this legislation gives that appropriate recognition. steve gleason said, quote, our potential is not contained in our physical bodies but, rather, in our mind and in our spirit, end quote. i so appreciate all he has done to help fight this disease and to be such a leader in communicating the needs and the progress that we all can make. i thank the president, and i yield the floor. the presiding officer: the senator from utah. mr. lee: madam president, i ask unanimous consent that the following amendments be called up en bloc. amendment 2289, 2295, 2230, 22323, 2236, 2240, 2241, 2464, 2486, 2509, 2540, 2550, 2589, 2588, 2600, 2611, 2611, 2623, 2633, 2634, 2653, 2654, 2686, 269 # #, 2695, 2721, 2723, 2729, 2737, 27

i live with orfor chronic pain due to arthritis and degenerative disc disease and multiple spinal surgeriesnow with hugh. andy murray says he's still not sure if he'll be competing at this year's wimbledon, after making his return from nearly a year out injured yesterday. he was beaten by nick kyrgios in three sets in the opening round at queen's. captain eoin morgan praised england's intensity and the one day side wrapped up a series win over australia in record—breaking fashion with a new highest international score of 481. hosts russia are on the brink of becoming the first side into the last 16 at the world cup thanks to their second win of the tournament last night. they beat egypt 3—1 to make it two wins from two. and i think i see a unicorn... england were splashing around in their recovery session yesterday before a day off today to see family and friends, theirfirst time off since arriving in russia. that's all the sport for now. we will have more after 11am. 2,000 children have been separated from their parents at the us's border with mexico in little over a month. anger is growin

mayor mike degen of detroit expressed that a first-class the system is critical to economic growth. of course no discussion of infrastructure would be complete without talking about funding or lack thereof. mayor of little rock arkansas said we are spending $172 million on drainage improvement over the next 10 years. this is not enough. we have more than $1 billion worth of needs. we know from our analysis that little rock is not alone. the mayor said cities nationwide has turned to the federal government asking for a true partner. turning to budget and management. 49% of speeches significantly cover budget -- budget issues. the cutter include subtopics like budgets and property taxes, operational excellence as well as digging into inter- government relation issues. generally speaking, mayors expressed competent in the outlook and improvements in services. they have concerns about factors that threaten to undermine their fiscal health. intergovernmental relations was a hot subtopic across mayors. specifically for males and the -- mayors in the west. intergovernmental issues ranged f