dr. francis collins, director of the national institutes of health, dr.net woodcock, the director of fda center for drug evaluation and research, dr. jeff shuren, director of fda's center for devices and radiological health, dr. james woolliscroft, go blue is right. dr. joe gray, associate director for translational research at the knight cancer institute, oregon health and science university. dr. andrew von eschenbach, president of the samaritan health initiative and chairman of the project fda at the manhattan institute. margaret anderson, executive director of faster cures. dr. peter uber, dr. ellengv sig, sarah despres, director of government at the pew charitable trust and jonathan leff, partner at deerfield management and chairman of the deerfield institute. thanks for being with us today. now, in order to get most out of everyone, i'm going to coop my remarks very -- keep my remarks very short. i'd like to ask diana degette, my co-chair on this effort, to say a few words, and then we're going to introduce eric cantor, the majority leader. i will sa

dr. francis collins, dr. janet wooddock, dr. jeff shurner, dr. james whilsce. dr. jill gray. dr. andrew veneschenbauk. marri margaret anderson, dr. peter uber, dr. ellen seagull. >> sara dupray, jonathan lef partner and chairman of the deer field institute. thanks for being with us today. to get the most out of everyone i'd like to keep my remashes short. i would like to get my cochair on this effort to say a few words. we will introduce eric from canter the majority leader. in essence we have the number two republican and number two democrat on board in terms of whach we're trying to do to show bipartisan forward marchs. >> with that diana. >> it's still fred. >> thank you. i'm happy to partner with you in this important effort. the 21 century cures initiative is an exciting effort that has the potential to impact bio medical research. the united states has been a leader for decades where we can work together to improve health and medicine or we can round behind. they we bring experts to the table to dig into how we can more effectively and efficiently tackle some of the complex

dr. stanley collins. he was the head of the bermuda station and he had a lot of success in catching german spies. here they are again. older picture from '44. i am not showing you this, not to read everything, but to show you the fbi was on the rampage against nazi spies and they cellbrated their successes. the british wanted to keep everything secret and didn't want the stuff to get in the newspaper because people know about the methods and the british want to turn their agents into double agents and you don't want the enemy to know you have them. we were much more straightforward and hoover wanted to send them right to jail. so the last one here has secret ink letter here. and it is just -- you will have to read it. the red says troops are coming to new york next week. so that is the secret writing that uncovered these chilling messages. here is one of the nazi spies to give you an example of someone that dent caught because of the bermuda traffic. this is one of his mugshots on the left. he used pyrami

dr. collins, and you and i have discussed this.and i think that the roller coaster has been unfortunate. and the roller coaster should be confined to disney world or coney island. however, from my perspective i'd be perfectly willing to discuss in a cordial fashion how we move forward on budgets long term, and perhaps we couldn't be as generous as would be optimal. but, of course, we need attarrer in in the senate -- a partner in the senate that passes a budget, and i hope that we have a partner moving forward, and we can have an honest discussion as to how best to fund nih appropriately in the national interest, and perhaps one of the ideas that has come out of this discussion this afternoon, and dr. burgess raised it, is somehow reauthorizing the nih. and i think that that is a very interesting idea. and i'm all for naming a building for dr. burgess. [laughter] now, we have a discussion about china. and i think it's informative, but i don't think it's dispositive. and to the panel in general, as i understand the system in china,

dr. collins downstairs, he is excited because he was one of the discoverers of our cf gene. we live in a unique age. more and more therapies are going to be developed towards specific mutations. that's why we have to have patient registries. when they felt they had a drug that could work on one mutation we were able to tell them in the united states we have 1100 of those patients within five minutes after they asked us because of a patient registry because we have a documented history of the disease. i think that's why it is important to have personalized medicine therapies and the options for that. but we have to be able to document the patients that can participate in the trials. >> it is very powerful. in 1965 you didn't know we were going to know about the sequence of the human genome 30 years later. >> but today we cover -- we have 26,000 patients whose data is provided to our patient registry every single year. >> let me ask you a question. i'm going to run out of time quickly. the world is different now. and you have people that are, perhaps, lucky enough to enter int

dr. francis collins, said this in a statement.ply mourn the death of all 298 victims, and we acknowledge with great sorrow that the loss of knowledge carried by those who died on the plane will have a devastating impact on h.i.v. research." as for the aids conference in australia, dr. anthony fouchi, the national institutes of health, is expected to arrive at that conference this evening. the conference president said the event will continue because that's what the victims would have wanted. wendy and pat. >> thanks. >>> a statement regarding malaysian flight 70 ---ure team coverage continues with miguel in malaysia with more on how some families have gathered twice in the same airport to learn about tragedy on the same airline. our coverage -- >> reporter: this is a terminal where family members arrived yesterday looking for any information about their loved ones aboard flight mh-17. it was an erie scene here. so many family members looking for information about their loved ones. it was four months ago in this same terminal, this

dr. francis collins, dr. janet wooddock, dr. jeff shurner, dr. james whilsce. dr. jill gray. dr. andrew veneschenbauk. marri margaret anderson, dr. peter uber, dr. ellen seagull. >> sara dupray, jonathan lef partner and chairman of the deer field institute. thanks for being with us today. to get the most out of everyone i'd like to keep my remashes short. i would like to get my cochair on this effort to say a few words.

dr. collins downstairs and he's excited, he was one of the discoverers of our cfg.are going to be directed to specific communications. that's one of the reasons that we have to have these kinds of patient registries so we can start to identify those communications. windber text felt they had a drug that might work on a certain mutation, small but became a, we were able to tell them in the united states we have 1100 of those patients. within five minutes after the ask this. because of a patient registry because we have it documented history of the disease. i think that's why it's very important to personalized medicine therapies and the options for that but it's also, we have to be up to document the patient's back and participate in the trial. >> it is there a powerful and, of course, you reference the 1965 registry. in 19 cities but you did know that we're going to know about the sequence of the human genome 30 years later. >> well, but we been able to document. today we currently cover 26,000 patients whose dated is provided to our patient registry every single ye

dr. frances collins, director of n.i.h., testified before my subcommittee about the ambitious investments of america'srrivals. he said this, and i quote, "china has made policy changes to invest heavily in the life sciences industry, moving them closer to becoming a world leader in science and technology by the end of the decade. over the past decade, singapore has also pursued a prominent role as a global leader in life sciences. for example, their pharmaceutical industry r&d funding was five times greater than that of the u.s. in 2009 on the share of g.d.p. basis." end quote. madam president, let me say just one more thing about china's ambitious plans. china has identified biotechnology as one of the seven key strategic and emerging pillar industries. they have pledged to invest $308.5 billion in biotechnology over the next five years. $308.5 billion in the next five years in china. by contrast, the u.s. investment over the same period of time will be roughly $160 billion, just about half of what china is doing. it is a shock and disturbing enact if current trends -- fact that if curre

dr. stern. senator collins? you, this or chairman. would like to thank all for witnesses for truly exceptional testimony. wasutecht, your statement so moving and riveting. you mentioned during your comments that when you were strapped to that structure, that was your fifth documented concussion. what happened after the previous four? ? didyou treated each time you try to conceal that you had such as mr. non, wednesday mentioned? tell us what happened. >> shore. a number of answers -- have a ever concealed i have had a concussion? yes, i have. there is tremendous pressure in sports to continue to play. not only do you not want to let down your teammates, who at the time your family -- who have become your family. you do not want to let down your coaches who have worked countless hours to put together a successful plan, and an injury can remove you from that plan. so, yes, i was put in a position where, i wanted to play. and that pressure kept me from being honest. i regret that. worse --ussion got each concussion got worse. as the doct

collins with more. >> reporter: so was the doctor's office a crime scene? well that is where he was busted. the charge, precipitation fraud. pain specialty dr. sam oraee, charged by police with two counts of precipitation fraud. the doctor arrested at his office where police say he was handing out scripts for painkillers without doing the proper exams. >> so basically people are just going in and getting these medications, without really even justifying a reason to need them. >> no exam. >> no exam really no anything. >> prince william county police have really been cracking down on the illegal use of precipitation painkillers. last november it was operation blue dragon. they began rounding up people using those illegally precipitation drugs. last march it was operation dragon slayer who began arresting people distributing the illegal painkillers. as a result of that they got a tip about dr. oraee and took a close look at him. dr. oraee is out on a $5,000 money wobond. i tried to talk to him but had no success. >> no he can't. goodbye. >> were you here when he was arrested. >> reporter: on the neurological center of northern virginia's websi

collins. it's a beautiful facility, and we are able to handle these diseases. but, you know, these issues are not resolving themselves, and so while dra strong record at the cdc, i know you have answers and recommendations, and you're acting aggressively to make sure it doesn't happen again. i appreciate that. but what we all need to know is what the plan is to change the culture at the cdc. we can't legislation -- we can do a lot but we can't legislation a culture change. it has to come from within the agency. i'm also glad to have goa and afis witnesses here because in retrospect your warnings were p p pressure yent and should have been taken more seriously. they are being taken seriously right now in the only by the agency but by the people on the committee. >> recognize mr. upton for five minutes. >> this is a very serious hearing for sure. two years ago after allegations about problems in cdc's building 18, the home to the world's deadliest agents and pathogens, this committee investigated whether the cdc was complying with federal safety requirements in the operation of its main lab facilities. in response to our concerns, cdc

dr. collins, we will start with you but then we are really going to use a discussion. feel free to use the mics. let's go at it. >> thank you will mr. chairman. it's amazing to sit around this round table. i figured when i walked in i've never seen anything like this but when mr. waxman said he's never seep anything like this, i know this is a unique and special moments to you mr. upton and you mr. gett for convening us in what i hope would be a series of conversations. to try to answer your question, certainly what desperately need to get a study predictable project ri ory of support. we've not seen that. we have lost over 20% of our purchasing power. it has put the system under tremendous stress. it has caused the loss of jobs. maybe most importantly and most worriso worrisome. if we want to see innovation continue at the level that it could need to have confidence that there is going to be a panel for them that their dreams are going to be possible to pursue. we're not lacking their ideas. this is a unique moment in terms of search potential. it is also perhaps an o

collins. it's a beautiful facility and were able to handle these diseases. but these issues are not resolving themselves, and so dr. frieden, you've got a strong record at cdc. i know you've got answers and recommendations and your acting aggressively to make sure this doesn't happen again. i appreciate that. we all appreciate that. but what we all need to know is what the plan is to change the culture at the cdc. we cannot legislate -- we can do a lot but we can't legislate a culture change. it has to come from within the agency. i'm also glad to have gao and aphis witnesses here because in retrospect your warnings should have been taken more strictly. i can assure you, these warnings are being taken very socially right now, not just by the agency but by the people here on this panel. thank you very much. >> recognize the chairman of the full committee, mr. upton for five minutes. >> this is a very serious hearing for sure. two years ago after allegations about problems in cdc building 18, the home to the world's deadliest agents and pathogens, this committee investigated by the cdc was complying with federal saf