dr. rosenthal told the binghams sierra would die soon. >> it was horrible. when we say it was a nightmare, it was the worst time of our life. >> reporter: then it was the very nick of time, a donor heart became available. the operation a success. >> she's done beautifully every since. >> reporter: a happy ending apparently, best left to memory. you figured you were past this. >> we did it. >> everybody needs their big challenge, we were done. >> reporter: they got themselves tested all of them. no signs of any further heart disease. so they went on with their lives. then one day a couple months ago the middle child, 8-year-old lindsey began complaining of a sympt stomachache. >> we were sitting there reading. >> please, have a normal chest x-ray. >> reporter: it was not normal. >> an enlarged heart. >> i lost it. i couldn't keep my composure. i remember sobbing. >> reporter: so now lindsey came here to the packard children's hospital with a rapidly failing heart. then as the whole family gathered around here, the little one gage, just three years old. >> no, i couldn't believe it. this is ridiculous. >> reporter: it was a heart block, a dangerous electrical prob