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Mar 22, 2024
03/24
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BBCNEWS
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especially for duchenne, it is a muscle — especially for duchenne, it is a muscle wasting condition soyou lose _ muscles get weaker over time. when you lose the — muscles get weaker over time. when you lose the ability to walk you have _ you lose the ability to walk you have a — you lose the ability to walk you have a wheelchair, that's in place, so that's— have a wheelchair, that's in place, so that's there to support you, but one thing — so that's there to support you, but one thing that is really lacking is the loss— one thing that is really lacking is the loss of— one thing that is really lacking is the loss of armed function, that is something — the loss of armed function, that is something that has not really been looked _ something that has not really been looked at — something that has not really been looked at. this is where this suit comes— looked at. this is where this suit comes in — looked at. this is where this suit comes in it _ looked at. this is where this suit comes in. it helps with armed function, _ comes in. it helps with armed function, it helps lift your arm up a
especially for duchenne, it is a muscle — especially for duchenne, it is a muscle wasting condition soyou lose _ muscles get weaker over time. when you lose the — muscles get weaker over time. when you lose the ability to walk you have _ you lose the ability to walk you have a — you lose the ability to walk you have a wheelchair, that's in place, so that's— have a wheelchair, that's in place, so that's there to support you, but one thing — so that's there to support you, but one thing...
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Mar 24, 2024
03/24
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BBCNEWS
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eye 28
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. - but it didn't happen- because medical research happens slowly, and duchenne is a tricky disease to him testing the suit, it does feel. a bit bittersweet. as the disease has gotten worse, i think every- incremental gain that- you can get, as his mum i'm so grateful for. i see that this is going to be incremental, yet profound l in terms of allowing himi to keep doing the things that he loves. hopefully, it could be even cooler and look like a gold ring or something. what do you think about this from a fashion perspective? oh, yeah, definitely, it can't cramp my style. when you're in the business of designing assistive products, you're often in the business of designing products that people don't want to have to use. and that's a tricky scenario, right? that's a tricky situation. hayley has spent the last 20 years designing assistive technologies. if you've got a condition that's holding you back from being able to do the things that you love, that's something that we want to overcome with technology. the team are looking to integrate artificial intelligence with the suit, so it will
. - but it didn't happen- because medical research happens slowly, and duchenne is a tricky disease to him testing the suit, it does feel. a bit bittersweet. as the disease has gotten worse, i think every- incremental gain that- you can get, as his mum i'm so grateful for. i see that this is going to be incremental, yet profound l in terms of allowing himi to keep doing the things that he loves. hopefully, it could be even cooler and look like a gold ring or something. what do you think about...
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Mar 5, 2024
03/24
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BBCNEWS
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duchenne muscular dystrophy is a rare, life limiting, muscle wasting condition. experience of playing music different from every other front man? i would say a lot of factors come into this because access is one of the main things. i have to contact venues directly, so when we do our headline gig at the independent in sunderland, for example, we will have to use an airfoot pump to get up onto the stage. are you looking forward to it? very much so, yeah. there are not many electric wheelchair front men like me. for more stories like this| from across the uk, head to the bbc news website. you're live with bbc news. among 15 states that are voting on this super tuesday california is certainly the biggest prize with 169 delegates up for grabs. and in many ways it is a focal point for one of the big issues that will decide this election, and that is the us—mexico border — according to gallup immigration now the top concern for voters. and as texas tightens its border response, migrants are choosing alternative routes, many of them going further west. which means calif
duchenne muscular dystrophy is a rare, life limiting, muscle wasting condition. experience of playing music different from every other front man? i would say a lot of factors come into this because access is one of the main things. i have to contact venues directly, so when we do our headline gig at the independent in sunderland, for example, we will have to use an airfoot pump to get up onto the stage. are you looking forward to it? very much so, yeah. there are not many electric wheelchair...
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Mar 6, 2024
03/24
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BBCNEWS
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i'm alex james, the frontman of the uk's first duchenne muscular dystrophy—fronted rock band, and duchenneience of playing music different from every other frontman? i'd say a lot of factors come into this cos obviously access is one of the main things. i have to contact venues directly, so when we do our headline gig at the independent in sunderland, for example, we're going to have to use an eight—foot ramp to get up on the stage. you're looking forward to it? very much, yeah. music. there isn't many electric wheelchair frontmen like me. for more stories from across the uk, head to the bbc news website. welcome back. joe biden spent the past weekend at camp david huddled with his closest advisers as they made the finishing touched to his state of the union speech he will deliver to one of his biggest audiences tomorrow night. and the pressure is on. not only will they be focused on what he has to say, butjust as importantly how he performs. the new york times reports that he travelled to camp david with william ury�*s book possible: how we survive (and thrive) in an age of conflict. they
i'm alex james, the frontman of the uk's first duchenne muscular dystrophy—fronted rock band, and duchenneience of playing music different from every other frontman? i'd say a lot of factors come into this cos obviously access is one of the main things. i have to contact venues directly, so when we do our headline gig at the independent in sunderland, for example, we're going to have to use an eight—foot ramp to get up on the stage. you're looking forward to it? very much, yeah. music....
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Mar 5, 2024
03/24
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i'm alex james, the front man of the uk's first duchenne muscular dystrophy fronted rock band. muscle wasting condition. in terms of being a front man and having _ in terms of being a front man and having this — in terms of being a front man and having this disability, how does that make your experience of playing music— that make your experience of playing music different from every other front_ music different from every other front man? | music different from every other front man?— front man? i would say a lot of factors come — front man? i would say a lot of factors come into _ front man? i would say a lot of factors come into this - front man? i would say a lot of factors come into this because | factors come into this because access is one of the main things. i have to contact venues directly, so when we do our headline gig at the independent in sunderland, for example, we will have to use an telling —— use an air foot example, we will have to use an telling —— use an airfoot pump to get up onto the stage. pare telling -- use an air foot pump to get up onto the stage.— g
i'm alex james, the front man of the uk's first duchenne muscular dystrophy fronted rock band. muscle wasting condition. in terms of being a front man and having _ in terms of being a front man and having this — in terms of being a front man and having this disability, how does that make your experience of playing music— that make your experience of playing music different from every other front_ music different from every other front man? | music different from every other front man?—...
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57
Mar 11, 2024
03/24
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CSPAN
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after the civil war, when the nation amended its close duchenne -- amended its constitution, they added that said congress shall enforce this amendment by appropriate legislation. ]j late 1860's. what happened along that journey is instructive to today. the first civil rights act that was passed, the civil rights act of 1866, was twice vetoed by then president johnson. it became law because the congress overrode his veto. the second civil rights act was passed in 1875. that act interestingly looks a lot like the 1964 act. we got to teach a little bitthak down by the united states supreme court. e preme court's character, meaning who sat on the court, changed as a result of the 1876 election. so here was the supremeourt, less than 20 years after the civil war, declaring a piece of ed to enforce the constitution as unconstitutional. from that point forward■f, 1883, this very same court in another if you will judicial coup, in 1896, declared separate but equal the law of the land. and banished black people to a second-class status for some 70 years. i'm connecting dots because as things go
after the civil war, when the nation amended its close duchenne -- amended its constitution, they added that said congress shall enforce this amendment by appropriate legislation. ]j late 1860's. what happened along that journey is instructive to today. the first civil rights act that was passed, the civil rights act of 1866, was twice vetoed by then president johnson. it became law because the congress overrode his veto. the second civil rights act was passed in 1875. that act interestingly...
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Mar 23, 2024
03/24
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BBCNEWS
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eye 70
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eli has duchenne muscular dystrophy, a progressive condition that gradually weakens his muscles.longer. and i can do this part... the smart suit aims to help with that arm function. it helps to lift your arms up and basicallyjust help you achieve some of the normal everyday things, such as brushing teeth, such as drinking water, such as eating food. that's why i use this ring. and that's a pretty good position that helps support my arm. the exoskeleton is being developed by his mum's charity, which she started after eli was diagnosed. is that as high as you want? ok, i'll press a and b together. if i'm playing every single night or if i want to hold the microphone at any point, the smart suit would really help with that. with grant funding from british council and arts council england, eli has been given the chance to cross the atlantic and perform at america's mega music, film and tech festival. i just can't wait. how are you feeling about it? you know, it'sjust life, really. in here, we put on stormzy in 2016 and we put on ezra collective, amy winehouse's first us shows. crispi
eli has duchenne muscular dystrophy, a progressive condition that gradually weakens his muscles.longer. and i can do this part... the smart suit aims to help with that arm function. it helps to lift your arms up and basicallyjust help you achieve some of the normal everyday things, such as brushing teeth, such as drinking water, such as eating food. that's why i use this ring. and that's a pretty good position that helps support my arm. the exoskeleton is being developed by his mum's charity,...