they just tell me she as eczema. i'm going, you crew like that from eczema. >> reporter: for five years they had no answers. until they met dr. mineli lu at children's hospital, los angeles. >> in savannah's case we can see that she has developed red welts on her hand as well as her fingers. >> reporter: and this along with her young age, made dr. lu suspect savannah had arythropoietic porphyria. it was featured on "house." >> look at her arm. >> reporter: but could this be what was affecting savannah? >> the challenge is body how rare the condition is as well as the subtlety sometimes. there may be some red patches, maybe areas that look sunburned, that can lead to a long lag in diagnosis. >> reporter: after years of no answers, a simple blood test finally gave them one. >> what did the doctors finally tell you? >> that she had -- say it. >> erythropoirtic porypheria. >> reporter: it would mean a life sentence confined to a world of shadows. >> how do you explain this to your friends? >> that i'm allergic to the sun

i have patient was eczema that are it is so bad that they just can't stand it. there are treatments available. the skinnies such an amazingly important organ in the body and we ignore. we abuse witt sun and everything. >> what is eczema. >> and, right down in the skin, making it very dry, very itchy, very irritating, with these red blotches. in adults, sometimes, this get misdiagnosed for a cutaneous t cell lymphoma. so when someone comes in with this kind of a rash, this kind of skin condition one as a intern i want to make sure that the diagnosis correct and it doesn't respond to simple things then i send them to a dermatologist. >> with the treatment internal or is it topical. >> well, maybe both. >> photo therapy, immune medications that decrease immune response, and thought to have an immune auto immune component to it. so, this young man and his parents, there is hope, you just need to get the right treatments. >> poor little guy. >> yes. >> he just doesn't want to live. >> doctor mike, thank you for that. >> 7:35 now. >> we are calling this wedding insura

most of them had eczema and high allergies.e taking kids at risk, and think found much less problems. >> and it's devastating to some families, they always have to walk around the epi-pens in their pockets. be ready for that kind of reaction rmts it's very scary to live that way. if someone becomes short of breath, take them to the e.r. >> or gi problems in a kid, kid vomiting or get a rash, take them to the er. >> happy fourth. >> thank you. >> thanks for watching, everyone. >>> fox news alert. the returns are coming in on the referendum in greece and early results showing the country has rejected the bailout deal. the country's finance minister saying the greek people have said quote no more to continued as tearty. now europe and markets around the world are bracing for any fallout. >>> welcome to america's news headquarters. right now the greek interior ministry is projecting that no has won by 61% of the vote. however what happens next is far from simple.

no, it's just eczema. it's not even that bad. that's all i hear all the time. >> slaughter did not want to discuss why she has no eyebrows or lashes. but it's led to unwanted nicknames. >> they call me giraffe, call me tear dak tell, they call me all types of [ bleep ]. i know on the outside i don't look like this. i do makeup, i do hair, i do lashes, i do everything. so i don't look the same. >> you know she ain't got no eyebrows, no eyelashes. i'm not trying to be funny or put her down or anything but this is a jail. people in jail talk. >> they call her avatar. they call her alien. i mean, it's just cruel. >> avatar. that's her new nickname. people are actually calling her that on the block now. >> i cry a lot. because i never heard, i never understood -- i'm always my-understood. i'm always singled out. i'm always the outcast. and it hurts. >> she's like scaly a little bit. and she's tall and slinky, you know? >> ginger lucas is serving nine months after pleading guilty to selling crack cocaine to an undercover officer. she's

these include dry skin and eczema, fatigue and moodiness, achy joints, heart problems, frequent coldst in these essential fats, as well. >> as a doctor, i've seen many of these conditions improve when patients get the right dose of high-quality omega-3's. but to be honest, with the wrong omega-3's, many of my patients can't tolerate the fish burps or swallowing so many pills. >> the fish burps are related to purity. and i want to challenge your viewers to do a simple test on the fish oil they have and they're taking now in terms of the freezer demonstration that i'm going to describe to you. what i'd like you to do is to take your capsule that you're taking now, place it in the freezer overnight. the next morning, look at it. what you'll discover is that if it's not pure and it probably contains unhealthy fats, it'll be cloudy or white. it may even contain toxins. >> wow. that's pretty surprising. and if your pill turns cloudy or white when you freeze it, you're wasting your money and your health. >> as a physician, i get sent supplements all of the time. >> me, too. [ chuckles ] >> w

a lot of people in our station says they use coconut oil on their kin and it helps with eczema. >> you use olive oil. especially elbows and knees and hands. >> my aunts do that. they say they smell like a salad all the time. >> and you have it in the kitchen cabinet. >> exfoliation helps us look younger. go to your pantry, get some sugar, cut a lemon, squeeze it in, stir it up and you can see it forms a paste and it helps to exfoliate that dead layer of skin. lemon has alpha high -- hydroxy acid in it. here's another one. cooked rice, a little bit of agave, lemon again, so this is a little bit milder. stir it up, put it on and again, you have a very nice exfoliator. if you use the rice and it's still warm, it feels terrific. also helps to hydrate. >> is agave a sugar? >> it's a sugar substitute. you could even use honey also to hydrate. and honey is a great antibacterial agent. >>> for your lips take coffee, kosher salt and a moisturizer, any moisturizer of your choice, mix it together, and this is a great lip exfoliator. doesn't it smell wonderful. >> i'm so hungry right now i'm going

for years doctors thought it was eczema but savannah's mother believed it was something else.rter: but she was right. doctors at children's hospital los angeles diagnosed savannah with erythr ochlto or epp resulting in extreme pain within minutes of sun exposure. >> what was important was the combination of the age, the classic reports of burning and itching in the sun. some pink rough skin over the knuckles and her fingers. >> reporter: how do you explain this to your friends. >> i have to be in the dark. dark is my home. >> reporter: there's no cure. but a new study released just this week boasts the promising new drug that would allow people with epp to live a more normal life without the pain induced from sun exposure. for "good morning america," abbie boudreau santa clarita, california. >> so sad when you hear her say dark is my life. i hope that new drug works. all right, thank you, abbie, for that story. >>> burning up the "heat index," a counterintuitive response to donald trump. and it comes from this woman, the actress and latina activist america ferrera trying to tu