. >> ehlers danloss is a connective ticonnect ive tissue disorder. it allows tissue to stretch and not come back. >> it looks like fabric. i didn't realize thachs her skin. >> this condition causes her skin to be super soft and very fragile as well. >> in high school i just tried to cover it up. i didn't want anyone to ask me questions about it. i didn't want to talk about it. >> how did she go from trying to hide it to now being a model? doing everything she can to sort ofhow it off. >> she says she's not going to allow this condition to take ownership of herlife. she's going to accept the fact that she is unique in her own ways. and she is going to appreciate her skin the way it is. >> the uniqueness and the rarity and the way the lines form and just the art that is made from just the patterns that are there, it's amazing. it makes me so sad that i looked at it as just this ugly thing at one point in time. >> is this something that will continue to worsen? is it something that can threaten her life? >> it doesn't appear as though it's life threaten