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Oct 10, 2016
10/16
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reminder about why we come to work every day to bring new medicine to all people with cystic fibrosis. the company did not address the assertions of price gouging. one mom on a mission to help her son and save others. >> let them know someone is paying attention, one mom is paying attention and she wants her little boy and everyone with cystic fibrosis to have access to these innovations in the united states. reporter: >> he is one of the cutest boys i have ever seen. heather:new at seconds:00, it was a wedding to remember thanks to the mother of the groom getting lost in the woods. it was a sunday wedding and a few hours before the nuptials the groom's mom wandered off. state troopers troopers were called. four hours later he was found here as the bride and groom tieing the knot. never sweat the small stuff. >> never sweat the small stuff. >> this was the weekend and yesterday was not a great day at all. for those who had the opportunity a beautiful day. look at the rain that fell yesterday from over three inches to two in inch in worcester and it was the wettest in worcester. look a
reminder about why we come to work every day to bring new medicine to all people with cystic fibrosis. the company did not address the assertions of price gouging. one mom on a mission to help her son and save others. >> let them know someone is paying attention, one mom is paying attention and she wants her little boy and everyone with cystic fibrosis to have access to these innovations in the united states. reporter: >> he is one of the cutest boys i have ever seen. heather:new at...
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Oct 20, 2016
10/16
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KNTV
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the student never showed any symptoms of cystic fibrosis. the school acted out of concern for other students who had cystic fibrosis. >> sort of feel like i was in a way betrayed. >> specifically, the student's case revolves around the school's disclosure of medical information and is being heard at an appeals court after being tossed out of district court. the district refused to comment citing privacy. >>> when a child misbehaves at school, whose job is it to handled the punishment? the aclu finds that california teachers are increasingly using police officers to discipline children instead of educate irs. the study comes in the wake of our year-long investigative series that exposed serious concerns over how bay area schools use campus officers. we showed you how students can be left with criminal records before they even hit puberty for what some describe as childish misbehavior. the aclu study found police often arrest students without a warrant and question them without a parent or guardian present. as our investigative unit first repo
the student never showed any symptoms of cystic fibrosis. the school acted out of concern for other students who had cystic fibrosis. >> sort of feel like i was in a way betrayed. >> specifically, the student's case revolves around the school's disclosure of medical information and is being heard at an appeals court after being tossed out of district court. the district refused to comment citing privacy. >>> when a child misbehaves at school, whose job is it to handled the...
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Oct 19, 2016
10/16
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CNBC
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but if you combine our four diseases, cystic fibrosis, scler oh derma. matteau my oh sitis, and lastly lupus, you actually reach a population size in the western world of close to 800,000 patients. >> okay. >> remember, these are all rare or orphan diseases, and that's really different. >> the last thing i want to ask about is synthetic can bin oid. is there a way to be able to think about one of your drugs as perhaps being anti-pain someday? >> so the drug actually belongs to a class of synthetic molecules that are traditionally anal geezics. this drug is very odd. it's an anomaly. it behaves the opposite. it has no effect on pain whatever. it failed as an experimental pain drug, but what it does do very uniquely is have the ability to interact with the immune system and take very heightened inflammation back to normal. that's exciting because no one's ever managed to do that. this is a completely novel mechanism of action. >> you've done some financings, but right now currently you suspect you have enough cash to be able to get through your trials. >>
but if you combine our four diseases, cystic fibrosis, scler oh derma. matteau my oh sitis, and lastly lupus, you actually reach a population size in the western world of close to 800,000 patients. >> okay. >> remember, these are all rare or orphan diseases, and that's really different. >> the last thing i want to ask about is synthetic can bin oid. is there a way to be able to think about one of your drugs as perhaps being anti-pain someday? >> so the drug actually...
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Oct 26, 2016
10/16
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. >> every year hundreds of people are diagnosed, suffer and die from rare diseases like cystic fibrosis. will the prime minister joined me in welcoming the review which is strongly supported by patient demands and implemented speedily >> i do welcome the publication of review as this is important for patients to get quicker access to drugs and treatment. i think the united kingdom has a leading role with the life sciences. we will be doing so in light of recognition that if we have options through the health system of encouraging new drugs that benefit the patients that we should do so. >> there are record levels of spending going into mental health services. they told us that the proportion of funding going into mental health should be increasing. why is it that 57%. [inaudible] >> the fact that ice set out that we are spending record level is absolutely right but we recognize there is more for us to do in mental health. >> thank you mr. speaker. there's not enough help for mental health workers and i welcome the commitment to more research on mental health. when i ask what steps she i
. >> every year hundreds of people are diagnosed, suffer and die from rare diseases like cystic fibrosis. will the prime minister joined me in welcoming the review which is strongly supported by patient demands and implemented speedily >> i do welcome the publication of review as this is important for patients to get quicker access to drugs and treatment. i think the united kingdom has a leading role with the life sciences. we will be doing so in light of recognition that if we have...
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Oct 20, 2016
10/16
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found his screening and revealed it to a school, an exam that makes him possible for cystic fibros fibrosis, but he never got the disease. the boy's attorney also claims the school did nothing about two other students who allegedly did have the illness. >> genetic markers are becoming more and more prevalent in society. >> reporter: now three years later, the now 15-year-old and his family are challenging the palo alto school system in a federal appeals court in san francisco. it comes after the case was tossed out of a district court. >> once genetic information is obtained by places like schools, insurance companies, employers, that it could be used against people. >> reporter: but for one student, this case isn't just about technology. it's having trust in educators again. and the palo alto school system did not want to comment on cc's case. they say due to privacy issues. it could be up to a year before we hear more on the ruling of this case. live in san francisco, rick boone, nbc bay area news. >> thanks, rick. >>> when a kid misbehaviors at school, whose job is it to handle the punis
found his screening and revealed it to a school, an exam that makes him possible for cystic fibros fibrosis, but he never got the disease. the boy's attorney also claims the school did nothing about two other students who allegedly did have the illness. >> genetic markers are becoming more and more prevalent in society. >> reporter: now three years later, the now 15-year-old and his family are challenging the palo alto school system in a federal appeals court in san francisco. it...
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Oct 28, 2016
10/16
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KSNV
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fibrosis. have you facts, what are you predicting? >> we know because the white house released rate people are paying on average 22% more for premiums, some 100% more on top of the increase they've paid over the years. for people it's getting more and more unaffordable. not enough healthy people have signed up to support the weight of all the sick people in the insurance system today. insurance companies are pulling out of the market so there is no choice to shop around when the rates go high. it doesn't mean anything is necessarily covered. deductibles are so high and out of pocket cost are so high, many people have insurance but it doesn't cover what they need. >> kim: let's focus on the clinton foundation and new information you found. >> i think people would be surprised they'd learn if they contributed to hurricane katrina victims, in many cases millions of dollars w katrina fund. it went to the clinton foundation. you might think charities and foundations have trance importance si and we can see what happened to the money but we
fibrosis. have you facts, what are you predicting? >> we know because the white house released rate people are paying on average 22% more for premiums, some 100% more on top of the increase they've paid over the years. for people it's getting more and more unaffordable. not enough healthy people have signed up to support the weight of all the sick people in the insurance system today. insurance companies are pulling out of the market so there is no choice to shop around when the rates go...
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Oct 7, 2016
10/16
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KPNX
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if you are a carrier for cystic fibrosis, it doesn't mean you have a child that has it. we try to make it really clear to people what do you do with this information, and then if there is a medical reason to follow up with your physician, then you should actually follow up with them. but there's a community on 23andme. we give people information about what to do next. for things like lactose intolerance, all these people suddenly realized i had pain, and i never knew why. here's all the foods that have lactose. i need to cut this out. so that's a really simple one know how to live their lives. >> at the same time, i know you're out hear for dreamforce, mark benioff said over and over that data is the currency. you probably have more data than anyone. now, i have to imagine the health care system, including the drug companies, would love to be able to find out more about what people have. >> mm-hmm. what we're doing, so we specifically look at an opportunity like that saying, we have over a million people who are engaged. and everybody in this world knows somebody who has
if you are a carrier for cystic fibrosis, it doesn't mean you have a child that has it. we try to make it really clear to people what do you do with this information, and then if there is a medical reason to follow up with your physician, then you should actually follow up with them. but there's a community on 23andme. we give people information about what to do next. for things like lactose intolerance, all these people suddenly realized i had pain, and i never knew why. here's all the foods...
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Oct 28, 2016
10/16
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KQED
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in immunoscience, fibrosis. all of those programs are moving forward and the long term prospects for the growth of the company are really good. >> shares rose 5.5% on the session. >>> community health systems warned of a third quarter loss ahead of its report next week. the hospital operator said fewer patient admissions would cause revenue to take a hit. community health's stock was downgraded by two banks following the news. shares were cut in half, closing at $5.05. >>> shares of gnc holdings took a dive after the vitamin and supplement company posted revenue that missed estimates. the company said same store sales fell. management says it's addressing key issues it hopes will kick start growth. investors didn't hang around today to find out. shares plunged nearly 25% to $15.13. >>> and china-based shipping company zto express made an inauspicious stock market debut today, raising almost $1.5 billion in its initial public offering, the largest in the u.s. this year. that's the good news. less good news is the
in immunoscience, fibrosis. all of those programs are moving forward and the long term prospects for the growth of the company are really good. >> shares rose 5.5% on the session. >>> community health systems warned of a third quarter loss ahead of its report next week. the hospital operator said fewer patient admissions would cause revenue to take a hit. community health's stock was downgraded by two banks following the news. shares were cut in half, closing at $5.05....
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Oct 31, 2016
10/16
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CSPAN
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. >> every year hundreds of people are diagnosed, suffer and die from rare diseases like cystic fibrosiswill the prime minister joined me in welcoming the review which is strongly supported by patient demands and implemented speedily >> i do welcome the publication of review as this is important for patients to get quicker access to drugs and treatment. i think the united kingdom has a leading role with the life sciences. we will be doing so in light of recognition that if we have options through the health system of encouraging new drugs that benefit the patients that we should do so. >> there are record levels of spending going into mental health services. they told us that the proportion of funding going into mental health should be increasing. why is it that 57%. [inaudible] >> the fact that ice set out that we are spending record level is absolutely right but we recognize there is more for us to do in mental health. >> thank you mr. speaker. there's not enough help for mental health workers and i welcome the commitment to more research on mental health. when i ask what steps she is
. >> every year hundreds of people are diagnosed, suffer and die from rare diseases like cystic fibrosiswill the prime minister joined me in welcoming the review which is strongly supported by patient demands and implemented speedily >> i do welcome the publication of review as this is important for patients to get quicker access to drugs and treatment. i think the united kingdom has a leading role with the life sciences. we will be doing so in light of recognition that if we have...
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Oct 26, 2016
10/16
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other stocks to watch, vertex pharmaceuticals sales rose 34%, driven by drugs to treat cystic fibrosis> express scripts reports slightly higher third quarter results and narrows guidance for the year. they received subpoenas asking for information about its relationship with drug companies charitable foundations and specialty pharmacies. it's up 1% today. >>> juniper networks reports third quarter results that beat estimates. also forecasting higher than expected fourth quarter numbers. >>> edwards lifesciences reporting third quarter revenues that missed due to lower than expected sales of the heart valves, particularly outside the u.s. down 12%. >>> weatherford international posting a huge third quarter loss on several charges, excluding items, they also missed forecasts. down 8%. >>> international investment managers are gathering in tel aviv for the sohn conference. joining us from that conference is alexander freeman. alexander just came off the stage giving his 12 to 18-month view of the global macro environment. welcome. you say u.s. stocks are likely to trade sideways or grade
other stocks to watch, vertex pharmaceuticals sales rose 34%, driven by drugs to treat cystic fibrosis> express scripts reports slightly higher third quarter results and narrows guidance for the year. they received subpoenas asking for information about its relationship with drug companies charitable foundations and specialty pharmacies. it's up 1% today. >>> juniper networks reports third quarter results that beat estimates. also forecasting higher than expected fourth quarter...
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Oct 27, 2016
10/16
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CNBC
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vertex down as people fear what's going on with their pipeline of cystic fibrosis drugs.erson suggests it's down because we're not seeing a lot of m&a right now, nothing to keep a floor on these biotech earnings heading into the election, which is the biggest fear on everybody's mind right now. we're halfway through earnings season. the biggest one to watch is going to be next week with gilead. >> and on every single pricing call, i imagine pricing is brought up. >> that's right. a lot of questions about the election, pricing, and prop 61 in california. this issue is really fascinating, the drug industry just hates this proposition. i'll be interested to see how this turns out. >> meg, get back on that blue phone, thank you. so, guy. >> a couple of trades. kite pharmaceuticals, had a huge run, they've given it all back. that gives you an opportunity. a name like kite, to get ahead of earnings. against $42-ish where it traded down to in may. amgen, real quick, they beat, revenue, beat. this company to me on valuation is cheap. it's basically given up today it made during t
vertex down as people fear what's going on with their pipeline of cystic fibrosis drugs.erson suggests it's down because we're not seeing a lot of m&a right now, nothing to keep a floor on these biotech earnings heading into the election, which is the biggest fear on everybody's mind right now. we're halfway through earnings season. the biggest one to watch is going to be next week with gilead. >> and on every single pricing call, i imagine pricing is brought up. >> that's...
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Oct 14, 2016
10/16
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CSPAN2
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they're people with cystic fibrosis and lung cancer and leukemia but didn't have drugs to treat their maladies before who have been now as a result of the work i did with richard burr from north carolina and the work i did with omar alexander republican from tennessee never demonizing the other side the working together for kids and their teachers in classrooms. at the moment it time where we have had horrible writer coming from the top of the ticket on the republican side about immigrants in this country to pass a responsible bipartisan immigration bill in the senate. i've tried to set an example. the thing that i can't abide is people who want their name in lights to give a speech you can't work with the other side. >> moderator: i didn't hear an answer to jason's question. there's a lot of finger because it of what is going on in politics right now. bannon in fairness i gave an answer which is we should be sending to -- people to congress that don't play petty games that get up every single morning to work with their party and the other party to get work done. that's not speculativ
they're people with cystic fibrosis and lung cancer and leukemia but didn't have drugs to treat their maladies before who have been now as a result of the work i did with richard burr from north carolina and the work i did with omar alexander republican from tennessee never demonizing the other side the working together for kids and their teachers in classrooms. at the moment it time where we have had horrible writer coming from the top of the ticket on the republican side about immigrants in...
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Oct 27, 2016
10/16
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every year, hundreds of people are diagnosed, suffer and usually die from rare disease like cystic fibrosis and rare cancers for which there has been no treatment or which fe drugs are extremely prohibitive. we set out a new model that they use genetic and data leadership to get quicker access and discounted prices. will they join me in welcoming that review? and encouraging them to implement it speedily? >> well, i certainly join my friend. this simm portent in terms of patients being able to get quicker access to drugs and treatments. it is -- i think the united kingdom has established a leading role. my honorable friend, i'll pay him tribute for the work he's done. they'll be looking specifically at the recommendations from that report but we'll be doing so in light of recognizing if we can take opportunities to -- through the national health services to be encouraging the development of new drugs in the benefits of patients, we should do so. >> mr. speaker, the prime minister just told us there are record levels of spending going into our mental health services. our health secretary sto
every year, hundreds of people are diagnosed, suffer and usually die from rare disease like cystic fibrosis and rare cancers for which there has been no treatment or which fe drugs are extremely prohibitive. we set out a new model that they use genetic and data leadership to get quicker access and discounted prices. will they join me in welcoming that review? and encouraging them to implement it speedily? >> well, i certainly join my friend. this simm portent in terms of patients being...
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Oct 17, 2016
10/16
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WHDH
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so we've gone back through the process and we are actually returning information back like cystic fibrosis and lactose intolerance and we're working with the fda to see can we actually get additional reports cleared. >> reporter: the company now represents the largest dna database of individuals who have consented for research. >> the hope here is that we can actually take all these customers and all that data that's been generated and actually translate it into sort of life changing medications that could really have an impact on our custom is leading the therapeutics group at 23 and me. >> we're working on cardiovascular disease, immunoloimmu immunologic disorders, asthma and cancer. >> reporter: in her loss altos community she is an active real estate investor. she own owns a cafe which celebrates her personal priorities, connection and work/life balance part of your life? >> you can't do it all. for me, part of it was that acceptance that there are just choices that you have to make. it is also really good for my kids to see that the family's core but what you do and your impact on soc
so we've gone back through the process and we are actually returning information back like cystic fibrosis and lactose intolerance and we're working with the fda to see can we actually get additional reports cleared. >> reporter: the company now represents the largest dna database of individuals who have consented for research. >> the hope here is that we can actually take all these customers and all that data that's been generated and actually translate it into sort of life...
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Oct 27, 2016
10/16
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not only in onkole ji, heart failure, i immune know science, fibrosis, all those probleare m forwardong-term prospects for the growth of the company are really good. >> as you say you're looking at a potential streamlined model, does that mean a smaller company? will you will having job cuts? narrowing your therapeutic areas of focus? >> it's about focusing our resources where we can make the most difference. as an industry and company, we have to change all the time. this is a very dynamic market. so, at bristol myers squib, we have a long history of changingened evolving ahead and today, we announced just another step. it's going to be all about focussing o resources on the highest priority. for example, today, we announced we are going to be increasing rnd investment in 2017 versus this year, so it's all about the confidence we have in the future of the business. >> you're doing this against a backdrop that's uncertain with the u.s. election coming up and potential changes to the way drugs and prices are regulated. how will that impact your business if fs there's a change in novem
not only in onkole ji, heart failure, i immune know science, fibrosis, all those probleare m forwardong-term prospects for the growth of the company are really good. >> as you say you're looking at a potential streamlined model, does that mean a smaller company? will you will having job cuts? narrowing your therapeutic areas of focus? >> it's about focusing our resources where we can make the most difference. as an industry and company, we have to change all the time. this is a very...
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Oct 7, 2016
10/16
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CSPAN3
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some are very expensive if you go more expensive cystic fibrosis drug costs $300,000 a year. curve like this. of course, if you're not on the curve, you're inefficient. that is, of course, what the insurance companies try to do to get us onto that curve. once you're on it, should you go from b to c? so you get a few more qalys but they cost you a bundle, they cost a lot. should you do that or not? the health care sector says this is what we, the health sector can do for you, the citizens. where do you want to buy on this curve and where do you tell us, uh-uh, we're not buying anymore. in england they say about $50,000 bucks. beyond that they complain and say maybe we won't cover it. in the u.s. we can't even discuss this topic. if you do, people really get angry at you. i tried this once in testimony, and i really got blamed for that, blasphemous to even talk about what a qaly might be worth. we have swept this under the rug and so far paid for everything. that is one of the problems with what we now face with a specialty drug industry. since we don't ever want to discuss wha
some are very expensive if you go more expensive cystic fibrosis drug costs $300,000 a year. curve like this. of course, if you're not on the curve, you're inefficient. that is, of course, what the insurance companies try to do to get us onto that curve. once you're on it, should you go from b to c? so you get a few more qalys but they cost you a bundle, they cost a lot. should you do that or not? the health care sector says this is what we, the health sector can do for you, the citizens. where...
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Oct 17, 2016
10/16
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aisle and get results for americans and get results for colorado so there are people with cystic fibrosis and lung cancer, leukemia didn't have drugs that treated their maladies before. you have them now as a result of the work i did with richard burrow and republicans from north carolina. the work i did with lamar alexander. never demonize the other side but working together to make it better for kids in the classroom and their teachers in school. the work i've done at a moment in time we had horrible things on the top of the ticket in the republican side about immigrants in this country. the bipartisan immigration bill. i have tried to set an example. the thing i can't abide is somebody who just wants their name in lights. who gives a speech and can't work with somebody.>> your overtime and i didn't hear an answer to jason's question. there's a lot of anger about what's going on in politics right now. >> in fairness, i gave you an answer which is we should be sending people to congress that don't play petty political games, who divided but get up every single morning to work withtheir p
aisle and get results for americans and get results for colorado so there are people with cystic fibrosis and lung cancer, leukemia didn't have drugs that treated their maladies before. you have them now as a result of the work i did with richard burrow and republicans from north carolina. the work i did with lamar alexander. never demonize the other side but working together to make it better for kids in the classroom and their teachers in school. the work i've done at a moment in time we had...
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Oct 6, 2016
10/16
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CSPAN
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immunization for children, a lot of that stuff, some are somebody or you go more expensive for cystic fibrosisget a curve like this. if you are not on the curve, you are inefficient and that is what the insurance companies now try to do to get us under the curve. once you are on it, should you go from b to c. but they cost you a bundle. says this care sector is what we be health sector can do for you the citizens. whether you want to purchase on the skirt and you will tell us know, we are not buying. in england, they say this is about $50,000. the on that, they complain and say we will not cover it maybe. in the u.s., we cannot discuss this topic. if you do, people get angry at you. i tried it once in testimony and i really got blamed for that. they even talk about what a quality by the work. we have swept this under the rug and paid for everything. that is one of the problems with but we now face with specialty drug industries. since we do not ever want to discuss what the value of a therefore, weus, can only pay for whatever they charge us because if you refuse you will reveal to us your val
immunization for children, a lot of that stuff, some are somebody or you go more expensive for cystic fibrosisget a curve like this. if you are not on the curve, you are inefficient and that is what the insurance companies now try to do to get us under the curve. once you are on it, should you go from b to c. but they cost you a bundle. says this care sector is what we be health sector can do for you the citizens. whether you want to purchase on the skirt and you will tell us know, we are not...
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Oct 26, 2016
10/16
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BLOOMBERG
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vertex is rising after they said two are advancing experimental treatments for cystic fibrosis into mid-stage trials. still getting a bit of a bump up. side, transportation southwest airlines has been plunging, down 11% after revenues will be downs much as 5% in the last quarter. it fell 4% last quarter. the shares are getting hit i got. norfolk southern, the railroad company, beating estimates. railway operating expenses fell but it looks like it's revenue came in just about in line to slightly light of what analysts had been anticipating. vonnie: let's check in on the bloomberg first word news with our crumpton. mark: a new bloomberg poll shows donald trump has a narrow lead in a state that is a must win for him, florida. toleads hillary clinton 49% 43% in a race where third-party candidates are included. trump is getting support from independent voters and his showing is stronger than other recent polls in the state. if trump wins all the states mitt romney one and also florida , he would need 35 more electoral college votes to win the election. secretary ash carter is ordering the pentago
vertex is rising after they said two are advancing experimental treatments for cystic fibrosis into mid-stage trials. still getting a bit of a bump up. side, transportation southwest airlines has been plunging, down 11% after revenues will be downs much as 5% in the last quarter. it fell 4% last quarter. the shares are getting hit i got. norfolk southern, the railroad company, beating estimates. railway operating expenses fell but it looks like it's revenue came in just about in line to...
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Oct 26, 2016
10/16
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that was driven by a drug for cystic fibrosis. express scripts narrowing its guidance for the year.ts company said it had received subpoenas for information about its relationship with drug companies. and juniper beating analyst estimates. also forecasting higher than expected fourth quarter numbers. didn't edward lifesciences? in case you missed it, or in case we didn't emphasize it enough, edwards lifesciences third quarter revenue that missed forecasts due to lower than expected sales of its newly invasive heart valves particularly outside the u.s. just for emphasis. >> well, it is down 12%. we can read it twice. >> yeah, yeah. that's -- all right. >>> and weatherford international with a missed forecast. happens when you just do things in. >> that was a good rundown. riveting. >>> newly appointed wells fargo ceo tim sloan says he's sorry. in a speech yesterday sloan acknowledged the bank did not respond to the problems soon enough and the role of the leadership played adding it still hurts people felt we blamed employees. wells is also addressing the can zal in a new campaign. y
that was driven by a drug for cystic fibrosis. express scripts narrowing its guidance for the year.ts company said it had received subpoenas for information about its relationship with drug companies. and juniper beating analyst estimates. also forecasting higher than expected fourth quarter numbers. didn't edward lifesciences? in case you missed it, or in case we didn't emphasize it enough, edwards lifesciences third quarter revenue that missed forecasts due to lower than expected sales of its...