or cystic fibrosis is recessive, or diabetes or many, and it takes up to 20 generations for recessive mutations to express themselves. so we're talking about eons of timeme for expression of genetic disease--that's the second thing. the third thing is if the man's got plutonium in his testicles--and every mamale in e northern hemisphere has a tiny load in his gonad--it's from weapons testing days, and plutoniumum is still falling ou. and the man is cremated,d, the smoke goes up the e chimney with the plutonium,m, so you can breathe it in, another man can, and it's ad infinitum because plutonium has a half-life of 24,400 years and laststs for a long time. but the other thing is that thee body thinks plutonium is iroron--it's an irn analogue--so it's stored in the liver, where it causes liver cancer. it's stored in the bone marrow to cause--to produce hemoglobin in the red blood cells, but it causes leukemia or bone cancer. it crosses the placenta into the developing embryo--which lets nothing through it, incidentally, except plutonium and a few other nasties. it's stored in the testicl

like playing a woman with cystic fibrosis and a drama about assisted suicide can you remind me. or the survivor of a killing spree who knew the murderer. lifts lisa flees was born in berlin in one thousand nine hundred her career started when a boyfriend gave her a flyer from an acting school. that's always true i was one of the for the for its money complete in-sync you from tioga out. to is not an easy job as shown by this film about an artist's colony in which lovely so fleas plays jen and idealist struggling for true freedom when you know this is bizarre bomani did not meet. the us entertainment magazine variety has named her one of europe's top acting talents and we agree. he's been acting since he was eleven louise hoffman has even been a guest at the oscars. yeah ok do. these are. not. your land of mine in which he plays a german p.o.w.'s assigned to clear mines after world war two was nominated for an oscar. and he appeared in dark a mystery drama and the first german series produced by netflix. and if you want to be an i want to like erik do so on the edge i really enjo

like playing a woman with cystic fibrosis and a drama about assisted suicide can you remind me. or the survivor of a killing spree who knew the murderer. lift lisa flea's was born in berlin in one thousand nine hundred her career started when a boyfriend gave her a flyer from an acting school. i chose because i was one of the for the for its money complete in-sync you seem to be. doing is not an easy job as shown by this film about an artist's colony in which lovely sophie's plays jen an idealist struggling for true freedom when you know this is these are moment we do not make. the u.s. entertainment magazine variety has named her one of europe's top acting talents and we agree. that. he's been acting since he was eleven louise hoffman has even been a guest at the oscars. yeah ok do these new manager david land of mind in which he plays a german p.o.w.'s signed to clear mines after world war two was nominated for an oscar. and she appeared in dark a mystery drama and the first german series produced by netflix. i mean if you want to be an i want to like erik do so on the edge i

and lynsey beswick has cystic fibrosis.g us. first of all, tell us about the drug you would like to get hold of and what difference it would make to you? my eyesight condition affects my central vision. i cannot see your face, for instance. i know you are there cannot see your face. mine is degenerative or overtime will get worse. there is a point of time where i would expect to be blind. the current treatments they are trialling focus on stopping the degradation. the idea it would take seven degradation. the idea it would take seve n yea rs degradation. the idea it would take seven years for it to take from being 0k means i could have lost my eyesight in that time. the idea of this could be completely sped up is a lot of hope to me. probably lindsay as well. let's hear from her. tell us about the drug you would like to access, the difference in make to your life. the drug is a precision medicine rather than treating the symptoms, the current treatment for cystic fibrosis, it would treat the underlying cause. i have seen in

we use them for cystic fibrosis treatment. a lot of people say they just can't choose this one. they don't have to choose. they are trolling you. >> we have been trolled. jonathan: they are stolen a page from starbucks. every time they move we report on it. nancy: it sounds sweet but little tricks you. i love oatmeal cream pie. jonathan: honey bun. bill: people are going nuts. what? nancy: remember twinkies? i stock piled them. then they came back on the market and i had nothing to do with all my twinkies. jonathan: you hoarded twinkies? that is awesome. bill: the big story is the cold outside. 26 is the current record at reagan. that is the record. and dulles, 16 is the record and the forecast is 20. baltimore is 21. the forecast is calling for 22 so we are close to the this is what it looks like at national harbor. you see the camera bouncing around. a cold night. are people layered up? did they take the advice, steve? stephen: they are layered up. the temperature is 39 degrees. we have a feels like of 33. this is the season for the tree lighting. coming up at 6:30 at national

this recognition more than paul because of his work on behalf of those suffering from pulmonary fibrosis, a disease that scars the deep tissues in the lungs making it difficult to breathe until you die. 14,000 people die from the he has the same number helped those who contracted this deadly disease. and no known cure but paul is a fighter, he is a leader and great advocate doing all he can to find one. congratulations to paul. the speaker pro tempore: for what purpose does the gentleman from rhode island seek recognition? >> permission to address the house for one minute and revise and extend my remarks. mr. langevin: as co-chair of the bipartisan career and technical education caucus, i rise in recognition of national apprenticeship week. apprenticeship provides job training preparing them for careers. they are a proven work force is crucial to meeting the demands of skill trades, health care and i.t. businesses all which face a significant shortage of qualified workers. this summer, the house passed the strengthening career and technical career education act with strong bipartisan sup

american college of physicians, osteopathic associations, march of dimes, heart associations, cystic fibrosis association, american cancer society, multiple sclerosis society, it goes on and on and on. who of close this. knowpose this because they it will affect people losing health insurance and other people seeing rate increases. we have heard this, 10% per year, the bottom line with this is that people still get sick whether they have health insurance or not. , walk into the emergency room we have cut in half the number of people that walk in and cannot pay which as stabilize the small group market in my state, the small business association of michigan says it has been stabilize the last five years and we have seen things stabilized or go down in the larger markets because they're not paying for folks walking in that do not have insurance and cannot pay. this reverses that. i would have to say that in michigan right now, 97% of our children can see a doctor and mothers and fathers can take your kids to the doctor. that is a good thing. reduction in a 50% people who walked into the emergen

college of physicians, osteopathic association, psychiatric association, march of dimes, sis six fibrosis, american cancer society, multiple sclerosis a society. it goes on and on and on. who oppose this, who opposes. why? because they'd was going to affect people losing health insurance and other people seeing rate increases and we have heard this. at least 10% here. the bottom line with the this is that people still get sick whether the health insurance or not. walking to the emergency room. we have connect the number walking in that cannot pay, which is a stabilized at the small group market in my state, small business association has stabilized last five years and we have seen things stabilize or bow down in the larger markets because they're not paying for folks that are walking in without insurance and cannot pay this reverses that and i would have to say in michigan right now 97% of our children, moms and dads can take their kids into the doctor and that's a good thing and we are seeing a 50% reduction in people walking to the emergency room that cannot pay, which is also a good th

i got to a man who said, i have two daughters with cystic fibrosis.id, i am a successful businessman. i could afford insurance, and nobody will so me a policy. i said, what do they say to you when you ask them to help you bear the cost of caring for your daughters? he said, i will tell you what the last insurance company i met with, what the agent told me. he looked at me when i explained what we were up against, and he said, you do not understand. we do not insure burning houses. and the man i was talking to had tears in his eyes. and he said, they called might little girls burning houses. i never got that image out of my head. so, i went to ted kennedy, and i talked to him about trying to figure out some way to cover kids. he was the master of the senate, brought republicans on board, including orrin hatch. we worked to create a bipartisan children's health insurance program at was a partnership between the federal government and the states. it helps to take care of 9 million kids a year. [applause] it primarily deals with families that are working

they were each telling me their story and i got to a man who said i have two daughters with cystic fibrosis. he says i'm a successful businessman, i don't my own business, i could afford insurance and nobody -- nobody will sell me a policy. quasi said what do they say to go and ask them to help bear the cost for caring for your two daughters? thesaid i will tell you what last insurance agents said. he said you don't understand, we don't on this -- ensure burning houses. and hetears in his eyes said they called my little girls burning houses. i never got that image out of my head. and went to ted kennedy talked with him about trying to figure out some way to cover kids. he, with a mastery of the senate that he always displayed, but republicans on board including orrin hatch. we worked to create a bipartisan shows and health care program that was a partnership between the federal government and the of 9 -- it helps take care million kids a year. it is primarily dealing with families that are working -- they are certainly making more money than would make them eligible for medicaid so they are

it reduces the risk of fibrosis. it's also full of antioxidants. nail on the head. difficult to accurately classify copy consumption and most of the studies included in the review, we brought together 200 meta—analyses and a number of different studies and each would have captured copy drinking in different ways and a lot of detail was missing from the type of copy people are drinking, even the size of cup. there is no standard measure. we have to remember that. but more importantly, the necessary cup size, most of the research we brought together comes from observational studies and those at risk of other factors that are associated with drinking copy and possibly associated with the outcome we are looking at which is why we can't give actual advice this doctrine can copy or reach certain targets because these findings would still be potentially caused by other factors. so, you cannot give advice from the research, my understanding is that his observational, not concrete evidence. is that what you are saying? that's right, we can not say there is

i got to a man who said i have two daughters with cystic fibrosis, i'm a successful businessman, i built, i could afford insurance and nobody will sell me a policy. i said what did they say to you when you go and ask them to help you bear the cost of caring for your two daughters? you what thetell last insurance company i met with told me. he looked at me as i slain to him what we're up against -- i explained to him what we were up against, he said i don't ensure burning houses. the man i was talking to had tears in his eyes, they called my little girls burning houses. i never got that image out of my head. kennedy and talked with him about trying to figure out some way to cover kids. he, with the mastery of the senate that he always displayed, brought republicans on board, including orrin hatch. to create a bipartisan children's health insurance program that was a partnership between the federal government and the state. it helps take care of 9 million kids a year. [applause] it primarily deals with families that are working reallys, or even successful families like the man i met in cle

you have a child with cystic fibrosis and you want a job with flexible hours. >> i can take off at aotice and take care of my children and hop back on the schedule if i'm able to. >> that's great. the gig economy. the gig in this case is grocery shopping. shipt is the app, uber for groceries. can i pick you up anything? >> bill: everything. >> sandra: please. a bit of everything. a few things stand out to me, one, a lovely woman. nice to hear from someone who is working hard leading up to the holidays. two, sounds like you have a seasonal cold. good luck with that. and three, that store looks incredibly empty with just two days left to go to thanksgiving. where is everyone? >> it's the middle of the day and that's when the shipt shoppers come out. you do the thing online. perfect time to shop is when nobody else is in the store. not going through a big hassle. >> sandra: there is a shopper. you are still before 9:00 a.m. all right. jeff, always good to see you. hemmer, you'll have to tell us, are you shopping online or are you making your list and going to the store? >> bill: i bough

se conoce como corregir este g gen que son enfermedades del h g higado hay una enfe ojo tambien fibrosismal penmsados la primera vez que los llevamos al sur de california para sac l sacarlos de la rutina ademas a platocicar es de los artistas m exitosos ahora podrisodria segus pasos de joan sebastian >> como ultimamente no ha parado de trab> la verdad no los angeles uno se imagina que conociendo h lgugares ya >> dice que aun hay trabajo por hacer ya que deses ca cambiar >> orgullo de estar pasando por otros paises porque a mi me en a encantaria que hubireran mas n eventos mexicanos >> decidimos darnos un paseo donde nos habl ode lao de la mea para ver los pasos de joan sebastian >> s un pes un paso ghrande s estar con la familia agfuiuilar una bendicion en jaripeo >> vamos a ver a cristian subi s subirse a un caballo cantar >> dice que no habia otro camino para el que cangatar >> nos revelo que famosa es su a amor platonico >> tyo,omando un descanso nos co cual es su miedo >> hay gente que se entiende la soledad que ya sintentes

yet, the drug is a precision medicine, so rather than treating the symptoms of cystic fibrosis, it wouldly long transplants, so obviously having access to a drug like this could prevent me from deteriorating my help. lindsay, do you get angry that you know that drug is out there that could help you, but you can't get hold of it? it is incredibly frustrating. obviously, it is like a carrot that is being dangled and essentially it feels as though the drug is there, it is available. i have had to watch my health deteriorate knowing that this medication is out there and could eventually stop that decline, but ijust don't have access to it. professor richard barker, why is it that these drugs are not available on the nhs now? why is it taking so long. we have a rather complicated pass the parcel process, actually, soa pass the parcel process, actually, so a company will present data to the regulatory authorities. they will then allow them to move to the next age, which will often be a discussion with nice in england and then there will be two or three stages and then the nhs will decide wheth

osteopathic associations, psychiatric associations, march of dimes, heart association, cystic fibrosisssociation. american cancer society. multiple sclerosis society. it goes on and on and on. who oppose this. why? because they know it's going to affect people losing health insurance and other people seeing rate increases, and we've heard this. at least 10% a year. the bottom line with this is that people still get sick whether they have health insurance or not. they walk into the emergency room, we've cut in half the number of people walking in that can't pay. which has stabilized the small group market in my state. it's been stabilized the last five years, we have seen things stabilize or go down in the larger markets because they're not paying for folks that are walking in that don't have insurance and can't pay. and so this completely reverses that and i would just have to say in michigan right now, 97% of our children can see a doctor, moms and dads can take their kids to the doctor. that's actually a really good thing. and we are seeing a 50% reduction in people who walk into the