disease where the bone tissue becomes considerably more dense was the most obvious she also had holly dr lee hence her 6 claws. as humans can be born with surplus fingers and toes as well little buds genome could help understand these rare hereditary diseases better in the future. as it comes on crowd funding could be a good way to enable research into a particular rare disease because that doesn't happen a lot otherwise funding agencies give a lot of money to medical research but it's often difficult to get money for rare diseases off of me so i'm. crowdfunding as a way of enabling research that might otherwise not happen. but i'm sure the bus hunts he's home edition that nobody has discovered before in the study of the. gun . on information that we have not seen previously before. this ancient. new forms of research funding are particularly needed when no one else is investing . hardly anyone knows this better than the people at the alliance of chronic rare diseases we're meeting christine i'm going to los. if we're the voice of those affected by red diseases. that affect some 4000000 peop