pass the huntington disease parity act. it eliminates the social disability insurance and medicare wait period. as you can see from my family's story, hd families often with age disability determination. then forced to wait another six months to receive ssdi capped payments in two years for medicare coverage is unacceptable. this policy must be changed. expand the focus of the nncfs to include huntington's disease. and require the fda and nih, who work with companies that are researching hd cures to design trials that recognize the uniqueness of hd. that the disease onset and progression is different from any other diseases. the hd community needs more research and cures as possible. thank you. >> thank you, miss booth, for your important testimony and, again, on behalf of all of the members of the subcommittee, would apologize for keeping you waiting all day and into the evening. but you enriched our hearing with your testimony. and we very much appreciate it. we now have -- we've completed the testimony of our witnesses i

this has allowed me to be able to separate the huntington's disease from -- huntington's disease is rare and causes degeneration of the brain. it affects each patient differently in the symptoms are different in the progression time is different. what is not different is that it is fatal and there is no cure. unlike other neurological diseases, since people with huntington's can get this later in life. it is typically one people are raising families or planning for retirement. it disrupts all of that. in the late 90's, when i should've been creating memories i was emotionally disconnecting from him. we always kept a phone nearby in case we need to call 911. before the disease he was a father figure for my dad. a broken system that didn't have the ability to care for someone with huntington because he could be a danger to himself and others. a broken system did now my papa's away and my mother sitting by. fast forward to 2015, the third-generation, and another interaction. my mother is what you described as a ray of sunshine. the kind of person who would never say harsh word. my mom decid

i know huntington's would be more complicated. i was just wondering if you knew of any work that involved dealing with changing the gene that causes this, particularly if you can catch it before its onset. >> i'm not familiar, but that doesn't mean that's not the right answer. >> i understand. i appreciate that. i've been interested in huntington's for some time because there was a family, now there are two families that i'm aware of in my community that have huntington's. one of whom, the first family was -- i was good friends with the children of that family, and knew the mother who died of huntington's. this was all of course a lot of this happened before they had testing available. your mother, who didn't want to be tested but always had a happy attitude until recently with the onset, i'm just curious if any of the data that you've seen working with the association indicates that there's a higher rate of suicide for those people who do get tested and realize they have the disease? >> i think there is a higher rate of suicide.

these therapies are already underway for huntington's disease and some forms of als. i believe we are on the step of a revolutionary era of therapy, especially as they become linked to these delivery tools developed by the brain initiative. second, these tools are now to inherit disorders but the promise is much broader. in most disorders, a subgroup of patients for these patients but most have a sporadic form. luckily, studies of the inherited disease patients have uncovered pathways of the degeneration and non- inherited forms as well. therapies are being developed with common pathways to prevent neuron dysfunction and death. third, somewhat commenting and treatment, potential of multiple degenerative disorders. we look under the microscope and people who could die from these disorders, we almost always see of protein inside with the dying celebrate specific proteins, the brain areas involved with this disease, these aggravated proteins seem to think have the ability to spread to a healthy one and verify damage one brain region after another. as an example of parkin

genomic therapies are already under way for huntington's disease and some forms of a.l.s. and i believe we're on the doorstep of a revolutionary era of neurogenomic therapies, especially as they become linked to the cell specific delivery tools being developed by the brain initiative. secondly, these genomic tools are now in the clinic for inherited neurodegenerative disorders but their promise is much broader. in most neurodegenerative disorders, there's a subgroup of patients who have an inherited form due to a known mutation. most persons have what's called a sporadic form which is not inherited. luckily, fruitful studies of the inn heritted disease causes mutations have uncovered pathways of neurodegeneration common to the noninherited forms as well. so therapies are now being developed to manipulate these common pathways to prevent neuron dysfunction and death. thirdly, there has emerged a somewhat common theme in the treatment -- potential treatment of multiple neurodegenerative disorders. when we look at the brains of people who died from neurodegenerative disorders

porque la competicion anual numero 12 de "surf canino" se celebro hoy en huntington beach, californiaste evento masivo atrajo a 40 perros de todo el mundo, para realizar hazaqas de equilibrio y habilidad sobre las olas, en varias clases y categorias, incluyendo surfitas en solitario y tandems de dos perros o perro-humano... como ven, si no hubo mucha maestria en las acrobacias, al menos sobro la diversion... y asi llegamos al final con las noticias mas importantes a esta hora lorena: yo soy lorena. ella es mi mamá. maribel: hoy nos toca... ¡pizza! lorena: Él es nacho. su sueño es ser un héroe de acción. ella es lucía. maribel: ¡lucía! lucía: ay, la culpa es tuya por castigarme sin salir, ¿eh? o sea... lorena: ella es mi abuelita, titita, es la mejor... para descuartizar zombis. el es mi papito. vendía máquinas. dijo que la empresa donde trabajaba se rompió pero mi papi jamás se da por vencido. ahora vivimos de hacer bromas. nosotros somos los gonzález. policía: a ver, aquí tengo ya sus datos, nombre completo, domicilio.

karen davies of huntington bank joining us after a slew of deals.to see how this develops. for amanda lang, i'm matt miller. this is bloomberg. ♪ >> so far it seems to be holding up. mark: i am mark crumpton with bloomberg's first word news. all federal employees in the united states will have to be vaccinated against covid-19. bloomberg has learned that president biden will sign an executive order today requiring vaccinations for all employees and federal contractors. the move comes as the delta variant surges and threatens to overwhelm hospitals in parts of the united states. the president will speak from the white house tonight. there are growing calls for congress to do more to help communities hit by hurricane ida . the biden administration is asking congress to include $10 billion more in ida relief in stopgap spending legislation. the category four hurricane hit louisiana and many were left without power for days. there are still scattered outages in at least 18 parishes. the abortion battle continues in texa

joining us is jake ward in huntington beach, california. jake, the president biden is selling this as a newsom versus trump fight. has that messaging been effective among california voters? >> at this point, it's very interesting to be certainly in this voting center, to be here in huntington beach, california, orange county, 1.8 million registered voters. huntington beach, republicans outnumber democrats 40% to 31%. it's one of the few urban republican strongholds in the state. so when you speak to voters here, it's very interesting to hear their sentiments. it is a general dissatisfaction with the way the country is going and dissatisfaction with high taxes, the high cost of living here. have a listen to what voters had to say this morning. >> i think it's time we stand up and make our politicians realize they can't be overstepping and failing to represent us. >> you voted republican? >> oh absolutely. >> why? >> because of everything, everything. the costs in california, the homeless situation in california, the illegals. >> we're either

complicated that america ought to just stay away from the region that the, that the so called sam huntington class of civil is a, was inevitable if we got involved and we ought to just, you know, say give us a call in 400 years. what is your view on these tensions in the middle east? are they? are they the kind of tension america can be engaged with? or are we? should we withdraw? keep our powder dry. wait for the middle east to resolve its own issues and be on the sidelines. i don't, i don't think we should be on the sidelines, but i don't think the only option we have is to intervene militarily or, you know, try to do nation building. when we do both of those things, we have problems in the region. we have diplomatic tools. ready we have gunam and tools, we have the ability to work through international institutions. we have the ability to work with alliances of like. ready minded countries there on the ground, and i think we should do all of those things as any other internationally engaged power. would. i do think, you know, one of the things that happened in the course of the past 20 ye

(vo) austedo can cause depression, suicidal thoughts, or actions in patients with huntington's diseasen to and call your doctor if you become depressed, have sudden changes in mood, behaviors, feelings, or have suicidal thoughts. common side effects include inflammation of the nose and throat, insomnia and sleepiness. don't take austedo if you have liver problems, are taking reserpine, tetrabenazine, or valbenazine. austedo may cause irregular or fast heartbeat, restlessness, movements mimicking parkinson's disease, fever, stiff muscles, problems thinking, and sweating. (jackie) talk to your doctor about austedo...it's time to treat td. td is not ok. visit askforaustedo.com. every single day, we're all getting a little bit better. we're better cooks... better neighbors... hi. i've got this until you get back. better parents... and better friends. no! no! that's why comcast works around the clock constantly improving america's largest gig-speed broadband network. and just doubled the capacity here. how do things look on your end? -perfect! because we're building a better network every s

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it was different from the weight sam huntington thought it ought to go. i was argument should go this way and up that way. and then, in the process of the search i remember trying to structure it to the extent i could, in the direction my own prior research said this leads to better outcomes than that. and this is how you manage the flaws in sam huntington's approach. i remember doing that. what we up doing was something different. it was exquisitely painful for me as an academic and practitioner to see my theory semi- not tested, some i found not one thing and us doing it in a different way and it going better than my argument would have said for the only consolation i had was sam's weight was worse than mine. i was less wrong than my academic opponents were. but, this was one of the key potential failure modes for the surge. especially i would say late december of zero six. one of the ways it could have been stillborn is if it had, and reaching this decision the president had inadvertently or the team inadvertently create a civil military crisis where t

(vo) austedo can cause depression, suicidal thoughts, or actions in patients with huntington's diseasey close attention to and call your doctor if you become depressed, have sudden changes in mood, behaviors, feelings, or have suicidal thoughts. common side effects include inflammation of the nose and throat, insomnia and sleepiness. don't take austedo if you have liver problems, are taking reserpine, tetrabenazine, or valbenazine. austedo may cause irregular or fast heartbeat, restlessness, movements mimicking parkinson's disease, fever, stiff muscles, problems thinking, and sweating. (man) talk to your doctor about austedo... it's time to treat td. td is not ok. visit askforaustedo.com liberty mutual customizes car insurance td is not ok. so you only pay for what you need. how much money can liberty mutual save you? one! two! three! four! five! 72,807! 72,808... dollars. yep... everything hurts. only pay for what you need. ♪ liberty. liberty. liberty. liberty. ♪ >> greg: yes, everything is racist, including now not being racist. a new cnn article argues white supremacy will adapt no

(vo) austedo can cause depression, suicidal thoughts, or actions in patients with huntington's diseasee attention to and call your doctor if you become depressed, have sudden changes in mood, behaviors, feelings, or have suicidal thoughts. common side effects include inflammation of the nose and throat, insomnia and sleepiness. don't take austedo if you have liver problems, are taking reserpine, tetrabenazine, or valbenazine. austedo may cause irregular or fast heartbeat, restlessness, movements mimicking parkinson's disease, fever, stiff muscles, problems thinking, and sweating. (jackie) talk to your doctor about austedo...it's time to treat td. td is not ok. visit askforaustedo.com. >>> we are back with more "gps" and more of my conversation with former british prime minister tony blair. you've been critical of the decision to leave afghanistan. i think nobody doubts it was done in a fairly tragic and sloppy way. but i want to ask you about the kind of larger -- the error of the way we got out and could we have held onto the balgram base and all that. but the larger error seems to me

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i'm thinking about sam huntington's work, sam huntington, harvard professor, you know, the hispanic challenget has been with our country forever. there's always been substantive segments of the population that have anti-immigrant affects. so i may be the odd one out here, though. >> i share your cynicism. thank you so much for joining us this evening. >>> coming up, news on evidence seized in the rudy giuliani raid, a federal judge delivering some bad news for trump's former lawyer. >>> and what did matthew mcconaughey have to do with the resurgence in the labor movement? i'll explain right after this. movement i'll explain right after this. o. it was just a lot of fun. just to talk to my parents about it and to send it to my grandparents and be like, hey this person we're all related to look at this crazy stuff they did in arizona 100 years ago. it actually gives you a picture of their life, so you get to feel like you're walking the same path they did. ♪ ♪ i am robert strickler. youi've been involved inpath communications in the media for 45 years. i've been taking prevagen on a regular bas

. >> joining me now, nbc's jake ward in huntington beach and steve patterson in sacramento, where the governor will be tonight when these returns come in. jake, you're in orange county where supporters will be relying on big republican area, big population area. how's the turnout seem to be? what can you tell based on mail-in voting? >> you know when you think about california politics, you think of course about progressive politics, right? it's famous for a reputation for antiwar protests and progressive environmental policies. well this is not that california. this is orange county. referred to sometimes as the orange curtain as you cross from l.a. county to orange county. republicans outnumber democrats in this particular place and in a way you don't see in the rest of california. california's republican strongholds in the past have been rural places. this is an urban republican stronghold. very unusual in california. we're seeing turnout already at polling places in huntington beach of over 30% and in the people we have spoken to, there's a deep sentiment that taxes are too high,

(vo) austedo can cause depression, suicidal thoughts, or actions in patients with huntington's diseaseose attention to and call your doctor if you become depressed, have sudden changes in mood, behaviors, feelings, or have suicidal thoughts. common side effects include inflammation of the nose and throat, insomnia and sleepiness. don't take austedo if you have liver problems, are taking reserpine, tetrabenazine, or valbenazine. austedo may cause irregular or fast heartbeat, restlessness, movements mimicking parkinson's disease, fever, stiff muscles, problems thinking, and sweating. (jackie) talk to your doctor about austedo...it's time to treat td. td is not ok. visit askforaustedo.com. this is the planning effect. if you ask suzie about the future, she'll say she's got goals. and since she's got goals, she might need help reaching them, and so she'll get some help from fidelity, and at fidelity, someone will help her create a plan for all her goals, which means suzie will be feeling so good about that plan, she can just enjoy right now. that's the planning effect, from fidelity. >>> b

manager for decades, he pulled a car that was really smart, during the fire between silverlake and huntington lake, they used the snowmaking system to save the structures and did an amazing job. john rice, another amazing manager, longtime local, he did the same thing. you can see the results. he saved structures, and most likely, they will still have to do inspections. now go to kirkwood, matt jones, the manager out there, i guarantee you, there mountain managers and teams along with the kirkwood public utilities district and the fire department, the community fired apartment are getting ready to turn their systems on now. that's their first line of defense. they will also do structure protection. they will go around and make sure they have defensible space around each of their structures. but the caldor fire and the dixie fire and the tamarack fire our behemoths. mother nature is very upset right now. and these fires, when they are talking about it, the words unpredictable come out -- we've never seen this behavior before. those are professional spokespeople, and to hear that is challenging

this is down south, the polling place in huntington beach, the line out the door and literally around the block. here in the bay area, this is a look at the library in san jose. no lines, pretty quiet. a slow and steady stream of people dropping off their ballots. as for the candidates, governor newsom making a last-minute appearance here at home in san francisco. this was at the union hall. he thanked supporters and urged them just to get out and vote. he then spoke one on one with nbc news. ? >> this is a serious moment in this nation. we need to push back and in california, hell no to these recalls. >> leading republican challenger, larry elder is in southern california. he didn't have any official campaign stops tonight but did stop last night at the hilton orange county. >> arguing over the issue of school choice, rising climb and the price of a home in california just hit $800,000, which is 150% above the national average. >> we have reporters standing by in sacramento and at larry elder headquarters in orange county. we'll get to them in a few minutes. but let's talk about why

the clean up from huntington ida has put the spotlight on problems with housing and infrastructure in the united states . president joe biden will visit new jersey and new york next week to assess the damage. one of the most dangerous wildfires in canada this year has been brought under control. the so called fight rock lake fire burned for $52.00 days in british columbia. it stretched across more than $83000.00 hacked chairs with huge areas of forest and several properties destroyed. those are the headlines. the news continues here on andras here in about half an hour after people and power by ah, they wanted $43000000.00 pounds worth of weaponry. that was 6000000000 pounds in commission. there was no hope of any more because there's always a small car. most people for really, really good live in athens, we in the united states have privatized the ultimate public function. war shadow. on al jazeera, me, africa is apartheid regime for to cling on to power. in the latter, the 20th century. it routinely imprisons tortured and murdered its opponents. controversially, many of those crimes

you watching huntington national this friday morning where it's just going to 8 o'clock in the russian capital. now we're start with some breaking news because a u. s. air force base in ohio has been placed in lockdown following reports of an active shooter. according to the air base, the shooter entered the national air and space intelligence center. after 9 pm local time, emergency crews were quick to respond, as well as local security. in a tweet, the 8th air base wing said that security forces a currently sweeping the building mat news. justin, of course, will keep you across developments. i was just the day to go before the 20th anniversary of the september 11th attacks on the united states are to investigate in the special project on heard voices. the stories of those who suffered often unjustly during the war on terror. the will use all tools at our disposal, killed our children to united states was bringing people to your site. it was a pointless exercise. well those thoughts me behind the attacks are being held in guantanamo notorious for human rights abuses, such as detainmen

(vo) austedo can cause depression, suicidal thoughts, or actions in patients with huntington's disease call your doctor if you become depressed, have sudden changes in mood, behaviors, feelings, or have suicidal thoughts. common side effects include inflammation of the nose and throat, insomnia and sleepiness. don't take austedo if you have liver problems, are taking reserpine, tetrabenazine, or valbenazine. austedo may cause irregular or fast heartbeat, restlessness, movements mimicking parkinson's disease, fever, stiff muscles, problems thinking, and sweating. (jackie) talk to your doctor about austedo...it's time to treat td. td is not ok. visit askforaustedo.com. tammybruce.local.com. tucker carlson is coming up next. thank you, everyone. ♪ ♪ >> tucker: good evening, and welcome to a special edition of "tucker carlson tonight." in >> welcome, it is a special edition tonight of the "tucker carlson" show. tucker: you are all losers, the president told them according to a foreign policy magazine. you don't know how to win anymore. that is a harsh assessment, though arguably true, but

many people games come to a dramatic ah, so i welcome you, watching huntington, national. it's friday morning, just gone 10 o'clock in the russian capital. just today to go before the 20th anniversary of the september 11th attacks on the united states r. t investigates in this special project on heard voices. the stories of those who suffered often unjustly, during the war on terror, the will use all tools at our disposal, killed our children to united states was bringing people to watch a site. it was a pointless exercise. well, those thought to be behind the attacks are being held in guantanamo notorious for human rights abuses, such as detain without trial, and also torture. one of those previously in prison there, how to do old sli, he has since published a book on his 14 years inside. it's called guantanamo diary, and that story was later turned into a movie, starring hollywood actors and earning awards. but he still has a lot to say and gave us this interview. the me, i did call 1st crimes. i didn't because of torture. i was the 5, i would be killed. they broke my id

more than empty patrick as the country as left fuming to edward starting out a london watching huntington national. just a heads for you this hour a day to go until the german federal election. we'll be looking at some of the obstacles facing the top candidates to replace anglo michael is chancellor. say we're this for that is coming up after this break. oh i use what we've got to do is identify the threats that we have. it's crazy foundation, let it be an arms race is on often very dramatic development. only personally, i'm going to resist. i don't see how that strategy will be successful, very political time. time to sit down and talk a, you know, they didn't take into account one thing for their own capabilities. i knew i didn't want to face the truth if you will give lots of and the truth is that the u. s. is no longer capable of playing the role of global hagaman. i mean the role which had had assigned to itself and glove. well, you'd be more i the moon. ah. who back on sunday, germany as opposed to a pretty big question to replace his chance. langler medical after 16 years at the he

(vo) austedo can cause depression, suicidal thoughts, or actions in patients with huntington's diseaseur doctor if you become depressed, have sudden changes in mood, behaviors, feelings, or have suicidal thoughts. common side effects include inflammation of the nose and throat, insomnia and sleepiness. don't take austedo if you have liver problems, are taking reserpine, tetrabenazine, or valbenazine. austedo may cause irregular or fast heartbeat, restlessness, movements mimicking parkinson's disease, fever, stiff muscles, problems thinking, and sweating. (jackie) talk to your doctor about austedo...it's time to treat td. td is not ok. visit askforaustedo.com. life... doesn't stop for diabetes. be ready for every moment, with glucerna. it's the number one doctor recommended brand that's scientifically designed to help manage your blood sugar. live every moment. glucerna. certain hpv-related cancers? you're not welcome here! get out of my face! hpv can cause certain cancers when your child grows up. get in its way. hpv can affect males and females. and there's no way to predict who will

(vo) austedo can cause depression, suicidal thoughts, or actions in patients with huntington's disease. pay close attention to and call your doctor if you become depressed, have sudden changes in mood, behaviors, feelings, or have suicidal thoughts. common side effects include inflammation of the nose and throat, insomnia and sleepiness. don't take austedo if you have liver problems, are taking reserpine, tetrabenazine, or valbenazine. austedo may cause irregular or fast heartbeat, restlessness, movements mimicking parkinson's disease, fever, stiff muscles, problems thinking, and sweating. (man) talk to your doctor about austedo... it's time to treat td. td is not ok. visit askforaustedo.com and now an alleged scheme by a man to arrange his own killing so his son could reap millions, all of it involving the same family, and causing a sensation in south carolina and there is much more to all this. catie beck is there tonight. >> reporter: tonight, police shedding new light on a bizarre and violent string of crimes in south carolina's low country. overnight, the arrest of 61-year-old cur

to be delayed because of the pandemic and that includes a rather unusual event taking place on huntingtonk why. the dog surfing aficionado says why not? after aficionado says why not? after a temporary pause the surf city serve dog competition is back in the water. we have set 50 surfing dogs and everybody is excited to be back after covid and be able to participate in a live event. yay! there are various categories including solo surfing and to dog tandem surfing. a real challenge for everyone involved though some seem to take it very much in their stride. the waves are tough out there. it is crashing right on top. we had a great time. had a good time in a way to their serve friends and put on a big show for all our fans. after this display of canine agility and doggy daring these were your winners. very much a case of bow wow. much more on the website and our news app. you can reach me on twitter. hello. last week we had the equinox, the astronomical start to autumn. this week, the weather is catching up. last week and through the weekend we saw above average temperatures. but this week

if you have rely on the us dollar, you do not have sovereignty, both the boss huntington national. now the u. s. u. k and australia have announced the creation of nuclear defense parks. it could mean that was trailer will pull out of a $90000000000.00 defense contract with franz, the new parks. his casually cold walk is focused on sharing information in case that he took areas, including artificial intelligence, cybersecurity and nuclear defense infrastructure. it hubs the pucks, which will involve, was trailer, acquiring, and nuclear submarine fleet will help the country protect interest in the region. the world is becoming more complex, especially here in our ages the in the pacific. the 1st major initiative of august will be to deliver a nuclear pad submarine plate, frustrated and discuss the alliance for the anti war campaign and beyond. the coalition. richard becker, it says the nuclear parked is aimed at countering china's growing influence and the region. there's no explanation, why are the u. s. and the u. k. now, at this time, hoping australia develop a nuclear power suite

(vo) austedo can cause depression, suicidal thoughts, or actions in patients with huntington's disease depressed, have sudden changes in mood, behaviors, feelings, or have suicidal thoughts. common side effects include inflammation of the nose and throat, insomnia and sleepiness. don't take austedo if you have liver problems, are taking reserpine, tetrabenazine, or valbenazine. austedo may cause irregular or fast heartbeat, restlessness, movements mimicking parkinson's disease, fever, stiff muscles, problems thinking, and sweating. (jackie) talk to your doctor about austedo...it's time to treat td. td is not ok. visit askforaustedo.com. ♪. rachel: welcome back to "fox & friends." president biden fire as down syndrome advocate from the disability council. kurt lost his role as the biden administration clears federal advise councils of all members appointed by president trump. it is heartbreaking for kurt's daughter chloe who has down syndrome. they are widely recognized for their substantial work in promoting, protecting the human rights of children with down syndrome. kurt and chloe jo