now let's bring in alexandra hall managing director of the isaac foundation whose mission statement speaks of funding innovative research to find a cure for m p s mukul polly sakura dosis a rare debilitating and devastating disease alexandra welcome and did i pronounce that right yes you did while van hollen thank you for having me on briefly what is m.p.'s. so m.p.s. is a very rare disorder it's a metabolic disorder so it really affects a patient's laces soames or their ability to kind of break down you know things in their bodies so they lack of enzymes to properly break the confounds they get stored in in a patient's you know their joints and their their corneas and it's just everywhere basically and so. are the executive director started the foundation over a decade ago when his son isaac was it was diagnosed with m.p.s. type six and we've just been focused on fund fund raising so that we can support research projects that look to find curative solutions and support patients who are needed and have access to treatment and that's just kind of grown from maris we now work with patients w