. >> reporter: for as many doctors as jadeen rogers has visited, you would think somebody would help him. >> people don't get it that mainly because they don't know heard of it. >> reporter: three years ago his parents noticed spots on his skin were hardening. >> almost if you took your finger and tapped on his arm it would -- almost like tapping on a counter top, on a hard surface. >> reporter: the spots have spread to his legs, back and hips and it has made walking difficult. >> he just matter-of-factly says i need a wheelchair and i was just -- >> he said my legs don't work anymore, i need a wheelchair. >> reporter: doctors eventually syndrome. >> it is kind of outrageous sounding when you say, you know, a boy turning to stone. people can't get that through their mind and that's basically what's happening. >> and this hip area looks the same to me. >> reporter: with every passing day the symptoms get worse. i don't even if he can even describe how it feels. >> reporter: there is no cure and really no treatment. >> i kind of exhausted the medical library in terms of trying to find