we're joined now by filmmaker jennifer brea, and by dr charles shepherd, a medical adviser to the me ng? it's still really up and down, iam really lucky shocking? it's still really up and down, i am really lucky to no longer be bedridden but i still have days when i can be stuck in bed. you're sitting like that because it is comfortable? yeah, a lot of the ball with m he have a condition where the blood basically stays in your feet which is why i am sitting like that. you've been involved with the making of this film — why was it so necessary to document and we well, i think the film in particular is so important, because it's raising awareness firstly of the condition. i'm sure you've heard of me but many people might be not quite sure what it is, and i think the most important part of this particular film is that it's raising awareness not just amongst the population, film is that it's raising awareness notjust amongst the population, but also amongst the medical profession. 2596 also amongst the medical profession. 25% of people with this illness have the severe form which keeps th