emily: 411 years, jesse rivera has lived with a tube in his throat to help him breathe after his trachea collapsed. as he grew only solution to a large tong blocking his airway when he sleeps. >> jesse sleeps like a wild man. always tossing and turning. emily: jessica would check on him every cheat of hours. he had to be careful to keep this clean and dry, meaning no waterslides. >> i can' t let the water hit he can drown automatically. emily: they have of procedures. >> we tried removing his tonsils and add noise. we tried tong waste -- tongue -based shrinking procedures. emily: approved by the fda for adults and 2014, it is a pacemaker like device that >> through a little incision in the neck, it goes around and moves the tongue musculature forward. flowing. jesse is part of a group testing the safety in groups with downs. >> the goal will be to see if he has sleep apnea. emily: tonight on "chronicle," we are therefore the crucial follow-up visit. that is tonight at 7:30 p.m. on channel 5. i' m emily riemer, wcvb newscenter 5. jc: -- phil: we will deftly be watching for that. newscente