>>eporter: jkson is lucky. because ma parents would not have given him t tt chance. it hasn't been easy. a lot of his treatments, including that trip to boston, are not covered by insurance. they've had to resort to a % gofundme campaign which is covering most of their bills for w. >> everyecision that we have ever made for him have been about his happiness, his comfort, no matter what that meant and no matter what the cost. >> i feel like jackson's doing so well and can teach the medical world so much. >> and we realize that jackson's fe has purpos whether you areeaith b bed or whether you just are scientific and want to see more about dicine, learn more about the human brain. and at the same time we realize the reality of jackson. that we're -- wre probably going to ouive hihi there is a a excellent chance of that. we're just trying to give him the best life possible. >> knowing it might be a short one. >> we realize that. so every day is precious. reporter: ordinary people struggling with an extraordinary burden. d doing itith love. i'm dadad wright for "nightline

federal records act - federal law - is crystal clear on how correspondence is to be retainededlisa j jkson, . . . the e-p-a administrator from 2009 to 2013, . . . used the fake name "richard windsor" for her email. this was likely to avoid complying another federal law - the foiaia act. jackson wasn't even the first head of the e-p-a to do so. elizabeth browner started the practice under president bill clinton.republicans have gotten into the act, too. karl rove, . . . political advisor and deputy chihi of staff to president george w. bush, . . .was caught using 28 news at ni previously on "two and a half men"... hi, charlie. you should know that i didn't come over to ruin your date. really? why did you come over? to tell you that i'm getting married. today's the big day, huh? oh, please. there's no wedding. would itake a differenceo you knowing that cute little face will never pop up over that railing again?