jude sullivan peters, he's not quite two years old yet, but he is a miracle baby. for his parents, hannah and sully peters. you see he has rcdp. that is an extremely rare condition. it's risomelic conned roh very rare lethal form of dwarfism. most parents when they are given that diagnosis for their child, they're told that their child may not live to one years old. >> that's got to be the worst bit of news you can get as a parent. >> exactly, his parents are encouraged and call him their brave little warrior, because he is nearly two years old now. >> this song was written to raise awareness, they say there are 53 children that have this disease worldwide. while this is one of the rarest of rare diseases they have hope, because there is an alzheimer's treatment for this. so families of children with rcdp want people to know about this and raise money. because it has been approved by the fda. but they need funding to get it. >> i love all the pictures, he's so handsome. >> i like his cute little glasses. >> they're living every single day to its most. >> absolutely