around the world sufferers like liza are known as butterfly children however in russia it's as if they don't exist write your cookbook when the doctors simply don't know if it is ease and when you tell them what it is they might have heard of it but they're going know how to deal with it she knew liza is only five when she already knows her diagnosis better than any doctor her mother knows there is no cure with proper medication her daughter could lead an almost normal life but it's way too expensive. it's such a rare disease that it's pretty much been forgotten about there's no streets the court to there's no money and no specialists. yelled one of those a dermatologist and admits she's become a specialist by default no one else is dealing with patients but the mothers say her advice can conflict with what they've learned from abroad looking for well it's a very complex disease with so few patients suffering from it any doctor that would take it up would have to become a very narrow specialist i myself i'm tied up in many other places so i don't have much time for these patients. two

liza has a rare genetic condition a bitter mole this is bulldozer or that makes her skin less than as a butterfly when a slight touch or a hug can cause painful blistering that takes a long time to heal leaving the skin even more fragile. around the world sufferers like lisa are known as butterfly children however in russia it's as if they don't exist write your book when the doctors simply don't know of the disease and when you tell them what it is they might have heard of it but they don't know how to deal with it she knew lisa was only five but she already knows her diagnosis better than any doctor her mother knows there is no cure with proper medication her daughter could lead an almost normal life but it's way too expensive why isn't it such a rare disease that it's pretty much been forgotten about there's no states that put to there's no money and no specialists. general manager is a dermatologist and admits she's become a specialist by default no one else is dealing with patients but the mothers say her advice can conflict with what they've learned from abroad. so well it's a v

for liza she bravely takes on life with a smile despite her deteriorating state as a sign of trust she told me her biggest dream then maybe few children with this disease in russia but each of them needs all the support they can get they may have learned to live with their condition but just like liza they'll dream of one day waking up to a life without paying. r.t. moscow twenty three minutes past the hour here in the russian capital of about with some of our main news that is the news next with kareena. good evening from moscow and welcome to our business books and good to have you with me ratings agencies playing hardball with greece standard and poor's say they would consider a plan by french banks to roll over privately held greek bonds as a default french banks the biggest holders of greek sovereign debt have proposed to renew bonds when they mature cooper from b.b.c. partners says a bailout is not the answer you can overcome reform is the key to its financial health. if you look at the amounts of debt that greece has you've already had one hundred ten billion bailout package rem

for liza she bravely takes on life with a smile despite her deteriorating state as a sign of trust she told me her biggest dream there may be few children with this disease in russia but each of them needs all the support they can get they may have learned to live with their condition just like elisa the old ream of one day waking up to a life without being very a pushover r.t. moscow well actually our line here our main top stories here in r.t. before that will take a look at what's happening in the world of business. hello and a very warm welcome to the business update of the russian backed north stream gas microchip has been hit by a problem a german court has suspended construction of a pipeline which would connect it with the european gas network people in the german tone of the book claim the pipeline is not secure enough freeman are considering an alternative for it and was believed it's not a big problem but they may be other similar interests. now have a look at the markets oil is lower the sollie international energy agency says its release of strategic oil reserves is workin

sources tell us that more work must be dented by liza may be a new 10 year deal.till possible the players could vote as a -- could vote as soon as tomorrow. >>> a new lawsuit names riddell after a hit by 49er kena turner, anderson says he was never the same. they say they know about concussions that hit the effects. >>> one bay area teen got the opportunity of a lifetime. >> reporter: one year ago he was on his deathbed by today he stood on the pitching mound at at&t park. he threw out the ceremonial first pitch this afternoon paper waste, the stories about how fun took a year. it began when he was 15 feet under is told the boy he had severe liver failure and would be dead than less than a week. >> how is it possible that i -- you know, my life was already over. >> reporter: and then with time running out a suitable dugger became available from a sacramento man. >> reporter: up in the stands up on stow's family watched their son the fields -- alfonso's family watched their son on the field could he says he would like to serve as an ambassador to the transplant/don

area which is believed to be on the regulated cross border disputes between parents in the case of liza billing who was abducted and taken across international borders by her own parents we times a russian poorly gave custody to the girl's mother the french authorities to the father's side cases like this it usually takes the efforts of diplomats on both sides to reach an amicable deal between the two parties. you mentioned. italy that you have in your two years ago oh your country some other countries that you're working with today we started to walk. on this issue starting for risk years which we look to. just so you. know how. fresh republic is almost through and i hope it will be signed. probably an experience. where we can agree with israel because israel. has a practice to the ford option made russian to the e.u. spin which is norwegian with feel and love you work with them. with a great deal of agency with a great deal of cases in many countries but the most cases the most tragic cases that we hear about in the news the news comes from america how would you explain this regularit

area which is believed to be on the regulated cross border disputes between parents in the case of liza being who was abducted and taken across international waters by her own parents three times a russian porn gave custody to the girl's mother well the french authorities to the father's side in cases like this it usually takes the efforts of diplomats on both sides to reach an amicable deal between the two parties. you mentioned agreements with italy their charter and usually two years ago it's el european country some other countries that you're working with today we started to walk. is. starting to form whiskeys which we look to. just so you. remained with the french republic almost through and i hope it will be signed. probably next spring. where we can agree mint was in israel because israel. has a bricked is to the ford option many russian children a huge speech in which is norwegian we feel and love you work with. with a great deal of agency with a great deal of cases in many countries but the most cases the most tragic cases that we hear about in the news the news comes from ame

liza's. lose. weight play games little children i am sorry little children will be protected this time from human greed and i'm finally home country. yet your family if you am to be fit to come and i'm coming over here. with a mind that i can be able to find work for me to come and for my the current president is not crazy there are a number of years for think they're gambling our children to destroy their work to get her during her visit my. family. are going to sleep here and are going. to. sleep. it's. never the right down to sleep to. be anything keeping her back to me is community happy if mantling needs to be. once these lessons are gone there is no more of a life. there is no more with the game it don't grow back it's not going back i mean you know we had a politician get up on saving up and go he said well the reason that jan saying it's being extinct because the deer are in. order bought this thousand acres. that's not a solid rock now process talk or move a coal mine is an awesome display

to get to liza's. and. see. the sleet and plumes the. way he played these little children i am sorry little children will be protected this night from treatment or your family can grant me. a family and do a damn good people become real or not come we are going to marry then they might. again be able to benefit from every car every item or parent comes from a pair of pants or there are a number of years to forsake their family our children to destroy your reaction lowered. and such you. require a place. we're going to take your hard earned money. sleep. to slug. sleep. it's. never played out my family's september. let me need to keep moving her desperate techniques community map if dismantling the community. once these lessons are gone there is no more of a life. there is no more west virginia it don't grow back it's not going come back i mean you know we had a politician get up on tavi not long ago he said well the reason the d.n.c. saying it's going extinct cost the deer are in. order to styles and. that's not the garage sale process m

seems the number of suffering children is far greater than the previously estimated one hundred as for liza she bravely takes on life with a smile despite her deteriorating state as a sign of trust she told me her biggest dream then maybe a few children with this disease in russia but each of them needs all the support they can get they may have learned to live with their condition but just like the old dream of one day waking up to a life without paying. they federation of american scientists. which is. a federation of america. thank you very much for joining me. for what i understand. of this study a couple of months ago to look into. what might be behind concerns so. russia's ideologically opposed to middle missile defense we wanted to see if there's actual technical concerns what we found is the phase adoptive approach to missile defense is broken up into two parts number one and number two where the low potency interceptors the block one interceptors are on line phases three and four where the higher speed interceptors will be brought online and our analysis shows if the system is reco

for liza she bravely takes on life with a smile despite her deteriorating state as a sign of trust she told me her biggest dream there may be few children with this disease in russia but each of them needs all the support they can get they may have learned to live with their condition but just like the old ream of one day waking up to life without paying. r.t. moscow. when i'll be back with news stories about. the federation of american scientists about the proposed missile shield in europe which is driving a wedge between moscow and washington. a federation of america. report that looks. very much for joining. the study a couple of months ago to look into the technical side of what might be behind russia's concerns so. in the west has been russia's ideologically opposed to middle missile defense but we wanted to see if there's actual technical concerns what we found is that the phase adoptive approach to missile defense is broken up into two parts number one and number two where that low interceptors the block one interceptors are on line. three and four where the higher speed interce

for liza she bravely takes on life with a smile despite her deteriorating state as a sign of trust she told me her biggest dream then maybe a few children with this disease in russia but each of them needs all the support they can get they may have learned to live with their condition but just like the old dream of one day waking up to a life without paying. federation of american scientists that proposed. well she's driving a wedge between moscow and washington. the federation of american scientists come up with a report that russia's concerns and i'm joined by. thank you very much for joining me. for what i understand russians are not against. the more advanced and the more capable ones could you expand on that well we started this study a couple of months ago to look into the technical side of what might be behind russia's concerns so. the narrative in the west has been that russia is ideologically opposed to meddle missile defense but we wanted to see if there's actual technical concerns what we found is that the phase adoptive approach to missile defense is broken up into two part

for liza she bravely takes on life with a smile despite her deteriorating state as a sign of trust she told me her biggest dream there may be few children with this disease in russia but each of them needs all the support they can get they may have learned to live with their condition but just like lisa the old dream of one day waking up to a life without paying. r.t. moscow what time now for a business of day two of us stay with us. hello that's right time for your business update everyone welcome the russian backed north stream gas supply project has hit a problem a german court has suspended construction of a pipeline which would connect it with the you are pm gas network people in the german town of luna both claim the pipeline is not secure enough stream are now considering an alternative approach and there's believe it's not a big problem but there may be other similar objections. time for a quick check on the markets oil is slower to solve the international energy agency says its release of strategic bird reserves is porking the decision came last month in order to compensate fo

them needs all the support they can get they may have learned to live with their condition just like liza they old remark one day waking up to a life without paying. r.t. moscow. i'll be back to having our top stories in just a few minutes before the other will take a look what's happening in the world of business. that's right time for your business updated very welcome russia's transport minister has come up with a radical plan for the country's infrastructure and he wants to see all state owned transport companies privatized whether it goes the entire company or just a bit the russian government owns most of the country's transport companies a few airlines pull certain airports the minister says he realizes they can't all be sold off once and we'll leave it to the state to decide which stake in each company should be hived up some of the assets have been up for sale for years the government is still looking for it to sell its blocking stake in their seven russia's third biggest air like. transport related news russia's car market may end this year with a staggering forty two percent gr

well, liza minelli who is an old mate of mine in the south of france who said, you've got to come and. for 2 1/2 hours i had heard one of the best performances as i've ever heard. and he ended up doing the music of the night. i'll never pre-judge anything. you can never tell. >> who of all the performers you had, if you could relive one moment live again that you've experienced of all these shows, all the opening nights and everything, which one sticks most in your memory? >> it's difficult, really. i suppose, funny enough, "memory" on broadway was an extraordinary moment on the the first night there when betty buckley did it. the big moment when he gets to touch me. ♪ the whole audience applauded. just across it. >> wow. what were you thinking when that happened? >> i did think that's fairly extraordinary. robert stigwood, people remember, used to manage me. he ran down the aisle and said, andrew, you've done it. that was a great moment. now people run the other way. >> that leads me neatly to the irresistibility to women. what do you put this down to? you've had a series of beautifu

ford said in a longtime -- alongside liza minnelli and liza minnelli at studio 54. the next one shows mrs. ford, that she was quite the denser and loved to do so. those pictures are all found in "the washington post"this morning. we're talking about the passing of betty ford died yesterday. we are taking your comments and tweets on the subject. new york, republican line, go ahead. caller: good morning. i want to say a few things. i thought betty ford was very innovative and incredibly supportive and showed great allegiance to her husband. she was the epitome -- when she had her addictions so much in the newspapers, starting the betty ford clinic, and talking about her diseases was quite amazing. she had a great family. i am sure you are aware that they have a dedication to a statue in the great rotunda in washington to gerald ford. susan ford spoke for the family and i almost had tears in my eyes listening to her. the family was amazing. host: from twitter this morning -- the next call comes from washington, d.c., independent line. caller: i want to make a quick com

liza minnelli. >> it seems like everyone has sung the songs of jimmy webb. >> linda ronstadt, way lonoferson, joe cocker. a few big names in there. >> and he had a few big songs in there, songs that dominated the charts back then and are considered classics today. ♪ didn't we >> do you remember first song you wrote? here's how precocious jimmy webb was. his first song, which he wrote when he was 12... ♪ it's someone else i've known it all the time ♪ >> was later recorded by art garfunkel. ♪ webb wrote that song growing up in oklahoma. his father was baptist preacher. jimmy played piano in church. when he was 18, his family moved to southern california. a year later his mother died and his father decided to return to the midwest. but as he told an audience at new york university, jimmy informed his dad he wasn't going back. >> he had $44 in his pocket and he said, i can't believe you're doing this to me, son, and he handed me all his monoand got in the car and drove off. >> young jimmy made the rounds of the l.a. music industry. his sheet music shoved in a paper bag. his first sale to

los chicos son: la cantante cubana liza, miren quÉ guapa, rocÍo de perÚ, tambiÉn tenemos a...que es boricua..o aleve. la medicina en advil es... número uno recomendada por médicos para dolores de articulaciones. no hay mejor alivio que éste. advil. >> ¡muy buenos dÍas! hoy es martes 12 de julio del 2011. un saludo muy especial en la ciudad de las vegas, donde la pasamos muy mal, [risas] >> lo que pasa en despierta amÉrica lo sabe el mundo entero. muchas gracias a angÉlica vale por acompaÑarnos en el dÍa de hoy en despierta amÉrica. [ aplausos ] >> raÚl estÁ en una asignaciÓn especial y chiqui estÁ de vacaciones. y yo quiero enviarle unos saludos a una sra. que estÁ en el hospital florida, baena, que estÁ en el 204. un saludo muy grande para ella. acaba de ser operada. gracias a su hija! ella no creÍa que su hija me escribía en el twitt y que yo se los respondÍa. >> puedo mandar un beso a mi hermana? >> sÍ. >> un saludo a mi hermana lourdes. >> no se dice la edad? >> es la grande! [risas] >> sÉ discreta con eso. >> esta historia es insÓlita. un niÑo se cayÓ en un pozo de 40 metros en ohio. e

liza in texas looking pretty good. nice texas beaches and a beer.temps as you're waking up. into the 80's all over the central plains towards the northeast and heat ind seize over 100. and the satellite radar pictures, showers across the southeast, it's hot and humid, as the day heats up we'll see scattered showers and some severe across the northern plains and around the great lakes for the day today and across the west we'll be dealing with moisture moving into the four corner states over the next few days, all right, i think we're sending it to dave with home depot. >> rock, paper scissors and who came out here, and i lost and i'm stuck with dave white. i'm kidding. he'll give you great advice how to improve the value of your home in the horrible market with a couple of paints and it's easy. >> you can get professional if you do it right. first, dave, pick your color. >> color blind. >> once you do, you go into the store and ask you basic questions, exterior or interior, the sheen, not m martin or charlie-- painting! so what that means is how glo