getting word out about lupus at dilworth plaza as philadelphia observes world lupus day. >> we have a lot of work to do. we have too many people, battling symptoms of lupus without a proper diagnosis. >> reporter: lupus is a cruel mystery because so little is known about the auto immune disease that ravages different parts of the body. >> what i get from everyone is that you do not the look sick, but you are not sick, it effects everyone differently. >> reporter: twenty-four year-old scott was diagnosed with lupus at eight. since then he has had seer us of medical problems but was always surrounded by family and friend trying to put a happy face on a nasty situation. >> this is a devastating disease. although some people can live with this for the rest of their lives, some people can't. many people lose their lives to this disease. many people lose their lives at young ages. >> reporter: to save her son's life betty ann donated a kidney, scott has been barely surviving on dialysis this fist lah was created in his arm for his treatments. transplant in october was a game changer. >> i w

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may is lupus aware month. there are several events planned to raise awareness and help people learn more about the condition. to tell us more about it, annette, ceo of the philadelphia chapter of the lupus foundation. thank you for being here. this is such a devastating disease. what exactly is lupus? >> an autoimmune disease. normally, your immune protects you from things like bacteria and viruses. and when someone gets lupus, the immune system gets out of balance. instead of protecting you, the body attacks itself. so antibodies are made, they build up and result in inflammation, and that can potentially damage or destroy parts of the body, organs, heart, lungs, brain, kidneys, skin, joints, blood. any part of the body is a potential target. >> is it genetic in any way? >> there's certainly a genetic componeabout. we see certain populations affected more often. we know there's a hormonal connection because 90% of cases are women in their child bearing years and there are environmental triggers. the sun, for

i know you are doing a lot of work on lupus for example. anne: we are working on lupus with pfizer.e doing a number of partnerships with pharma companies. lupus, inflammatory bowel disease, parkinson's is a big initiative. we are about to launch a few others. emily: are you going to do human testing yourself here? anne: what we want to do and what we've learned with pharma is pharma will react best if we come to them with a target or a compound with some clinical background, some data about how that's functioning. there is a higher likelihood of success, if we can come with that level of information and help move that forward. emily: so that means you would do human testing here? anne: not physically right here. we would start doing some of our own clinical research for sure. emily: there is competition out there. ancestry.com does some similar things. they have a partnership with calico, which is google's project to end death or cure death. do you see google and calico as competition? anne: no. everything we do here is focused on genetics and engaging the consumer and making really

speaker, for a future with no lupus, we must know lupus. thank you, mr. speaker. back the balance of my time. the speaker pro tempore: the gentlelady yields back. for what purpose does the gentleman from rhode island seek recognition? mr. cicilline: i ask unanimous consent to address the house for one minute. the speaker pro tempore: without objection. mr. cicilline: this is national nurse's week. it's a time to honor nurses who are primary providers of patient care in hospitals. nurses are offering essential life-saving treatments for patients. they encounter and overcome challenges most of us will never face. honoring the importance of nurses is important for me on a personal level. my career was a proud nurse at st. joseph's in providence, rhode island, for many years. et's honor her nurses by supporting the bill i'm proud to co-sponsor to establish whistleblower protections, improve nurse retention and make hospitals safer for nurses an their patients. i'm honored to recognize national nurse's week and thank all america's great nurses for all that they do. the

this was a rally for lupus month.al experts say awareness and understanding of lupus is essential to improving the diagnoses of the disease and finding a cure. lupus ravages different parts of the body and has no known cause. >> a touching new exhibit in newtown bucks county shrining the light on international children who are living in poverty. it's a 2,000 square foot interactive exhibit at grace point. compassion international shows the difficult daily struggles of kids in the philippines kenya ugandan the dominican republic. >>> it will tug at your heart strings but it does leave you at the end with a feeling of hope. >> much more still to come on "action news" tonight. in health check it is fitness friday. >> a new program created in philadelphia giving those with parkinson's a fighting chance. ali gorman explains the science behind it when "action news" comes right back. >> ♪ >> health check tonight it is fitness friday. exercise of course good for just about everybody but for some folks it may help slow the pro

prolonged period, that's called chronic paining tight its, and typically things such as cystic fibrosis, lupus, a lot of high tri-glycerides. some people have tri-glycerides in the 800 and 900. those are the risks along with gallstones and alcohol use. >> dr. siegel, i know you said it can be treated, but what if the pain is really not significant. i'm just take a nap. ride it out. take some aspirin or something, i don't know. what happens if you don't treat it over a period of tame in. >> that's a great point, because the symptoms we're talking about can be vague. it doesn't have to be on the left. can be in the center and be bloating. may not even have pain at all. you may just not feel right. over time if this is not created it can lead to chronic pancreatitis which is a huge, huge problem where your pancreas stops making enzymes and you end up having to replace them and put you on a low fat diet. pancreas is one of the most important organs in the body. >> only have one. >> a big organ. >> i also want to mention it also makes insulin. not the part of the pancreas we're talking about. if yo

lupus foundation dmv thanks you. >> absolutelabsolutely. >> there's look for more time. . you guys look amazing.zi >> don't they. t >> i'm telling >> come out and support this sut worthy cause tonight.wohy c >> guys, back over to you in thn studio. >> all right.ight >>> 10:35 is the time.>>> still ahead, can you feel itt friends? can you feel it? there's a will he end in oure d presence. r and b super star melba mooreem is here. hey, she's perform agnew song next. ne ♪ ♪ ♪ ♪ ♪ it's my time again ♪ ♪ (applause). >> good to see you. y come on over and hang out with t us for a moment.. come on over.. how you been.ee >> good morning.>> good rnin >> good morning to you.d morng o >> welcome to the loft. l >> good morning >> how have you been? b >> really really really well. wl >> you got new album. aum. >> new album called foreverorev moore. i do have little cold thise cd morning. >> oh wow you wouldn't know. kw >> you still performing likeike that. that >> yes. >> still got that his note in ta you. >> the high notes.he higotes >> even with the cold. e >> that's my resting place

because symptoms of lyme disease can mimic so many others, multiple sclerosis, fibromyalgia, crohn's, lupust that great. what does sensitivity mean? it's picking up the number of true positives. all that says is there are a significant proportion of patients who are going to test negative when they do the blood test, which is currently the have the disease. so if you hang your hat on that and you're going to tell people they don't have the disease. >> but it's not a case of just getting a second opinion because it could be multiple times. >> exactly. and i think the question, ally, what i find so fascinating and i can't wait to hear about what happened when you were diagnosed and how you were then treated, is that you have these repeatedly negative tests. so i can understand why health care professionals would be reluctant to treat empirically, let's say, okay, let's just give you a month of this antibiotic or what not. because if it's not it, of course you can have side effects from the treatment. >> so ally, people must have thought it was in your head, nothing was working. when did they

. >> reporter: miss cotton credits her positive outlook with helping her beat her battle with lupus.dn't want to stay sick. i had some things i needed to do. >> reporter: her positive vibe with keeping the customers coming. >> we don't gossip in this room. we try to up lift and shed lig light. >> reporter: today we're shedding light on simply straight. >> everybody wants to know if it really works or not. >> reporter: device which combines the power of a flat iron and the styling ability of a brush. unlike -- >> i'm using tradition flat iron. >> reporter: her cotton tress which uses heat and search oils. >> if she doesn't wash her hair it will stay up for a month. i wouldn't suggest that she probably lose friends. >> reporter: simply straight is meant to be used only on clean dry hair. >> we going to have to see about this, steve. >> reporter: plug it in. >> it's going up. >> reporter: heat it up. >> 450-degree right here. >> reporter: and brush. >> now that's pretty good for a brush. especially for the first pass through. >> reporter: what's not so great are the ends. >> there's no