. >> sreenivasan: former university of oregon president dave frohnmayer and his wife lynn have lost tworen to fanconi anemia, and a 27-year- old daughter is now fighting the deadly disease. both families have created and helped fund research organizations-- the only two in the united states for fanconi anemia. and during tomorrow's rose bowl every time a team scores a touchdown, their respective research organizations will receive a donation. it's just one example of high- profile individuals combating under-funded diseases. among others: former n.f.l. quarterback boomer esiason has a foundation that helps those with cystic fibrosis. so how do people afflicted with the rare disease manage to fund medical search, track down specialist or find treatment regimens and how much can a national stage like the rose bowl game help draw attention to the cause? i'm joined by lynn frohnmayer and david frohnmayer co-founders of the fanconi anemia research fund they started in 1989 after their children's fanconi anemia was diagnosed. and dr. marshall summar, chief of division of genetics and metaboli