mark connolly, baltimore city council member, i really appreciate you taking the time to join us to discusss bbc news. voice-over: bringing you different stories i from across the uk. during lockdown, tamara ward, who lives in middle barton, couldn't visit her nephew dominic. it inspired her to organise the run 5k every day in may for dravet challenge. hundreds of people have completed the fundraising runs, sometimes joining tamara and her family. it's a massive commitment and everyone that's said to me, the team were like, "oh, it's your third year. "it's easy for you." i was like, "no, because i know what's coming! "it's worse for me!" but what's really nice about it is someone gets an injury or they've been ill for two days, the rest of the team will pick up their kilometres so, as a team, it was really amazing. goglia wilson's son also has dravet syndrome. she's now chair of a national charity, supporting families. £240,000 has already been raised. it will help families across the uk affected by the syndrome. for more stories from across the uk, head to the bbc news website. you're live