. >> alena regularly visits the children's hospital at montefiore. >> what our program does is it teacheshildren about their illness and about the procedures that they'll have while they're in the hospital and how to cope with any pain and anxiety they might encounter while they're here. and without the support of children's miracle network hospitals, we wouldn't be able to maintain that program. >> alena's been part of the hospital's child life program since she was 3. that's when her family realized she was sick. >> you don't expect that you're gonna hear news that this little thriving little kid probably wouldn't make it through her 25th birthday. >> the disease affected alena's ability to grow and move around. >> when i was little, when i didn't get the enzyme treatment, i wasn't able to reach my arms high. but now i can make my arms go high. and i couldn't run as fast. but it hasn't affected me anyway. i could just do what any normal child could do. >> and that's given her something to sing about. >> ♪ raindrops on roses and whiskers on kittens ♪ ♪ bright copper kettles and warm wool